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Episodio 21: Gloria Amparo Guzmán y Su Hija Gloria de 39 Años, Desde Colombia
Gloria Amparo Guzmán es madre de Gloria Isabel, quien tiene 39 años y diagnosticada con Syngap1. Originarias de Cali, Colombia, Gloria nos habla sobre los desafíos y retos que ha enfrentado a lo largo de los años. También nos muestra su valentía y firmeza en la búsqueda del bienestar de su hija, siempre con la sonrisa que la caracteriza, enfrentando así las dificultades.
Bio de Merlina
Información sobre SRF & SYNGAP1:
Syngap Research Fund
Que es SYNGAP1?
Recursos en Español
Donaciones: https://syngap.fund/Donate
SYNGAP1 & Epilepsia
Porque es Importante Obtener un Diagnóstico Genético
Cómo Obtener Pruebas Genéticas Gratuitas en EEUU
Planificación Financiera Futura para las Personas con Discapacidades
Comentarios: [email protected]
Conéctate con SRF (@curesyngap1):
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SYNGAP10 Video Podcast Semanal con Mike
Episodio 21 Café SYNGAP1, Noviembre 7, 2024
#CafeSYNGAP1 #Syngap #SYNGAP1 #CafeSYNGAP1Gloria #epilepsia #epilepsy #epilepsyawareness #autismo #autismawareness #discapacidadintelectual #id #enfermedadesraras #FondodeInvestigacionSYNGAP #SynGAPResearchFund #abogacia #defensadelpaciente #advocacy #patientadvocacy #neurologia #pruebasgeneticas #terapias #familia #apoyo
by
Café Syngap1
November 7, 2024
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480 – Addressing Rural Health Gaps: NRHA and Remote Care
In this episode of Talking HealthTech, host Peter Birch speaks with Aileen Lai, the CEO of HealthBeats, Susi Tegen from the National Rural Health Alliance (NRHA), and Melanie Molluso from Echuca Regional Health. They explore the challenges of rural healthcare in Australia, the impact of technology such as remote monitoring, and the evolving role of nurse practitioners. This episode was recorded during the 17th National Rural Health Conference in Perth, Australia, and captures key conversations on rural healthcare needs and solutions.Key TakeawaysRural Healthcare Challenges: Many rural Australians face significant gaps in healthcare access, resulting in poor health outcomes. Enhancing support and leveraging technology can improve these conditions.Project Implementation: Despite initial resistance, projects focusing on remote monitoring show positive patient impact, leading to broader staff buy-in.Nurse Practitioners' Role: Nurse practitioners can bridge healthcare gaps in rural areas by prescribing medication, ordering tests, and collaborating with remote consultants.Patient Education: Educating patients on managing conditions like diabetes and heart failure empowers them to take control of their health, reducing hospital visits.Technology's Role: Remote patient monitoring and telehealth are crucial for providing continuous care, especially in areas lacking specialists.Government and Industry Collaboration: Effective rural health care requires backing from the government and industry, highlighting the need for collaborative and innovative approaches to funding and resource allocation. Check out the episode and full show notes on the Talking HealthTech website. Loving the show? Leave us a review, and share it with someone who might get some value from it. Keen to take your healthtech to the next level? Become a THT+ Member for access to our online community forum, meet ups, special offers and more exclusive content. For more information visit talkinghealthtech.com/thtplus
November 7, 2024
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Episode 62 – Tammy Klotz
Tammy Klotz is a highly accomplished cybersecurity executive leader with over 30 years of experience in the field. Here are a few highlights about her:She is a Chief Information Security Officer (CISO), a Certified Information Systems Security Professional (CISSP), and is Certified in Risk and Information Systems Control (CRISC);She was awarded the 2022 'Covanta Leadership Award' and named a Top 100 CISO by Cyber Defense Magazine in 2023;She is the author of 'Leading with Empathy & Grace' (see Amazon link below); and,She has expertise in building high-performing teams, embracing empathy and grace in the corporate world, and developing resilience as a single mother, daughter, and partner.In this episode, Tammy and I chatted about:Her leadership roles Her leadership style Her leadership journey The leaders that helped her rise The challenges she faced on her journey How she navigated those challenges How she thinks you can become a strong and kind leader Her ‘take home’ leadership messages for the listeners, and What she is currently excited to be working on.Tammy can be found and contacted via the following online platform addresses:LinkedIn: https://www.linkedin.com/in/tammyklotz/'Leading with Empathy and Grace': https://www.amazon.com/Leading-Empathy-Grace-Developing-Performing/dp/1950336573/ref=sr_1_1?crid=89R60ZSIF08K&dib=eyJ2IjoiMSJ9.S1QtpoO2Zxp48z19sr0o2cSqAraubuMEwXVZgJKzIh4-QOFUtt-CGSnaZ7rN49aEmGWC4upYPARs92MgOuuHql8_v-zFzX_yYU60YMbnp7UIPddhCNYRnSoz1RCIS8-pSrsVj4H5KMk9rpTgyO3WtEvZvD4mwcSwk6nb-nY3AX6M9waovQa3s-FhRtOv2BSSlJTOShJdqJOpUCM9Y6kh_gakF0yLa3rak5RX6J5UybU.74FwhLAlPGPECxqY9j4Zy1zj9zwYlNGKx2_mTXukyLM&dib_tag=se&keywords=leading+with+empathy+and+grace+book&qid=1730977510&sprefix=leading+with+empathy+and+%2Caps%2C399&sr=8-1Please reach out to Dr Harrison for individual coaching and/or organisational training via [email protected] web address and social media profile links / handles include:www.dradamharrison.comhttps://www.linkedin.com/in/dradamharrison/www.youtube.com/c/DrAdamPhysicianCoachhttps://www.facebook.com/coachingmentoringdoctors/https://www.instagram.com/dradamharrison/
November 7, 2024
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Inflammation and Cardiometabolic Disease Edition: Type 2 Diabetes as an Inflammatory Disease
Host: Darryl S. Chutka, M.D. [@chutkaMD]
Guest: Vinaya Simha, M.B.B.S., M.D.
Type 2 Diabetes is a commonly seen condition in a general medical practice. It’s estimated that over 38 million adults have the disease. When we think of diabetes, we think of a metabolic condition with patients who have hyperglycemia, often overweight, and occasionally have renal, eye and/or neurologic complications. But, do we ever think of diabetes as an inflammatory disease? How is inflammation associated with diabetes? What are the mediators of inflammation in diabetics and when we treat diabetes, are we reducing the associated inflammation in addition to lowering blood glucose? These are questions I’ll be asking our guest, Vinaya Simha, M.B.B.S., M.D., from the Division of Endocrinology and Metabolic Disease at the Mayo Clinic as we discuss “Type 2 Diabetes as an Inflammatory Disease”.
These talks on Inflammation and Cardiometabolic Disease are sponsored by Novo Nordisk
Learn more about this series HERE
Connect with the Mayo Clinic’s School of Continuous Professional Development online at https://ce.mayo.edu/ or on Twitter @MayoMedEd.
November 7, 2024
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Episode 174; Rural Health Road Trip: The Pelican State
Rural healthcare is much the same and also very different from state to state across the country. State rural healthcare associations, hospital associations, and offices of rural health all tackle issues that support hospitals and healthcare providers' ability to provide care in tier communities.
On this week's episode, hosts JJ and Rachel speak with Denae Hebert, Executive Director at Louisiana Rural Health Association.
Follow Rural Health Rising on Twitter!
https://twitter.com/ruralhealthpod
https://twitter.com/hillsdaleCEOJJ
https://twitter.com/ruralhealthrach
Follow Hillsdale Hospital on social media!
https://www.facebook.com/hillsdalehospital
https://www.twitter.com/hillsdalehosp
https://www.linkedin.com/company/hillsdale-community-health-center
https://www.instagram.com/hillsdalehospital/
Audio Engineering & Original Music by Kenji Ulmer
https://www.kenjiulmer.com/
November 7, 2024
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Keynote: Crisis Management, Burnout, and Innovation vs. Recklessness with Joel Klein
November 7, 2024: Joel Klein, SVP and CIO of the University of Maryland Medical System, discusses the intricate intersection of clinical experience and executive IT leadership. How can lessons learned from crisis management in the ER inform the high-stakes world of IT infrastructure, cybersecurity, and system-wide initiatives? Dr. Klein shares candid insights on the challenges of integrating innovation while addressing clinician burnout and navigating the demands of an aging population. With reflections ranging from lessons borrowed from aviation to balancing telemedicine capabilities, Dr. Klein’s story highlights the delicate art of empowering healthcare teams and embracing change.Key Points:06:54 Managing Crisis and Team Leadership14:50 Balancing Innovation and Practicality20:12 Addressing Clinician Burnout29:29 Workforce Development and Training33:49 Personal Interests and the Lightning RoundSubscribe: This Week HealthTwitter: This Week HealthLinkedIn: Week HealthDonate: Alex’s Lemonade Stand: Foundation for Childhood Cancer
November 7, 2024
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Post Election Blues & Reds
In this episode, Ben reflects on the recent US Presidential Election and its implications for democracy and global health. Key points discussed include:
Democracy in Action: The election showcased the importance of daily democratic engagement in a divided country.
Transition Team Priorities: The new administration must focus on health, including rebuilding trust in medical science, pandemic preparedness, and funding frontline services.
Global Risks: The triple threats of pandemics, climate change, and conflict pose unprecedented risks to our way of life.
AIDS Response: Concerns about the US investment in PEPFAR and the Global Fund, and the need for shared global responsibility to end AIDS.
Future of AIDS Response: Plans to launch a dedicated podcast series addressing the long-term AIDS response post-2030, costs, and protecting vulnerable communities.
Digital Technology's Role: The significant impact of digital technology and social media on our lives and the need to understand and utilize them effectively.
Call to Action: Join Ben, Eric, and the team on this essential journey. Stay tuned for ways to get involved and support their mission.
Subscribe: www.youtube.com/@shotarmpodcast
November 7, 2024
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Glen Tullman, CEO of Transcarent : Reimagining Healthcare Innovation, Access & Impact
This week on #TheShot of #DigitalHealth Therapy, Jim Joyce and I wished that we had booked our guest for at least 3 hours as the nuggets of wisdom kept coming. It was our pleasure to 🎙 host Glen Tullman, the legendary CEO of Transcarent. Glen took us through his journey—from launching companies to pioneering the way we think about healthcare with his vision for better, more affordable, and accessible care. Glen’s perspective on innovation, category creation, and putting patients at the center of healthcare offers invaluable insights for leaders everywhere.
Top 5 Nuggets:
🚀 “Innovate by doing, not talking.”
💡 “Different, not better, defines a new category.”
💪 “Failure is just learning—go for it!”
🏥 “Healthcare must be affordable, accessible, effective.”
🌍 “Customer-focused partnerships drive real change.”
Fun mentions as always: Lee Shapiro Robert Garber Naomi Allen Mike Rolla Mark Cuban Pat Geraghty Livongo Teladoc Health Hemant Taneja Allscripts Evernorth Health Services
November 6, 2024
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The Resilient Nurse, Episode 16: Leveraging Our Collective Power
In this episode, we are joined by Katie Boston Leary, PhD, MBA, MHA, RN, NEA-BC, CCT, Director of Nursing Programs at the American Nurses Association, to reflect on key findings from the "Slow Talk" report. Drs. Rushton and Boston Leary touch on ways nursing professionals can unite and use their collective power to advocate for themselves and fellow nursing professionals.
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On the Pulse
November 6, 2024
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NEJM This Week — November 7, 2024
Featuring articles on an invasive treatment strategy in older patients with myocardial infarction, a randomized trial of very early medication abortion, therapies in stage III melanoma, and on long Covid defined; a review article on uterine fibroids; a Clinical Problem-Solving on two sides to the story; and Perspectives on the U.S. Latino HIV crisis, on reframing cerebral palsy as a lifelong disability, and on an older patient and his physician finding an immediate, resonant connection in a haunting song recalled from long ago and far away. Supplement to the New England Journal of Medicine, Vol. 391, No. 18.
November 6, 2024
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EP 58: Transforming Healthcare Culture Through Relational Rounding
In a demanding healthcare environment, where challenges are constant, recognizing and celebrating the positive contributions of staff can transform both morale and culture.
In this episode, Dr. Cindy discusses the importance of meaningful recognition in healthcare. She emphasizes the value of personalized feedback that acknowledges how someone’s actions positively impact others, and encourages leaders to practice relational rounding to foster a positive workplace culture, especially in the wake of challenges from COVID-19.
Tune in to learn practical strategies for leaders to uplift and inspire their teams amidst daily challenges!
Click this link to the show notes, transcript, and resources: https://healthyworkforceinstitute.com/podcast-episodes/
by
Coffee Break
November 6, 2024
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Streamlining Clinical Compliance with AI w/ Hadassah Backman
Send us a textNurses primary job is to care for their patients, but often that valuable time is taken away with administrative tasks. Charting and other nonpatient activities stretch limited working hours and frequently pull nurses away from patient’s bedside.The result, worse care, declining patient safety, and error ridden-charts.In this week’s episode of HealthBiz Briefs, guest Hadassah Backman, CEO of Guardoc Health, shares how they’re reducing nursing errors by streamlining tasks like charting and identifying mistakes before they become problems.This episode is brought to you by BetterHelp. Give online therapy a try at https://betterhelp.com/caretalk and get on your way to being your best self.As a BetterHelp affiliate, we may receive compensation from BetterHelp if you purchase products or services through the links provided.🎙️⚕️ABOUT CARETALKCareTalk is a weekly podcast that provides an incisive, no B.S. view of the US healthcare industry. Join co-hosts John Driscoll (President U.S. Healthcare and EVP, Walgreens Boots Alliance) and David Williams (President, Health Business Group) as they debate the latest in US healthcare news, business and policy. 🎙️⚕️ ABOUT HADASSAH BACKMANHadassah Backman is the CEO of Guardoc, a clinical data integrity company dedicated to streamlining healthcare operations and enhancing data accuracy. As an RN with extensive experience in healthcare technology, she is passionate about using AI to tackle the challenges of clinical documentation, especially to ease the administrative burden on nurses. Under her leadership, Guardoc leverages AI to reduce charting time, boost compliance, and optimize revenue for healthcare facilities. Hadassah’s commitment to innovation reflects her dedication to creating a more efficient, patient-centered healthcare environment that empowers providers and improves patient outcomes.🎙️⚕️ ABOUT GUARDOC HEALTHGuardoc is a clinical data integrity company that leverages AI-driven technology to improve healthcare operations by streamlining data management and enhancing documentation accuracy. Designed with healthcare providers in mind, Guardoc’s solutions focus on reducing the charting burden for nurses and clinicians, helping them reclaim valuable time for patient care. The company’s advanced tools not only support compliance and optimize workflows but also enhance revenue management through accurate, efficient data processing. By prioritizing data integrity, Guardoc is shaping a more effective, reliable healthcare landscape where quality care and operational efficiency go hand in hand.GET IN TOUCHBecome a CareTalk sponsorGuest appearance requestsVisit us on the webSubscribe to the CareTalk NewsSupport the showCareTalk: Healthcare. Unfiltered. is produced by Grippi Media.
November 6, 2024
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#278: Hug of War: Leading a Family Business with Love and Logic with Cathy Carroll
This week on The TRU Leader Podcast, we're joined by Cathy Carroll, author and a third-generation leader in her family's business. Cathy shares her journey and insights from her book *Hug of War: How to Lead a Family Business with Both Love and Logic*. After two decades in corporate roles, Cathy returned to the family business, encountering tensions between her profit-driven approach and her father’s investment-focused mindset. The narrative explores the complexities of managing familial relationships alongside business operations, particularly during generational transitions that often lead to conflict due to differing values. Non-family executives also face challenges, exemplified by a COO who felt demoted because of family-driven decisions. Emotional intelligence is highlighted as key to balancing personal relationships and professional responsibilities.
Cathy underscores the importance of understanding family dynamics, balancing long-term goals with adaptability, and navigating polarities like tradition and innovation. Governance and succession planning in family businesses require unique approaches, balancing set criteria with flexibility for unexpected talent. Polarity thinking is introduced as a method for managing conflicts by holding opposing truths simultaneously, such as investment and profit harvesting and privileges and responsibilities. Cathy emphasizes that recognizing these polarities and differing perspectives is essential for improving the overall functioning of family-owned businesses, particularly during leadership transitions.
For full show notes and links, visit
https://www.missinglogic.com/truleader
If you found value in this episode, please subscribe and leave us a review on Apple Podcasts!
SOCIAL MEDIA LINKS:
https://www.linkedin.com/company/missinglogic-llc
https://www.facebook.com/missinglogicLLC
https://twitter.com/MissingLogicLLC
https://www.instagram.com/missinglogic_llc/
November 6, 2024
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#107, Democratizing Musculoskeletal Treatment with Virtual Care, with Vijay Yanamadala from Sword Health
Sword Health's AI-powered platform offers remote monitoring, virtual PT sessions, behavioral health support, and personalized care plans for treating chronic pain.
November 5, 2024
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479 – Personalised Customer Service at Scale. Roy Hazelwood, Anglicare
In this episode of Talking HealthTech, host Peter Birch speaks with Roy Hazelwood, the Manager of the Customer Contact Centre at Anglicare. They discuss the challenges and strategies in centralising customer contacts, the role of Genesys technology in enhancing service delivery, and training methods to equip staff for handling stress and complex customer needs. This episode was recorded during the Xperience event hosted by Genesys in Sydney.Key Takeaways:Centralising customer contacts at Anglicare has helped streamline service delivery and enhance customer experiences.Genesys technology plays a crucial role in ensuring that customer interactions are managed efficiently, even with staff working from home.Anglicare handles various communication channels, including voice chat, SMS, and email, and further integrates these with its IT service desk to improve internal operations.Effective training, such as ride-along training and accidental counsellor training, is essential for staff to manage diverse and often stressful customer situations.Maintaining privacy and having protocols to handle sensitive situations like potential financial exploitation or mental health crises is critical.Check out the episode and full show notes on the Talking HealthTech website.Loving the show? Leave us a review, and share it with someone who might get some value from it.Keen to take your healthtech to the next level? Become a THT+ Member for access to our online community forum, meetups, special offers, and more exclusive content. For more information, visit talkinghealthtech.com/thtplus.
November 5, 2024
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Take A Breath . . . The Simple Secrets of Breathing For Well-Being & Patient Care
🎙 In this episode of the Renegade Podcast, Ed Harold delves into his transformative journey through yoga and breathwork, discussing their profound impact on his life, athletic training, and overall well-being. He emphasizes the importance of maintaining autonomic balance throughout the day to enhance performance and improve sleep quality. Ed shares practical breathing exercises for athletes, weight loss, and emotional regulation, highlighting how conscious breath control can reprogram stress responses and foster personal growth. The conversation underscores the interconnectedness of body and mind, promoting discernment, self-care, and lifelong learning for holistic health and vitality.
👉 GET NURSING CES FOR THIS PODCLASS https://rnegade.thinkific.com/courses/take-a-breath
👉GET IT FREE WITH 1 CE FOR 1 WEEK ONLY. EXPIRES 11/12 AND MOVES INTO PAID CONTENT
👉 Check out our Membership options while you visit our site. Join The RNegades! https://rnegade.thinkific.com/pages/membership
by
RNegade
November 5, 2024
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