Join hosts Drs. Sarah Szanton and Deidra Crews for a special segment as they recap highlights from past episodes on structural resilience. From enlightening dialogues on health equity to inspiring advice from researchers, they revisit key moments and share their reflections on the insights gained. Whether you’re a longtime listener or new to the show, this episode offers peak moments to savor from many perspectives.
December 18, 2024
Creating a thriving, healthy work culture doesn’t happen by chance. It takes authenticity, connection, and a commitment to truly listen to your team.
In this episode, Dr. Alquietta Brown emphasizes building a healthy work culture through authenticity, open communication, and meaningful connection. She highlights the importance of leaders being genuine, actively listening to their team, and fostering collaboration to achieve shared goals and organizational success.
Tune in as Dr. Alquietta Brown shares powerful, actionable strategies for building trust, fostering engagement, and cultivating a workplace where people feel valued, supported, and inspired to excel!
Click this link to the show notes, transcript, and resources: https://healthyworkforceinstitute.com/podcast-episodes/
December 18, 2024
Tuesday, December 17, 2024
Cure SYNGAP1 Conference - Resounding success https://curesyngap1.org/events/conferences/syngap1-conference-2024/
Summary: http://www.draccon.com/dracaena-report/2024aes
A few comments:
https://www.linkedin.com/posts/richardnovak_clinical-rare-activity-7270806450090786816-m0OV
https://www.linkedin.com/posts/haley-tokars-1b2b38209_i-had-the-privilege-of-attending-my-first-activity-7272056324090159104-xFSZ
https://www.linkedin.com/posts/citizen-health-inc_aes2024-rareasone-activity-7270694148825845760-AIzF
https://www.linkedin.com/posts/graglia_syngap-dreem-eeg-activity-7271993151131660288-GESyhttps://www.linkedin.com/posts/praxis-precision-medicines-inc_epilepsy-aes2024-ugcPost-7273392536130355200-x2pqhttps://www.linkedin.com/posts/syngap1-argentina-382156240_por-tercer-a%C3%B1o-consecutivo-syngap-argentina-activity-7271911668522098688-JlrW
https://www.linkedin.com/posts/stoke-therapeutics_aes2024-epilepsy-activity-7273445932107538433-akYf
Pre-register now: December 4 & 5 – https://cureSYNGAP1.org/Pre25,
https://investor.stoketherapeutics.com/events/event-details/understanding-dravet-syndrome-unmet-need-and-potential-disease-modification
STUDIES AND TRIALS ARE HAPPENING NOW - https://docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/
Two trials to consider
https://med.stanford.edu/autism/studies/pregnenolone-randomized-controlled-trial.html age 14-25
https://deepdeestudy.com/ list of sites: NJ & FL
BONES
https://youtu.be/RhaJnruZCzk?si=bnPtYPsRhOChfsH0
https://curesyngap1.org/blog/navigating-a-lifetime-of-diagnoses-michaels-syngap1-journey-and-the-effects-of-anti-seizure-medications-on-bone-density/
FUNDRAISING
Coast2Coast Challenge $207,974 Syngap.Fund/C2C
Join my team! https://secure.givelively.org/donate/syngap-research-fund-incorporated/coast2coast-clinics-challenge
FUNDRAISE https://syngap.fund/FR
CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/
VOLUNTEER SPOTLIGHT:
Stacey Miller https://curesyngap1.org/team/leadership-team/stacey-miller/
Laura Bermingham of SLC6A1 https://curesyngap1.org/team/volunteers/laura-birmingham/
RESEARCH UPDATE
There are 310 papers on or related to SYNGAP1 since 1998, but 54 of those are in 2024!
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2024&sort=pubdate&timeline=expanded
Latest are from Willsey & Frazier.
Willsey: https://www.biorxiv.org/content/10.1101/2024.12.05.626924v1
Frazier: https://onlinelibrary.wiley.com/doi/full/10.1002/aur.3290
VOLUNTEER
https://curesyngap1.org/volunteer-with-srf/
SOCIAL MATTERS
- 1,240 YouTube. https://www.youtube.com/@CureSYNGAP1
- 3,883 LinkedIn. https://www.linkedin.com/company/curesyngap1/
- 11,739 Twitter https://twitter.com/cureSYNGAP1
- 47k Insta https://www.instagram.com/curesyngap1/
- 464 TikTok https://www.tiktok.com/@curesyngap1
NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources
Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
Episode 156 of #Syngap10
#CureSYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1
December 18, 2024
Send us a textHernia surgery is one of the most common procedures, but the quality of care and post-op treatment can vary widely.What’s behind these variations, and how can we ensure better care for patients?In this episode of HealthBiz Briefs, Dr. Michael Reinhorn and Dr. Nora Fullington dive into the challenges of hernia surgery and explain how Boston Hernia is raising the bar with patient-centered care and improved outcomes.This episode is brought to you by BetterHelp. Give online therapy a try at https://betterhelp.com/caretalk and get on your way to being your best self.As a BetterHelp affiliate, we may receive compensation from BetterHelp if you purchase products or services through the links provided.🎙️⚕️ABOUT CARETALKCareTalk is a weekly podcast that provides an incisive, no B.S. view of the US healthcare industry. Join co-hosts John Driscoll (President U.S. Healthcare and EVP, Walgreens Boots Alliance) and David Williams (President, Health Business Group) as they debate the latest in US healthcare news, business and policy. 🎙️⚕️ABOUT MICHAEL REINHORN M.DDr. Michael Reinhorn is a board-certified general surgeon and Fellow of the American College of Surgeons, specializing in ambulatory hernia surgery with a focus on inguinal, umbilical, and epigastric hernias. Based near Boston, his practice serves New England with surgical care provided at Newton-Wellesley Hospital, Boston Outpatient Surgical Suites, and the Surgery Center of New Hampshire. With over 23 years of experience and more than 5,400 hernia operations performed, Dr. Reinhorn is a recognized expert in minimally invasive hernia surgery, emphasizing opioid reduction and value-based care. He consults for the American Board of Surgery, co-chairs the opioid reduction task force for the ACHQC, and represents the Americas Hernia Society on the ACHQC board. A dedicated educator, researcher, and volunteer with The Schwartz Center for Compassionate Healthcare, Dr. Reinhorn is committed to improving patient outcomes and advancing hernia care.🎙️⚕️ABOUT NORA FULLINGTON M.DDr. Nora Fullington is a board-certified general surgeon and Fellow of the American College of Surgeons, specializing in minimally invasive hernia and gallbladder surgery. With over 2,000 operations performed as a hospital-based surgeon, she joined the practice in 2021 and has since completed more than 1,000 hernia surgeries. Dr. Fullington is an expert in open preperitoneal mesh and non-mesh repairs, as well as laparoscopic techniques for patients who benefit from minimally invasive approaches. A national authority on hernia repair, she has published peer-reviewed studies, delivered lectures on improving patient outcomes, and brings expertise in gallbladder surgery to the practice. Passionate about patient-centered care, she ensures every patient feels heard and valued. Dr. Fullington also demonstrates her commitment to humanitarian medicine through surgical mission trips to Haiti and advocacy for humanism in healthcare.🎙️⚕️ABOUT BOSTON HERNIABoston Hernia is a specialized surgical practice dedicated to providing expert care for hernia and gallbladder conditions. With a focus on minimally invasive techniques and patient-centered treatment, the team at Boston Hernia delivers exceptional outcomes through personalized care plans, advanced surgical approaches, and a commitment to reducing recovery times. Serving patients across New England, Boston Hernia is known for its expertise, compassionate care, and dedication to improving the lives of thoSupport the showCareTalk: Healthcare. Unfiltered. is produced by Grippi Media.
December 18, 2024
Shift Bioscience is a biotech company focused on developing cell rejuvenation therapies to defeat the diseases of aging through novel gene-based interventions.
December 17, 2024
Doug Henry, PhD, Vice President and Medical Director of Enterprise Behavioral Health at Highmark Health, and Mari Vandenburgh, Vice President of Health Programs and Solutions at Highmark Health, join Eric to share Highmark’s innovative approaches to transforming care delivery through digital and hybrid solutions. Topics include: Post-Acute Care Innovations: AHN At-Home Care program’s multidisciplinary approach integrates mental health support to reduce readmissions and save $600 PMPM in total care costs. Addressing Network and Access Gaps: Highmark’s strategic initiatives to expand access through geo-analysis, virtual-first strategies, and enhanced provider partnerships. Virtual Mental Health: A closer look at Highmark’s partnership with Spring Health to provide personalized, outcome-driven mental health care, achieving symptom remission in six weeks or less for 70% of patients with moderate to severe conditions. Living Health Strategy: Leveraging personalized nudges and integrated digital platforms to boost member engagement, with 79% receiving their first mental health care through the program. Innovation for Loneliness and Beyond: Doug shares groundbreaking grant projects, such as using technology and social prescriptions to address loneliness and improve senior care outcomes. This episode is packed with actionable insights for health plans seeking to close access gaps, enhance member experience, and drive measurable outcomes in mental health and beyond. Tune in to learn from Highmark’s bright spots and discover strategies to replicate their success. About Doug and Mari Doug is a clinical psychologist licensed in Pennsylvania and California and brings over 20 years of experience in professional applied psychology, including inpatient, outpatient, and administrative assignments. Attracted by the integrated payer-provider model and emphasis on patient-centered treatment, he joined the Allegheny Health Psychiatry and Behavioral Health Institute in 2017 as vice president. In addition to his role at the enterprise, he continues to serve as a leadership dyad for the Institute. Before joining AHN, Dr. Henry served as clinical administrator at Western Psychiatric Institute and Clinic for UPMC Child and Adolescent Behavioral Health Services, the UPMC Center for Autism and Developmental Disorders, and the UPMC Center for Eating Disorders. Mari is responsible for identifying and managing best-in-class healthcare solutions to improve Quadruple Aim outcomes related to chronic and episodic clinical conditions and validating multi-year business case value drivers and ROI. She has been with Highmark in various roles since 2005. Mari has a Bachelor of Science from Duquesne and a Master of Health Administration from the University of Pittsburgh. About Highmark Health Highmark Health is a $27 billion national, blended health organization with one of America’s largest Blue Cross Blue Shield insurers and a growing regional hospital and physician network. Based in Pittsburgh, Pa., Highmark Health’s 44,000 employees serve millions of customers nationwide through the nonprofit organization’s affiliated businesses, including Highmark Inc., Allegheny Health Network, HM Insurance Group, United Concordia Dental, enGen, and Helion. We’d love to hear from you! Send your comments, suggestions and ideas to
[email protected] Visit our website to learn more about the show! www.brightspotsinhealthcare.com
December 17, 2024
Family caregiving is a profound and complex journey, particularly when faced with dementia or terminal illnesses. In this podcast episode, a replay of a Books & Chit Chat discussion, we delve into the experiences of Malia Kline, co-author of "Sisterly Shove." She shares her heartfelt story of caring for her aging parents and the intricate dynamics encountered with her physician sister and co-author Diane Stinson.
Malia’s caregiving journey begins with her family grappling with the twin burdens of her father’s dementia and her mother’s pancreatic cancer. Malia and Diane had differing views on their care, which involved moving each parent cross-country from one sister’s care to the other’s. Diane, a pathologist, believed different medical decisions could extend their lives. Malia wished them relief from suffering even if it resulted in death. However, these differing perspectives did not create a chasm between them; instead, they brought the sisters closer in their shared mission. Writing a book with alternating chapters from each perspective helped in this process.
For Malia, writing "Sisterly Shove" with Diane was not just a story-telling endeavor but a therapeutic journey. The collaborative process allowed them to alternate writing and editing chapters, facilitating understanding and maintaining their relationship. Their book provides an intimate perspective on caregiving challenges, sibling dynamics, and their fight against the medical establishment.
Through excerpts read during the podcast, we gain insights into how the sisters' different approaches reflected their childhood personalities and shaped their caregiving strategies. Malia emphasizes the importance of journaling and writing as tools for preserving memories and coping with the complex emotions of caregiving.
In this episode, you will:
Understand the impact of dementia on the entire family dynamic, not just the individual.Learn how to navigate complex sibling dynamics in elder care to foster a more cohesive and collaborative caregiving approach.Discover effective coping strategies when caring for a loved one with dementia, creating a more harmonious caregiving environment.See how writing is a powerful tool for processing and managing the emotional complexities of caregiving.
After the Podcast
Purchase Sisterly Shove
Learn more about Malia at AlzAuthors.com
and “Dementia with Difficult People”
Learn more about the Moderators
Marianne Sciucco
Christy Byrne Yates
Learn more about Aging & Amazing
Sign up for the book club
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
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December 17, 2024
Laurie McGraw is speaking with Inspiring Woman Dr. Jenny Schneider and her Home[ward] Grown mentee, Nathalie Gouailhardou, co-founder of Neurode — a wearable headband that can track and treat ADHD symptoms. This episode rounds out a full year of the Home[ward] Grown Mentorship series where every quarter, Dr. Jenny Schneider selects a CEO/Founder into this […]
December 17, 2024
In this episode of Solving Healthcare, we’re discussing physical activity and its profound impact on health. Dr. K explores practical strategies for increasing your step count, improving overall fitness levels, the importance of cardio, and the benefits of resistance training for strength and longevity. Tune in to learn how to enhance your fitness routine and support your health goals!Listen now on Apple & SpotifySPONSORBetterHelp is the largest online counseling platform worldwide. They change the way people get help with facing life's challenges by providing convenient, discreet and affordable access to a licensed therapist. BetterHelp makes professional counselling available anytime, anywhere, through a computer, tablet or smartphone.Sign up HERE for 10% off | Use discount code “solvinghealthcare”OFFERSSANOLIVINGAt sanoLiving, our purpose is a powerful commitment: to free people from the grip and societal taboo surrounding menopause symptoms.We champion awareness, support, and barrier-free access to safe and effective treatments, and empower all to seize control of their lives, be it in their professional pursuits or personal aspirations. Our unwavering dedication to personalized equitable care propels us forward, ensuring that every individual, without exception, can thrive during midlife and beyond, unleashing their full potential and vitality.Kwadcast exclusive: Save 10% on sanoLiving!GYATA NUTRITIONGyata Nutrition is now live! Founded by Dr. Kwadwo Kyeremanteng, Gyata Nutrition offers top-quality supplements, including New Zealand Whey Protein Isolate, Collagen, Magnesium, and Fish Oil—all Health Canada-approved.Get your Gyata Strong Bundle and save 50%Visit gyatanutrition.com and use promo code kwadcast15 to save on your order now!LMNTWe're excited to announce our partnership with LMNT, a pioneer in superior hydration solutions. The key to proper hydration isn't just water—it's water plus electrolytes. This balance is vital to avoid issues like muscle cramps and energy dips, often caused by the dilution of electrolyte levels from excessive water intake, a condition known as hyponatremia.Enter LMNT, an electrolyte drink mix that's tasty, convenient, and free from sugar or artificial additives. Co-created by Robb Wolf and Luis Villasenor, LMNT provides optimal ratios of sodium, potassium, and magnesium, ensuring not only health and performance benefits but also a delightful taste experience with flavours like Orange Salt, Citrus Salt, and the new Watermelon Salt.To celebrate our partnership, we're offering you a free sample pack.Simply visit DrinkLMNT.com/kwadcast and start your journey to better hydration. LMNT stands behind their product with a no-questions-asked refund policy.Together with LMNT, we're redefining hydration. Remember, it's not just about water—it's about water PLUS electrolytes. Stay hydrated, and stay healthy!LMNTEXAMINE.COMBest source for evidence based nutrition and supplement information.Exclusive Offer for Kwadcast FollowersWe are thrilled to roll out a special offer exclusively for the subscribers of Kwadcast.substack.com, made possible by our new partnership:* 7-Day Free Trial: Start your journey with Examine.com with no strings attached. Explore their exhaustive resources and see how they can aid in meeting your health and wellness objectives.* Discounted Subscription Plans: Enjoy a special discount on Examine.com’s membership, tailored just for you:* Monthly Subscription: Originally $29, now just $25 — a saving of 14%.* Yearly Subscription: Typically $198, now only $171 — saving you 14% as well.Get Your Discounted AccessReady to dive in? Simply use this special link to access these exclusive discounts. The link will direct you to a sign-up page where your discounts will be automatically applied at checkout.Discount LINK for Examine.comSolving Healthcare Media with Dr. Kwadwo Kyeremanteng is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber.Thanks for reading Solving Healthcare Media with Dr. Kwadwo Kyeremanteng! This post is public so feel free to share it. This is a public episode. If you’d like to discuss this with other subscribers or get access to bonus episodes, visit kwadcast.substack.com/subscribe
December 17, 2024
Host: Darryl S. Chutka, M.D.
Guest: Mark A. Frye, M.D.
For many, the holidays are a time for happiness and connecting with family and friends. It’s often a time of celebration. But for some, it can be a time of increased stress, anxiety and sadness. In some cases, our good health habits such as eating healthy, regular exercise and getting adequate sleep are replaced by overeating, consuming excess alcohol and taking on too many responsibilities. A recent study by the American Psychological Society found that 89% of those surveyed felt stressed during the holiday season. What are the most common reasons for this stress? Can we avoid it? If not, what are the best ways to manage it? I’ll be discussing these topics with my guest, Mark Frye, M.D., a psychiatrist from the Mayo Clinic. The topic for this podcast is “Holiday Stress and Mental Health”.
Connect with the Mayo Clinic’s School of Continuous Professional Development online at https://ce.mayo.edu/ or on Twitter @MayoMedEd.
December 17, 2024