Sarcoma: Sara’s Cure and the Race Against Time, Pt 1
In 2016, Sara Woods was diagnosed with Clear Cell Sarcoma, a very rare form of Sarcoma, which is in itself a rare form of cancer. Today in 2020, Sara is 17 years old.
This week on Out of Patients, we’ve set aside two entire episodes to focus in on the story of what Sara’s mother Lennie Woods did when Sara’s diagnosis landed on her family. This is the story of the patient experience of Sarcoma, and of Sara’s Cure: the bold non-profit organization created by Lennie, along with her fierce friend and COO Molly Liska.
Together Lennie, Molly and the entire Sara’s Cure community are lifting up not just Sara but every other Clear Cell Sarcoma patient in the world to force momentum and critical mass in order to drive the research needed to produce a viable therapeutic approach to CCS. This is what patient advocacy looks like.
Part 1 of 2
Sara’s Cure: https://sarascure.org/