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Latest Episodes

#SyngapCensus, #UFDCure Cannonball, Scramble, PRAX-222 & ciitizen, and a #mustread — #S10e118

#SyngapCensus https://www.syngapresearchfund.org/post/syngapcensus-2023-update-59-in-q3-2023-total-1-297 #UFDCure Cannonball - October 4-6 https://www.syngapresearchfund.org/cannonball Effie on CBall https://effieparks.com/podcast/effisode-074-syngap-cannonball-for-a-cure Pre-party https://x.com/UFDTech/status/1709366677261987862   Scramble - October 7, 2023 Stories https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-019 Site https://www.syngapresearchfund.org/families/scramble-for-syngap-syngap-research-fund   PRAX-222 & ciitizen Marcio https://youtu.be/ibgINIFPFRk?si=Rtxe3rlTUWdMYGvg Pressers 9/20 https://www.prnewswire.com/news-releases/invitaes-real-world-ciitizen-data-utilized-in-praxis-precision-medicines-prax-222-ind-filing-301627677.html  10/2 https://investors.praxismedicines.com/news-releases/news-release-details/praxis-precision-medicines-provides-portfolio-update-2023-rd-day    #mustread Essay by Jennifer: https://effieparks.com/blog/2023/9/30/sometimes-there-is-no-silver-lining  Book: https://www.amazon.com/Self-Compassion-Proven-Power-Being-Yourself/dp/0061733520/    Wild Type Campaign https://www.bonfire.com/wild-type-syngap1-1/    Conference - Sign up by Halloween - We need head counts. Registration link: https://Syngap.Fund/Orlando   Hotels: https://Syngap.Fund/2023hotel  Shirts: https://www.bonfire.com/srf-syngap1-conference-2023/  Share your time and blood too!Sign up for ciitizen!Sign up for CHOP! Volunteer! Give us 5 stars everywhere.  Like Apple podcasts: https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917   This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here - https://www.syngapresearchfund.org/syngap10-podcast Episode 118 of #Syngap10 - October 3, 2023 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
October 4, 2023
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#221: Encore Episode: TRU Series Polarity Intelligence™

In this episode, we focus on leveraging Polarity Intelligence™, which is Pillar #2 of our Dynamic Balance EffectTM (DBE) Framework. Polarity Intelligence applies the “missinglogic” to leverage the unavoidable tensions and challenges impacting your daily life. The thing is, most leaders feel these tensions are problems to solve because it’s the only lens they’ve ever known. If you treat them as problems and you don’t realize that you’re experiencing unmanaged polarities, you will realize your greatest fears and end up failing. In this podcast, we talk about the numerous tensions that act on you and how to identify and leverage them to establish a balanced life. We also talk about four crux personal polarities and their early warning signs, and negative outcomes if you over-focus on one over the other. For full show notes and links, visit: https://www.missinglogic.com/new-podcast If you found value in this episode, please subscribe and leave us a review on Apple Podcasts! SOCIAL MEDIA LINKS: https://www.linkedin.com/company/missinglogic-llc https://www.facebook.com/missinglogicLLC https://twitter.com/MissingLogicLLC https://www.instagram.com/missinglogic_llc/
October 4, 2023
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#64, Decoding & Navigating the Proteome with Serafim Batzoglou, Chief Data Officer of Seer

Seer is pioneering new ways to decode the secrets of the proteome, leveraging engineered nanoparticles to provide unbiased, deep, and large-scale access to this incredibly detailed landscape. Learn more on the latest episode of the AWS Health Innovation Podcast.
October 3, 2023
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How Can Lack of Resources Spur Innovation? A Nephrologist’s Perspective From Kenya

In this episode, we navigate through the clinical landscape of Kenya with nephrologist Khalida Soki, who, after a tenure with the UK's NHS, chose to return to her native land. Our conversation delves into the stark realities clinicians face in regions constrained by resources. Khalida sheds light on the imperative for innovation amongst doctors, who often find themselves adapting—sometimes in deviation from international clinical guidelines—to maximize the impact of available resources. She also highlights the pivotal role of technology, pointing to the convenience and widespread use of telemedicine facilitated by Kenya's robust connectivity infrastructure. Access to international resources, she notes, is invaluable in offering patients informed clinical advice. Website: facesofdigitalhealth.com Newsletter: https://fodh.substack.com/ Ilara Health: https://www.ilarahealth.com/about-us/ Leave a rating or a review: https://lovethepodcast.com/facesofdigitalhealth
October 3, 2023
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Med-Tech World Summit: Transforming Healthcare Innovation with Dr. Dylan Attard, Co-Founder and Malta’s Conference CEO at Med-Tech World

Discover how one physician's passion for innovation led to the creation of the Malta Med-Tech World Summit. In this episode, Dr. Dylan Attard shares how the Med-Tech World Summit creates opportunities for startups and connects them with investors, hospitals, and accelerators, all while promoting Malta as a hub for Med-Tech and digital health companies. He discusses Malta's advantages for Med-Tech companies, stresses startup funding and support, and explores the conference's global focus while emphasizing the value of innovation beyond one's comfort zone. Tune in to gain insights into the intersection of medicine, technology, and entrepreneurship with Dr. Dylan Attard. Click this link to the show notes, transcript, and resources: outcomesrocket.health
October 3, 2023
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Ischemic Conditioning for Stroke, Risk-Stratifying Pediatric Ovarian Masses, Adherence to CPAP and CV Events, and more

Editor’s Summary by Anthony Charles, MD, MPH, Associate Editor of JAMA, the Journal of the American Medical Association, for the October 3, 2023, issue.
October 3, 2023
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Reshaping Systems of Discrimination

In this podcast episode, we explore how neighborhoods and the policies that govern those communities can reveal long-standing issues of racism within our society. Our guest, Dr. Odis Johnson, Jr. from Johns Hopkins University, is an expert in multiple fields, including health policy, education, and sociology. Dr. Johnson helps us understand how these issues have led to ongoing inequalities, particularly for marginalized communities. We discuss how past discriminatory policies still impact us today and why we need significant changes in our systems. Dr. Johnson also explains how these policies affect the quality of schools in different neighborhoods and their impact on students' success.  References Johnson Jr. O, Jabbari J. Suspended While Black in Majority White Schools: Implications for Math Efficacy and Equity. The Educational Forum. November 2021. Johnson Jr. O. Exogenous Policy, Racial Avoidance, and the Qualified Relevance of Macroeconomic Change to Metropolitan Inequality. Teachers College Record: The Voice of Scholarship in Education. May 2022. 
October 3, 2023
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RC: Compliance in Healthcare and Research: Insights and Strategies with Edye Edens, Senior Research Compliance Consultant at First Class Solutions

Transparent communication is the backbone of successful healthcare compliance strategies. In this episode, Edye Edens discusses the complexities of compliance across industries, with a particular focus on clinical research and healthcare. She advocates for a risk-based approach and emphasizes the importance of technology and transparent communication in adapting to evolving regulations. Tune in to learn about the delicate balance between risk and compliance in healthcare and research!
October 3, 2023
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Healthcare’s MissingLogic: Calling all Leaders! Work-Life Balance is Possible

You've probably heard that work-life balance doesn't exist. Or maybe you've tried to balance your personal and professional life, especially during these challenging times, but you feel like it's impossible to achieve. As leaders, we're taught to look at challenges and issues as problems to solve and we think that problem-solving is the logic we apply to all challenges we face. Are we right? The thing is, not every problem is solvable, and if you can't recognize that the challenge isn't a problem to solve, then you're going to fail over time. In this episode, we reveal that Work-Life Balance is possible and why you can achieve it as a leader. We also discuss why some problems are not solvable, what a polarity is, how they work, and how you can take a different approach to manage them. For full show notes and links, visit: https://www.missinglogic.com/new-podcast If you found value in this episode, please subscribe and leave us a review on Apple Podcasts! SOCIAL MEDIA LINKS: https://www.linkedin.com/company/missinglogic-llc https://www.facebook.com/missinglogicLLC https://twitter.com/MissingLogicLLC https://www.instagram.com/missinglogic_llc/  -| This episode originally aired on September 20, 2023 on Healthcare's MissingLogic Podcast. Listen, follow and subscribe here. -| The Healthcare Leader Podcast Channel is produced with support from Provider Solutions & Development, expert recruitment advisors helping physicians navigate their next career move. Learn more about their work by visiting healthpodcastnetwork.com/psd.
October 3, 2023
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262: Exploring Sugar Addiction, Health, and Well-Being with Karen Thomson

In this episode, we're delighted to have Karen Thomson as our guest. Karen is a multifaceted individual, wearing the hats of an artist, festival organizer, and the innovative founder of HELP (Harmony Eating Lifestyle Program). Her pioneering work involves treating carbohydrate and sugar addiction as an inpatient program—a first of its kind. Today, Karen shares her insights on sugar addiction, the path to a healthier lifestyle, her personal journey, and more. She also provides a glimpse into the extraordinary Revitalize Health Festival, an event that delves deep into the realms of optimal well-being.
October 3, 2023
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