Links & Resources:
Follow Their Journey on Social Media
Facebook: Paxtons Pioneers
Instagram: Paxtons_Pioneers
KCAL News Story
Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage
January 2, 2025
In this episode of the RNegade Podcast, host Karen DiMarco and guest Nathalie Niddam, host of the Longevity Podcast, delve into innovative approaches to health and wellness. Nathalie shares her journey from ICU trauma flight nurse to holistic health advocate, highlighting the limitations of the allopathic medical model. The discussion emphasizes the body's self-healing capabilities, the impact of mindset on health, and the potential of peptides like BPC 157 and TB 500 in healing. The episode underscores the importance of empowering individuals to take charge of their health and the need for a broader, integrative perspective in healthcare.
GET Nursing CES for this podclass here
Introduction to the Episode (00:00:01)
The hosts introduce the podcast and its focus on innovative nursing education. Natalie Needham shares her excitement about being a guest and her journey in health.
Nathalie's Personal Health Journey (00:07:00)
Natalie shares her health challenges and how they shaped her perspective on healing. Natalie recounts her transition from sales to becoming a holistic nutritionist.
Empowering Patients (00:16:06)
Natalie emphasizes the need for individuals to reclaim their health and healing power.
Discussion on the impact of mindset on healing and the significance of changing internal dialogue.
The Physics of God (00:19:25)
Mention of a book discussing the power of belief in health and its effects on genetic expression.
Power of Mind Over Biology (00:23:45)
Highlighting the importance of mental empowerment in the healing process compared to other treatments.
Starting a Podcast (00:26:17)
Speaker shares the journey of starting a podcast to explore health topics and connect with experts.
Filling the Bucket Metaphor (00:29:29)
Using a metaphor to explain the importance of addressing fundamental health issues rather than just adding treatments.
Introduction to Peptides (00:30:35)
Speaker explains the significance of peptides in the body and their therapeutic potential.
Description of BPC 157, its benefits, and its role in healing and recovery processes.
Neurotransmitter Balance (00:35:21)
Exploration of BPC 157's effects on neurotransmitters, noting a paradoxical response in some individuals.
BioRegulator Peptides (00:37:49)
Explanation of bio regulator peptides, their short amino acid chains, and their significance in health. Discussion on the research behind bio regulators, including their application in healing after Chernobyl.
Pineal Gland and Longevity (00:43:40)
Impact of the pineal gland on health, including circadian rhythms and telomerase activation. Results from studies showing reduced mortality rates in groups receiving epithelium injections compared to controls.
Thymus and Beta Four Overview (00:51:45)
Discussion on thymus and beta four, its docking stations, and potential histamine responses.
Immune System Reactions (00:52:50)
Exploration of immune system responses to peptides and personal experiences with adverse reactions.
Advancements in Medical Testing (00:55:04)
Introduction to innovative testing methods for mitochondrial function and metabolomics.
Cancer Detection Innovations (00:56:21)
Overview of a new blood test for early cancer detection and its implications. Discussion on a new tear sample test for breast cancer detection and its advantages.
Parallel Health Care Systems (01:02:43)
Emergence of alternative health care systems alongside traditional medical practices.
Recommended Reading for Health Professionals (01:04:07)
Suggestions for essential books on health, trauma, and belief systems.
Longevity and Drug Repurposing (01:06:02)
Debate on the use of repurposed drugs for longevity and the need for critical thinking.
Learn more about Nathalie Niddam & Longevity Podcast @ www.natniddam.com
FOLLOW US
IG @ RNegade.pro
FB @ RNegade.pro
TikTok @ RNegade.pro
LinkedIn @ RNegade.pro
YouTube @rnegade_pro
January 2, 2025
Show Notes
Zoe Bailey, SRF's Volunteer Coordinator and State Ambassador and Advocacy Lead (California), talks about grieving after the diagnosis, finding SRF, volunteering, and the recent SYNGAP1 Conference in LA. She chats about the importance of self-care as well as Kaia's progress since starting a repurposed drug (Tanganil).
All episodes are available at Syngap.Fund/Stories.
Kaia's Warrior Story
Connect with Zoe:
zoe@cureSYNGAP1.org
Zoe's SRF bio
Zoe's Instagram
Zoe's Facebook
Connect with Rainy:
rainy@cureSYNGAP1.org
Rainy's SRF Bio
Instagram - @Hope4theCure
YouTube - @Hope4theCure
Facebook - Hope SelahMay
SYNGAP1 Stories Episode 028
SRF & SYNGAP1 Info:
What is SYNGAP1?
Syngap Research Fund - https://curesyngap1.org/
SYNGAP1 Resources for Newly Diagnosed Families
Pre-register for the 2025 Cure SYNGAP1 Conference in Atlanta
Donate to SRF
Get Involved with SRF
Volunteer with SRF
SRF's State Ambassador Program
Wednesday Warriors
Supporting SYNGAP1 Siblings
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Addressing the Symptoms of SYNGAP1
Read more about the repurposed drug Tanganil
Sprint4Syngap 2025
Studies
Clinical Trials (Including Longboard's DEEp OCEAN Trial)
Frazier Eye Study
CHOP NHS
CHCO NHS
Citizen Health
Adults with SYNGAP1 Study
Hispanic Phenotype Study with CHOP
Science Day 2024 videos
CA IHSS (In-Home Supportive Services)
Dr. Chow's Latest SRF Grant Information
Connect with SRF (@curesyngap1):
Facebook
Twitter
Instagram
LinkedIn
TikTok
YouTube
SYNGAP10 Weekly Video Podcast w/ Mike
SynGAP Research Fund Apple Podcast Channel
Family Zoom Meeting (Weekly on Wednesdays, 8PM ET):
cureSYNGAP1.org/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@curesyngap1.org
Music: In the Forest... by Lesfm from Pixabay
Episode 030 SYNGAP1 Stories, December 31, 2024
#SYNGAP1StoriesKaia #Syngap #SYNGAP1 #CureSYNGAP1 #SYNGAP1Stories #SYNGAP1StoriesEp30 #Epilepsy #EpilepsyAwareness #Autism #AutismAwareness #IntellectualDisability #ID #Anxiety #Behavior #RareDisease #RareDiseaseResearch #SynGAPResearchFund #CareAboutRare #Advocacy #PatientAdvocacy #Neurology #GeneticTesting #Family #Water #Music #SyngapConf #SYNGAP1Siblings #Caregiver #Elopement #Behavior #Communication #SelfHelp #Volunteer #Conf25
December 31, 2024
Originally aired Jan 11th 2022; Are you looking to move forward and create something new this year?
My word for 2022 is ‘new,’ but not as in a ‘new year’ or a ‘new resolution,’ but rather as building something new. Seeing things from a new lens. In this episode I share 4 key strategies to implement, in order to let go of the past, and move forward by creating something new in the future. I discuss how you can implement these tactics into your everyday life, along with important considerations to keep in mind as you’re doing so.
Listen to the full episode to learn:
What it really means to create & build something new for yourself
Ways in which I decompress and find peace that you can implement to your everyday life
Why letting go of the past is critical in moving forward
How you can be proactive in situations, as opposed to being active or reactive
Grab your drink of choice and join the conversation!
Disclaimer
The Healthcare Provider Happy Hour Podcast makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this Podcast. The information, opinions, and recommendations presented in this podcast are for general information only and any reliance on the information provided in this podcast is done at your own risk. This podcast should not be considered professional advice. Please speak with your own healthcare practitioner when seeking medical advice.
Connect with Jennifer George:
@bestobsessed_with_jenn | Instagram
Jennifer George | Website
@jenngeorge08) | Twitter
Jennifer George | Facebook
Click here to check out my book about connecting and communicating with patients to empower their experiences!
Stay up to date on everything happening with the Healthcare Provider Happy Hour by subscribing to my weekly newsletter at www.jennifergeorge.co
Sponsorship
Mindset Gap: Use code JENCAN20 at www.themindsetgap.com, a boutique consultancy firm arming employees and leaders with mindset tools to increase sales, bounce forward from adversity and reset intention.
December 24, 2024
Stephanee Beggs, an ER nurse who has taken continuing nursing education not just to a new level, but with her educational platform, RN Explained, she’s has moved it over to a whole new planet where common sense and practical application is an art form. In this podcast Stephanee shares her unconventional journey into nursing and her efforts to support nursing students and new grad nurses to bridge the gap between the textbook and the patient bedside, building a career that reflects her passion as the founder of “RN Explained.” She emphasizes the importance of understanding core nursing concepts and advocates for curriculum reform to better prepare students. Stephanee’s proactive approach and innovative teaching methods inspire new nurses to feel confident, competent, and engaged in whatever role they play in their vocation as a nurse
December 20, 2024
Paula Osorio es mamá de Ariana de 9 años quien fue diagnosticada con Syngap1 en el 2019. Desde Antofagasta, Chile, Paula nos invita a siempre dar la milla extra detrás de un diagnóstico, de no darse por vencido y celebrar cada logro en ese camino con Syngap1.
Bio de Merlina
Información sobre SRF & SYNGAP1:
Syngap Research Fund
Que es SYNGAP1?
Recursos en Español
Donaciones: https://syngap.fund/Donate
SYNGAP1 & Epilepsia
Porque es Importante Obtener un Diagnóstico Genético
Cómo Obtener Pruebas Genéticas Gratuitas en EEUU
Planificación Financiera Futura para las Personas con Discapacidades
Comentarios: paulina@curesyngap1.org
Conéctate con SRF (@curesyngap1):
Facebook
Twitter
Instagram
LinkedIn
TikTok
SYNGAP10 Video Podcast Semanal con Mike
Episodio 24 Café SYNGAP1, Diciembre 19, 2024
#CafeSYNGAP1 #Syngap #SYNGAP1 #CureSYNGAP1 #CafeSYNGAP1Ariana #epilepsia #epilepsy #epilepsyawareness #autismo #autismawareness #discapacidadintelectual #id #enfermedadesraras #FondodeInvestigacionSYNGAP
December 19, 2024
Chasing Glimmers, is all about finding the small, hopeful moments that shine through the darkest of times. Like you, Katie and I know how challenging the rare disease journey can be, but we also believe in the incredible power of connection, bravery and positivity. We'll share inspiring stories from the community, life lessons we've learned and explore how glimmers light our way forward. Let's chase those glimmers together!
EPISODE HIGHLIGHTS:
Effie & Katie welcome guest Megan Gillet. Her daughter, Nellie, endures terminal Infantile MLD. Megan shares her unique journey of embracing life in all its vibrant complexity. Megan opens up about living with grief, disability, parenting challenges, fashion passions, crafting pursuits, and her love of nature—without confining herself to a single niche. She explains what it means to let life unfold authentically, finding the courage to sidestep society’s labels and expectations.
Through candid conversation, Megan reveals her family’s determination to savor each moment, knowing that some of the hardest challenges lie ahead. It’s a powerful reminder that truly living isn’t about fitting into a box, but rather about spilling beyond its edges, leaving a trail of color, hope, and hard-won joy. Tune in for an inspiring glimpse into a life that refuses simple definitions—and learn how you, too, can find beauty and meaning in every shade of your own journey.
December 19, 2024
Tuesday, December 17, 2024
Cure SYNGAP1 Conference - Resounding success https://curesyngap1.org/events/conferences/syngap1-conference-2024/
Summary: http://www.draccon.com/dracaena-report/2024aes
A few comments:
https://www.linkedin.com/posts/richardnovak_clinical-rare-activity-7270806450090786816-m0OV
https://www.linkedin.com/posts/haley-tokars-1b2b38209_i-had-the-privilege-of-attending-my-first-activity-7272056324090159104-xFSZ
https://www.linkedin.com/posts/citizen-health-inc_aes2024-rareasone-activity-7270694148825845760-AIzF
https://www.linkedin.com/posts/graglia_syngap-dreem-eeg-activity-7271993151131660288-GESyhttps://www.linkedin.com/posts/praxis-precision-medicines-inc_epilepsy-aes2024-ugcPost-7273392536130355200-x2pqhttps://www.linkedin.com/posts/syngap1-argentina-382156240_por-tercer-a%C3%B1o-consecutivo-syngap-argentina-activity-7271911668522098688-JlrW
https://www.linkedin.com/posts/stoke-therapeutics_aes2024-epilepsy-activity-7273445932107538433-akYf
Pre-register now: December 4 & 5 – https://cureSYNGAP1.org/Pre25,
https://investor.stoketherapeutics.com/events/event-details/understanding-dravet-syndrome-unmet-need-and-potential-disease-modification
STUDIES AND TRIALS ARE HAPPENING NOW - https://docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/
Two trials to consider
https://med.stanford.edu/autism/studies/pregnenolone-randomized-controlled-trial.html age 14-25
https://deepdeestudy.com/ list of sites: NJ & FL
BONES
https://youtu.be/RhaJnruZCzk?si=bnPtYPsRhOChfsH0
https://curesyngap1.org/blog/navigating-a-lifetime-of-diagnoses-michaels-syngap1-journey-and-the-effects-of-anti-seizure-medications-on-bone-density/
FUNDRAISING
Coast2Coast Challenge $207,974 Syngap.Fund/C2C
Join my team! https://secure.givelively.org/donate/syngap-research-fund-incorporated/coast2coast-clinics-challenge
FUNDRAISE https://syngap.fund/FR
CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/
VOLUNTEER SPOTLIGHT:
Stacey Miller https://curesyngap1.org/team/leadership-team/stacey-miller/
Laura Bermingham of SLC6A1 https://curesyngap1.org/team/volunteers/laura-birmingham/
RESEARCH UPDATE
There are 310 papers on or related to SYNGAP1 since 1998, but 54 of those are in 2024!
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2024&sort=pubdate&timeline=expanded
Latest are from Willsey & Frazier.
Willsey: https://www.biorxiv.org/content/10.1101/2024.12.05.626924v1
Frazier: https://onlinelibrary.wiley.com/doi/full/10.1002/aur.3290
VOLUNTEER
https://curesyngap1.org/volunteer-with-srf/
SOCIAL MATTERS
- 1,240 YouTube. https://www.youtube.com/@CureSYNGAP1
- 3,883 LinkedIn. https://www.linkedin.com/company/curesyngap1/
- 11,739 Twitter https://twitter.com/cureSYNGAP1
- 47k Insta https://www.instagram.com/curesyngap1/
- 464 TikTok https://www.tiktok.com/@curesyngap1
NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources
Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
Episode 156 of #Syngap10
#CureSYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1
December 18, 2024
Family caregiving is a profound and complex journey, particularly when faced with dementia or terminal illnesses. In this podcast episode, a replay of a Books & Chit Chat discussion, we delve into the experiences of Malia Kline, co-author of "Sisterly Shove." She shares her heartfelt story of caring for her aging parents and the intricate dynamics encountered with her physician sister and co-author Diane Stinson.
Malia’s caregiving journey begins with her family grappling with the twin burdens of her father’s dementia and her mother’s pancreatic cancer. Malia and Diane had differing views on their care, which involved moving each parent cross-country from one sister’s care to the other’s. Diane, a pathologist, believed different medical decisions could extend their lives. Malia wished them relief from suffering even if it resulted in death. However, these differing perspectives did not create a chasm between them; instead, they brought the sisters closer in their shared mission. Writing a book with alternating chapters from each perspective helped in this process.
For Malia, writing "Sisterly Shove" with Diane was not just a story-telling endeavor but a therapeutic journey. The collaborative process allowed them to alternate writing and editing chapters, facilitating understanding and maintaining their relationship. Their book provides an intimate perspective on caregiving challenges, sibling dynamics, and their fight against the medical establishment.
Through excerpts read during the podcast, we gain insights into how the sisters' different approaches reflected their childhood personalities and shaped their caregiving strategies. Malia emphasizes the importance of journaling and writing as tools for preserving memories and coping with the complex emotions of caregiving.
In this episode, you will:
Understand the impact of dementia on the entire family dynamic, not just the individual.Learn how to navigate complex sibling dynamics in elder care to foster a more cohesive and collaborative caregiving approach.Discover effective coping strategies when caring for a loved one with dementia, creating a more harmonious caregiving environment.See how writing is a powerful tool for processing and managing the emotional complexities of caregiving.
After the Podcast
Purchase Sisterly Shove
Learn more about Malia at AlzAuthors.com
and “Dementia with Difficult People”
Learn more about the Moderators
Marianne Sciucco
Christy Byrne Yates
Learn more about Aging & Amazing
Sign up for the book club
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
We are a Whole Care Network Featured Podcast
Proud to be on The Health Podcast Network
Find us on The World Podcast Network and babyboomer.org
Want to be on the podcast? Here’s what you need to know
We’ve got merch! Shop our Store
December 17, 2024
This PodClass introduces Sarah Lorenzini’s Rapid Response RN podcast series to the RNegade CE library, exploring the role and sharing the clinical expertise of Rapid Response nurses. Participants will gain technical expertise required to identify and manage rapidly deteriorating patients, with an emphasis on a compassionate, human-centered approach to its application. Through real-life case studies, reflective practice, and expert insights, learners will deepen their clinical reasoning skills, reinforce key physiological assessments, and cultivate resilience and empathy in high-stress environments.
Sarah Lorenzini is a seasoned leader and educator in Emergency and Rapid Response nursing, devoted mother of five, and host of the Rapid Response RN podcast – a welcome addition to the RNegade PodClass Library. Sarah shares her passion for caring for others in her journey from the bedside to the broadcast booth. She discusses her diverse experiences in emergency and intensive care, emphasizing the importance of recognizing early signs of decreased cardiac output in patients. Sarah highlights the need for nurses to trust their instincts and connect with patients on a human level. She also talks about her decision to start a podcast to educate and support fellow nurses, blending her love for teaching with her clinical expertise. The episode underscores Sarah's dedication to making a positive impact on nurses, the nursing profession and healthcare through the global reach of the Rapid Response RN podcast.
December 12, 2024
Dear Friends,
The holidays can be a beautiful time of connection, joy, and celebration—but for caregivers, it can also be a season that amplifies the weight we carry every day. The expectations, the comparisons, the logistics of making life work for our kids—it all feels louder somehow.
This episode is my friendship letter to you, my fellow caregivers, during this holiday season. It’s for the days when the to-do lists are endless, the appointments keep coming, and the social invitations feel more isolating than joyful. It’s for the moments when you catch yourself scrolling through social media, comparing your life to others, and questioning if you’re doing enough—or if you’re enough.
Spoiler: You are.
I recorded this as a 10-minute refuge for you—a place to breathe, to feel seen, and to remind yourself that you are not alone. Together, we’re navigating the chaos, the exhaustion, and the love that grounds it all.
If you’re like me, you might feel the weight of it all a little more during this time of year. Maybe you’re thinking about your child’s progress or lack thereof, or the struggle to attend even the simplest gatherings without feeling out of place. I see you. I feel you. And I hope this episode feels like a warm hug and a reminder that you’re doing an extraordinary job in an extraordinary situation.
Every day you carry your child—physically, emotionally, and mentally—is a gift. It’s heavy, yes. But it’s also rooted in a love that’s unshakable.
Take a moment, my friend. This one is for you.
With love and gratitude,
Effie
P.S. If this episode resonates, share it with another caregiver who might need it. We’re stronger when we remind each other we’re not alone.
December 12, 2024
Originally aired Jan 4th 2022; As we head into the new year, I would normally reflect on the past 365 days, but instead, this year I want to reflect forward. I believe that 2022 will be the year of the healthcare provider, and I will be discussing how healthcare providers can begin defining their values in the new year. I will also share recent findings in a survey conducted on how we can retain healthcare providers during this difficult time, including 6 key initiatives on how to do so.
Listen to the full episode to learn:
How we can prevent healthcare provider burnout & what initiatives are most important to retaining them
Why 2022 will be the year of the healthcare provider
What we can be doing to boost employee morale and energy in the field
How healthcare providers can begin defining their values in the new year
Grab your drink of choice and join the conversation!
Disclaimer
The Healthcare Provider Happy Hour Podcast makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this Podcast. The information, opinions, and recommendations presented in this podcast are for general information only and any reliance on the information provided in this podcast is done at your own risk. This podcast should not be considered professional advice. Please speak with your own healthcare practitioner when seeking medical advice.
Connect with Jennifer George:
@bestobsessed_with_jenn | Instagram
Jennifer George | Website
@jenngeorge08) | Twitter
Jennifer George | Facebook
Click here to check out my book about connecting and communicating with patients to empower their experiences!
Stay up to date on everything happening with the Healthcare Provider Happy Hour by subscribing to my weekly newsletter at www.jennifergeorge.co
Sponsorship
Mindset Gap: Use code JENCAN20 at www.themindsetgap.com, a boutique consultancy firm arming employees and leaders with mindset tools to increase sales, bounce forward from adversity and reset intention.
December 10, 2024
A Shot in the Arm Podcast is proud to bring you another installment of Global Health Diplomats! In this compelling episode, co-hosts Ben Plumley and Eric Goosby dive deep into the future trajectory of the global HIV response. Following World AIDS Day, the discussion spans a 38,000-foot view of where the HIV epidemic stands, its critical challenges, and the evolving strategies needed for a sustainable, long-term response. From the impact of geopolitical shifts on access to treatment and care to the integration of HIV programs with broader primary healthcare systems, this episode unpacks the most pressing issues in global health today.
Key Highlights:
HIV Goals for 2030: Reality Check
Are we close to ending AIDS as a public health crisis? Dr. Eric Goosby reflects on the progress made and the significant hurdles ahead.
Quote: "We've built breathtaking infrastructure over 25 years, but it’s clear we won’t cross the 2030 finish line without major shifts." (Eric Goosby, 00:01:24)
The Role of Targets in the HIV Response
Are political targets still relevant in today’s complex world? Ben and Eric debate the pros and cons of target-driven approaches in global health.
Quote: "Targets have driven investment and expanded care, but we may need to rethink them in light of new challenges." (Eric Goosby, 00:05:26)
Primary Care Integration
Why the HIV response must pivot toward integrated primary healthcare to address non-communicable diseases and pandemic preparedness.
Quote: "For people living with HIV, coronary artery disease, hypertension, and cancer are now the bigger threats. Primary care is key." (Eric Goosby, 00:07:46)
The Geopolitical Impact on HIV Care
Rising anti-rights movements and geopolitical challenges make it harder to bring marginalized populations into care.
Quote: "The rights-based approach to care is under siege globally, making access for key populations even tougher." (Ben Plumley, 00:10:04)
Funding Sustainability Beyond 2030
Exploring innovative funding mechanisms, domestic ownership, and the evolving role of multilateral agencies like the Global Fund.
Quote: "Transitioning to country-driven funding is essential. It’s time for governments to take ownership." (Eric Goosby, 00:30:01)
HIV Prevention’s Urgent Need for Innovation
Despite treatment advancements, global prevention efforts lag behind, especially for at-risk populations.
Quote: "Prevention needs to focus on behavior, access, and new technologies like PrEP for real impact." (Eric Goosby, 00:37:26)
Upcoming Episodes in the Series:
Rights-Based Approaches in HIV Care
Funding the Future: Domestic Resource Mobilization for HIV Programs
Prevention Innovation: From Behavioral Change to Biomedical Solutions
Reimagining Global Health Architecture Post-2030
Acknowledgments:
This podcast is made possible by the generous support of the John T. Martin Foundation. Produced by Erik Espera of NewsDoc Media.
Subscribe and Share:
Stay tuned for more in-depth discussions on the future of global health. Subscribe to Global Health Diplomats wherever you download podcasts, and leave us a five-star review to support the conversation!
Share your thoughts and join the discussion on social media using #GlobalHealthDiplomats and #WorldAIDSDay2024!
December 9, 2024
Desde Chile nos acompaña Valentina Mendoza, mamá de Mateo de 4 años diagnosticado en Septiembre 2024. Valentina nos comparte un pedacito de su historia sobre lo difícil de conocer un diagnóstico pero también la incertidumbre de no saberlo, y a pesar de todo que con amor y valentía están dispuestos a luchar cada día para una mejor calidad de vida.
Bio de Merlina
Información sobre SRF & SYNGAP1:
Syngap Research Fund
Que es SYNGAP1?
Recursos en Español
Donaciones: https://syngap.fund/Donate
SYNGAP1 & Epilepsia
Porque es Importante Obtener un Diagnóstico Genético
Cómo Obtener Pruebas Genéticas Gratuitas en EEUU
Planificación Financiera Futura para las Personas con Discapacidades
Comentarios: paulina@curesyngap1.org
Conéctate con SRF (@curesyngap1):
Facebook
Twitter
Instagram
LinkedIn
TikTok
SYNGAP10 Video Podcast Semanal con Mike
Episodio 23 Café SYNGAP1, Diciembre 4, 2024
#CafeSYNGAP1 #Syngap #SYNGAP1 #CureSYNGAP1 #CafeSYNGAP1Mateo #epilepsia #epilepsy #epilepsyawareness #autismo #autismawareness #discapacidadintelectual #id #enfermedadesraras #FondodeInvestigacionSYNGAP #SynGAPResearchFund #abogacia #defensadelpaciente #advocacy #patientadvocacy #neurologia #pruebasgeneticas #terapias #familia #apoyo
December 4, 2024
Barbara Drake-Vera’s caregiving journey in Peru, caring for her American father with Alzheimer's, is a unique and eye-opening story that sheds light on cultural differences in elder care. While Barbara lived in Lima, Peru with her Peruvian husband, her widowed father was diagnosed with Alzheimer’s. He lived in a four-bedroom home he previously shared with his late wife in Florida, USA, and it was soon determined he could not live alone at home.
As the only child, Barbara felt compelled to come to his assistance. She knew that elder care was manageable and affordable in Lima, where multigenerational families living together was the norm. So, she and her husband made the unconventional decision to move her dad to Peru to be cared for in their home. This was a radical change for him, a proud and independent American man, World War II veteran, and former postal worker in his eighties. Together, they navigated the cultural nuances of caregiving within a Latin community that, in spite of their challenges, led to success.
Barbara, the author of Melted Away: A Memoir of Climate Change and Caregiving in Peru,had had a difficult relationship with her father for many years, but this caregiving journey helped heal old wounds.
Quotes
“Caring for someone with dementia can be a real gift, but you don't think of it at the time because you're just trying to get through each day.” - Barbara Drake-Vera
“I decided to be compassionate. It wasn't forgiveness, but I chose not to let the past be my present.” - Barbara Drake-Vera
“My father, who was a self-absorbed, narcissistic jerk, was never such a nice person as when he was finally treated for Alzheimer's and cared for in Peru.” - Barbara Drake-Vera
In this episode, you will:
Explore the impact of cultural differences in elder care and learn how diverse perspectives can enrich the caregiving experience for individuals with Alzheimer's.Discover the benefits of multigenerational living for Alzheimer's caregiving and how it can positively influence the well-being of both the individual with Alzheimer's and the caregivers.Learn effective strategies for transitioning elders with Alzheimer's to new environments and understand the importance of creating a supportive and familiar space for them.
After the podcast
Purchase Melted Away: A Memoir of Climate Change and Caregiving in Peru
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Learn more about Barbara Drake-Vera
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
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December 3, 2024
Episode Title: World AIDS Day 2024: Human Rights In Action Against HIV
Guests:
Hon. Mmapaseka Steve Letsike, Deputy Minister Women, Youth, and Persons with Disabilities, South Africa
Dr. Mandeep Dhaliwal, Director of the HIV and Health Group, United Nations Development Programme (UNDP)
Description:
In this powerful episode of A Shot in the Arm Podcast, host Ben Plumley dives deep into the intersection of human rights and global health with two inspiring leaders: Honorable Deputy Minister Steve Letsike from South Africa and Dr. Mandeep Dhaliwal, head of HIV at the UN Development Programme (UNDP) — Together, they explore the evolving HIV response, challenges in addressing stigma and discrimination, and the critical role of governance and community leadership in achieving the global goal of ending AIDS as a public health crisis by 2030.
What You'll Learn in This Episode:
The Hon. Steve Letsike’s transition from LGBTQ+ and HIV activist to a key governmental leader.
Dr. Mandeep Dhaliwal’s insights on the UNDP's role in driving global change in HIV policies and human rights advocacy.
How human rights are intrinsically linked to HIV prevention and care.
The global and local implications of criminalization and stigma on HIV responses, with examples from countries like South Africa and Uganda.
The significance of integrating diverse issues like gender-based violence, poverty, and structural inequalities into the fight against HIV.
Key Moments:
[00:01:08] Hon. Steve Letsike reflects on moving from activism to governance.
[00:10:52] Dr. Mandeep Dhaliwal discusses how governance and policies shape HIV responses globally.
[00:22:22] Connecting human rights to effective HIV prevention and care strategies.
[00:27:15] The balance between donor aid reliance and self-sustained national HIV programs.
[00:30:22] The path toward achieving the goal of ending AIDS by 2030 and the obstacles that remain.
Notable Quotes:
"Governments belong to the people. We all have to contribute differently to achieve a just and equal society." - Hon. Steve Letsike
"Without human rights, we won't realize the potential of ending AIDS as a public health threat by 2030." - Dr. Mandeep Dhaliwal
Subscribe for more episodes focusing on global health equity and innovation!
Follow us on Spotify, YouTube, and wherever you get your podcasts.
#WorldAIDSDay2024 #EndAIDS2030 #HumanRights #GlobalHealth #UNAIDS #HIVAwareness #UNDP
December 1, 2024
Episode Title: World AIDS Day 2024: Human Rights In Action Against HIV
Guests:
Hon. Mmapaseka Steve Letsike, Deputy Minister Women, Youth, and Persons with Disabilities, South Africa
Dr. Mandeep Dhaliwal, Director of the HIV and Health Group, United Nations Development Programme (UNDP)
Description:
In this powerful episode of A Shot in the Arm Podcast, host Ben Plumley dives deep into the intersection of human rights and global health with two inspiring leaders: Honorable Deputy Minister Steve Letsike from South Africa and Dr. Mandeep Dhaliwal, head of HIV at the UN Development Programme (UNDP) — Together, they explore the evolving HIV response, challenges in addressing stigma and discrimination, and the critical role of governance and community leadership in achieving the global goal of ending AIDS as a public health crisis by 2030.
What You'll Learn in This Episode:
The Hon. Steve Letsike’s transition from LGBTQ+ and HIV activist to a key governmental leader.
Dr. Mandeep Dhaliwal’s insights on the UNDP's role in driving global change in HIV policies and human rights advocacy.
How human rights are intrinsically linked to HIV prevention and care.
The global and local implications of criminalization and stigma on HIV responses, with examples from countries like South Africa and Uganda.
The significance of integrating diverse issues like gender-based violence, poverty, and structural inequalities into the fight against HIV.
Key Moments:
[00:01:08] Hon. Steve Letsike reflects on moving from activism to governance.
[00:10:52] Dr. Mandeep Dhaliwal discusses how governance and policies shape HIV responses globally.
[00:22:22] Connecting human rights to effective HIV prevention and care strategies.
[00:27:15] The balance between donor aid reliance and self-sustained national HIV programs.
[00:30:22] The path toward achieving the goal of ending AIDS by 2030 and the obstacles that remain.
Notable Quotes:
"Governments belong to the people. We all have to contribute differently to achieve a just and equal society." - Hon. Steve Letsike
"Without human rights, we won't realize the potential of ending AIDS as a public health threat by 2030." - Dr. Mandeep Dhaliwal
Subscribe for more episodes focusing on global health equity and innovation!
Follow us on Spotify, YouTube, and wherever you get your podcasts.
#WorldAIDSDay2024 #EndAIDS2030 #HumanRights #GlobalHealth #UNAIDS #HIVAwareness #UNDP
December 1, 2024
Episode Title:
2024 UNAIDS World AIDS Day Report: The Rights Way to End the Epidemic?
Host: Ben Plumley, Global Health Strategist
Guest: Christine Stegling, Deputy Executive Director, UNAIDS
Episode Summary:
Welcome to A Shot in the Arm Podcast! In this first of a set of special World AIDS Day 2024 episodes, host Ben Plumley chats with Christine Stegling, Deputy Executive Director of UNAIDS. They delve into the key themes of this World AIDS Day’s UNAIDS report, "Taking the Rights Path to End AIDS", which profiles the critical role of human rights in tackling the HIV/AIDS epidemic.
Christine highlights the intersection of biomedical interventions and human rights, explaining why creating an enabling environment is essential for ending the AIDS epidemic. A skeptical Ben asks if this is possible by the international target of 2030. Other topics include the challenges posed by stigma, discrimination, and policy barriers, and how countries can ensure equitable access to prevention and treatment services.
Key Takeaways:
The 2030 Goal: is it possible? What does it mean to end AIDS as a public health threat?
Human Rights Approach: Why protecting human rights is as crucial as advancing biomedical interventions.
Global Challenges: Updates on rights rollbacks, policy barriers, and their impact on HIV prevention in countries like Uganda and the Philippines.
Country Leadership: How UNAIDS supports nations in creating sustainable, inclusive HIV responses.
Bright Spots: Positive changes in Botswana under new leadership with a strong human rights focus.
Additional Insights:
The episode also touches on global advocacy strategies for HIV prevention amidst political and social challenges, including UNAIDS' role in navigating shifting donor priorities and supporting countries to take ownership of their epidemic responses.
Resources Mentioned:
UNAIDS 2024 Report: Taking the Rights Path to End AIDS
Learn more about UNAIDS’ global initiatives: UNAIDS Website
Producer: Erik Espera, NewDoc Media
Subscribe for more episodes focusing on global health equity and innovation!
Follow us on Spotify, YouTube, and wherever you get your podcasts.
#WorldAIDSDay2024 #EndAIDS2030 #HumanRights #GlobalHealth #UNAIDS #HIVAwareness
November 29, 2024
2024 DSF Biennial Family & Professional Conference
June 20th to June 22nd. This three-day gathering united all those committed to improving the lives of individuals with Dravet syndrome – including families, caregivers, clinicians, researchers, and biopharmaceutical professionals. It provided a platform for fostering new relationships and collaborations among families and professionals alike.
Recorded sessions from the conference can be accessed on demand by both virtual and in-person registrants through December 31, 2024.
conference@dravetfoundation.org
November 27, 2024
Tuesday, November 26, 2024
Annie Passed yesterday #SynGAPAngel
https://www.linkedin.com/posts/graglia_the-syngap1-community-is-at-a-loss-as-we-activity-7267225798602874880-W9hw?utm_source=share&utm_medium=member_desktop
SRF NEWS
Stories just keeps getting better: https://curesyngap1.org/podcasts/syngap1-stories/stacey-miller/
New family video, use YouTube auto translate: Juliana Meza https://www.youtube.com/watch?v=NLkqswEvAQs
Two trials to consider
https://med.stanford.edu/autism/studies/pregnenolone-randomized-controlled-trial.html age 14-25
https://deepdeestudy.com/ list of sites: NJ & FL
Two studies we all need to sign up for
Sign up for Frazier https://syngap.fund/eye2 https://curesyngap1.org/resources/studies/tracking-thinking-skills-and-behaviors-in-syngap1-patients/
Citizen Health https://www.citizen.health/partners/srf
Conference - Conference is 9 days away!
Lineup: Science Day lineup - https://x.com/curesyngap1/status/1851723428677456093
Agendas are up! https://curesyngap1.org/events/conferences/syngap1-conference-2024/
Thursday Reception at the Hotel: https://www.eventbrite.com/e/rare-research-reception-tickets-1003668087267
Friday Join us for dinner! https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2024-caregiver-dinner
FUNDRAISING
Coast2Coast Challenge $152,592 Syngap.Fund/C2C
Minted Cards - 20% discount, 15% to SRF, code FUNDRAISESYNGAP - https://Syngap.Fund/Minted
FUNDRAISE https://syngap.fund/FR
CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/
VOLUNTEER SPOTLIGHT: Stephanie Decker
https://www.linkedin.com/in/stefanie-decker-cpa-38776696/
ZOOM BACKGROUND
https://drive.google.com/file/d/13jhPIBo-o1sHchEJz6KttocT1_h7GKZE/view?usp=sharing
VOLUNTEER
https://curesyngap1.org/volunteer-with-srf/
SOCIAL MATTERS
- 1,230 YouTube. https://www.youtube.com/@CureSYNGAP1
- 3,851 LinkedIn. https://www.linkedin.com/company/curesyngap1/ - 11,779 Twitter https://twitter.com/cureSYNGAP1 - 47k Insta https://www.instagram.com/curesyngap1/ - 456 TikTok https://www.tiktok.com/@curesyngap1
NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources
Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917Episode 155 of #Syngap10
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1 #CureSYNGAP1
November 26, 2024
Originally aired Dec 21st 2021; In this week’s episode, I am joined by Josh Cutler, an author and seasoned mental health professional who has worked in healthcare for nearly twenty years. An experienced psychotherapist, clinical social worker and people leader, Josh’s work focuses on improving access to mental health services for people vulnerable to suicide. He works in private practice and is also a behavioral health leader in big healthcare.
Josh is passionate about sharing his own struggles with diagnosis of and recovery from a serious mental illness, in the hopes that this vulnerability will lead others to seek help. He is the author of The Day Hospital: A Memoir. Josh shares his journey of mental health, writing his book, and much more.
Tune in to this week’s episode to learn:
How the pandemic has affected the mental health of healthcare workers
The stigma around mental health and how it has changed over the years
Advice for healthcare providers who are struggling right now and feeling burnt out
Statistics on mental health & suicide within the healthcare industry
How to create a safe space for others to share how they’re feeling
Grab your drink of choice and join the conversation!
Resources
Website: https://www.joshcutler.net/
Josh’s Book: The Day Hospital: A Memoir https://www.amazon.com/dp/B096TRSSG3?ref_=pe_3052080_397514860
Facebook: https://www.facebook.com/thedayhospital/
LinkedIn: https://www.linkedin.com/in/josh-cutler-licsw-16032468/
Disclaimer
The Healthcare Provider Happy Hour Podcast makes no warranty, guarantee, or representation as to the accuracy or sufficiency of the information featured in this Podcast. The information, opinions, and recommendations presented in this podcast are for general information only and any reliance on the information provided in this podcast is done at your own risk. This podcast should not be considered professional advice. Please speak with your own healthcare practitioner when seeking medical advice.
Connect with Jennifer George:
@bestobsessed_with_jenn | Instagram
Jennifer George | Website
@jenngeorge08) | Twitter
Jennifer George | Facebook
Click here to check out my book about connecting and communicating with patients to empower their experiences!
Stay up to date on everything happening with the Healthcare Provider Happy Hour by subscribing to my weekly newsletter at www.jennifergeorge.co
Sponsorship
Mindset Gap: Use code JENCAN20 at www.themindsetgap.com, a boutique consultancy firm arming employees and leaders with mindset tools to increase sales, bounce forward from adversity and reset intention.
November 26, 2024
This course aims to familiarize nurses with the Ultradian Rhythms - specifically the Basic Activity Rest Cycle (B.R.A.C), the consequences of ignoring the body’s signals to rest during an ‘Ultradian Trough,’ and provide teachable strategies & breathing techniques to not only mitigate the long-term effects of accumulated Ultradian Stress, but harness our natural rhythms to maximize resilience, health, and performance at work and in our personal lives.
GET NURSES CES FOR THIS PODCLASS
rnegade.thinkific.com/courses/take/Ultradian-abreathiated
Introduction to Renegade (00:00:01)
Karen introduces the podcast and shares the vision behind Renegade.
Ed's Introduction (00:04:51)
Ed shares his background and the significance of breath control in managing health.
Overview of Ultradian Rhythm (00:07:12)
Karen outlines the objectives of the discussion on ultradian rhythms and their impact on health.
Cultural Influences on Rest (00:12:03)
Karen discusses how societal pressures lead to ignoring the body's signals for rest.
Breath Control and Health (00:16:24)
Ed discusses the connection between breath control and overall health, emphasizing the importance of mindful breathing.
Breath Control Basics (00:20:13)
Ed discusses the importance of low and slow breathing for health and performance.
Ultradian Rhythms (00:24:18)
Karen introduces ultradian rhythms and their importance for biological functions.
Inflammation and Stress Response (00:27:38)
Explains how ignoring rest leads to stress response and inflammation in the body.
Hormonal Imbalances (00:31:19)
Details how stress affects hormone production and can lead to various health issues.
Rest and Recovery in Nursing (00:36:02)
Karen emphasizes the need for rest and recovery in nursing practices for better health.
Breath Training Techniques (00:37:41)
Ed introduces techniques for improving breathing patterns to support relaxation and health.
Managing Physiology through Breath (00:42:44)
Explains how breath control shifts the brain from fear to higher functioning and enhances resilience and energy.
Impact of Breath on Heart Rate (00:44:54)
Describes how breath rate affects heart rate and overall physiological responses to stress.
Controlling Stress through Breath (00:46:03)
Highlights the importance of breath control in managing stress and preventing health issues like heart disease.
Breath Control and Learning (00:48:30)
Ed explains how breath control enhances brain function and helps in making better choices in stressful situations.
Circadian Rhythms and Breath (00:50:06)
Discusses the relationship between light exposure, nasal cycles, and the body's physiological responses.
Nasal Cycle and Brain Function (00:52:19)
Explains how different nostrils affect brain activity and overall performance based on environmental factors.
Breathing Techniques for Energy (00:57:39)
Teaches how to breathe correctly to support posture and energy flow throughout the body.
Breath Control and Physiological Impact (01:00:58)
Discussion on the importance of exhaling through the nose to enhance oxygenation and reduce toxicity.
Fat Loss and Exhale Technique (01:02:24)
Explains how longer exhales can aid fat loss without dietary changes.
Cortisol Awakening Response (01:06:13)
Describes the body's natural cortisol response upon waking and its implications for energy levels.
Ultradian Rhythms and Adrenal Health (01:07:15)
Discusses the significance of respecting ultradian rhythms to prevent adrenal fatigue.
Breathing Techniques for Relaxation (01:10:20)
Introduces breathing exercises to maintain energy and reduce stress throughout the day.
Harnessing Biological Rhythms (01:17:41)
Highlights the importance of understanding ultradian rhythms for patient education and recovery.
FOLLOW US
IG @ RNegade.pro
FB @ RNegade.pro
TikTok @ RNegade.pro
LinkedIn @ RNegade
YouTube @rnegade_pro
November 19, 2024
Show Notes
Stacey Miller, SRF's 2024 SYNGAP1 Conference Director and SRF's State Ambassador (Idaho), talks all things Conference, connecting with the SRF community, her son Jack's diagnosis, seizures, behavioral issues, and how her family's SYNGAP1 life impacts Jack's older sibling, Ava.
All episodes are available at Syngap.Fund/Stories.
Jack's Warrior Story
Connect with Stacey
stacey@cureSYNGAP1.org
Stacey's SRF bio
Connect with Rainy:
rainy@cureSYNGAP1.org
Rainy's SRF Bio
Instagram - @Hope4theCure
YouTube - @Hope4theCure
Facebook - Hope SelahMay
SYNGAP1 Stories Episode 028
SRF & SYNGAP1 Info:
What is SYNGAP1?
Syngap Research Fund - https://curesyngap1.org/
SYNGAP1 Resources for Newly Diagnosed Families
Donate to SRF
Get Involved with SRF
SRF's State Ambassador Program
Wednesday Warriors
Supporting SYNGAP1 Siblings
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Details for SYNGAP1 Conference 2024
Addressing the Symptoms of SYNGAP1
Connect with SRF (@curesyngap1):
Facebook
Twitter
Instagram
LinkedIn
TikTok
YouTube
SYNGAP10 Weekly Video Podcast w/ Mike
SynGAP Research Fund Apple Podcast Channel
Family Zoom Meeting (Weekly on Wednesdays, 8PM ET):
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: ed@curesyngap1.org
Music: In the Forest... by Lesfm from Pixabay
Episode 029 SYNGAP1 Stories, November 19, 2024
#SYNGAP1StoriesJack #Syngap #SYNGAP1 #CureSYNGAP1 #SYNGAP1Stories #SYNGAP1StoriesEp29 #Epilepsy #EpilepsyAwareness #Autism #AutismAwareness #IntellectualDisability #ID #Anxiety #Behavior #RareDisease #RareDiseaseResearch #SynGAPResearchFund #CareAboutRare #Advocacy #PatientAdvocacy #Neurology #GeneticTesting #Family #Water #Music #SyngapConf #SYNGAP1Siblings #Caregiver #Elopement #Behavior #Communication
November 19, 2024
In this episode of the Renegade Podcast, the host and co-hosts discuss the complexities of hormonal health, focusing on menopause. They welcome Karen Martell, an expert in nutrition and female hormones, who shares her personal journey with hormonal dysfunction and menopause. Karen emphasizes the importance of self-education and advocacy for women, highlighting the benefits of hormone replacement therapy (HRT) and lifestyle changes. The episode aims to empower nurses with knowledge to better support their patients, stressing the need for personalized care and the significance of understanding hormonal imbalances. The conversation encourages proactive health management and continuous learning.
GET NURSING CES FOR THIS PODCLASS HERE rnegade.thinkific.com/courses/take/midlife-mavens
Introduction and Overview (00:00:01)
The host introduces the podcast's theme and the guest, Karen Martell, an expert in nutrition and female hormones.
Hormonal Issues and Misdiagnosis (00:04:41)
Karen recounts her struggles with hormonal issues in her 30s and the misdiagnosis she faced from doctors.
Journey to Understanding Hormones (00:06:39)
Karen explains her journey to self-discovery regarding her hormones and the drastic measures she took to find relief.
Stress and Hormonal Health (00:09:32)
Discussion on how chronic stress affects hormonal health, leading to fatigue and weight issues.
Impact of Pregnancy on Hormones (00:12:40)
Karen shares how her pregnancy exacerbated her hormonal imbalances and led to early menopause symptoms.
Misconceptions About Menopause (00:16:25)
Discussion on the rapid aging process women experience during menopause and the lack of awareness surrounding it.
Options for Women in Perimenopause (00:17:30)
Karen critiques the limited options offered to women during perimenopause, advocating for more comprehensive solutions.
Finding the Right Hormones (00:19:38)
Karen discusses her journey to find the appropriate hormone treatments, including estrogen and thyroid medication.
Weight Loss and Hormonal Balance (00:20:49)
The importance of balancing hormones for weight loss is emphasized, alongside personal strategies Karen implemented.
Using Appetite Medications (00:22:29)
Karen explains her experience with appetite medications and their effectiveness in managing weight during menopause.
Hormonal Challenges in Health-Conscious Women (00:24:12)
Karen addresses the frustrations of health-conscious women facing stubborn weight gain despite their efforts.
Misconceptions About HRT (00:31:32)
Karen discusses the fear surrounding hormone replacement therapy and its benefits for women.
Introduction to Hormonal Education (00:37:43)
Karen shares her initial hesitance and imposter syndrome about discussing hormones due to not being a licensed medical professional.
Challenges Faced by Medical Professionals (00:40:26)
The limitations doctors face in understanding hormones due to time constraints and the insurance-based medical model.
Comprehensive Blood Panels (00:48:25)
The necessity of detailed blood panels to accurately assess hormonal levels and overall health.
Resources for Women (00:49:54)
Karen mentions the wealth of information available on her website, aimed at supporting midlife women's health.
Importance of FSH Testing (00:50:01)
FSH levels as indicators of estrogen loss and their correlation with menopause and weight gain.
Xenoestrogens and Their Effects (00:52:04)
Explanation of xenoestrogens and their impact on the body’s estrogen receptors and overall hormonal health.
The Role of Estradiol in Weight Management (00:53:22)
Karen explains how estradiol influences insulin sensitivity and weight gain during menopause.
FOLLOW US
IG @ RNegade.pro
FB @ RNegade.pro
TikTok @ RNegade.pro
LinkedIn @ RNegade
YouTube @ RNegade_pro
November 18, 2024