We welcome back Dr. Avantika Waring from 9 AM Health to discuss her vision for cardiometabolic care, emphasizing equity in treating diabetes, obesity, hyperlipidemia, and hypertension through innovative virtual models. Dr. Waring highlights the importance of a diverse workforce in delivering culturally relevant care and addressing structural inequities. We delve into the challenges of making medications like semaglutide accessible to all, the complex interplay of diet, environment, and genetics, and the need for family-inclusive health interventions. Through thoughtful conversation, we explore how equitable access to healthcare can transform patient outcomes and the importance of addressing both medical and social determinants of health.
Overview:
00:00 Prioritizing diverse hires for company growth.
03:18 Effective self-managed care essential for lifelong health.
07:56 Employer equity improves health access through insurance.
10:04 Promote family health literacy despite economic challenges.
Next Step:
Visit our website, Healthcare for Humans, and join our community to enjoy exclusive benefits at https://www.healthcareforhumans.org/support/
Support Our Mission: Non-clinicians, explore exclusive content and contribute to our collective journey.
Be an Active Participant: Go beyond listening. Shape our narrative by co-creating episodes with us.
Be part of our community by visiting https://www.healthcareforhumans.org/support/. Follow us on Instagram @healthcareforhumanspodcast
December 26, 2024
What if the first step to creating a truly inclusive workplace is simply recognizing who’s being left out?
In this episode, DEI consultant Jessica Pettitt highlights that true inclusion starts with recognizing who is being excluded and encourages leaders to remain curious, ask questions, and challenge their own blind spots. She emphasizes the importance of embracing discomfort, disrupting routines to uncover unspoken norms, and committing to continuous learning to foster meaningful, lasting change.
Tune in as Jessica Pettitt challenges conventional thinking on DEI, offering practical strategies and thought-provoking insights to help leaders foster workplaces where everyone truly belongs!
Click this link to the show notes, transcript, and resources: https://healthyworkforceinstitute.com/podcast-episodes/
December 25, 2024
With a Christmas release day of The TRU Leader Podcast, Michelle and Tracy share their holiday traditions, reflecting on family gatherings and gratitude. They discuss their new book, "Polarity Intelligence: The Missing Logic in Leadership", which promotes a shift from an either/or mindset to a both/and approach for adaptability in leadership. They also highlight the success of their Polarity Intelligence Foundations for Leaders Program and the growth of The TRU Leader Podcast, which focuses on balance, personal growth, and leadership development.
Tracy and Michelle reflect on their journey, mentioning recent opportunities like their presentation on Polarity Intelligence at the Brave Enough 2024 Conference. They emphasize the importance of recognizing aligned opportunities, managing resistance, and fostering personal growth. They share positive feedback from participants in their mastermind group, which supports leaders in personal and professional breakthroughs. Looking ahead, they are launching a new mastermind for leaders, expressing gratitude to their listeners and excitement for future projects.
For full show notes and links, visit
https://www.missinglogic.com/truleader
If you found value in this episode, please subscribe and leave us a review on Apple Podcasts!
SOCIAL MEDIA LINKS:
https://www.linkedin.com/company/missinglogic-llc
https://www.facebook.com/missinglogicLLC
https://twitter.com/MissingLogicLLC
https://www.instagram.com/missinglogic_llc/
December 25, 2024
Perimenopause and menopause involve much more than just hot flashes. Symptoms like brain fog, insomnia, and mood changes can profoundly impact women’s personal and professional lives, especially when they go undiagnosed and untreated. For Joanna Stober, it took a frustrating year to find the help she needed. Fueled by her experience, she channeled her frustration into action, founding Midi Health—a virtual care platform dedicated to improving women's health.
December 24, 2024
In this special holiday edition of Faces of Digital Health, healthcare futurist and strategist Zayna Khayat, futurist and founder of NextMed Health Daniel Kraft and digital health expert, CEO of Transform.health Lucien Engelen discuss key trends in digital health and AI. The panel also touches on the role of new players in the health space like supermarkets and tech giants, the importance of prevention in healthcare, and the promising technologies poised to revolutionize the industry.
Topics include:
Key Trends in Digital Health in 2024
European Perspective on Digital Health
AI's Impact on Healthcare Costs
Future of Digital Health and AI
Challenges in Healthcare Implementation
Exciting Innovations in Digital Health
The Role of Technology in Preventive Health
Food, Health, and Corporate Responsibility
Policy and Legislation in Healthcare
See the video on Youtube: https://youtu.be/hwexC4heHGU?si=ut-V9rqx4yvh1V-X
www.facesofdigitalhealth.com
Newsletter: https://fodh.substack.com/
December 24, 2024
Host: Darryl S. Chutka, M.D.
Guest: Aaron M. Potretzke, M.D.
Today, we're airing a popular episode from Season 2 of Mayo Clinic Talks! Happy Holidays!
Microscopic hematuria, and less commonly gross hematuria, are conditions commonly seen by the primary care provider. Malignancy is the most ominous cause of hematuria. Fortunately, other causes are much more likely. Since this is a relatively common health condition, when should we investigate hematuria and what should the evaluation consist of? How do we evaluate a patient’s risk for urinary tract malignancy? Dr. Aaron Potretzke, a urologist at Mayo Clinic, joins us to discuss these questions.
Connect with the Mayo Clinic’s School of Continuous Professional Development online at https://ce.mayo.edu/ or on Twitter @MayoMedEd.
December 24, 2024
Vega Shah, Product Marketing Manager Lead for Healthcare & Life Sciences, NVIDIA, joins Eric to explore the evolution of generative AI in healthcare and how harnessing the technology will transform the future of patient care. She shares examples of how Nvidia’s generative AI tools enhance clinician-patient interactions and streamline human-system experiences. Vega also discusses potential pitfalls and solutions to AI implementation that healthcare organizations should consider when implementing AI. This episode was recorded live at HLTH 2024. About Vega Vega leads go-to-market strategies for Healthcare Life Sciences Solutions at NVIDIA, collaborating with a diverse range of partners including cloud service providers, biotech, and digital health companies. Her expertise in biotech software stems from her previous role as a product manager at Dotmatics, where she developed cloud-based tools for research analytics. Her career trajectory also includes shaping product strategies for drug discovery at Benchling, a prominent lab data management company. Outside of her professional life, Vega is passionate about building scientific communities in the Bay Area, and is founder of Techbio Transformers - a community of operators working at the intersection of biology and AI. About Nvidia NVIDIA’s invention of the GPU sparked the PC gaming market. The company’s pioneering work in accelerated computing—a supercharged form of computing at the intersection of computer graphics, high-performance computing, and AI—is reshaping trillion-dollar industries like healthcare and fueling the growth of many others. NVIDIA Clara – a healthcare application framework for imaging, genomics, smart hospitals, and drug discovery – is accelerating the journey to precision medicine.
December 24, 2024
💥 Spoiler alert: Executive physicals might not be as glamorous as they sound! In this episode, we take you behind the curtain of those fancy, high-end health checkups that promise to keep you at peak performance. Are they really worth the $$$? 🤔
Join us as we talk about:
What’s included in these “VIP” health checkups and if they’re actually worth your time (and money) 💰
The risks of over-testing, and whether knowing too much about your health is a good thing (or not) 🧪⚠️
Why even doctors like us might be tempted to get one! 😅
The big-picture problem of unequal access to healthcare and how we can improve it 🔑💡
🎯 What You’ll Learn:
The real scoop on executive physicals—what they are, what they test, and if you really need one 🏥
Why "more tests" isn't always better for your health 📉
How your wealth can impact your health—and why that needs to change 💸
And a lot more, with plenty of laughs and honest opinions from your doc friends! 😜
🌐Connect with us:
Please sign up for our SUBSTACK
For more episodes, limited edition merch, to send us direct messages, and more, follow this link!
Website: https://yourdoctorfriendspodcast.com/
Email us at
[email protected]
@your_doctor_friends on Instagram, TikTok, and YouTube - Send/DM us a voice memo or question and we might play it/answer it on the show or on socials!
⭐️ Call to Action:
✨ Want more episodes like this? We’re wrapping up 2024, but we’ve got tons of fresh content coming in 2025! Tell us what YOU want to hear in the next season—head to our website or reach out on social media, and share your thoughts. 🌟
📝 Don’t forget to rate & review! It helps us keep the show going, and it’s the best way for us to reach more listeners like you! 💬
Your Doctor Friends is here to answer your burning health questions, break down complicated topics, and give you a little laugh along the way. Because let’s face it—your health is important, but it doesn’t have to be boring. 😎
December 24, 2024
Originally aired Jan 11th 2022; Are you looking to move forward and create something new this year?
My word for 2022 is ‘new,’ but not as in a ‘new year’ or a ‘new resolution,’ but rather as building something new. Seeing things from a new lens. In this episode I share 4 key strategies to implement, in order to let go of the past, and move forward by creating something new in the future. I discuss how you can implement these tactics into your everyday life, along with important considerations to keep in mind as you’re doing so.
Listen to the full episode to learn:
What it really means to create & build something new for yourself
Ways in which I decompress and find peace that you can implement to your everyday life
Why letting go of the past is critical in moving forward
How you can be proactive in situations, as opposed to being active or reactive
Grab your drink of choice and join the conversation!
Disclaimer
The Healthcare Provider Happy Hour Podcast makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this Podcast. The information, opinions, and recommendations presented in this podcast are for general information only and any reliance on the information provided in this podcast is done at your own risk. This podcast should not be considered professional advice. Please speak with your own healthcare practitioner when seeking medical advice.
Connect with Jennifer George:
@bestobsessed_with_jenn | Instagram
Jennifer George | Website
@jenngeorge08) | Twitter
Jennifer George | Facebook
Click here to check out my book about connecting and communicating with patients to empower their experiences!
Stay up to date on everything happening with the Healthcare Provider Happy Hour by subscribing to my weekly newsletter at www.jennifergeorge.co
Sponsorship
Mindset Gap: Use code JENCAN20 at www.themindsetgap.com, a boutique consultancy firm arming employees and leaders with mindset tools to increase sales, bounce forward from adversity and reset intention.
December 24, 2024
Join us for our final broadcast recorded live at #HLTH2024!
✨ Rich Scarfo, President of HLTH Inc., shares how this year’s event spotlights #AI, collaboration, and groundbreaking advancements, including a strong focus on women’s health and nursing leadership.
✨ David Bosnak, Founder & CEO of Attune Media Labs, PBC, dives into the power of empathic AI to tackle mental health challenges like loneliness and improve well-being at scale.
December 23, 2024
We welcome Sven Gerlinger to discuss the importance of health equity in patient experience at Northwell Health. We explore how equitable care is deeply personal and why it's essential to segment data to ensure all voices, especially those from smaller communities, are heard. We delve into the need for diverse methods of gathering patient feedback, emphasizing the value of in-depth research and home visits. The conversation also touches on implicit biases within healthcare interactions and the significance of supporting both staff and patients in these challenging scenarios. We discuss designing healthcare experiences that cater to marginalized communities to benefit everyone and the importance of including caregivers in the patient experience. Finally, we highlight the critical role of cultural and language considerations in providing comprehensive, equitable care.
Overview:
00:00 Segment data, diversify methods, conduct in-depth research.
03:25 Adopting new diet due to health, stigma.
06:38 Bias exists; clinician prioritizes patient's comfort.
12:09 Prioritize comprehensive, equitable support for patients, caregivers.
Resources:
The Aging Revolution (Book)
Next Step:
Visit our website, Healthcare for Humans, and join our community to enjoy exclusive benefits at https://www.healthcareforhumans.org/support/
Support Our Mission: Non-clinicians, explore exclusive content and contribute to our collective journey.
Be an Active Participant: Go beyond listening. Shape our narrative by co-creating episodes with us.
Be part of our community by visiting https://www.healthcareforhumans.org/support/. Follow us on Instagram @healthcareforhumanspodcast
December 23, 2024
My guest today is Forensic Anthropologist Anna Dhody.
What we talk about with Anna in part 1:
Anna initially studied archaeology, influenced by visits to the Penn Museum in Philadelphia as a child.
She developed a passion for archaeology at a young age, around 9 or 10 years old.
Chose Boston University for its separate archaeology department, which offered more opportunities than those combined with anthropology departments.
After attending an excavation in Belize during her sophomore year, she became interested in biological anthropology, focusing on human bones and their stories.
She realized the competitive nature of academia and planned to pursue a master's in forensic science instead of a PhD.
Anna wrote a thesis manual titled "The Underground Crime Scene" for law enforcement on how to excavate buried crime scenes, which gained unexpected international circulation.
Applied for jobs after graduation and was scouted by the CIA but ultimately accepted a position at Harvard's Peabody Museum due to the need for osteologists for a NAGPRA project.
Worked at the Peabody Museum for four years, taking advantage of free classes and gaining valuable experience.
Became involved with a United Nations project in Peru to train local medical personnel in forensic anthropology, which turned into a significant teaching role.
Returned from Peru and took a temporary position at the Mütter Museum in Philadelphia. What was initially meant to last five months ended up lasting nearly 20 years.
Anna’s career path was shaped by a combination of luck and the challenges faced in the museum world, emphasizing the importance of seizing opportunities.
Links for this episode:
Health Podcast Network
LabVine Learning
Dress A Med scrubs
Digital Pathology Club
Dhody Research Institute
Former Mütter Museum forensic anthropologist launches research institute
Dhody Research Institute on Instagram
Former Curator Anna Dhody has launched the Dhody Research Institute (and you can help)
People of Pathology Podcast:
Twitter
Instagram
December 23, 2024
Remember those clunky voice assistants from the early days of the internet? Well, the AI technology behind them has evolved dramatically and thanks to the power of Generative AI, we’re now talking to a new breed of conversational digital agents. These advanced AI agents can hold meaningful conversations with patients, offering multilingual support and knowledgeable guidance on a range of health issues. With these new capabilities, there is growing interest -- even excitement -- in Generative AI’s potential to improve access to care, address workforce shortages, and enable clinicians to reach people and communities and connect them to care and resources in ways we haven’t thought possible. In this episode of our AI in Play series, we dive into the world of Generative AI agents with human experts Amy McCarthy, Chief Nursing Officer and Scott Collado, Senior Product Designer at Hippocratic AI, and Adam Updegraff DNP, CRNP, Senior Director at WellSpan Health to learn how they’re built and trained, who’s on the team building and rigorously testing them, and the real-world impact they're having on patients, communities, and clinicians. Tune in to hear how the future of healthcare is about teamwork between humans and technology, working together to deliver safer, smarter, and more accessible care for all. Find this episode’s resources at www.seeyounowpodcast.com and more information on the podcast bundles visit ANA’s Innovation Website at www.nursingworld.org/innovation. Have questions for the SEE YOU NOW team? Feedback? Future episode ideas? Contact us at
[email protected].
December 20, 2024
On this week's podcast episode, Steve Kraus and Sofia Guerra of Bessemer Venture Partners joined us to discuss the trends and predictions outlined in their second annual State of Health Tech report.
Key takeaways include:
AI: Health tech dollars invested in AI-focused companies have increased 1.5x in just two years, reaching 38% in 2024 to date.
Private market recovery: Mega rounds of $50M+ for later-stage companies with strong fundamentals, alongside a surge of seed and Series A companies scaling to $1M-$10M ARR within three years.
2025 predictions: Adoption of in-house services-as-software, AI enhancing doctors' capabilities, AI streamlining value-based care, and more companies blending cutting-edge technology with deep healthcare expertise.
About Steve Kraus:
Steve Kraus is a partner at Bessemer in the Cambridge office and a world-renowned healthcare investor. He is the author of Bessemer’s 10 Laws of Healthcare, Benchmarks for Growing Health Tech Businesses, and co-host of the podcast Heart of Healthcare. Kraus currently sits on the boards of Bright Health Group, Headspace Health, Groups, Qventus, AspenRx, HouseRx, Oshi Health, Folx Health, Mural Health, and Alcresta.
About Sofia Guerra:
Sofia Guerra is a vice president at Bessemer Venture Partners, where she invests in seed to growth healthcare and life sciences companies. She is the co-author of State of Health Tech report, Benchmarks for Growing Health Tech Business, and How to Scale Health Tech Businesses to $100M and Beyond, a study of 100+ best-in-class companies to understand key metrics relevant for scalability in healthcare software and tech-enabled services.
Listen in for the complete chat with Steve Kraus and Sofia Guerra and learn about the key trends shaping the future of health tech.
Are you ready to tell YOUR story? Members of our Health Moonshot Communities are leading startups with breakthrough technology-driven solutions for the world’s biggest health challenges. Exposure in StartUp Health Media to our global audience of investors and partners – including our podcast, newsletters, magazine, and YouTube channel – is a benefit of our Health Moonshot Community Showcase Membership. To schedule a call and see if you qualify to join and increase brand awareness through our multi-media storytelling efforts, submit our three-minute application. If you’re mission-driven, collaborative, and ready to contribute as much as you gain, you might be the perfect fit. Learn more and apply today.
Want more content like this? Sign up for StartUp Health Insider™ to get funding insights, news, and special updates delivered to your inbox.
December 20, 2024
Editor’s Summary by Kirsten Bibbins-Domingo, PhD, MD, MAS, Editor in Chief, and Preeti Malani, MD, MSJ, Deputy Editor of JAMA, the Journal of the American Medical Association, for articles published from December 14-20, 2024.
December 20, 2024
Host Jeremy Quinby has a conversation with Dr. Carolyn Torkelson about her new book Beyond Menopause; New Pathways to Holistic Health. She shares her insights on the unique healthcare needs of postmenopausal women from her 30 years as an MD. She shares why she's been driven to bridge the gap between conventional medicine and other integrative approaches, providing a fresh perspective on the mental, physical, and spiritual elements of holistic living.
She and Jeremy discuss the eight common health conditions women can become more engaged with to improve their overall all state of well-being after menopause.
https://womenagingwell.org/
December 20, 2024
Paula Osorio es mamá de Ariana de 9 años quien fue diagnosticada con Syngap1 en el 2019. Desde Antofagasta, Chile, Paula nos invita a siempre dar la milla extra detrás de un diagnóstico, de no darse por vencido y celebrar cada logro en ese camino con Syngap1.
Bio de Merlina
Información sobre SRF & SYNGAP1:
Syngap Research Fund
Que es SYNGAP1?
Recursos en Español
Donaciones: https://syngap.fund/Donate
SYNGAP1 & Epilepsia
Porque es Importante Obtener un Diagnóstico Genético
Cómo Obtener Pruebas Genéticas Gratuitas en EEUU
Planificación Financiera Futura para las Personas con Discapacidades
Comentarios:
[email protected]
Conéctate con SRF (@curesyngap1):
Facebook
Twitter
Instagram
LinkedIn
TikTok
SYNGAP10 Video Podcast Semanal con Mike
Episodio 24 Café SYNGAP1, Diciembre 19, 2024
#CafeSYNGAP1 #Syngap #SYNGAP1 #CureSYNGAP1 #CafeSYNGAP1Ariana #epilepsia #epilepsy #epilepsyawareness #autismo #autismawareness #discapacidadintelectual #id #enfermedadesraras #FondodeInvestigacionSYNGAP
December 19, 2024
Compelling research, discussions, opinions and more—enjoy these original podcasts from the AMA for the latest in medicine and patient care.
AMA Update
AMA Update
The AMA Update podcast covers a range of health care topics affecting the lives of physicians and patients. Hear from physicians and experts on COVID-19, monkeypox, advocacy issues, scope of practice and more. Because who’s doing the talking matters.Apple Podcasts | Spotify | Simplecast | AMA Update videos | Audio transcripts
AMA Moving Medicine
AMA Moving Medicine
From emerging issues to new innovations, the AMA Moving Medicine podcast brings you the physicians, scientists and all the leading voices making a difference in health care today. Subscribe now on your favorite podcast platform.Apple Podcasts | Spotify | Simplecast | Stitcher | Moving Medicine videos | Audio transcripts |
Making the Rounds
Making the Rounds
This podcast features advice, interviews and discussions on the most important topics affecting medical students’ lives and careers. Subscribe now on your favorite podcast platform.Apple Podcasts | Spotify | Simplecast | Stitcher | Audio transcripts
AMA Thriving in Private Practice
AMA Thriving in Private Practice
Private practices have been under intense pressure for years; the COVID-19 pandemic has only exacerbated the financial strain and highlighted the burdens faced by physician practice owners each day. As a private practice physician, you know you need skills they didn’t teach you in med school to make your practice thrive.The AMA’s Thriving in Private Practice podcast, launching this summer, highlights the experience of private practice physicians who know your pain points—like workflow snags and payor audits—and can help you navigate these issues and more.Don't miss an episode—subscribe on your favorite podcast platform today.Apple Podcasts | Simplecast | Audio transcripts
AMA Prioritizing Equity
AMA Prioritizing Equity
AMA Prioritizing Equity podcast illuminates how determinants of health uniquely impact marginalized communities, public health and health equity, with an eye on both short-term and long-term implications. Subscribe on your favorite podcast platform.Apple Podcasts | Amazon Music | Spotify
AMA STEPS Forward® podcast series
AMA STEPS Forward® podcast series
Hear health care leaders share how they overcame practice challenges by implementing real-world solutions that helped put the joy back into the practice of medicine.Apple Podcasts | Spotify | AMA Ed Hub™
JAMA Network™ podcasts
JAMA Network™ podcasts
Catch up on the research, opinion and educational content from across the JAMA Network™, including the JAMA Editors' Summary, Author Interviews and the popular JAMA Clinical Reviews series.JAMA Podcasts
Ethics Talk podcasts
Ethics Talk podcasts
Ethics Talk podcasts explore the ethical and professional challenges that medical students and physicians regularly confront during their education and practice careers.Journal of Ethics | PodBean | AMA Ed Hub™
Stories of Care: A CDC Project Firstline podcast from the AMA
Stories of Care: A CDC Project Firstline podcast from the AMA
Through the voices of health care experts and front-line personnel, this podcast explores the intersection of infection control and equity and examines how access plays a key role.AMA Ed Hub | Apple Podcasts | Spotify
Opioid Overdose Epidemic podcast series
Opioid Overdose Epidemic podcast series
Expert discussions and insights to help physicians and other health professionals address the epidemic of opioid overdoses. Learn about treatment options for pain management, best practices in opioid prescribing, standards of care and medications for opioid use disorder, harm reduction and overdose prevention strategies.AMA Ed Hub
December 19, 2024
Host: Darryl S. Chutka, M.D.
Guest: Terry D. Schneekloth, M.D.
According to the National Institute on Alcohol Abuse and Alcoholism, there’s a significant increase in alcohol consumption during holidays. Christmas and New Years are times of celebration and alcohol use is often part of that celebration. Binge drinking is common, and this can result in impaired judgment, motor vehicle accidents, and risky behaviors. Who’s at greatest risk for alcohol-related behaviors? How can we as health care clinicians detect those at risk for a problem with alcohol during the holidays and what advice can we give our patients recovering from an alcohol addiction to get through the holidays and maintain their sobriety? The topic for this podcast is “Alcohol Use and the Holidays” and these are some of the questions I’ll be asking my guest, Terry Schneekloth, M.D., from the Department of Psychiatry and Psychology at the Mayo Clinic.
Connect with the Mayo Clinic’s School of Continuous Professional Development online at https://ce.mayo.edu/ or on Twitter @MayoMedEd.
December 19, 2024
Featuring articles on cancer cachexia, MDR tuberculosis, Ebola virus disease, and severe asthma; a review article on the nonsurgical management of chronic venous insufficiency; a case report of a woman with end-stage liver disease and headache; and Perspectives on providing effective medical care to autistic people, on independent physician associations, on face-to-face learning, and on those who are well known to us. Supplement to the New England Journal of Medicine, Vol. 391, No. 24.
December 18, 2024
Join hosts Drs. Sarah Szanton and Deidra Crews for a special segment as they recap highlights from past episodes on structural resilience. From enlightening dialogues on health equity to inspiring advice from researchers, they revisit key moments and share their reflections on the insights gained. Whether you’re a longtime listener or new to the show, this episode offers peak moments to savor from many perspectives.
December 18, 2024
Creating a thriving, healthy work culture doesn’t happen by chance. It takes authenticity, connection, and a commitment to truly listen to your team.
In this episode, Dr. Alquietta Brown emphasizes building a healthy work culture through authenticity, open communication, and meaningful connection. She highlights the importance of leaders being genuine, actively listening to their team, and fostering collaboration to achieve shared goals and organizational success.
Tune in as Dr. Alquietta Brown shares powerful, actionable strategies for building trust, fostering engagement, and cultivating a workplace where people feel valued, supported, and inspired to excel!
Click this link to the show notes, transcript, and resources: https://healthyworkforceinstitute.com/podcast-episodes/
December 18, 2024
Tuesday, December 17, 2024
Cure SYNGAP1 Conference - Resounding success https://curesyngap1.org/events/conferences/syngap1-conference-2024/
Summary: http://www.draccon.com/dracaena-report/2024aes
A few comments:
https://www.linkedin.com/posts/richardnovak_clinical-rare-activity-7270806450090786816-m0OV
https://www.linkedin.com/posts/haley-tokars-1b2b38209_i-had-the-privilege-of-attending-my-first-activity-7272056324090159104-xFSZ
https://www.linkedin.com/posts/citizen-health-inc_aes2024-rareasone-activity-7270694148825845760-AIzF
https://www.linkedin.com/posts/graglia_syngap-dreem-eeg-activity-7271993151131660288-GESyhttps://www.linkedin.com/posts/praxis-precision-medicines-inc_epilepsy-aes2024-ugcPost-7273392536130355200-x2pqhttps://www.linkedin.com/posts/syngap1-argentina-382156240_por-tercer-a%C3%B1o-consecutivo-syngap-argentina-activity-7271911668522098688-JlrW
https://www.linkedin.com/posts/stoke-therapeutics_aes2024-epilepsy-activity-7273445932107538433-akYf
Pre-register now: December 4 & 5 – https://cureSYNGAP1.org/Pre25,
https://investor.stoketherapeutics.com/events/event-details/understanding-dravet-syndrome-unmet-need-and-potential-disease-modification
STUDIES AND TRIALS ARE HAPPENING NOW - https://docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/
Two trials to consider
https://med.stanford.edu/autism/studies/pregnenolone-randomized-controlled-trial.html age 14-25
https://deepdeestudy.com/ list of sites: NJ & FL
BONES
https://youtu.be/RhaJnruZCzk?si=bnPtYPsRhOChfsH0
https://curesyngap1.org/blog/navigating-a-lifetime-of-diagnoses-michaels-syngap1-journey-and-the-effects-of-anti-seizure-medications-on-bone-density/
FUNDRAISING
Coast2Coast Challenge $207,974 Syngap.Fund/C2C
Join my team! https://secure.givelively.org/donate/syngap-research-fund-incorporated/coast2coast-clinics-challenge
FUNDRAISE https://syngap.fund/FR
CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/
VOLUNTEER SPOTLIGHT:
Stacey Miller https://curesyngap1.org/team/leadership-team/stacey-miller/
Laura Bermingham of SLC6A1 https://curesyngap1.org/team/volunteers/laura-birmingham/
RESEARCH UPDATE
There are 310 papers on or related to SYNGAP1 since 1998, but 54 of those are in 2024!
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2024&sort=pubdate&timeline=expanded
Latest are from Willsey & Frazier.
Willsey: https://www.biorxiv.org/content/10.1101/2024.12.05.626924v1
Frazier: https://onlinelibrary.wiley.com/doi/full/10.1002/aur.3290
VOLUNTEER
https://curesyngap1.org/volunteer-with-srf/
SOCIAL MATTERS
- 1,240 YouTube. https://www.youtube.com/@CureSYNGAP1
- 3,883 LinkedIn. https://www.linkedin.com/company/curesyngap1/
- 11,739 Twitter https://twitter.com/cureSYNGAP1
- 47k Insta https://www.instagram.com/curesyngap1/
- 464 TikTok https://www.tiktok.com/@curesyngap1
NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources
Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
Episode 156 of #Syngap10
#CureSYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1
December 18, 2024
In this episode of The TRU Leader Podcast, Michelle and Tracy are joined by Dr. Mari Tietze and Steve Love, Deb Rio and Mike Edwards, and their husbands- Kevin Moore and Jerry Christopherson and to explore the transformative impact of the Breakthrough Year Mastermind program on personal and relational growth. Through in-person and virtual retreats featuring meditation, journaling, and education, the mastermind fosters deep connections and meaningful self-discovery. Mari and Deb share how the program has boosted their self-esteem and work-life balance, with their husbands’ support playing a vital role in their journey. Steve and Mike reflect on the positive changes in their wives, attributing much of the growth to the leadership group’s influence.
The conversation highlights the value of shared activities, like Enneagram sessions, in strengthening relationships and understanding. Tracy and Michelle’s mindful coaching style and dynamic energy are praised for creating a supportive and uplifting environment that blends laughter with learning. Their book, "Polarity Intelligence: The Missing Logic and Leadership" is also recognized as a key resource for participants' personal growth and happiness. Themes of balance, partnership, and polarity intelligence are emphasized as essential tools for fostering stronger relationships and greater joy in life.
Are you looking for a breakthrough this 2025? Step into the new year the right by joining our Breakthrough Mastermind! We are taking a limited number of leaders into our next mastermind group. Apply for the Breakthrough Year Mastermind in the full show notes below:
For full show notes and links, visit
https://www.missinglogic.com/truleader
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December 18, 2024