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072: PCOS Advocate & Model Lorna Alexis, Founder of Cystum of Curves

Uninvisible Pod

072: PCOS Advocate & Model Lorna Alexis, Founder of Cystum of Curves

Lorna Alexis is the influencer, model, blogger, and creator of Cystum of Curves. An advocate living with PCOS (polycystic ovarian syndrome), the word “cystum” is derived from the word cyst,…
April 29, 2020
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072: PCOS Advocate & Model Lorna Alexis, Founder of Cystum of Curves

Lorna Alexis is the influencer, model, blogger, and creator of Cystum of Curves. An advocate living with PCOS (polycystic ovarian syndrome), the word “cystum” is derived

from the word cyst, a characteristic of the syndrome. PCOS is known to cause weight gain and make that weight even harder to lose — so instead of letting PCOS get her down, Lorna decided to use her diagnosis as a platform for inspiration and motivation for others as she navigates the world … with curves. In this honest, revealing, and intimate episode, Lorna addresses that #bodypositivity life, how she contracted Type 2 diabetes as a direct result of living with PCOS, how she manages a healthy lifestyle, and why representation matters.

Tune in as Lorna shares…

  • what PCOS is: an endocrine disorder that begins in childbearing years and typically comes along with hormonal imbalance (usually excessive male hormone production), insulin resistance, hair loss/hirsutism, infrequent ovulation, irregular periods, blood clotting, and infertility/increased risk of miscarriage
  • that PCOS is linked to many other conditions
  • that some people living with PCOS develop cysts inside their ovaries — and the pain is similar to fibroid pain
  • that she was diagnosed shortly after graduating college, while enduring menses that lasted for 120+ days
  • that she wasn’t diagnosed right away, and also had to see several doctors before receiving the diagnosis
  • that she started having symptoms as early as 12 years old
  • that the doctor to diagnose her was Indian, and more familiar with PCOS than any of the American doctors she’d previously seen
  • that the historical trope of the “bearded woman” was most likely a woman living with undiagnosed PCOS
  • that most women living with PCOS need to be on low-carb diets in order to manage symptoms
  • that she had to change her relationship to food
  • what it’s like to live with fertility issues — and how she’s found strength in community and in being able to look toward other influencers and celebrities
  • how she avoids sugar crashes and fatigue
  • how routine supports her lifestyle and symptom management
  • discrepancies and bias in research, funding, and awareness because PCOS is a women’s health issue
  • that chronic illness changes the course of your life, and supportive mental healthcare is essential as you adjust to your new lifestyle and identity
  • why it’s important to become your own advocate and prevent others from policing your body
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