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Latest Episodes

PEPFAR: An HIV Marshall Plan Dissected

In the next of our podcasts dedicated to the USA’s multibillion investment in the fight against AIDS, Ben and Yvette catch up with Emily Bass, author of To End A Plague - the definitive history of PEPFAR, to discuss how PEPFAR, the pride of US bipartisanship, has become yet another victim of congressional mischief-making. PEPFAR saves lives: it also reinforces US soft power abroad. So why would politicians want to scupper it? https://www.state.gov/pepfar https://apha.org.za https://www.emilybass.club Find out more about Emily’s book “To End A Plague”, Check out our 2022 interview with her https://youtu.be/YSzO3NWQeI0?si=6oKAfO4aoazQd8EO #pepfar #HIV #AIDS #stigma #discrimination #Prevention #treatment #bipartisanship #US #Congress
March 3, 2024
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Jackie Kancir, SYNGAP1 Mom and Advocacy Leader for SRF talks about daughter Jadyne and shares advice for all rare disease parents.

Show Notes In this special episode, guest host Jessica Johnson talks with Jackie Kancir. The two SYNGAP1 Moms discuss education systems, on the farm with Jadyne (Jackie's daughter), make-up, behavioral issues, Jadyne's optimism, and advocating for your children! This episode will educate everyone in the rare disease world. Behavior is communication - listen for details! See all episodes at ⁠⁠⁠⁠⁠Syngap.Fund/Stories⁠⁠⁠⁠⁠. ⁠Jadyne's Warrior Story⁠⁠ Connect with Jackie: [email protected] Jackie's SRF bio ⁠⁠⁠LinkedIn Other Links SRF SYNGAP1 Resources for Education & Advocacy SYNGAP1: Background, Development, and the Impact on Children Information on ABA - Applied Behavior Analysis - Link 1; Link 2 Severe Behaviors and Advocacy, SRF Webinar #53 by Jackie Exploring Advocacy: Finding and Refining Your Voice - webinar hosted by Jackie Jackie has misc. links ⁠news, media, etc. here⁠ Connect with ⁠⁠⁠⁠⁠⁠Ashley⁠⁠⁠⁠⁠⁠: ⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Ashley's SRF Bio⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Nathan’s Warrior Story⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ SYNGAP1 Stories ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Episode 001⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ - Ashley Frye Connect with ⁠⁠⁠⁠⁠⁠Jessica: [email protected] Kai's Warrior Story SRF & SYNGAP1 Info:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠What is SYNGAP1?⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Syngap Research Fund⁠⁠ - ⁠⁠⁠https://curesyngap1.org/⁠⁠⁠ ⁠⁠⁠SYNGAP1 Resources for Newly Diagnosed Families⁠⁠⁠ Wednesday Warriors ⁠⁠⁠Supporting SYNGAP1 Siblings⁠⁠⁠ Donate - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://Syngap.Fund/Donate⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠SYNGAP1 & Epilepsy⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Why Getting a Genetic Diagnosis Matters⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠How to Get Free Genetic Testing⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Special Needs Trusts⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ SYNGAP1 Family Day 2023 – A Beacon of Hope! (blog with videos) ⁠⁠⁠Pre-register⁠⁠⁠ for SYNGAP1 Conference 2024 Connect with SRF (@curesyngap1): ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Twitter⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠TikTok⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠w/ Mike SynGAP Research Fund ⁠⁠⁠⁠⁠⁠⁠Apple Podcast Channel⁠⁠⁠⁠⁠⁠⁠ Family Zoom Meeting (Weekly on Wednesdays, 8PM ET): ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417 Sibling Zoom Meeting (Monthly on 1st Thursday, 8PM ET): ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417 Comments: ⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠ Music: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Episode 027 SYNGAP1 Stories, March 3, 2024 #SYNGAP1StoriesJadyne #Syngap #SYNGAP1 #SYNGAP1Stories #SYNGAP1StoriesEp27 #Epilepsy #EpilepsyAwareness #Autism #AutismAwareness #IntellectualDisability #ID #Anxiety #Behavior #RareDisease #RareDiseaseResearch #SynGAPResearchFund #CareAboutRare #Advocacy #PatientAdvocacy #Neurology #GeneticTesting #Family #Water #Music #SyngapConf #SYNGAP1Siblings #Caregiver #Elopement #BehaviorIsCommunication
March 3, 2024
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The Art of Storytelling: Engaging Clinical Audiences

If you are a medical writer my guess is that you occasionally struggle to engage your target audience. Health professionals have less time and shorter attention spans, making it critical for medical writers to master storytelling techniques that get their audiences interested and engaged with content, whether we’re talking about slide decks, manuscripts, or omni-channel content. My guest in episode 102 is Eleanor Steele, also known as MedComms Mentor, who shares how she transitioned from agency work to running a successful freelance business in medical communications. Join us to learn more about the gaps Eleanor identified in the market for specialized training and development and get practical advice from Eleanor about: Storytelling frameworks that support a logical flow of information and answer audience questions How to frame content around audience needs and interests The skills you need to write "bite-sized" short-form content optimized for different formats This conversation with Eleanor is part of our first Friday series, which profiles medical writers and how they have broken into the field. It's also the last episode of season 7. Resources Content Alchemy. Tip Sheet for Medical Writers Connect with Eleanor Email: [email protected] Website YouTube Time Stamps (03:47) - Eleanor’s journey and transition into Medical Communications (06:02) - Some of the gaps she’s seeing in the training and professional development market for medical writers (07:39) - What Eleanor does and who she does it for (11:57) - What she encourages writers to do to learn a little bit more about the audience they’re writing for (16:31) - Navigating the challenges for writers with limited clinical exposure (20:03) - Storytelling frameworks (22:44) - The main challenges Eleanor sees in ongoing training and professional development (25:53) - Her YouTube Channel: MedComms Mentor (31:07) - Key challenges she sees for freelance medical writers (33:37) - The future of MedComms (36:15) - A shift towards not only engagement but outcomes in the omni-channel assets (38:47) - Where to connect with Eleanor Subscribe to the Write Medicine podcast! Don’t forget to subscribe to the Write Medicine podcast for more valuable insights on continuing medical education content for health professionals. Click the Follow button and subscribe on your favorite platform.
March 1, 2024
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Off-Script: How We Got Here

John and Mike discuss their childhoods and how their career choices were influenced by their parents and personal experiences. They reflect on the importance of work-life balance and finding fulfillment in their respective professions. The conversation highlights the value of personal growth and the need to adapt to unexpected career paths.
March 1, 2024
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94: How Valuable is the Shock Index?

Looking at HR or Blood Pressure alone as determinants of how stable the patient is can lead us astray.  The Shock Index allows us to detect when patients are declining… while they are still compensating. Shock Index = HR/SBP… but how can we use this tool? A patient’s vital signs can appear normal, meanwhile they’re on the brink of shock. This was exactly the case of Mr. Fields, a patient admitted to the ER after falling off his tractor. Initially, his vitals didn't raise alarms but there were signs pointing to a more serious situation — including a shock index of greater than one.In this episode, host Sarah Lorenzini dives into the critical role shock index plays in determining how sick patients are and improving their outcomes, especially in emergency settings. She breaks down the calculation of shock index, its limitations in screening for all types of shock, and practical applications in patient care.Tune in now to explore how you can apply this vital tool in the assessment and treatment of patients!Topics discussed in this episode:The case study of Mr. FieldsUnderstanding shock indexHow to calculate shock index… the easy wayClinical applications of shock indexLimitations of shock indexLearn more about shock index: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6698590/#:~:text=Shock%20index%20(SI)%20is%20defined,sepsis%2C%20and%20ruptured%20ectopic%20pregnancyMentioned in this episode:Rapid Response Academy LinkWanna check out Rapid Response Academy: The Heart and Science of Caring for the Sick? click this link to learn more: https://www.rapidresponseandrescue.com/communityRapid Response and Rescue Intro CourseCONNECT 📸 Connect on Instagram: https://www.instagram.com/therapidresponsern/ 🫶 Check out my membership: https://www.rapidresponseandrescue.com/community 📚 Check out my course: https://www.rapidresponseandrescue.com/learnmore 🧑‍💻Check out my website: https://www.rapidresponseandrescue.com/ 📬 Subscribe to my newsletter: https://www.rapidresponseandrescue.com/login 🎁 Affiliation and discounts: https://hoo.be/therapidresponsern SAY THANKS 💜Leave a review on Apple Podcasts: https://podcasts.apple.com/ca/podcast/rapid-response-rn/id1535997752 💚Leave a rating on Spotify: https://open.spotify.com/show/55LQqeDg6XFeixvZLEp4xE To get the FREE Rapid Response RN Assessment Guide and the coupon code for $10 off the cost of the course, message Sarah on Instagram @TheRapidResponseRN and type the word PODCAST! This episode was produced by Podcast Boutique https://www.podcastboutique.com
March 1, 2024
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Healthcare Advocacy w/Pam Allen

Charlene talks with Pam Allen, Government Affairs Representative for Redlands Community Hospital. Pam was previously Director of Emergency Services at Redlands, and she currently serves on ACNL’s Health Policy Committee, working to educate ACNL members on how they can get involved in shaping legislation. Pam and Charlene talk about how she transitioned from a more traditional nursing role to working in government affairs, and share some advice for nurses who are interested in getting involved with health policy. Host: Charlene Platon, MS, RN, FNP-BC (@charleneplaton) Guest: Pam Allen, MSN, RN, CEN (https://www.linkedin.com/in/pam-allen-30795429/) About the show: ACNL in Action is a production of the Association of California Nurse Leaders, the professional organization for nurse leaders. New episodes come out on the first Friday of every month. Want to support ACNL? Consider making a donation: http://bit.ly/cog-podcast . Learn more about ACNL, including how to become a member, at acnl.org.  Follow us on Facebook and LinkedIn at @acnlnurse.
March 1, 2024
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What Alabama’s IVF Ruling Means for Healthcare

The Alabama Supreme Court ruled that frozen embryos, created for in-vitro fertilization –are children. The immediate result is to stop IVF in Alabama and put Republicans, who worked to overturn Roe v Wade on the defensive.What are the broader implications of this ruling? And what does it mean to be pro-life but anti-IVF?TOPICS(1:09) What is IVF?(3:12) What happened with the IVF ruling in Alabama?(4:41) Would this have happened if Roe v Wade was not overturned?(7:00) What are the broader implications of the IVF ruling?(11:58) The political complexity surrounding the ruling(16:28) How will this impact cancer patients?(20:13) Short and long-term effects🎙️⚕️ABOUT CARETALKCareTalk is a weekly podcast that provides an incisive, no B.S. view of the US healthcare industry. Join co-hosts John Driscoll (President U.S. Healthcare and EVP, Walgreens Boots Alliance) and David Williams (President, Health Business Group) as they debate the latest in US healthcare news, business and policy. GET IN TOUCHBecome a CareTalk sponsorGuest appearance requestsVisit us on the webSubscribe to the CareTalk NewsletterShop official CareTalk merchFOLLOW CARETALKSpotifyApple PodcastsGoogle PodcastsFollow us on LinkedIn#healthcare #healthcarepolicy #healthcarebusiness #healthcaretechnology  #healthinsurance #ivf #supremecourt  Support the showCareTalk: Healthcare. Unfiltered. is produced by Grippi Media Digital Marketing
March 1, 2024
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What Can Dating Apps Tell Us About the Nurse Hiring Process?

On episode 463 of The Nurse Keith Show nursing and healthcare career podcast, Keith interviews Ryan Lee, the CEO and Co-Founder of HireMe Healthcare, and Denise Jones, the Director of Nurse Relations and also Co-Founder of HireMe Healthcare. In the course of their conversation, Keith and his guests discuss how the matching technologies demonstrated by dating apps can be leveraged to find the perfect job match for nursing professionals and the organizations who employ them. Also discussed is the rebuilding of trust in healthcare hiring by promoting transparency, efficiency, and the empowerment of job-seeking nurses. With a remarkable background in healthcare and a passion for revolutionizing the industry, Ryan Lee has extensive experience as a startup founder, investor, leader, and advisor that has equipped him to tackle the nursing staffing shortage crisis and enhance healthcare accessibility by addressing operational inefficiencies. He's led diverse endeavors, from designing a clean energy startup for refugees to his unwavering pursuit of healthcare as a fundamental human right. Denise Jones Nice is the Director of Nurse Relations and a Co-Founder at HireMe Healthcare, where she thrives on building relationships with the nurse community and helping them solve their biggest challenges. Denise has firsthand experience working as a CNA in a large hospital. After graduating from the University of New Hampshire with a Bachelors in Science, Denise wanted to be in a clinical role. However, after her experience as a CNA and working for the American Red Cross, Denise found passion within other avenues of health services, and directed this passion towards her MBA with a health admin and marketing focus. In her free time, Denise likes to focus on health and fitness and spending time with her dogs, family, and friends. Denise is passionate about helping people and making a difference. Connect with Ryan Lee, Denise Jones Nice and HireMe Healthcare: HireMe Healthcare Ryan Lee on LinkedIn Denise Jones on LinkedIn YouTube Instagram TikTok Facebook LinkedIn X ----------- Nurse Keith is a holistic career coach for nurses, professional podcaster, published author, award-winning blogger, inspiring keynote speaker, and successful nurse entrepreneur. Connect with Nurse Keith at NurseKeith.com, and on Twitter, Facebook, LinkedIn, and Instagram. Nurse Keith lives in beautiful Santa Fe, New Mexico with his lovely fiancée, Shada McKenzie, a highly gifted traditional astrologer and reader of the tarot. You can find Shada at The Circle and the Dot. The Nurse Keith Show is a proud member of The Health Podcast Network, one of the largest and fastest-growing collections of authoritative, high-quality podcasts taking on the tough topics in health and care with empathy, expertise, and a commitment to excellence. The podcast is adroitly produced by Rob Johnston of 520R Podcasting, and Mark Capispisan is our stalwart social media ringmaster and newsletter wrangler.
March 1, 2024
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Keynote: Bridging Mass Data to Rich Insights and Predictive Analytics with Shez Partovi

March 1, 2024: Join Shez Partovi, the Enterprise Informatics Chief Business Leader at Philips as they navigate the next curve of the health tech evolution. They delve into the ocean of data within the modern health landscape, raising the reflective debate: How do we transform mass data into real insights? With an in-depth look into the recent guidance AI is showing, especially in medical imaging, they consider what this future technology can unveil. What light does this shed on a path for untangling modern complexities in care? They challenge the goals, the 'what now' and the courses set out for an average health player by Partovi's deep assessment and front-line sites. Facing ahead, it's all about streamlining the healthcare process with technology without neglecting the patient. Key Points:Interpreting Mass DataReaching Underserved CommunitiesCreating a Positive Customer InteractionAI Interpreting Health RecordsAllocating Resources EffectivelySubscribe: This Week HealthTwitter: This Week HealthLinkedIn: Week HealthDonate: Alex’s Lemonade Stand: Foundation for Childhood Cancer
March 1, 2024
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The Cannabis Industry and Following Your Passion with David Miller

This episode will combine a discussion on a cannabis cultivation business, creating a life that centers around wellness and following your passion.  My guest is David Miller whose cannabis cultivation business focuses on health, quality, and wellness. Questions this episode will answer: How a cannabis cultivation business can be part of wellness? What are ways to make wellness part of your personal and professional life? Why does the cannabis industry need to be destigmatized? Join us as we also delve into family, values, and creating a lifestyle that supports wellness while feeling successful as a professional. Whether you have used cannabis before, have never used cannabis, or are against cannabis, there is something for up in this amazing episode. Find David Miller: https://instagram.com/davidmiller.buzz Flowgardens.com Resources: Get your free Better Mental Health Affirmations: Affirmationbonus.com About David Miller: David Miller believes in making an impact to support organizations and businesses that further the betterment of society through synergizing expert advice. David is a progressive thought leader and was the founder and CEO of an investment company for 15 yrs in Atlanta, GA. They were ranked as the #1 fastest-growing financial services company in the US for 2017 (Inc 5000 #320) and is a family of tax, accounting, and investment companies. David’s leadership background started in 2003 when he spent 5 years in corporate America at American Express.  David's education includes MIT, Oglethorpe, and the University of Tennessee with focus areas in Entrepreneurship, Finance & Accounting, and Financial Planning. He has held board positions or involvement with the Emory Global Health Council, NewStory, Deki, GCAPP, and Entrepreneur's Organization among others. David and his loving wife dedicate their personal time to their blended family of three children, Hudson, Deacon, and Paxton, their adopted cousin Destinee, and their three dogs Jersey, Gogo, and Alfie.
February 29, 2024
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