In this episode of "When Life Gives You Parkinson's," Larry Gifford and Rebecca Gifford delve into the world of Deep Brain Stimulation (DBS), continuing their 2023 series on this treatment option. While sharing their optimism about Larry's upcoming DBS surgery, they also address the importance of discussing the risks associated with it. They present real stories from individuals who've undergone DBS, shedding light on the complexities and varied experiences associated with this treatment. Kim Cornelis shares her personal journey, highlighting both the potential benefits and challenges of DBS. The episode also explores alternative treatments, like light therapy, and emphasizes the significance of open communication about the emotional and psychological impact of DBS, including discussions about suicidal ideation.
Join Larry and Rebecca as they provide valuable insights and a balanced perspective on the choices facing individuals with Parkinson's disease. They emphasize the importance of well-informed decisions, emotional support, and understanding within the Parkinson's community. The podcast aims to raise awareness about the mental health aspects of living with Parkinson's and undergoing treatment.
If you have no one to talk to about your suicidal thoughts, call your country's suicide hotline.
INTERNATIONAL SUICIDE HOTLINES
In Canada, it's 1-833-456-4566.
In the U.S. Dial 988.
In Australia, 131-114.
And in the UK dial 0800 689 5652.
KEY LINKS
Thank You to:
Kim Cornelis, PwP, Portland, Oregon
Becca Miller, PhD, PwP
Parkinson’s Resources of Oregon
Dr. Wayne Markman, founder & CEO of Symbyx Biome
If you have no one to talk to about your suicidal thoughts, call your country's suicide hotline.
INTERNATIONAL SUICIDE HOTLINES
In Canada, it's 1-833-456-4566.
In the U.S. Dial 988.
In Australia, 131-114.
And in the UK dial 0800 689 5652.
MAIL Larry and Rebecca:
[email protected]
Have a topic or questions that you would like Larry & Rebecca to address on a future episode? We would love you to click here and leave a message https://www.speakpipe.com/WhenLifeGivesYouParkinsons
Follow us, Larry & Rebecca Gifford
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Thanks to Curiouscast
Dila Velazquez – Story Producer
Greg Schott – Sound Design
Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
Thanks also to
PD Avengers – We are building a global alliance to end Parkinson’s. Join us.
October 4, 2023
Friends - You're in for a treat! I'm chatting with my friend and colleague, Robyn Gobbel. Listen as we talk about relational neuroscience, understanding complex behavior, and why all behavior is adaptive in nature. You'll also hear Robyn talk about her 3 core tenants to understanding children AND a sneak peek into her book Raising Kids with Big Baffling Behaviors which is out NOW!
RESOURCES
Dr. Amy's Newsletter
Learning Collaborative - The ConnectED Collab Invitation
Dr. Amy Youtube
FREE DOWNLOADS
Top 10 Guiding Principles When Working with Children & Families
Start Creating Boundaries Handout & Script
Finding Calm to Prevent Overwhelm
Don’t Forget! Follow Dr. Amy on LinkedIn, Facebook, and Instagram
For more information visit www.doctoramyllc.com
October 4, 2023
Let’s dive into the complexities of healthcare philanthropy, policy, and the quest to improve access and affordability.
In this episode, Jeffery Lewis discusses the formulation of impactful health policies, drawing upon his extensive background in government, philanthropy, and rural healthcare foundations. He offers insights into critical healthcare concerns such as the increase in prescription expenses, elderly population care, and leveraging data and AI for enhanced care and cost reduction.
Tune in and learn from a thought-provoking dialogue about developing innovative healthcare policies focused on helping people!
Click this link to the show notes, transcript, and resources: outcomesrocket.health
October 4, 2023
2023-09-15 Join us to hear from Jane Myles (Decentralized Trials & Research Alliance (DTRA) and Christine Von Raesfeld (People with Empathy) sharing more about the Data and the Keys to Patient Empowerment. They'll be discussing a future where patients are the decision makers about who has access to their data, and where trials are a part of their care options by design. Our Co-hosts were joined by DTRA Co-Founders Craig Lipset and Amir Kalali.Follow the Decentralized Trials & Research Alliance (DTRA) on LinkedIn and Twitter. Learn more about Membership and our work at www.dtra.org.
October 4, 2023
Dani speaks with Chelsea Rolfes & Sarah Gray, Founding Clinicians of Trusted Health, transitioned from direct patient care to building and scaling a high-growth company tackling the nursing shortage and enabling health systems to transform their workforces. Together, they discuss their transition, learnings and successes, advice for nurses, and perspectives on the future of nursing.
October 4, 2023
Structural racism is more than private prejudices held by individuals. It is embedded in institutional policies and practices that unfairly minoritize and disadvantage certain groups while advantaging others. Addressing structural racism then requires not only changing individual attitudes, but also identifying and changing those policies and institutions that foster a racial hierarchy. We are joined by trailblazer Dr. Zinzi Bailey, a social epidemiologist and Assistant Professor at the University of Miami Miller School of Medicine and the Sylvester Comprehensive Cancer Center. Drawing upon her extensive experience in quantitative and qualitative methods of assessing social determinants of health inequities, Dr. Bailey discusses how she uses this information to dismantle structural racism.
References
Adkins-Jackson PB, Chantarat T, Bailey ZD, and Ponce NA. Measuring Structural Racism: A Guide for Epidemiologists and Other Health Researchers. American Journal of Epidemiology. September 2021
Bailey ZD, Feldman JM, Bassett MT. How Structural Racism Works — Racist Policies as a Root Cause of U.S. Racial Health Inequities. The New England Journal of Medicine. February 2021
Bailey ZD, Krieger N, Agénor M, Graves J, Linos N, Bassett MT. Structural racism and health inequities in the USA: evidence and interventions. The Lancet. April 2017
-| The Health Equity Podcast Channel is made possible with support from Bayer G4A. Learn more about how Bayer G4A is advancing equity, access and sustainability at G4a.health
-| This episode originally aired on May 3, 2023 on Aging Fast & Slow. Listen, follow and subscribe here.
October 4, 2023
A workplace leader has to inevitably deal with conflict, and here are some tips that will be extremely helpful for it.
In this episode, Randy Keirn talks about leadership and conflict management with CLEAR Rx, a concise five-step process. He emphasizes the importance of effective conflict resolution in leadership, introducing the CLEAR Rx method for conflict management, and provides practical advice for improving leadership skills in professional settings.
Don’t miss this insightful conversation about leadership and conflict management tools with Rany Keirn!
Click this link to the show notes, transcript, and resources: healthyworkforceinstitute.com/podcast
Learn more about your ad choices. Visit megaphone.fm/adchoices
October 4, 2023
#SyngapCensus
https://www.syngapresearchfund.org/post/syngapcensus-2023-update-59-in-q3-2023-total-1-297
#UFDCure Cannonball - October 4-6
https://www.syngapresearchfund.org/cannonball
Effie on CBall https://effieparks.com/podcast/effisode-074-syngap-cannonball-for-a-cure
Pre-party https://x.com/UFDTech/status/1709366677261987862
Scramble - October 7, 2023
Stories https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-019
Site
https://www.syngapresearchfund.org/families/scramble-for-syngap-syngap-research-fund
PRAX-222 & ciitizen
Marcio https://youtu.be/ibgINIFPFRk?si=Rtxe3rlTUWdMYGvg
Pressers
9/20 https://www.prnewswire.com/news-releases/invitaes-real-world-ciitizen-data-utilized-in-praxis-precision-medicines-prax-222-ind-filing-301627677.html
10/2 https://investors.praxismedicines.com/news-releases/news-release-details/praxis-precision-medicines-provides-portfolio-update-2023-rd-day
#mustread
Essay by Jennifer: https://effieparks.com/blog/2023/9/30/sometimes-there-is-no-silver-lining
Book: https://www.amazon.com/Self-Compassion-Proven-Power-Being-Yourself/dp/0061733520/
Wild Type Campaign
https://www.bonfire.com/wild-type-syngap1-1/
Conference - Sign up by Halloween - We need head counts.
Registration link: https://Syngap.Fund/Orlando
Hotels: https://Syngap.Fund/2023hotel
Shirts: https://www.bonfire.com/srf-syngap1-conference-2023/
Share your time and blood too!Sign up for ciitizen!Sign up for CHOP!
Volunteer!
Give us 5 stars everywhere. Like Apple podcasts: https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here - https://www.syngapresearchfund.org/syngap10-podcast Episode 118 of #Syngap10 - October 3, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
October 4, 2023
In this episode, we focus on leveraging Polarity Intelligence™, which is Pillar #2 of our Dynamic Balance EffectTM (DBE) Framework.
Polarity Intelligence applies the “missinglogic” to leverage the unavoidable tensions and challenges impacting your daily life.
The thing is, most leaders feel these tensions are problems to solve because it’s the only lens they’ve ever known. If you treat them as problems and you don’t realize that you’re experiencing unmanaged polarities, you will realize your greatest fears and end up failing.
In this podcast, we talk about the numerous tensions that act on you and how to identify and leverage them to establish a balanced life.
We also talk about four crux personal polarities and their early warning signs, and negative outcomes if you over-focus on one over the other.
For full show notes and links, visit:
https://www.missinglogic.com/new-podcast
If you found value in this episode, please subscribe and leave us a review on Apple Podcasts!
SOCIAL MEDIA LINKS:
https://www.linkedin.com/company/missinglogic-llc
https://www.facebook.com/missinglogicLLC
https://twitter.com/MissingLogicLLC
https://www.instagram.com/missinglogic_llc/
October 4, 2023
Seer is pioneering new ways to decode the secrets of the proteome, leveraging engineered nanoparticles to provide unbiased, deep, and large-scale access to this incredibly detailed landscape. Learn more on the latest episode of the AWS Health Innovation Podcast.
October 3, 2023