Give Me My Data: How Patient Access Builds Trust in Clinical Trials
As a patient, who owns your clinical trial data? Patient participation is the foundation of clinical trial research. But in today’s world, patient access to data is limited and siloed. How do researchers ensure patient data return is the standard operating procedure and information is shared with trial participants?
In this episode, Craig Lipset sits down with Kelly McKee and Alicia Staley of Medidata to discuss the challenges of data return and how to improve patient access and clinical trial data transparency.
Craig is an advisor, educator, advocate, and innovator focused on novel solutions for clinical trials and medicine development. He is the founder of Clinical Innovation Partners, Co-Chair for the Decentralized Trials & Research Alliance, and Vice Chair of the MedStar Health Research Institute.