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Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Sharing Our Stories Makes Us Strong

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Susie Singer Carter Untangles Alzheimer’s in Film and Podcasts

Susie Singer Carter is a Los Angeles-based creative specializing in film and podcasting. She’s a writer, director, producer, and actress. She’s also an advocate for dementia caregivers having been on a journey with her own mother for 16 years. This inspired her to write, direct and produce the 2018 Oscar Qualified short film, “My Mom and the Girl,” starring Valerie Harper in her final performance. She’s also the host and producer of the award-winning podcast “Love Conquers Alz,” launched in December 2019, which received Best Podcast 2020 from the New Media Film Festival for Episode 6 featuring Leeza Gibbons. Susie is proud to have served as one of the faces seen in several awareness campaigns for Alzheimer’s Los Angeles, where she also trained to be a volunteer speaker. Unfortunately, Susie's beloved mother Norma Pecora passed away after we recorded this interview. In this episode, we discuss her long, exhausting, enriching dementia journey, how it made her a “better person,” and the idea that Alzheimer’s is sort of like The Curious Case of Benjamin Button. After the Podcast: Please leave a review and share this podcast with a caregiver or loved one on a dementia journey.  Read Susie’s AlzAuthors post Watch My Mom and the Girl Trailer: Vimeo YouTube Complete film: Amazon Apple TV Listen to or watch “Love Conquers Alz” Connect with Susie Singer Carter: IMDB WEBSITE MY MOM AND THE GIRL FACEBOOK TWITTER INSTAGRAM LINKEDIN WIKIPEDIA LOVE CONQUERS ALZ LINKS I LOVE LUCIFER LINKS Other references The Curious Case of Benjamin Button Dopesick *** About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
September 20, 2022

AlzAuthors Untangles A Collection of Stories to Support Your Caregiving Journey

The podcast you are about to listen to is a recording of an event we did with Kensington Senior Living in June, 2022. "On the Same Page this Summer: A Collection of Stories to Support You on Your Caregiving Journey" features four authors discussing their personal dementia experiences. You'll hear from a young woman whose mother was diagnosed with early onset Alzheimer's when she was just 25; a professional in dementia care with strategies to help you manage your own situation; a mom in the "sandwich generation" who shares how she balanced care between her school-age children and her parents with dementia; and a psychologist who has investigated and encountered "shared death experiences." This is an insightful, inspiring episode and you're sure to walk away with greater confidence and knowledge to guide your own dementia journey. Please join us for our next live event on September 13th at 2 pm eastern time when we discuss Dementia Care Around the World with three authors representing the United States, Canada, and Costa Rica. For more details, visit our website. Watch this panel presentation on YouTube After the Podcast Learn more about these authors: Christy Byrne Yates Christy Yates Helps Caregivers Raising Children Ease the Squeeze AlzAuthors and HFC Present Summer Book Series Podcast: Christy Byrne Yates, MS Untangles Dementia Care and the Sandwich Generation Lauren Dykovitz Millennial Caregiver Writes About Mom With Early Onset Alzheimer’s Lauren Dykovitz Shares Story of Mother’s Final Dementia Days Three AlzAuthors Featured in Chicken Soup for Soul Book Podcast:  Untangling Life as a Millennial Caregiver with Lauren Dykovitz Tammy Anastasia Tami Anastasia Comes Full Circle with the Dementia Journey William Peters SharedCrossing.com Note: We are an Amazon Associate and may receive a small commission from book sales. Visit Kensington Senior Living, a premier senior living operator and developer bringing the highest quality senior care to America’s most sought-after locations. *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Also on UK Health Radio and The NYC Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening.  AlzAuthors.com Shop our Store        
September 7, 2022

Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer’s Disease

Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer’s. His is a unique perspective once the doctor diagnosing other people’s cognitive issues and now the patient facing his own. Alzheimer’s disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist’s Personal Battle Against Alzheimer’s Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early. In this episode, we discuss the value of testing for the Alzheimer’s gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey. After the Podcast Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO Note: We are an Amazon Associate and may receive a small commission from book sales. Other authors/books mentioned: Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer’s by Peter Berry and Deb Bunt Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know Tracey Shorthouse’s Poetry Provides a Glimpse into Early Onset Alzheimer’s Laurette Klier Creates Nana’s Books: Nostalgic Picture Books for Seniors Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again Greg O’Brien, On Pluto: Inside the Mind of Alzheimer’s Greg O’Brien, Psychology Today articles Columbia Kindred Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end) Connect with Dr. Gibbs Website *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
August 24, 2022

Patti Callahan Henry Untangles What it Means to Remember

What are memories? Do our memories make us who we are? What happens to “us” when our memory fails, and cognitive decline ensues? I discussed these profound questions with one of my favorite authors, Patti Callahan Henry. She is a New York Times and USA Today bestselling author of sixteen novels, a podcast host, and a co-creator and host of the popular show, Friends & Fiction. Prior to becoming an author, she was a Pediatric Clinical Nurse Specialist with a fascination for memory and focused on neurology and brain trauma. Her novel, The Favorite Daughter, joined our collection of carefully vetted books in November 2019.  “Memory,” she says, “haunts all my work but takes center stage in this one. Who do we become without those memories?”  Patti is the recipient of The Christy Award 2019 Winner “Book of the Year”; The Harper Lee Distinguished Writer of the Year for 2020, and the Alabama Library Association Book of the Year for 2019. She is also a contributor to the monthly life lesson essay column for Parade Magazine. A full-time author and mother of three, she now resides in both Mountain Brook, Alabama, and Bluffton, South Carolina with her husband. In this podcast, we explore how our memories define us, if they do, the landscape of memory, and the concept of “ambiguous loss.” After the Podcast Read Patti’s AlzAuthors post: Memory is at the Heart of Patti Callahan Henry’s The Favorite Daughter ​Purchase The Favorite Daughter on Amazon. https://amzn.to/2D9TDnQ Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Patti Website Facebook Instagram Twitter Watch Friends & Fiction on Wednesdays at 7 pm, EST *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
August 9, 2022

HFC Summer Series with AlzAuthors and Ruth Stevens, Author of Stage Seven, a Novel

Welcome to the first in our 2022 Summer Series with HFC. We kicked off this season on June 14th with Ruth Stevens’ novel, Stage Seven. Christy Byrne Yates moderated. About Ruth Stevens Ruth Stevens believes in stories that make you laugh and cry. She says, “I like to write about the topics that worry me the most. Since I worry about a great many things, there is never a shortage of material. A resident of Torrance, California, Ruth is a former public relations professional (in New York and Los Angeles) and proud member of the Dramatists Guild of America and Women’s Fiction Writers Association. Ruth has been writing professionally for her entire career—including hundreds of articles for magazines, newspapers, and journals—but creative writing is her passion. She took up this endeavor full-time after quitting her day job in 2017. At last count, she’s written two plays and three novels. In her spare time, she enjoys travel, hiking, wine tasting, hip hop, Broadway musicals, movies, leading a book club, and visiting her grandsons in Manhattan. Stage Seven is her first novel. About Christy Byrne Yates Christy is the mother of two – now adult – children. She is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. She incorporates meditation, mindfulness practices and Emotional Freedom Techniques (EFT) into her work along with other evidence-based practices to support growth, goal achievement and a pathway to living your best life now. In California she is a Licensed Educational Psychologist (LEP), an author, speaker, and coach. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation available on Amazon. After the Podcast Read Ruth’s AlzAuthors post: Ruth Stevens Pens Dementia Tale as a Play and a Novel: Stage Seven Purchase Stage Seven on Amazon Note: We are an Amazon Associate and may receive a small commission from books sales. Book Mentions The Forgetting, David Shenk, available on Amazon Connect with Ruth Website Facebook Instagram *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
July 13, 2022

Four Authors Untangle When Dad Has Dementia

Caring for a father with a dementia diagnosis brings to caregiving its own special set of circumstances and considerations. In this AlzAuthors Live! Virtual Q&A we explore these changes and challenges with four of our authors. Their stories will inspire and empower you on your own dementia journey with your dad. This free virtual event was held on Tuesday, June 7th, 2022. The video replay is available on our YouTube Channel. Meet the Panelists Andrea Couture: author of Embracing What Remains, a memoir Andrea recently lost her beloved father, a renowned surgeon, to Alzheimer’s. She wrote about her family’s caregiving journey and is the first of our authors to write about caregiving during COVID. Irene Olson: author of Requiem for the Status Quo, a novel Irene survived being an Alzheimer’s family caregiver twice: to her father and her sister-in law. Her goal in writing Requiem was to encourage and educate others who might be called upon to take on the role of family caregiver. Patti Davis: author of The Long Goodbye and Floating in the Deep End: How Caregivers Can See Beyond Alzheimer’s, memoirs and caregiving guide Patti is the daughter of President Ronald Reagan, who opened the world’s eyes to the disease when he disclosed his own diagnosis in his Letter to America in 1994. Tanya Ward Goodman, author of Leaving Tinkertown, a memoir Tanya grew up in the mountains of New Mexico in a roadside attraction built by her father. Throughout his Alzheimer’s journey she documented their experience with photographs and journaling. After the Podcast Other books mentioned: Tami Anastasia, Essential Strategies for the Dementia Caregiver Dave Meurer, New Every Day Joy Johnston, The Reluctant Caregiver Note: We are an Amazon Associate and may receive a small commission from books sales. *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
June 30, 2022

Untangling Alzheimer's & Dementia

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast features interviews with authors who share their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience.

For more info please visit alzauthors.com.
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Host

Marianne Sciucco

Marianne Sciucco

Marianne Sciucco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story. She is also a founding member of AlzAuthors and a Director and Manager.

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