Send us a textMany patients want to have a say in their medical care, especially when it comes to end-of-life decisions.Despite this, only a third of U.S. adults have completed any form of advance care directive.Even for those who do plan ahead, traditional paper-based advance directives often face challenges like misinterpretation or even being ignored altogether.Could video-recorded directives be the answer?In this HealthBiz Brief, MIDEO CEO Dr. Ferdinando Mirarchi sheds light on the limitations of standard advance care directives and explains why video-based solutions might deliver better results, offering greater clarity and ensuring patients’ wishes are honored.This episode is brought to you by BetterHelp. Give online therapy a try at https://betterhelp.com/caretalk and get on your way to being your best self.As a BetterHelp affiliate, we may receive compensation from BetterHelp if you purchase products or services through the links provided.🎙️⚕️ABOUT CARETALKCareTalk is a weekly podcast that provides an incisive, no B.S. view of the US healthcare industry. Join co-hosts John Driscoll (President U.S. Healthcare and EVP, Walgreens Boots Alliance) and David Williams (President, Health Business Group) as they debate the latest in US healthcare news, business and policy. 🎙️⚕️ ABOUT FERDINANDO MIRARCHIFerdinando Mirarchi, D.O, is the CEO and Chief Medical Officer of USACS MIDEO, LLC, and recently appointed Chairman of the National Palliative Care Committee for USACS. As the Principal Investigator of the TRIAD Research Series (The Realistic Interpretation of Advance Directives), Dr. Mirarchi has uncovered a global patient safety risk stemming from confusion around living wills, DNR, and POLST orders. His research, featured in outlets like The New York Times and The Washington Post, led to the creation of MIDEO (My Informed Decision on VidEO), an innovative, evidence-based video advance directive designed to enhance patient safety by clarifying medical orders and making them instantly accessible.🎙️⚕️ ABOUT MIDEO MIDEO is a video-based advance care planning platform that ensures patient healthcare wishes are clearly communicated when patients cannot express them themselves. By translating patient directives into medical and legal terms, MIDEO makes them easily accessible to medical professionals through a QR code. This innovative approach enhances patient care and reduces costs by providing clarity on critical and end-of-life healthcare preferences. MIDEO offers services tailored for patients, families, health plans, and clinicians, emphasizing the importance of understanding and honoring individual healthcare choices.GET IN TOUCHBecome a CareTalk sponsorGuest appearance requestsVisit us on the webSubscribe to the CareTalk NewsSupport the showCareTalk: Healthcare. Unfiltered. is produced by Grippi Media.
November 27, 2024
Tuesday, November 26, 2024
Annie Passed yesterday #SynGAPAngel
https://www.linkedin.com/posts/graglia_the-syngap1-community-is-at-a-loss-as-we-activity-7267225798602874880-W9hw?utm_source=share&utm_medium=member_desktop
SRF NEWS
Stories just keeps getting better: https://curesyngap1.org/podcasts/syngap1-stories/stacey-miller/
New family video, use YouTube auto translate: Juliana Meza https://www.youtube.com/watch?v=NLkqswEvAQs
Two trials to consider
https://med.stanford.edu/autism/studies/pregnenolone-randomized-controlled-trial.html age 14-25
https://deepdeestudy.com/ list of sites: NJ & FL
Two studies we all need to sign up for
Sign up for Frazier https://syngap.fund/eye2 https://curesyngap1.org/resources/studies/tracking-thinking-skills-and-behaviors-in-syngap1-patients/
Citizen Health https://www.citizen.health/partners/srf
Conference - Conference is 9 days away!
Lineup: Science Day lineup - https://x.com/curesyngap1/status/1851723428677456093
Agendas are up! https://curesyngap1.org/events/conferences/syngap1-conference-2024/
Thursday Reception at the Hotel: https://www.eventbrite.com/e/rare-research-reception-tickets-1003668087267
Friday Join us for dinner! https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2024-caregiver-dinner
FUNDRAISING
Coast2Coast Challenge $152,592 Syngap.Fund/C2C
Minted Cards - 20% discount, 15% to SRF, code FUNDRAISESYNGAP - https://Syngap.Fund/Minted
FUNDRAISE https://syngap.fund/FR
CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/
VOLUNTEER SPOTLIGHT: Stephanie Decker
https://www.linkedin.com/in/stefanie-decker-cpa-38776696/
ZOOM BACKGROUND
https://drive.google.com/file/d/13jhPIBo-o1sHchEJz6KttocT1_h7GKZE/view?usp=sharing
VOLUNTEER
https://curesyngap1.org/volunteer-with-srf/
SOCIAL MATTERS
- 1,230 YouTube. https://www.youtube.com/@CureSYNGAP1
- 3,851 LinkedIn. https://www.linkedin.com/company/curesyngap1/ - 11,779 Twitter https://twitter.com/cureSYNGAP1 - 47k Insta https://www.instagram.com/curesyngap1/ - 456 TikTok https://www.tiktok.com/@curesyngap1
NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources
Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917Episode 155 of #Syngap10
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1 #CureSYNGAP1
November 26, 2024
n this episode of Talking HealthTech, host Regina Akacich speaks with Steven McPhail, Amina Tariq, and Sundresan Naicker from the Australian Centre for Health Services Innovation (AusHSI) about the state of digital health, the misconceptions around predictive models, and the need for a systems approach to healthcare innovation.Key TakeawaysAI's Potential: AI plugins for telehealth can help physiotherapists measure joint angles and range of motion, while AI for wound care management offers objective feedback. Generative AI is also being explored for the development of new drugs.Caution with AI: The importance of focusing on preventative medicine and the need for skepticism about AI's rapid advancements without fully understanding their implications.Ethical Concerns and Data Privacy: There are significant ethical concerns and data privacy issues surrounding AI, particularly when summarizing call notes and scraping emails.Balancing AI and Humzan Touch: The importance of using AI to augment human capabilities rather than replace them, ensuring the human touch in patient care remains vital.Future of AI in HealthTech: Envisioning a future where AI assists in reducing clinician burnout, improving health outcomes, and lowering costs while fostering innovation and start-ups in the healthtech space.Check out the episode and full show notes on the Talking HealthTech website.Loving the show? Leave us a review, and share it with someone who might get some value from it.Keen to take your healthtech to the next level? Become a THT+ Member for access to our online community forum, meetups, special offers, and more exclusive content. For more information visit talkinghealthtech.com/thtplus
November 26, 2024
Laurie McGraw is speaking with Inspiring Woman Deborah Di Sanzo, President of Best Buy Health. Deborah grew up in technology. Decades of technology, healthcare, business, executive leadership. She understood the potential of technology when she watched her systems at work in the surgery theater. She is a professor who teaches AI at Harvard. She knows […]
November 26, 2024
In this episode of Solving Healthcare, we're joined by Dr. Mike Hart to explore the evolving therapeutic landscape of cannabis. The conversation covers the effects of cannabinoids like THC, CBD, CBG, and CBN on sleep, pain management, and mental health, along with their applications for youth and considerations for mitochondrial health. Dr. Hart also shares insights into emerging research and the importance of proper dosing for safety and efficacy.Listen now on Apple & SpotifySPONSORBetterHelp is the largest online counseling platform worldwide. They change the way people get help with facing life's challenges by providing convenient, discreet and affordable access to a licensed therapist. BetterHelp makes professional counselling available anytime, anywhere, through a computer, tablet or smartphone.Sign up HERE for 10% off | Use discount code “solvinghealthcare”OFFERSGYATA NUTRITIONGyata Nutrition is now live! Founded by Dr. Kwadwo Kyeremanteng, Gyata Nutrition offers top-quality supplements, including New Zealand Whey Protein Isolate, Collagen, Magnesium, and Fish Oil—all Health Canada-approved.Get your Gyata Strong Bundle and save 50%Visit gyatanutrition.com and use promo code kwadcast15 to save on your order now!LMNTWe're excited to announce our partnership with LMNT, a pioneer in superior hydration solutions. The key to proper hydration isn't just water—it's water plus electrolytes. This balance is vital to avoid issues like muscle cramps and energy dips, often caused by the dilution of electrolyte levels from excessive water intake, a condition known as hyponatremia.Enter LMNT, an electrolyte drink mix that's tasty, convenient, and free from sugar or artificial additives. Co-created by Robb Wolf and Luis Villasenor, LMNT provides optimal ratios of sodium, potassium, and magnesium, ensuring not only health and performance benefits but also a delightful taste experience with flavours like Orange Salt, Citrus Salt, and the new Watermelon Salt.To celebrate our partnership, we're offering you a free sample pack.Simply visit DrinkLMNT.com/kwadcast and start your journey to better hydration. LMNT stands behind their product with a no-questions-asked refund policy.Together with LMNT, we're redefining hydration. Remember, it's not just about water—it's about water PLUS electrolytes. Stay hydrated, and stay healthy!LMNTEXAMINE.COMBest source for evidence based nutrition and supplement information.Exclusive Offer for Kwadcast FollowersWe are thrilled to roll out a special offer exclusively for the subscribers of Kwadcast.substack.com, made possible by our new partnership:* 7-Day Free Trial: Start your journey with Examine.com with no strings attached. Explore their exhaustive resources and see how they can aid in meeting your health and wellness objectives.* Discounted Subscription Plans: Enjoy a special discount on Examine.com’s membership, tailored just for you:* Monthly Subscription: Originally $29, now just $25 — a saving of 14%.* Yearly Subscription: Typically $198, now only $171 — saving you 14% as well.Get Your Discounted AccessReady to dive in? Simply use this special link to access these exclusive discounts. The link will direct you to a sign-up page where your discounts will be automatically applied at checkout.Discount LINK for Examine.comSolving Healthcare Media with Dr. Kwadwo Kyeremanteng is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber.Thanks for reading Solving Healthcare Media with Dr. Kwadwo Kyeremanteng! This post is public so feel free to share it. This is a public episode. If you’d like to discuss this with other subscribers or get access to bonus episodes, visit kwadcast.substack.com/subscribe
November 26, 2024
Host: Darryl S. Chutka, M.D.
Guest: Jon O. Ebbert, M.D.
According to the CDC, in 2020 nearly 20% of high school students reported using a vaping product, and nearly a quarter of them indicated they used the product daily. It’s now known that vaping has potential health risks and is just as addictive as combustible tobacco products with some vaping cartridges having a higher concentration of nicotine than cigarettes. In this podcast, we’ll discuss nicotine dependence with an update on vaping. My guest is Jon O. Ebbert, M.D., an internist and nicotine dependence specialist at the Mayo Clinic. I’ll be asking Dr. Ebbert about the health risks of vaping, including second-hand exposure, the likelihood of “vapers” to switch to traditional tobacco products and whether vaping has any potential to help individuals discontinue use of tobacco products.
Connect with the Mayo Clinic’s School of Continuous Professional Development online at https://ce.mayo.edu/ or on Twitter @MayoMedEd.
November 26, 2024
Our gut contains a world of microorganisms that impact many aspects of our health, well beyond the gastrointestinal system.
In fact, more than 30 trillion bacteria, archaea, fungi, and viruses live in the digestive tract of every human, a number that is higher than the number of human cells that make up our body!
Each microbiome is unique to an individual, and its genetic heritage represents approximately 100 times that of the human genome.
This field is fascinating and science is advancing rapidly, as evidenced by the 2,000 publications generated monthly on the subject.
A better understanding of this remarkable ecosystem might bring critical answers to address numerous pathologies and health disorders.
This is the mission of Leo Grady and his team at Jona, whose technology enables microbiome analysis based on an at-home test, combined with artificial intelligence to reveal what the current literature says about each person's microbiome.
Unveiling the propensity for certain disease risks, along with individual nutritional preferences, Jona can model the body's reaction according to potential changes in the microbiome, and provide valuable insights on behaviors and nutrition that can ultimately improve one’s health.
A dive into the heart of the microbiome and its secrets, which today's technology is about to unlock!
Timeline:
02:32 - Leo’s journey from his PhD in computer vision to AI applications in medicine
06:47 - The idea behind Jona and understanding the microbiome better
10:33 - What we do know and ignore about the microbiome
13:05 - The Jona test kit and what it can interpret from one’s microbiome picture
20:17 - The volume and complexity of studies around the microbiome
22:11 - The impact of Jona and Leo’s son's story
25:38 - Who is Jona for
29:00 - Leo’s vision for the future of Jona and AI in healthcare
What we also talked about with Leo:
Neural networks
Siemens
HeartFlow
Paige AI
Memorial Sloan Kettering
Crohn’s disease
Thomas Clozel
We cited with Leo some of the past episodes of the series:
#32 - Accelerating radiology with AI - Amine Korchi - Radiologist
#35 - Making surgery smarter and safer - Björn Von Siemens - Caresyntax
#36 - Turning healthcare preventive with full-body MRI scans - Andrew Lacy - Prenuvo
#40 - Cracking biology through AI - Jean-Philippe Vert - Owkin
As mentioned by Leo during the episode, we recommend looking at the Jona Journal which sheds light on the latest findings on the microbiome fueled by their research platform, and understanding the current literature.
Leo also recommends listening to The Mind-Gut Conversation Podcast by Emeran Meyer to find out more, and We Contain Multitudes by Sarah Henstra as a complementary read.
You can follow Jona’s activities on LinkedIn, X, Instagram, and YouTube, and get in touch with Leo via LinkedIn.
If you want to give me feedback on the episode or suggest potential guests, contact me over LinkedIn or via email!
And if you liked the episode, please share it, subscribe to the podcast, and leave a 5-star review on streaming platforms! 🙏
There’s now a bi-monthly newsletter around the podcast where you will be informed of the latest episodes and kept posted on the latest medical tech progress, subscribe here!
Lastly, don’t forget to follow our activities on LinkedIn and our website!
November 26, 2024
To discover the whole episode type "#41 - Making sense of the gut microbiome - Leo Grady - Jona" on your preferred streaming platform.
November 26, 2024
Do women really need to suffer through menopause? Many people have heard of Hormone Replacement Therapy, but very few are on it. What's behind this? Take a deep dive with us into the often misunderstood world of menopause, perimenopause, and hormone replacement therapy. We sit down with Joanna Strober, CEO of MidiHealth, to uncover the real issues women face and explore innovative solutions for a better quality of life. Learn how to advocate for yourself and gain access to the care you deserve!
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Website: https://yourdoctorfriendspodcast.com/
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@your_doctor_friends on Instagram, TikTok, and YouTube - Send/DM us a voice memo or question and we might play it/answer it on the show or on socials!
00:00 Introduction to the Podcast and Guest
01:46 Joanna Strober's Journey and MidiHealth
02:52 Understanding Perimenopause and Menopause
06:25 Challenges in Diagnosing and Treating Menopause
07:54 Hormone Replacement Therapy Explained
15:54 Myths and Misconceptions about Hormone Therapy
17:12 How MidiHealth Provides Care
20:50 Advocating for Women's Health and Longevity
26:17 Conclusion and Final Thoughts
November 26, 2024
OSF HealthCare, Providence, UMass Memorial Medical Center, and TytoCare share actionable strategies and best practices to transform hybrid care and offer patients personalized, flexible and accessible care. Our expert panel also explores how virtual care reduces costs and addresses healthcare challenges like staff shortages. Key topics include: Maximizing Hybrid Care Models: Panelists explore how hybrid and home-based care models – supported by technology, are revolutionizing how providers deliver care – making it more accessible, efficient, and impactful. Home-Based Healthcare Innovations: Real-world success stories highlighted how providers make healthcare accessible from the comfort of home, schools, and community centers. Technology-Driven Solutions: Technical tools enable immersive primary care experiences remotely, enhancing connectivity and care delivery for families. Highlights: Providence: Kate Baars shared how remote patient monitoring helps achieve compelling clinical and financial outcomes OSF OnCall: Jennie Van Antwerp walked us through innovations in acute and digital care delivery at OSF. UMass Memorial Medical Center: Dr. John Broach discussed how the medical center utilizes technology to drive efficient responses and care, eliminating ED visits. TytoCare: Tina Nelson highlighted strategic partnerships that enable healthcare access for underserved communities through remote technology. Panelists: Kate Baars, Executive Director, Product Development, Virtual Care & Digital Health, Providence Jennie Van Antwerp, MSN, RN, Director, Digital Acute Care/ Digital Care Division, OSF OnCall (Colleen Reynolds) John Broach, MD, Division Direction for EMS and DIsaters Medicine, UMASS Medical Center Christina (Tina) Nelson, Strategic Partnership Manager, TytoCare https://www.brightspotsinhealthcare.com/events/how-providers-are-maximizing-hybrid-care-and-home-based-interventions This episode is sponsored by TytoCare TytoCare is a virtual healthcare company that enables leading health plans and providers to deliver remote healthcare to the whole family through its Home Smart Clinic. Combining a cutting-edge, easy-to-use, FDA-cleared device with AI-powered guidance and diagnostic support, the Home Smart Clinic enables the whole family to conduct remote physical exams with a doctor, replicating in-clinic exams for immediate answers from home. TytoCare drives utilization rates that are six times higher than traditional telehealth services; reduces the total cost of care by an average of five percent; diverts ED visits by an average of 10.8%; and has a high average NPS of 83. The Home Smart Clinic includes Tyto Engagement Labs™, a proven framework of engagement journeys designed for the successful deployment and adoption of the solution. To complete its offering, TytoCare also provides the Pro Smart Clinic, for professional settings outside the home to serve rural clinics, schools, workplaces, and more. TytoCare serves over 250 major health systems and health plans in the U.S., Europe, Asia, Latin America, and the Middle East. For more information, visit us at tytocare.com.
November 26, 2024