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Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Sharing Our Stories Makes Us Strong

Latest From Series

Patti Davis Untangles Lessons Learned While Floating in Dementia's Deep End

Patti Davis is an actress, author, activist, advocate, and daughter of a United States president. She has written extensively about her father, Ronald Reagan, and his Alzheimer’s disease in both The Long Goodbye and now Floating in the Deep End. In 2011, she created a support group program for caregivers of people with dementia, called Beyond Alzheimer's. Floating in the Deep End is an extension of that support group — a handbook for those on the perilous and sorrowful journey of losing a loved one to this mysterious disease. It is also part memoir, as many of the memories of her own dementia journey have taken on a different resonance with time and reflection. She hopes that caregivers and readers find guidance and comfort in this book. In this episode we discuss both the challenges and comforts of living your Alzheimer’s journey in full view of the world, her approach to building caregiver support groups, and the lessons and gifts that can be found in dementia care. Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. After the podcast Read Patti’s AlzAuthors post: Patti Davis Pens Heartfelt Memoir/Caregiver Guide, Floating in The Deep End Start reading Floating in the Deep End now.  Purchase The Long Goodbye Note: These links lead to Amazon.com. We are an Amazon Associate and may receive a small commission from book sales. Discussion Points Glen Campbell Tony Bennet 60 Minutes Connect with Patti Davis Website Twitter Facebook *** About the Podcast Our podcast brings you the voices of authors who have lived the dementia journey and chosen to share their stories. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
May 2, 2022

Christy Byrne Yates, MS Untangles Dementia Care and the Sandwich Generation

Support AlzAuthors Shop our store Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Christy Byrne Yates, MS Christy Byrne Yates is the author of Building a Legacy of Love: Thriving in the Sandwich Generation, part-memoir, part caregiver guide, written from her experience caring for two parents with dementia. In addition to being an author, she is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life’s challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents. In this episode, we discuss what it means to be in the Sandwich Generation, how to talk to family about end-of-life issues, and the value of connections for both caregivers and those living with dementia. After the podcast Read Christy’s AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Start reading Building a Legacy of Love: Thriving in the Sandwich Generation Purchase on Amazon now. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Christy Byrne Yates Website and blog Twitter  Facebook Instagram  LinkedIn YouTub *** About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 25, 2022

Lynda Everman Untangles the Quest to Create the Alzheimer's Stamp

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Lynda Everman Lynda Everman has spent most of her adult life as a caregiver: for her mom who was paralyzed by a stroke, her dad with vascular dementia, and her late husband with Alzheimer’s disease. These experiences inspired her advocacy for increased Alzheimer's funding for care and a cure. She and fellow advocate Kathy Siggins conducted a multi-year national campaign for a semipostal (awareness and fundraising) stamp for Alzheimer's research. As a result of their efforts, the first ever Alzheimer’s Disease Research Semipostal Stamp was released by the US Postal Service in November 2017 and may be purchased online at As of the end of January 2022, it has raised over $1.2 million for NIH funded research. Lynda is a founding member of three national networks under the umbrella of Us Against Alzheimer’s and served as founder and convener of ClergyAgainstAlzheimer's. She is an editor and contributor to Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers. She and her husband, Dr. Don Wendorf, have served as editors for The Leader’s Guide for Seasons of Caring and Treasure for Alzheimer’s, both written by Dr. Richard Morgan. They served as Senior Editors for Dementia-friendly Worship: A Multi-faith Handbook for Chaplains, Clergy and Faith Communities, and co-authored Stolen Memories: An Alzheimer’s Stole Ministry and Tallit Initiative. Lynda has been recognized by Maria Shriver as a Woman of Influence in the The Women's Alzheimer's Movement (WAM)  and included on her “Big Wall of Empowerment.” In this episode, we discuss her 30-year journey as an Alzheimer’s caregiver and advocate, and how even the busiest of caregivers can help find a cure for Alzheimer’s simply by buying stamps.  After the podcast: Read Lynda’s AlzAuthors posts: Lynda Everman, Editor Of Seasons of Caregiving: Meditations for Alzheimer’s and Dementia Caregivers Stolen Memories: An Alzheimer’s Stole Ministry and Tallit Initiative Welcome Back, Lynda Everman and Don Wendorf With Dementia-Friendly Worship Read Lynda’s books: Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers and the companion Leader’s Guide Leader's Guide for Seasons of Caring: Meditations for Alzheimer's and Dementia Caregivers  Dementia Friendly Worship Stolen Memories: An Alzheimer’s Stole Ministry & Tallit Initiative Note: We are an Amazon Associate and may receive a small commission from book sales. Purchase the Alzheimer’s Stamp Connect with Lynda Everman Facebook Twitter Other helpful sites BeBrainPowerful.org Due West UMC's website, "Loving Through Dementia" Scroll down to #9 on the Action Plan to see photos and read about the Alzheimer's Stole Ministry & Tallit initiative: *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 18, 2022

Laurette Klier Untangles How and Why She Created Books for People Living With Dementia

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Laurette Klier Laurette Klier believes ENGAGEMENT + NOSTALGIA = JOY. She is the author of Nana’s Books, heart-centered pairings of nostalgic literature and art, modified to meet the needs of seniors living with brain changes. Each book is carefully designed to bring you and your loved ones renewed connection, comfort, and joy. The books were inspired by her mother-in-law, Nana Mary, who loved big and passed with Lewy Body Dementia in 2021. Laurette’s goal is to spearhead a national movement to create libraries within libraries of quality multimedia, multi-sensory engagement materials for people living with dementia. With a background in creating literacy environments for students in urban and priority schools, this work came naturally to her as she believes that people are best engaged via a holistic, literature, and arts-based approach. Now, as ever, she is focused on underserved communities and inclusion.  Nana's Books are the winner of a 2021 MAUDE'S AWARD for Innovation in Dementia Care and are endorsed by ALZ SPEAKS, ALZ AUTHORS and the Neurocognitive Community for their utility in person-centered care. In addition to creating these beautiful books, Laurette is also working on the Essential Caregivers Act of 2021 to ensure care partners unrestricted access to their loved ones in long term care, as COVID lockdowns and lack of uniform federal protections continue to devastate seniors and their families. Learn more here. In this episode, we discuss, how books and reading can provide meaningful interactions between family members and those living with dementia, the need that drove her to create these books, and how dementia changed her relationship with her mother-in-law for the better. Laurette Klier Creates Nana’s Books: Nostalgic Picture Books for Seniors Preview Laurette’s books at Issuu.com Purchase Nana’s Books now! A sampling of titles: ·     Nostalgic Picture Book of Irish Wit & Wisdom: Large Format for People with Alzheimer's / Dementia ·     Love Poems for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Jewish Proverbs for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Nostalgic Picture Book of Babies ·     Fine Art Picture Book; Mother & Child: Gift Book for People with Dementia/ Alzheimer's ·     The Soul Remembers: Memory Care Spirituals ·     Nostalgic Picture Book of Living Dolls ·     Nostalgic Picture Book of Prayer Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Laurette Klier Website Instagram Twitter LinkedIn About the Untangling Alzheimer’s and Dementia Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 11, 2022

Anthony Copeland-Parker Untangles Life as a Nomad and Early Onset Alzheimer's

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Tony Copeland-Parker When Anthony Copeland-Parker and his partner Catherine were in their 50’s, they found out that she had early-onset Alzheimer’s and he needed open heart-valve replacement surgery. They both had a history as endurance athletes, so, motivated by a love for running and travel, they sold their home, retired from their jobs, and became nomads, running marathons and half-marathons all over the world. They’ve spent the last 7 years flying, running, walking, sailing, and sightseeing from Atlanta to Antarctica, finding joy in seizing each day and following their passions while trying to outrun Alzheimer’s. Tony was a professional pilot/manager for 37 years, the last 27 with United Parcel Service. His last job had him managing pilots and flying B757/767-type aircraft all over the world. Since then, he and Catherine, whom he tenderly calls Cat, have traveled to 82 different countries. They have run at least a half-marathon in 35 countries and on all seven continents. Tony shares his story on his blog, Running with Cat.com and in his book, Running All over the World: Our Race Against Early Onset Alzheimer’s. In this episode we talk about the choice he made to keep an active lifestyle traveling the world instead of following the much often recommended advice to provide Catherine with a stable schedule and environment, how Catherine responds to having a new adventure in a new place every few days, traveling with a loved one with dementia, and how he’s had to come to terms with the fact that one day their travels will come to a natural end. AlzAuthors co-founder and manager Jean Lee, author of Alzheimer’s Daughter, joins us. After the podcast Read Tony’s AlzAuthors post: Anthony Copeland-Parker and Partner Catherine Become Marathon Nomads Start reading Running All over the World: Our Race Against Early Onset Alzheimer’s, now! Note: We are an Amazon Associate and may receive a small commission from book sales. Tony appeared in our Virtual Q&A Love Stories: Keeping Romance Alive in Dementia Care Watch on YouTube Listen to the Podcast Connect with Tony Website and blog Facebook Twitter *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 4, 2022

Lori La Bey Untangles How She Built a Media Platform for Caregivers

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Lori La Bey Lori La Bey is known as an international visionary when it comes to dementia care. Just ask Oprah, Maria Shriver, or Dr. Oz who have all recognized her for her work. Prior to becoming the founder of an international advocacy group and media outlet for dementia, she cared for her own mother who lived with the condition for 30 years. Confounded by the lack of resources available to caregivers, she decided there had to be a better way, and launched Alzheimer’s Speaks, providing a variety of platforms to connect people to services, products, and tools. Lori’s goal is to raise the voices of all whose lives are touched by dementia. Her platform includes the Alzheimer’s Speaks Radio show, Dementia Chats, and Dementia Arts, and she is the co-founder of Dementia Map, a global directory that provides caregivers with resources to build their own roadmaps. She is a keynote speaker, trainer, and consultant, and is considered a Maria Shriver Architect of Change. Follow Lori as she shifts dementia care from crisis to comfort around the world. In this episode, we discuss what she learned through decades of caregiving, how she built her amazing global platform, the choice we all face when confronted with a dementia diagnosis, and the benefit of looking at dementia through the lens of safe, happy, and pain-free. Read Lori’s AlzAuthors Post: Lori LaBey, Founder of Alzheimer’s Speaks, Helps AlzAuthors Celebrate 100 Posts Read the rest of Lori’s essay “A Caregiver’s Nightmare: Mirror Image” in Life Choices: Putting the Pieces Together Free Download: Alzheimer’s Speaks Communication Tips PDF Connect with Lori Radio Show Blog Facebook LinkedIn YouTube Twitter Instagram *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
March 28, 2022

Untangling Alzheimer's & Dementia

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast features interviews with authors who share their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience.

For more info please visit alzauthors.com.
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Host

Marianne Sciucco

Marianne Sciucco

Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story. She is also a founding member of AlzAuthors and a Director and Manager.

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