2022 World AIDS Day from Tembisa, South Africa
Yvette Raphael welcomes co-host Ben Plumley to Tembisa, South Africa, for a World AIDS Day special, to reflect on the sometimes bumpy response from the country with the largest number of people living with HIV. And catch Yvette’s interview with Lolo Saliso, HIV & human rights activist from Advocates for the Prevention of HIV in Africa on how it is young people’s time to lead, building on the legacy of older “dinosaur” activists like Yvette and Ben.
https://www.unaids.org/en
https://sanac.org.za
https://apha.org.za
#worldaidsday #HIV #southafrica #pozie #apha #hivprevention #gbv #dapvirinering #cabla
December 4, 2022
by A Shot in the Arm Podcast with Ben Plumley
How 3 Days in the Hospital Thinking You’re Going to Die Can Change Your Life: Sylvia Worsham
Sylvia Worsham is an Author, multi-lingual speaker, and Turning Points Coach who spent many years in corporate. She found she was being guided by belief systems that weren’t conducive to her mental health. After a 3 day admission to hospital where she was too afraid to fall asleep because she thought she was going to die, she went home with a few different beliefs but wasn’t able to walk away from corporate for a while after that. Sylvia has suffered some great losses along the way but has been able to shift to living in joy and helps others do the same in her coaching programs. You can learn more about Sylvia here: sylviaworsham.com Guest Bio: Sylvia Worsham received three miracles within 72 hours during Easter weekend in 2012. She used this major turning point to trade off her multiple award-winning sales career at Pfizer Pharmaceuticals, to become the Author, Multi-Lingual Speaker, and Turning Points Coach she is today. Sylvia lives her passion by helping men and women, who find themselves at a crossroads, navigate change with confidence, faith, and joy! Her mission is to help professional parents become the best version of themselves, trust and act on their inner wisdom, and integrate their personal and professional lives with joy. She does this through her Joy in the Journey Masterminds, Keynote Addresses, One-on-One Coaching, and Conditioning Programs. She resides in Austin, Texas with her amazing husband and two children. ___________________ Subscribe to this podcast and download your favorite episodes to listen to later: Apple Spotify RSS Feed ___________________ ⚕️ Are you a woman healthcare professional who is struggling to juggle everything in your personal and professional life? 💯 I understand! This is why I created this community of like-minded women to support each other through the ups and downs of our daily lives. 💥 Join us today! It’s free to join and you can connect with other women just like yourself. ⤵️⤵️⤵️ https://www.facebook.com/groups/womenhealthcareprofessionals ___________________ Podcasting Launch Course for Professionals - Podcast of the Week The Drama-Free Workplace with Patti Perez https://bit.ly/DramaFreeWorkplace ___________________ RESOURCES: Looking to start a podcast? Now is a great time to do just that! Check out the free podcast launch masterclass I created to see if starting a podcast is a match for you. http://bit.ly/podcastinglaunchmasterclass Are you too busy to participate in a facilitated course but still want to get your show started? The Podcast in a Box is for you! You provide the audio for your first 5 five shows to launch with a bang, we do the REST. http://bit.ly/doneforyoupodcasting Get off the fear fence today. Your tribe is waiting to hear your voice! ___________________
December 4, 2022
by Fearless Freedom with Dr. G
Exploring the intersection of human-centered-design and rehab technology
Episode 40: Interview with Sarah Thomas
Sarah has an expansive range of expertise, we chose to deep dive on the importance of human-centered design in this episode. We'll be sure to welcome Sarah back on the show in the coming months to explore other areas that she is working in to advance access to rehab.
About Our Guest
Sarah Thomas is an accomplished leader of innovation. She serves as a global aging expert advising startups, large corporations and investors, with nearly 20 years dedicated to transforming the aging experience. Sarah is CEO of multinational staff-hosting company, MezTal in Guadalajara & CEO of the consulting firm Delight by Design, creating age-inclusive products, brands, spaces and experiences that delight the consumer at every age. Sarah has held key leadership positions across the US and Asia, developing and implementing strategic corporate innovation initiatives, including change management. She serves as Executive-in-Residence at Aging2.0,Principal Fellow in the Nexus Insights firm for aging transformation, and co- founder of AgeTech News. She formerly led all commercial activity for Seismic Holdings - a Silicon Valley-based company shaping human potential through integration of apparel and robotics to augment human strength and performance. Sarah’s commercial expertise helped position the organization for esteemed recognition by the World Economic Forum, Fast Company, The Economist and CES. Prior to Seismic, Sarah led all global innovation for the largest post-acute care provider in the US, Genesis, serving more than 55,000 individuals a day. She combines her Occupational Therapy expertise with her operational, clinical and entrepreneurial experience to inspire global improvements in design and systems innovation worldwide. She designed an innovation center in China as a part of a vitality initiative to improve the health and well-being of global communities. A published author, she serves in multiple advisory positions, sits on numerous boards and is an accomplished keynote speaker on topics like healthy longevity and aging innovations
In the News:
NHL Defenseman Kris Letang Has 2nd Stroke
David's post about his first stroke on know stroke blog : https://knowstroke.wordpress.com/2014/02/13/a-new-defensive-position-for-kris-letang-stroke-defense/
NHL update: https://www.nhl.com/news/kris-letang-second-stroke/c-338220142
Show Credits:
Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.
Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast. Thank you Caroline!
Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to be a sponsor or guest on the Know Stroke Podcast.
Connect with Us and Share our Show on Social:
Web: https://www.know-stroke.org
Twitter: https://twitter.com/KnowStroke_Pod
Facebook https://www.facebook.com/knowstrokeorg/
Instagram: https://www.instagram.com/knowstroke/
YouTube: https://youtube.com/playlist?list=PLGTcGBT1dctRk7YQhLzBP-k_sQk6gY-Nt
Linkedin: https://www.linkedin.com/company/knowstrokepodcast/
December 4, 2022
by Know Stroke Podcast
What you need to know about sensory processing disorders
"Understanding and recognizing sensory processing issues may help improve functioning and quality of life for many individuals, starting with children in school. While many are preparing for back to school, it is important for parents, teachers, health care providers, guardians, and policymakers to be aware that millions need funding to get the care they need to succeed." Lisa Yeh is a psychiatrist. She shares her story and discusses her KevinMD article, "Let’s address the needs of millions of students with sensory processing disorders." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. With a growing physician shortage, increasing burnout, and declining patient satisfaction, a dramatic change is needed to make health care more efficient and effective and bring back the joy of practicing medicine. AI-driven ambient clinical intelligence promises to help by revolutionizing patient and provider experiences with clinical documentation that writes itself. The Nuance Dragon Ambient eXperience, or DAX for short, is a voice-enabled, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational. Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RATE AND REVIEW → https://www.kevinmd.com/rate FOLLOW ON INSTAGRAM → https://www.instagram.com/kevinphomd FOLLOW ON TIKTOK → https://www.tiktok.com/@kevinphomd GET CME FOR THIS EPISODE → https://earnc.me/qGKuLd Powered by CMEfy.
December 4, 2022
by The Podcast by KevinMD
Bulletproof backpacks: There’s more we can do
"As a parent of elementary school children, every mass shooting, particularly ones killing school children like in Uvalde, jolts my doing-the-mom-thing-just-keep-busy-can’t-stop denial. On the last day of school before summer vacation, when the bus doors squeaked open, and my kids hopped off, I experienced a momentary sense of relief. They were safe for one more day, at least from school shootings. I hugged my kindergartener and patted the head (that’s all I’m allowed to do) of my fifth grader. Now that a new school year is looming, it’s all I can do not to click on the article about bulletproof backpacks." Resources: AAP policy statement: Firearm-Related Injuries and Deaths in Children and Youth Moms Demand Action Lisa Park is a pediatrician. She shares her story and discusses her KevinMD article, "Bulletproof backpacks: There’s more we can do." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. With a growing physician shortage, increasing burnout, and declining patient satisfaction, a dramatic change is needed to make health care more efficient and effective and bring back the joy of practicing medicine. AI-driven ambient clinical intelligence promises to help by revolutionizing patient and provider experiences with clinical documentation that writes itself. The Nuance Dragon Ambient eXperience, or DAX for short, is a voice-enabled, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational. Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RATE AND REVIEW → https://www.kevinmd.com/rate FOLLOW ON INSTAGRAM → https://www.instagram.com/kevinphomd FOLLOW ON TIKTOK → https://www.tiktok.com/@kevinphomd GET CME FOR THIS EPISODE → https://earnc.me/nfD2MF Powered by CMEfy.
December 3, 2022
by The Podcast by KevinMD
Audits show overcharges to Medicare Advantage plans; Attorneys general urge Apple to add reproductive data protections
Audits uncovered about $12 million in net overpayments for the care of 18,090 patients sampled; AGs say lax rules for safeguarding reproductive health data could harm patients or providers.
December 2, 2022
by HIMSSCast
Health Starts With Housing
According to the Agency for Healthcare Research and Quality, five percent of the U.S. population accounts for half of the nation’s healthcare spending. They represent our most complex care challenges. To address the complex needs and circumstances for this five percent, it takes a village – a collaborative partnership of agencies, hospitals, shelters, law enforcement and more – who deeply understand what matters most to the individuals they serve. In this episode, Lauran Hardin, MSN, CNL, FNAP, FAAN, Senior Advisor at National Healthcare & Housing Advisors and Illumination Foundation shares the stories, proven solutions, and care models that are meaningfully improving the health and lives of our most complex community members. By inviting a broad range of community agencies to partner in collaboratively addressing and solving complex situations and care needs, the models reduce avoidable and unnecessary hospital visits, improve housing access, support behavioral health, and provide the deep satisfaction healthcare professionals experience when patients get the full range of health and human services they need for healthy, joyful, connected lives.
December 2, 2022
by See You Now
The Thriving Giver — 7 Principles for Enhanced Self-Care and Burnout Prevention
On episode 398 of The Nurse Keith Show nursing and healthcare career podcast, Keith interviews UK-based author, trainer, and resilience coach Sarah Kuiper, MSc, MCAHyp, FHEA, regarding The Thriving Giver, her book and workshop series based on 7 principles for health professionals and caregivers to enhance self-care and prevent burnout.
After working as a naturopath, hypnotherapist and life coach for nearly 20 years, burnout finally forced Sarah Kuipers to stop working. A three-month sabbatical gave time to heal body, mind and spirit, and prompted her to complete a masters in research to study stress and burnout in health professionals.
Sarah has over decade of experience helping doctors, nurses, and other healthcare professionals cultivate resilience, including teaching courses in personal development and stress management to medical students. Sarah’s #1 Bestseller, The Thriving Giver, 7 Principles for Health Professionals and Caregivers to Enhance Self-Care and Prevent Burnout was shortlisted for the Business Book Awards in 2022 and is currently being translated into Chinese.
Sarah will be offering a free webinar, The 3 Keys to Thriving in a Caring Profession, on January 25th, 2023 at 11am PT/2pm ET/7pm GMT, and her 7-week live online course The Thriving Giver will be launched in February, 2023.
Listeners of The Nurse Keith Show can download a free e-book from Sarah entitled Expressive Writing: How to Process and Release Distressing Thoughts and Emotions and Restore Psychological Well-Being.
Connect with Sarah Kuipers:
SarahKuipers.com
Facebook
Instagram
LinkedIn
Nurse Keith is a holistic career coach for nurses, professional podcaster, published author, award-winning blogger, inspiring keynote speaker, and successful nurse entrepreneur. Connect with Nurse Keith at NurseKeith.com, and on Twitter, Facebook, LinkedIn, and Instagram.
Nurse Keith lives in beautiful Santa Fe, New Mexico with his lovely fiancée, Shada McKenzie, a highly gifted traditional astrologer and reader of the tarot. You can find Shada at The Circle and the Dot.
The Nurse Keith Show is a proud member of The Health Podcast Network, one of the largest and fastest-growing collections of authoritative, high-quality podcasts taking on the tough topics in health and care with empathy, expertise, and a commitment to excellence. The podcast is adroitly produced by Rob Johnston of 520R Podcasting, and Mark Capispisan is our stalwart social media manager and newsletter wrangler.
December 2, 2022
by The Nurse Keith Show
AB890 Changes w/Surani Hayre-Kwan
Charlene talks with Surani Hayre-Kwan, Director of Professional Practice and Nursing Excellence within the Sutter Health System, about AB890, a California bill that will go into effect soon and will have an impact on Nurse Practitioners. They talk about what changes the bill will make, what effect it will have on Nurse Practitioners and their patients, and how nurse leaders can prepare.
Host:
Charlene Platon, MS, RN, FNP-BC (@charleneplaton)
Guest:
Surani Hayre-Kwan, MBA, NP, FACHE, FAANP (https://www.linkedin.com/in/surani-hayre-kwan-115ab631/)
About the show:
ACNL in Action is a production of the Association of California Nurse Leaders, the professional organization for nurse leaders. New episodes come out on the first Friday of every month. Want to support ACNL? Consider making a donation: http://bit.ly/cog-podcast . Learn more about ACNL, including how to become a member, at acnl.org.
Follow us on Facebook and LinkedIn at @acnlnurse.
December 2, 2022
by ACNL In Action: Lessons in Nursing Leadership
How Geisinger’s use of automation has freed up clinicians’ time
Geisinger's strategic plan has resulted in a redesigned workflow, cost savings and a happier workforce, says Emily Fry, VP of Innovation Operations at Geisinger.
December 2, 2022
by HIMSSCast
Proactively Managing Risk via Innovations in Last Mile Care
Health leaders from Network Health, Health Net, Priority Health, and Health.io discuss how top health plans improve risk assessment and quality measures through innovations and at-home testing. Topics include: Strategies for deploying novel solutions to drive member engagement and reduce costs for members, especially among traditionally unengaged populations Why removing barriers to testing with at-home solutions is a boon to health equity How accurate staging improves health outcomes for members with chronic conditions Working with provider networks for better management of members’ health Panelists: Pooja Mittal, MD, Vice President, Chief Health Equity Officer, Health Net, Inc.; Megan Schmidt, Sr. Vice President, Employer Solutions, Priority Health; Mushir Hassan, MD, Chief Medical Officer, Network Health; Jonah Mink, MD, Medical Director, Healthy.io This episode is sponsored by Healthy.io Healthy.io is the global leader in turning the smartphone camera into a clinical-grade medical device for an at-home urinalysis and digital wound management. Their at-home kidney test, Minuteful Kidney, aids in the early detection of chronic kidney disease and helps close gaps in access and care for over 500,000 patients worldwide. It is the first and only smartphone-powered home kidney test to receive FDA clearance and the first digital health test to obtain FDA clearance across all smartphone devices. Healthy IO is partnered with some of the nation's leading health plans and the National Health Service in the United Kingdom b/c of the test’s ease of use, high completion rates, and huge potential savings. They are the first company to convert your smartphone into a clinical-grade medical device to allow patients to take the test – and receive results – in the comfort of their homes.
December 2, 2022
by Bright Spots in Healthcare
Preventing prostate cancer with simple, proactive choices
"You have the power to make healthier choices to reduce your risk for prostate cancer. While things like genetics are out of your control, there is a wealth of research showing that there are simple ways to reduce your risk for prostate cancer that are within your control. Over the course of this book, we review healthy lifestyle choices, from diet to routine medical screenings, you can integrate into your daily practices to reduce your prostate cancer risk. You have the power to possibly prevent prostate cancer and this power comes in the form of daily lifestyle choices. Use this information to take ownership of your health. Empower yourself. There is no time like the present." Benny Gavi is an internal medicine physician. He shares his story and discusses his book, Preventing Prostate Cancer: Reduce Your Risk With Simple, Proactive Choices. The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. With so many demands on their time, physicians today report record levels of burnout. Burnout is caused by many factors, one of which is clinical documentation. Studies indicate physicians spend two hours documenting care for every hour spent with patients. At Nuance, we are committed to helping physicians do what you love – care for patients – and spend less time on clinical documentation. The Nuance Dragon Ambient eXperience, or DAX for short, is an AI-powered, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational. Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RATE AND REVIEW → https://www.kevinmd.com/rate FOLLOW ON INSTAGRAM → https://www.instagram.com/kevinphomd FOLLOW ON TIKTOK → https://www.tiktok.com/@kevinphomd GET CME FOR THIS EPISODE → https://earnc.me/IQDYCq Powered by CMEfy.
December 2, 2022
by The Podcast by KevinMD
Adopting Clinical Trial Technology: The Key to Success for Patients, Sites, & Researchers
Adoption of new clinical trial technologies is critical to success. These innovations can lift patient burden, improve patient engagement, and increase equity and access to clinical trials.
In this episode, Kelly McKee and Alicia Staley of Medidata are joined by Irfan Khan, MD, founder and CEO of Circuit Clinical, to discuss clinical trial technology adoption across patients, care teams, trial sites, and researchers and the need for industry buy-in, especially around decentralized trial technology.
Dr. Khan is a cardiologist who has served as a principal investigator on both therapeutic and device clinical trials for more than a decade. He is passionate about improving diversity in clinical trials, increasing community engagement, and fostering the patient experience through education and empowerment. Over the last six years, he has overseen Circuit Clinical’s growth to reach more than 2.5 million potential participants across 60+ active research sites.
December 2, 2022
by Clinical Minds
Keynote: Health IT Conversations with CIOs from CHIME 22’
December 12: A very special episode today. “Interviews with Leaders on the Floor of CHIME 2022”. Andrea Daugherty, CIO at Dell Medical School / University of Texas Austin talks about her role as CIO of the Future. Pete Marks, CIO & VP at WakeMed discusses what is taking the joy away from practicing medicine. Sarah Richardson, SVP, Chief Digital & Information Officer at Tivity Health shares how healthcare leaders can give back to the next generation. And Mark Weisman, CIO & CMIO at Tidal Health discusses what it’s like to juggle both the CIO and CMIO roles.Key Points:What technology has the most potential to impact healthcare? Finding joy is better terminology than clinician burnout It’s being passionately curious about other peopleDell Medical School / University of Texas AustinWakeMedTivity HealthTidal HealthSign up for our webinar: How to Modernize Your Data Platform in Healthcare: The Right Fit for Every Unique Health System - Wednesday December 7 2022: 1pm ET / 10am PT. Subscribe: https://www.thisweekhealth.com/subscribe/Twitter: https://twitter.com/thisweekhealthLinkedin: https://www.linkedin.com/company/ThisWeekHealth
December 2, 2022
by This Week In Health IT
Amplify Nursing Season 6: Episode 05: Taofiki Gafar-Schaner
Today on Amplify Nursing, we talk with Taofiki Gafar-Schaner, co-founder of Frontier Health & Resources. During his experience as a bedside RN, Taofiki observed many opportunities for patient care improvement, which inspired him to launch a business focused on creating innovative healthcare products. With their SafeSeizure pads product, Frontier Health & Resources won the 2020 American Nurses Association Innovation Award, as well as the 2019 and 2020 Nightingale Innovation Awards.
Taofiki talks with us about how he became interested in nursing, the importance of drawing inspiration from bedside care, and how he navigated manufacturing and funding challenges in his journey to develop a new healthcare product.
December 1, 2022
by Amplify Nursing
TeleMedicine, TeleHealth, TeleCyber: With the Increase in Virtual Doctor Visits, How Do We Keep the Data and Sessions Secure? with Christine Sublett and Mark Jarrett
In recognition of the 19 annual National Cyber Security Awareness Month, The Outcomes Rocket Network has launched a 10-part podcast series to elevate Cyber Security Awareness in Healthcare on our main channel, the Outcomes Rocket Podcast. Partnering with leaders in healthcare cybersecurity in their capacity as members of the Health Sector Coordinating Council, the podcast aims to illuminate advances made in protecting critical healthcare infrastructure and patient safety, and areas that need further focus to put a stop to Cyber Crime.
Cybersecurity in telehealth is everyone’s responsibility.
In this episode, Saul Marquez talked with healthcare cybersecurity experts Christine Sublett and Mark Jarrett about cybersecurity in the current telehealth space. Ever since the COVID-19 pandemic, telehealth has been more widely accepted and practiced. As many benefits as it brings, it also comes with potential threats that must be addressed. Christine and Mark talk about how healthcare organizations need to make sure that the ecosystem used for the delivery of care needs secure data privacy for patients.
Tune in to learn about the work Christine Sublett and Mark Jarrett have been doing to help healthcare organizations navigate the telehealth space safely and provide security for their users!
Click this link to the show notes, transcript, and resources: outcomesrocket.health
December 1, 2022
by Outcomes Rocket
313 – Technology helping kids deal with anxiety. Dr Louise Metcalfe, Gheorg
Dr. Louise Metcalf is the CEO and founder of Gheorg. Gheorg is the little robot who helps kids 7-12 years old with anxiety and to build resilience. Gheorg connects home, school and psychologists to make a meaningful impact in kids lives.Listen to this episode to find out how Gheorg can help your kids deal with anxiety, the future of Gheorg and digital health therapies, as well as regulatory information on these topics, will be discussed.Check out the episode and full show notes here.To see the latest information, news, events and jobs on offer at Gheorg, visit their Talking HealthTech Directory here. Loving the show? Leave us a review, and share it with someone who might get some value from it.
December 1, 2022
by Talking HealthTech
Imprivata presents: Why you need to avoid fragmented digital identity solutions
This discussion will focus on the dangers of fragmented digital identity. Digital identities, or the unique identifiers and credentials an individual uses to interact online, are the most important part of an organization to secure. Although many solutions can bolster cybersecurity, a holistic digital identity management strategy is the best way to secure user identity and access without hindering workflow productivity. Organizations should implement products that follow this strategy, not uncoordinated solutions.
December 1, 2022
by HIMSSCast
How Far We’ve Come – A Look at the FOXG1 Research and Family Conference with Rare Mama and Co Founder Nicole Johnson
ONCE UPON A GENE - EPISODE 163
How Far We've Come - A Look at the FOXG1 Research and Family Conference with Rare Mama and Co Founder Nicole Johnson
FOXG1 Research Foundation Co-Founder and rare mom, Nicole Johnson, shares takeaways from the November FOXG1 Syndrome Science Symposium & Parents Conference.
EPISODE HIGHLIGHTS
Can you tell us about your daughter Josie and about starting the FOXG1 Foundation?
Josie is 11 years old and she is the cutest little girl. She's amazing in that she has FOXG1 syndrome and can't do much, and yet she's the happiest, most joyful little girl and I feel blessed to have her in my world. My mission is to give Josie and every child with FOXG1 syndrome the healthy life they deserve. On the diagnostic journey, I was blogging and that's how I met Nasha Fitter after her daughter was diagnosed. We teamed up with other FOXG1 parents across the world and formed the FOXG1 Research Foundation in 2017.
What were your top highlights and takeaways from the FOXG1 Syndrome Science Symposium & Parents Conference?
We hosted two conferences in one and the first was a science symposium where scientists from all over the world met privately in Florida to present their data. I couldn't believe how much science was underway. Seeing how far we've come on the science-front was really incredible, as was the promising data that was uncovered. It was clear that this isn't a job for the scientists involved-- they are invested in helping all children with FOXG1 to live a life without suffering. The parent's conference was a blend of clinicians, scientists and FOXG1 parents that all came together to learn from each other-- to connect, learn and inspire. There was a lot of information and a lot of inspiration.
What advice do you have for patient advocacy leaders in motivating their caregiver and patient population to better understand their disease, get involved and participate in fundraising?
There's a lot we want to say to parents to communicate the work that's being done to improve their children's lives, but it's a challenge because people see things quickly and go on about their day. My best advice is to let the work speak for you. For anyone starting or running a patient organization, it is hard to reach your whole community and convince your whole community to get involved, but the more work you do, the more parents will see the work that's being done.
What advice do you have for advocacy leaders who want to hold a conference?
If you're thinking about doing it, absolutely do it. We were able to get sponsors which allowed us to do a travel scholarship and that helped parents to come, removing the burden of cost. When we were deciding on a venue, we looked at where the majority of the families lived and chose a place that doubled as a vacation. I recommend choosing a vacation-type location that adds an extra level of enjoyment.
LINKS & RESOURCES MENTIONED
FOXG1 Foundation
https://foxg1research.org/
ONCE UPON A GENE - Episode 094 - The 12 Commandments to guide you when you're starting a rare disease patient advocacy group with Nasha Fitter and Mike Graglia
https://effieparks.com/podcast/episode-094-mike-and-nasha
ONCE UPON A GENE - EPISODE 047 - Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
https://effieparks.com/podcast/episode-47-ciitizen-nasha-fitter
Ciitizen
https://www.ciitizen.com/
Josie's Journey Blog
https://josiedevin.blogspot.com/
Pam Skillman
https://foxg1research.org/resources
Nikki McIntosh
https://raremamas.com/
Dr. Allyson Berent
https://cureangelman.org/about-fast
Race to 100K
https://foxg1research.kindful.com/foxg1-awareness-2022
FOXG1 Research Foundation YouTube
https://www.youtube.com/@FOXG1Research/videos
Interested in advertising on Once Upon a Gene? Email advertising@bloodstreammedia.com for more information!
December 1, 2022
by Once Upon A Gene
Assessing Executive Potential
Meet Alexis Stiles:Alexis Stiles leads Spencer Stuart’s Global Healthcare Practice. She is also a member of the Firm’s CEO and Board Practices and currently chairs the firm’s Nominations Committee. Prior to Spencer Stuart, she was an Engagement Manager for McKinsey & Company. She received a Bachelor’s in Psychology and an MBA from the University of Michigan. Key Insights:Alexis Stiles discusses career progressions and the CEO recruitment process. CEO Selection. CEO candidates are evaluated on track record and results. Alexis also utilizes an “executive intelligence assessment,” which measures potential. The assessment measures conceptual and analytical thinking, and decision making with limited information.Supporting Women. Alexis shares that men can support young women leaders by serving as active mentors and sponsors. You can break down barriers and perceptions to promote the next generation of leaders.Career Agency. You own your own career. Think purposefully about your career goals. However, don't be so stuck on those goals that you don't seize unique opportunities that come your way.Relevant Links: Read more about Alexis StilesRead “Spotlight on Innovation at the 2022 Health Evolution Summit” By Alexis Stiles
December 1, 2022
by The Gary Bisbee Show
Time constraints in physical therapy
"Picture this. A patient in a hospital or rehab facility has just finished exercising with therapy. He is thirsty, and he thinks he might as well ask for a snack now because he will be hungry in 30 minutes. His therapist sets him up in his wheelchair (brakes locked), tray table with all necessities positioned in front of him, with his call bell within reach. As she approaches the door to leave, she turns and asks, 'Is there anything else I can do for you?' The patient nods and asks for a refill of his water cup and some peanut butter crackers. The therapist grimaces. What should she do?" Hannah T. Todd is a physical therapist. She shares her story and discusses her KevinMD article, "A pervasive culture of time constraints in health care." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. With so many demands on their time, physicians today report record levels of burnout. Burnout is caused by many factors, one of which is clinical documentation. Studies indicate physicians spend two hours documenting care for every hour spent with patients. At Nuance, we are committed to helping physicians do what you love – care for patients – and spend less time on clinical documentation. The Nuance Dragon Ambient eXperience, or DAX for short, is an AI-powered, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational. Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RATE AND REVIEW → https://www.kevinmd.com/rate FOLLOW ON INSTAGRAM → https://www.instagram.com/kevinphomd FOLLOW ON TIKTOK → https://www.tiktok.com/@kevinphomd GET CME FOR THIS EPISODE → https://earnc.me/4ErMAl Powered by CMEfy.
December 1, 2022
by The Podcast by KevinMD
Improving Patient Care through Better Data Interoperability: Frank Harvey, CEO, Surescripts
In this week’s episode, Surescripts CEO Frank Harvey discusses how Surescripts is improving healthcare data interoperability and better empowering pharmacists to provide primary care to patients.
December 1, 2022
by The Real Chemistry Podcast
Episode 83: Telehealth and NRHA Advocacy Update
Telehealth was brought to the forefront of healthcare delivery models during the COVID-19 pandemic as patients were hesitant to leave their homes and the need for isolation and social distancing required more virtual care. During the public health emergency, telehealth has been reimbursed, but the future of that reimbursement is uncertain as the expected end of the public health emergency looms. So, how do rural hospitals understand and advocate for reimbursement to sustain telehealth as a standard care delivery option.
On today’s episode, hosts JJ and Rachel talk with Josh Jorgensen, Government Affairs and Policy Director at the National Rural Health Association, to discuss payment models that support rural healthcare's needs for their patients and their communities.
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Audio Engineering & Original Music by Kenji Ulmer
https://www.kenjiulmer.com/
December 1, 2022
by Rural Health Rising
Best Health Care Podcasts of 2022
Our annual look back at some of the best health care podcast episodes of the year with help from a few of our podcast host friends.Guests:Dr. Abdul El-Sayed, Policymaker in Residence, University of Michigan's Gerald R. Ford School of Public Policy and host of America DissectedKeris Myrick, Vice President of Partnerships, Inseparable and host of Unapologetically Black UnicornLearn more and read a full transcript on our website.Want more Tradeoffs? Sign up for our free weekly newsletter featuring the latest health policy research and news.Support this type of journalism today, with a gift, and have your donation tripled if you give before the end of 2022. Hosted on Acast. See acast.com/privacy for more information.
December 1, 2022
by Tradeoffs
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