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041: Ariel of @Carpe_That__Diem on Gender, Identity, and Disability

Uninvisible Pod

041: Ariel of @Carpe_That__Diem on Gender, Identity, and Disability

In this second installment of Lauren’s interview with Ariel, we dig further into his conditions and lifestyle: what his advocacy work means to him, his journey through the workforce and…
September 25, 2019
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041: Ariel of @Carpe_That__Diem on Gender, Identity, and Disability

In this second installment of Lauren’s interview with Ariel, we dig further into his conditions and lifestyle: what his advocacy work means to him, his journey through the workforce and struggle to find employment with disabilities, his experience as a service dog handler, and life with thyroid disease, bipolar II, borderline personality disorder, endometriosis as a gender-diverse individual, and chronic pain. He emphasizes that these experiences are not unique to him – but that he is privileged to share his unique experience. (Again – if you hear dogs barking in this one, it’s just Caliban’s buddy Blue giving us a shout-out!) 

Join us as Ariel shares… 

– what a typical day is like for him 

– that he struggles with agoraphobia 

– his need to connect with nature 

– what it’s like to lean on others as a Spoonie 

– that weather changes can trigger his symptoms, and force him to focus his work inward rather than outward 

– the expansion of his advocacy work 

– his background as a college instructor, why he loves academics, and how his work as an educator influences his advocacy work 

– what his advocacy work means to him 

– how poorly our working world is designed for us – and the lack of accommodations and opportunities available, especially for disabled individuals 

– factions within the disability community – and how the disability community is, however, also one of the most polite out there 

– an examination of his childhood development, and how it has influenced who he is today 

– his experience of discrimination when out in public with his service dog, Caliban 

– that he used to use mobility aids full-time – and now his disability markers are far less visible 

– that he lives with additional diagnoses, but chooses not to discuss them because there are already great advocates for those conditions 

– his advice for other Spoonies or individuals confronting gender identity issues 

– the importance of finding community 

– the importance of his changed relationship to food – from dysphoria to nourishment 

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