Clinical advocacy has many different shapes. In the US, says Dr. Bettina Ryll, patient advocates work as patient’s navigators in the healthcare system. In Europe, they have a more activist/policy influencing role. When a patient’s interest in his disease grows beyond his personal interest, he becomes a patient advocate, says Mr. Ryll, when asked about how she would define patient advocacy.
This episode presents the role of patients in improving care, the influence of patient advocacy and needs of patients with serious conditions.
Melanoma Patient Network Europe: http://www.melanomapatientnetworkeu.org/
In the second episode of the short series about the patient perspective of healthcare. Marina Borukhovich, born in Belarus, raised in US and living for the past 8 years in Netherlands and Germany was diagnosed with breast cancer at 37 years old, and 3 years later lost her father to pancreatic cancer. She founded YourCoach, a startup giving coaches client management and accountability tools in order to help heal their clients holistically, with a vision of having health coaches accessible to everyone. YourCoach aims to become the ultimate authority for health coaches.
Roi Shternin had medical ambitions while he was still a student. Before he turned 20 however, his physical health started deteriorating to the point where he couldn’t get up from his bed. He visited 33 doctors. “The 33rd doctor told my parents that I will never get married or have a career, so they should just get me an as comfortable bed as possible, so I can die with dignity,” Roi remembers today.
Because he did not get a diagnosis, and consequently treatment, he lost a lot of his faith in healthcare. And after doctors gave up on him, he decided to try to find out the cause of his deteriorating health himself.
Roi Shternin: http://roi.shternin.com/
Social isolation and loneliness are linked to several health problems such as high blood pressure, heart disease, obesity, a weakened immune system, anxiety, depression, cognitive decline, Alzheimer’s disease, and even death. Can these problems be alleviated with the help of robots?
A group of French innovators created Cutii — a robot for the elderly that looks like a screen on a stand that moves around in the environment. It supports speech recognition and vocal synthesis so the users can send written messages using their voice, the robot allows remote control for family caregivers, detects falls. The robot is an IoT device that enables the elderly to meet new people — caregivers in the Cutii community. Caregivers are usually younger volunteers that share their activities (for example cooking, hiking, visiting the gallery) while being connected to an elder in real-time. The robot is currently available in France, Switzerland and the US.
The average age of Cutii users is between 72 and 74. As explained by Richard Marshall, VP of Business Development at Cutii, the aim of the company is to increase the years of happy living to those that wish to age in their homes. Most people do, due to the emotional attachment they have with their home.
Building communities is time-consuming and demands special soft skills. Aline Noizet is a digital health connector with rich experiences of building and getting to know communities in digital health. She started her digital health journey working for the digital health startup Doctoralia in Barcelona in 2011. She later became an important part of Health 2.0, followed by a position at Bayer’s G4A. She now works globally as an independent consultant, based in Barcelona.
Aline's website: www.digitalhealthconnector.com
In May 2020, Medical Device Regulation goes into effect. Digital health companies providing software intended for medical use will need to comply with new requirements. According to Jovan Stevović, CEO and Co-Founder of Chino.io, companies are much better prepared for MDR than they were for GDPR. In general, medical devices are products or equipment intended for medical use. These include long-term corrective contact lenses, surgical lasers, defibrillators, hearing aids, diagnostic ultrasound machines, hip-joint implants, prosthetic heart valves. There are three classes of medical devices: Class 1, Class 2a and 2b, and Class 3. The classification depends on the intended use. Medical devices class I have the lowest perceived risk for health, those in Class 3 the highest. MDR also defines software which is designed for medicinal purposes, to be a medical device.
Free eBook: How to build MDR certified eHealth applications: https://www.chino.io/a/chino-io-ebook-medical-device-regulation-ehealth-applications