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STUDIES AND A TRIAL FRAZIER https://curesyngap1.org/resources/studies/tracking-thinking-skills-and-behaviors-in-syngap1-patients/ CHANGES (UK) https://curesyngap1.org/resources/studies/changes-study-adults-an-investigation-into-behaviour-and-physiology-in-syngap1/ PNO https://curesyngap1.org/resources/studies/pregnenolone-treatment-trial-for-individuals-with-autism/   Science: Chow Press - https://curesyngap1.org/blog/dr-clement-chow-at-the-university-of-utah-receives-support-from-syngap-research-fund-srf-to-accelerate-therapeutic-development-for-syngap1-related-disorders-pr30/ Sohal Webinar - https://curesyngap1.org/resources/webinars/94-targeting-gamma-oscillations-to-improve-cognition/ or https://fb.watch/vBYXj4FY7A/    Conference - Conference is 1 month away! Lineup: Science Day lineup - https://x.com/curesyngap1/status/1851723428677456093 Agendas are up! https://curesyngap1.org/events/conferences/syngap1-conference-2024/ Thursday Reception at the Hotel: https://www.eventbrite.com/e/rare-research-reception-tickets-1003668087267 Friday Join us for dinner! https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2024-caregiver-dinner   RESEARCH UPDATE There are 304 papers on or related to SYNGAP1 since 1998, but 46 of those are in 2024! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2024&sort=pubdate&timeline=expanded Latest is from Canada, where they look at the impact of SYNGAP1 on auditory cortex function, social behavior and ability to extinguish fear memories. https://www.jneurosci.org/content/early/2024/10/08/JNEUROSCI.0946-24.2024.long   FUNDRAISING     - Coast2Coast Challenge $92,754 Syngap.Fund/C2C     - Missense Account of the Fund $25,940 https://secure.givelively.org/donate/syngap-research-fund-incorporated/missense-fund    - Charmander $10,585 https://secure.givelively.org/donate/syngap-research-fund-incorporated/running-for-charmander   - Emmy $8,347 https://secure.givelively.org/donate/syngap-research-fund-incorporated/save-emmy-s-future-fund-syngap1-research    Minted Cards - 20% discount, 15% to SRF, code FUNDRAISESYNGAP - https://Syngap.Fund/Minted   Lovely blog on Scramble: https://curesyngap1.org/blog/swinging-for-a-cause-the-3rd-annual-scramble-for-syngap1/   ZOOM BACKGROUND https://drive.google.com/file/d/13jhPIBo-o1sHchEJz6KttocT1_h7GKZE/view?usp=sharing    VOLUNTEER  https://curesyngap1.org/volunteer-with-srf/   FUNDRAISE https://syngap.fund/FR  CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/   SOCIAL MATTERS  - 1,200 YouTube.  https://www.youtube.com/@CureSYNGAP1   - 3,818 LinkedIn.  https://www.linkedin.com/company/curesyngap1/ - 11,889 Twitter https://twitter.com/cureSYNGAP1 - 47k Insta https://www.instagram.com/curesyngap1/ - 442 TikTok https://www.tiktok.com/@curesyngap1   NEWLY DIAGNOSED? New families have resources here! https://syngap.fund/Resources    Podcasts, give all of these a five star review! https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917Episode 153 of #Syngap10  #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1 #CureSYNGAP1

Hear the latest groundbreaking news in Alzheimer's research. Sinaptica, a member of StartUp Health's Alzheimer's Moonshot Community, has announced significant results from its Phase 2 clinical trial testing the company's noninvasive, personalized, precise neuromodulation designed to stop the progression of Alzheimer’s disease. Ken Mariash, CEO of Sinaptica, joined us in the StartUp Health Studio to break it all down for us. As you’ll hear, the interview took place prior to the release of this data, which became public on October 31. In this exclusive interview, you'll learn: Details on Sinaptica's Phase 2 trial results show significant promise in slowing Alzheimer's progression The science behind Sinaptica's technology How personalized neuromodulation is revolutionizing brain health The potential for proactive brain strengthening and repair The impact on patients' daily lives The future of Alzheimer's treatment This episode is a must-listen for anyone interested in Alzheimer's research, neuroscience, and the power of innovation to transform lives. Are you ready to tell your story? Members of our Health Moonshot Communities are leading startups with breakthrough technology-driven solutions for the world’s biggest health challenges. Exposure in StartUp Health Media to our global audience of investors and partners – including our podcast, newsletters, magazine, and YouTube channel – is a benefit of StartUp Health's PRO Membership. To schedule a call and see if you qualify to join and increase brand awareness through our multi-media storytelling efforts, submit our three-minute application. If you’re mission-driven, collaborative, and ready to contribute as much as you gain, you might be the perfect fit. Learn more and apply today. Want more content like this? Sign up for StartUp Health Insider™ to get funding insights, news, and special updates delivered to your inbox.  

Banner|Aetna, Blue Shield of California, Healthfirst and TytoCare explore innovative strategies that health plans can leverage to drive meaningful lifestyle modifications among members, improve health outcomes and reduce the rising costs of chronic disease.    Our expert panel also discusses the role of primary care in empowering members to adopt healthier behaviors.   Topics include: Building a culture that fosters habit formation for long-term success Supporting members using GLP-1s for weight management Addressing Social Determinants of Health (SDOH) to improve outcomes Leveraging technology to encourage sustainable lifestyle modifications   Panelists: Joe Brennan, Vice President, TytoCare Robert Groves, MD, Executive Vice President and Chief Medical Officer, Banner|Aetna Eric Glazer, Host (moderator) Angie Kalousek, Senior Director, Lifestyle Medicine, Blue Shield of California Amanda Parsons, MD, MBA, Vice President, Clinical Management, Healthfirst Bios: https://www.brightspotsinhealthcare.com/events/innovations-in-lifestyle-change-the-role-of-primary-care-2/   This episode is sponsored by TytoCare   TytoCare is a virtual healthcare company that enables leading health plans and providers to deliver remote healthcare to the whole family through its Home Smart Clinic. Combining a cutting-edge, easy-to-use, FDA-cleared device with AI-powered guidance and diagnostic support, the Home Smart Clinic enables the whole family to conduct remote physical exams with a doctor, replicating in-clinic exams for immediate answers from home. TytoCare drives utilization rates that are six times higher than traditional telehealth services; reduces the total cost of care by an average of five percent; diverts ED visits by an average of 10.8%; and has a high average NPS of 83. The Home Smart Clinic includes Tyto Engagement Labs™, a proven framework of engagement journeys designed for the successful deployment and adoption of the solution. To complete its offering, TytoCare also provides the Pro Smart Clinic, for professional settings outside the home to serve rural clinics, schools, workplaces, and more. TytoCare serves over 250 major health systems and health plans in the U.S., Europe, Asia, Latin America, and the Middle East. For more information, visit us at tytocare.com.

On episode 493 of The Nurse Keith Show nursing and healthcare career podcast, Keith interviews Sarah Weaver, MSN, FNP-C, IFMCP, HN-BC, a Holistic Nurse and Functional Medicine Nurse Practitioner. Sarah is also the Coordinator and Instructor at the Holistic Nursing Certification Prep Course where she combines her profound expertise in integrative and functional medicine with her passion for holistic nursing education and advocacy. In the course of their conversation, Keith and Sarah discuss the crucial importance of holistic nursing and how embracing a true vision of holism could truly transform healthcare. With a career defined by her dedication to personalized care, Sarah has been instrumental in creating health improvement plans that have been life-altering for many of her clients. Currently working with Entourage Health, Sarah provides Concierge Functional Medicine services tailored for the busy individual. Her commitment to holistic health extends beyond her clinical practice, having played a significant role in integrating holistic nursing across the Parkview Health system. Listeners will be inspired by Sarah's journey, from her extensive education in functional medicine and health coaching to her leaderships in implementing holistic nursing practices system wide in hospital system. Whether you're an aspiring holistic nursing student or a professional looking to deepen your practice, Sarah's insights are sure to enlighten and motivate. Join us as Sarah Weaver shares her invaluable experiences and the transformative power of holistic nursing, both in personal wellness and in the broader healthcare landscape. Connect with Sarah Weaver: Holistic Nursing Certification/Entourage Health Facebook Instagram LinkedIn Contact Nurse Keith about holistic career coaching to elevate your nursing and healthcare career at NurseKeith.com. Keith also offers services as a motivational and keynote speaker and freelance nurse writer. You can always find Keith on LinkedIn. Are you looking for a novel way to empower your career and move forward in life? Keith's wife, Shada McKenzie, is a gifted astrologer and reader of the tarot who combines ancient and modern techniques to provide valuable insights into your motivations, aspirations, and life trajectory, and she offers listeners of The Nurse Keith Show a 10% discount on their first consultation. Contact Shada at TheCircelandtheDot.com or [email protected].

Editor’s Summary by Kirsten Bibbins-Domingo, PhD, MD, MAS, Editor in Chief, and Preeti Malani, MD, MSJ, Deputy Editor of JAMA, the Journal of the American Medical Association, for articles published from October 26-November 1, 2024.

No power, no water, no communication. How do healthcare teams provide care during disasters? In this episode, host Sarah Lorenzini and Brooke MSN, RN, CCRN, NE-BC share their experiences working as disaster response nurses after the hurricanes in Asheville, NC and Tampa, FL.Get a glimpse into the challenges, collaboration, and determination that define hurricane relief nursing, as well as the unity and resilience shown by patients and communities in recovery. Listen to learn about the realities of crisis care, from deployment to being an effective nurse leader in a chaotic environment!Topics discussed in this episode:Deploying to Asheville with limited resourcesWhat it’s like working on a disaster relief nursing teamThe coordination of patient care and operations in disaster reliefStories of humanity, kindness, and uplifting moments in crisisCommon medical issues and challenges during hurricane disastersHow to maintaining team morale as a nurse leaderThe biggest lessons from working as a hurricane relief nurseCheck out Accuryn for yourself:https://accuryn.com/why-accuryn/Mentioned in this episode:AND If you are planning to sit for your CCRN and would like to take the Critical Care Academy CCRN prep course you can visit https://www.ccrnacademy.com and use coupon code RAPID10 to get 10% off the cost of the course!Rapid Response and Rescue Intro CourseCONNECT 📸 Connect on Instagram: https://www.instagram.com/therapidresponsern/ 🫶 Check out my membership: https://www.rapidresponseandrescue.com/community 📚 Check out my course: https://www.rapidresponseandrescue.com/learnmore 🧑‍💻Check out my website: https://www.rapidresponseandrescue.com/ 📬 Subscribe to my newsletter: https://www.rapidresponseandrescue.com/login 🎁 Affiliation and discounts: https://hoo.be/therapidresponsern SAY THANKS 💜Leave a review on Apple Podcasts: https://podcasts.apple.com/ca/podcast/rapid-response-rn/id1535997752 💚Leave a rating on Spotify: https://open.spotify.com/show/55LQqeDg6XFeixvZLEp4xE To get the FREE Rapid Response RN Assessment Guide and the coupon code for $10 off the cost of the course, message Sarah on Instagram @TheRapidResponseRN and type the word PODCAST! This episode was produced by Podcast Boutique https://www.podcastboutique.com

Send us a textMedical gaslighting is when a provider shirks a patient’s concerns and leaves them without a diagnosis or treatment plan.Unfortunately, this experience is all too common for patients, especially women.So, how can patients tackle the problem and get the care they need?In this episode of CareTalk, David E. Williams and John Driscoll meet with guest Ilana Jacqueline, patient advocate and author of “Medical Gaslighting,” to discuss why medical gaslighting occurs and what patients can do to arm themselves to get the care they deserve.This episode is brought to you by BetterHelp. Give online therapy a try at https://betterhelp.com/caretalk and get on your way to being your best self.As a BetterHelp affiliate, we may receive compensation from BetterHelp if you purchase products or services through the links provided.TOPICS:(0:21) Sponsorship(1:40) Meet Ilana Jacqueline(2:21) Ilana Jacqueline's Experience with Medical Gaslighting(5:51) How Women Experience Medical Gaslighting(7:34) The Consequences of Medical Bias(9:54) Why We Need a Guide to Combat Medical Gaslighting(11:36) How Patients Should Handle Undiagnosed Conditions(13:26) Recognizing the Signs of Medical Gaslighting(15:18) The Moment Ilana Jacqueline Took Control of Her Health Journey(17:14) Bringing Awareness of Gaslighting to Providers(19:30) Approaching Pain Management as a Patient(22:50) Do Medical Providers Actually Review Feedback?🎙️⚕️ABOUT CARETALKCareTalk is a weekly podcast that provides an incisive, no B.S. view of the US healthcare industry. Join co-hosts John Driscoll (President U.S. Healthcare and EVP, Walgreens Boots Alliance) and David Williams (President, Health Business Group) as they debate the latest in US healthcare news, business and policy. 🎙️⚕️ABOUT ILANA JACQUELINE Ilana Jacqueline is a speaker, author, patient, and advocacy strategist whose journey to a rare disease diagnosis forced her to confront years of medical gaslighting. Her personal experience as a patient has given her a deep compassion for the challenges women face in the exam room. Yet, it’s her work as a patient advocate that revealed the broader reality: whether a condition is rare or common, women often wait longer to be truly heard by the medical community.As the author of Surviving and Thriving with an Invisible Chronic Illness, Ilana educates patients on navigating their journeys and building collaborative, impactful relationships with their care teams. Her advocacy on social media, especially around medical gaslighting, has empowered countless patients to take an active role in their own healthcare.GET IN TOUCHBecome a CareTalk sponsorGuest appearance requestsVisit us on the webSubscribe to the CareTalk NewsSupport the showCareTalk: Healthcare. Unfiltered. is produced by Grippi Media.

Charlene talks with Marla Poston, Director of Patient Care Services at Sharp Healthcare. AB977 and AB2975 are two recently signed bills that address the problem of workplace violence in hospitals. The ACNL Health Policy Committee has been following these bills closely, and Marla is here to talk about the current state of workplace violence and what changes these new bills will bring. We're running a survey to better understand our listeners and what topics you'd like to hear about. It would really help us out if you took just a couple minutes to fill it out. Click here to take the survey: https://www.surveymonkey.com/r/WSHVM8M Host: Charlene Platon, MS, RN, FNP-BC (@charleneplaton) Guest: Marla Poston MSN, RN, CEN, NE-BC (@marlapostonmsn) About the show: ACNL in Action is a production of the Association of California Nurse Leaders, the professional organization for nurse leaders. New episodes come out on the first Friday of every month. Want to support ACNL? Consider making a donation: http://bit.ly/cog-podcast . Learn more about ACNL, including how to become a member, at acnl.org.  Follow us on Facebook, Instagram, and LinkedIn at @acnlnurse.

This episode is part of Beyond the Ballot | Voting for Women's Health and Advocating for Change, a three-part webinar series transformed into six podcast episodes. Presented by Beyond the Paper Gown, Black Women’s Health Imperative, G2G Consulting, and HealthyWomen, this series delves into how policy affects women’s health. In this episode, the panel explores the intersection of workplace policies and women's health, revealing how factors like stress and caregiving roles impact health outcomes. Listen to insights from the Hologic Global Women’s Health Index highlighting how workplace stress, especially during the COVID-19 pandemic, disproportionately affects women, leading to higher rates of cardiovascular disease and chronic conditions. Hear from experts about innovative policies that support healthier workplace environments, including flexible benefits, fair work policies, and anti-harassment procedures. As we approach election season, remember the impact of policy on health and workplace equity, and consider how your vote can influence these vital issues. Don’t miss this episode! Please visit Beyond the Paper Gown to join our community and to learn more about achieving your optimal health. SHOW NOTES: Learn more about Beyond the Ballot | Voting for Women’s Health and Advocating for Change