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Know Stroke Podcast

Know Stroke Podcast

Empowering stroke survivors and their care teams to take control of life after stroke.

Latest From Series

1 in 100,000 – Interview with Orlena Skek, Moyamoya Stroke Survivor & Author of Emerging From The Smoke.

In Episode 33 of the Know Stroke Podcast, we were joined by Orlena Skek. Orlena Shek is a former in-house software technology licensing attorney. She lives in the San Francisco Bay Area with her husband and two young children. After experiencing major hemorrhagic stroke in late 2011 due to a rare congenital condition called Moyamoya Disease, she put her law career on hold to focus on her rehab and her family. The numbers that she shares speak for themselves to the long and turbulent journey she went on. 14 ambulance rides within 5 months 6 week hospitalization at Stanford.  3.5 weeks in a medically induced coma 3 different acute rehab hospital stays ranging from Marin to Santa Clara County. Two 10 hour plus brain surgeries, a week apart. One thousand eight hundred paper origami cranes folded by countless co-workers, neighbors, and friends. Some of whom are on the call here tonight.  More than a 100 nights spent hospitalized, away from home.   2 children:1st born pre-Stroke, 2nd born post-Stroke. 1 trip to Las Vegas by myself for a Bachelorette party. Orlena shares with us today that journey and what led her to authoring a book titled "Emerging from the smoke, a collection of warrior voices" This book is a beautiful collection of short poems from 30+ stroke survivors. You can learn more about Orleana's story, and purchase here book here: https://www.storiesofstroke.com/orlena-shek/
September 18, 2022

Interview with Dr. Nick Ward. Professor of Clinical Neurology & Neurorehabilitation, UCL Institute of Neurology

In episode 32 of the Know Stroke Podcast, we were joined by Professor Nick Ward. About our Guest: Professor Ward is a consultant neurologist at National Hospital for Neurology and Neurosurgery and a professor of clinical neurology and neurorehabilitaion at Queen Square UCL Institute of Neurology. His special clinical interest is in stroke and neurorehabilitation, focusing in particular on recovery of arm and hand function through the Queen Square upper limb neurorehabilitation programme. He is the founder of the Neurorehabilitation Online N-ROL project. He is co-founder of the UCLP Centre for Neurorehabilitation, co-editor Oxford Textbook of Neurorehabilitation and associate editor of the journals Neurorehabilitation and Neural Repair and Journal of Neurology, Neurosurgery and Psychiatry. Professor Ward leads a research program to help understand the mechanisms of upper limb impairment and treatment after stroke. In particular, he uses structural and functional brain imaging to study the relationship between brain network reorganisation and recovery of movement after stroke. Special mentions: Emilia Clark's charity SameYou for Brain injury and stroke recovery Gripable training platform for upper arm rehabilitation Catherine Doogan, Post Doc and Clinical Psychologist who is working on developing Digital Interventions in Neuro-Rehabilitation (DINR) In the news: A call for architect students to help design the Next Generation of Stroke Rehabilitation Centers  Show Info: Music intro jingle credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777. Once Jake gets settled in to college life at university we’ll be glad to have him back at the helm producing our podcast again! You’ll be missed here Jake on so many levels, thank you! Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the Know Stroke Podcast
September 5, 2022

Interview with Ralph Preston Founder of Stroke Buddies

Know Stroke Podcast Episode 31 Interview with Ralph Preston Founder of Stroke Buddies After a stroke, Ralph Preston leveraged over 40 years of professional video experience to continue to do good with his camera. He “turned the lens on himself “ and is developing high-quality videos for stroke survivors and for local non-profits.  About our Guest: Preston is the founder of Stroke Buddies: By and For Stroke Survivors, a Facebook group for stroke survivors that currently has 8,000 members and is growing every day. Ralph built this community from the ground up so survivors can seek answers, learn with educational resources, and receive support. Last year, he launched a weekly virtual stroke survivor support group meeting in association with MedRhythms and is assembling a team of medical professionals, PTs, OTs, physicians, neurologists, and neuroscientists who have suffered stroke themselves and are interested in sharing their stories and knowledge at these support group meetings.  Ralph also started a discussion show that is shared with the Stroke Buddies community and is called Stroke Roadmap. The purpose is to help those who are transitioning their recovery from PT to home therapy. Additionally, Ralph develops and shares dozens of home therapy exercise videos from his YouTube channel to improve at-home recovery.  Ralph has leveraged over 40 years of professional video experience to do good with his camera, from developing high-quality videos for stroke survivors to volunteering for local non-profits. He founded and ran a video production company prior to his stroke and founding Stroke Buddies, and it is his mission to use these skills to disseminate knowledge and help others.  This year Stroke Buddies was granted non-profit status, so now he is off to raise money and see if he can fundamentally change stroke recovery. Show Credits: Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777 Be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the Know Stroke Podcast https://www.know-stroke.org
August 20, 2022

Interview with Dr. Heidi Schambra Director of Research Strategy in Neurology and Mobilis Lab NYU Langone

Know Stroke Podcast Episode 30 Stroke commonly damages motor function in the upper extremity (UE), leading to long-term disability and loss of independence in a majority of individuals. Rehabilitation seeks to restore function by training daily activities, which deliver repeated UE functional motions. The optimal number of functional motions necessary to boost recovery is unknown. This gap stems from the lack of measurement tools to feasibly count functional motions.  Today's guest is Dr. Heidi Schambra from NYU Langone. She and her team at the Mobilis Lab, out of NYU Langone developed the PrimSeq pipeline to enable the accurate and rapid counting of building-block functional motions, called primitives. PrimSeq uses wearable sensors to capture rich motion information from the upper body, and custom-built algorithms to detect and count functional primitives in this motion data. They showed that their deep learning algorithm precisely counts functional primitives performed by stroke patients and outperformed other benchmark algorithms. The study also showed patients tolerated the wearable sensors and that the approach is 366 times faster at counting primitives than humans. PrimSeq provides a precise and practical means of quantifying functional primitives, which promises to advance stroke research and clinical care and to improve the outcomes of individuals with stroke. In our discussion we covered how this tool can translate into rehab happening in the clinical setting, a patient's home, and how insurers think about reimbursing stroke rehab.  About our guest: Dr. Heidi Schambra is an Associate Professor of Neurology and Rehabilitation Medicine, Director of the Division of Neuro-Epidemiology, Director of Research Strategy in Neurology, and Director of the Mobilis Lab. Dr. Schambra received her BS in neuroscience from Brown University and MD from Emory University. She completed her training in neurology at Harvard-Partners and in neurorehabilitation at Burke Rehabilitation Hospital. She also completed a postdoctoral fellowship in motor learning and noninvasive brain stimulation with Dr. Leonardo Cohen at NINDS/NIH. Dr. Schambra was on faculty at Columbia University until 2016, when she joined NYU Langone. When not in the lab, she can be found taxonomizing clouds, cute-aggressing her pets and husband, and menacing New York on a Citibike. Watch this Episode on YouTube: https://youtu.be/PUGDDVrxjGg In the news: Frequent napping may be a sign of higher risks of stroke, high blood pressure Viz.ai, Hyperfine team up to add image-reading AI to bedside MRI scanners Show Credits: Music Show Intro Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777 Connect with us on social or contact us to be a guest on the Know Stroke Podcast
August 4, 2022

It’s Hot! Tips to Know and Avoid Heat Stroke and Announcement : We Need Your Help on Our Latest Stroke Education Project

Know Stroke Podcast S4E4 In the news: It’s Hot- Tips to Know Avoid Heat Stroke Announcements: Health Podcast Network move is complete What’s Next? In this brief episode the co-hosts connect on a podcast catch-up to explain more about their recent move to expand the reach of the podcast via the Health Podcast Network About the Health Podcast Network: Health Podcast Network features authoritative shows, hosts and guests who take on the tough topics in health and care with empathy, expertise and a commitment to excellence. We are one of the largest and fastest-growing collections of high-quality health podcasts. Health Podcast Network connects content creators, engaged listeners and organizations working to improve health and care for people around the world. From clinicians and executives, to investors and inventors, and everyone in between, we help people discover and tune into the podcasts that matter most to them. Health Podcast Network is the place to discover the shows, hosts and guests providing original programming that covers a range of topics facing the health sector in creative, engaging episodes. Tune in to our show here on the health Podcast Network: https://healthpodcastnetwork.com/show/the-know-stroke-podcast/ Call to Action:  Get involved in research for our partnership on stroke education with a new Health Unmuted short form podcast in development. Take our interest survey here: https://www.know-stroke.org/health-unmuted-stroke Watch this Episode: https://youtu.be/ExwAS1Yknsg In the News We discuss heat stroke and knowing the warning signs: Throbbing headache Dizziness and light-headedness Lack of sweating despite the heat Red, hot, and dry skin Muscle weakness or cramps Nausea and vomiting Rapid heartbeat, which may be either strong or weak Rapid, shallow breathing Behavioral changes such as confusion, disorientation, or staggering Seizures Unconsciousness Heat stroke is a medical emergency and you should call 911 immediately.  Read more here: https://www.webmd.com/a-to-z-guides/heat-stroke-symptoms-and-treatment Where we’ll be next: Podcast Events Coming Up: David will be a guest on Stroke Buddies Live Event with Ralph Preston on July 26th at 11am https://www.youtube.com/watch?v=izfb7EY6zIU and later that week on Brains with Brian a MedRhythms live event with Brian Harris on July 29th https://medrhythms.com/brains-with-brian/ Credits: Music Show Intro Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777 Connect with us on social or contact us to be a guest on the  Know Stroke Podcast
July 20, 2022

Interview with Henry Hoffman,MS,OTR/L Co-Inventor and Co-Founder of Saebo

Know Stroke Podcast -S4E3-Henry Hoffman On this episode we were joined by Henry Hoffman,MS,OTR/L co-inventor and co-founder of Saebo, Inc. We were introduced to Henry through Dr. Carolyn Brown, a previous guest of the podcast in season one. Saebo, Inc. is a medical device company primarily engaged in the discovery, development and commercialization of affordable and novel clinical solutions designed to improve mobility and function in individuals suffering from neurological and orthopedic conditions. With a vast network of Saebo-trained clinicians spanning six continents, Saebo has helped over 100,000 clients around the globe achieve a new level of independence. About our Guest: Henry graduated from D’Youville College in Buffalo, NY in 1997 with a Masters degree in occupational therapy. Since graduation, he has worked in a variety of settings including home health, acute, sub-acute, and outpatient rehab. Prior to leaving Burke Rehabilitation Hospital in New York, he worked as a clinical specialist in orthopedic medicine and manual therapy of the upper quadrant. Henry left Burke in the fall of 2002 to co-launch Saebo. This was a great discussion and as co-hosts we share a common mission with Henry to continue to dispel the believe that stroke recovery has an end when a “plateau” is reached. Listen in to learn how Henry and his team are on a mission to offer new affordable treatment options that deliver tangible results, and offer hope and support for continued recovery and improved function. Learn more about Saebo’s mission and connect with Henry here. Watch Episode on YouTube: https://youtu.be/E-rsCdtJ1SM In the News mentions:  Neurology Live Show Credits: Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777 Be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the  Know Stroke Podcast
July 8, 2022

The Know Stroke Podcast

Welcome to the Know Stroke Podcast with your co-hosts David Dansereau and Michael Garrow, brought to you by EnableUs. We get you caught up on the latest stroke science and bring you interviews with neuro-rehabilitation researchers, clinical experts and founders of emerging rehabilitation technology companies. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true potential and care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? Contact us here: https://www.enable4us.com/survivor-stories Music Credit to JAKEEZo on Soundcloud @user-257386777

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Team

David Dansereau

David Dansereau

David Dansereau is the founder of Know-Stroke.org - a community for patients with stroke and PFO. His story was featured in the NY Times. A licensed physical therapist, nutritionist, and clinical PT consultant, David has a keen interest to explore the intersection of stroke rehabilitation and digital therapeutics to improve patient outcomes.
Michael Garrow

Michael Garrow

Michael grew up as a caregiver for his mother who had a stroke at age 28. He earned his graduate degree from Griffith College Dublin and spent the early stage of his career in Dublin, Ireland working in the health tech space as a market research analyst and then moving into a wellness start-up. Michael currently resides in NYC working as a Digital Product Manger with CVS Health.

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