Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113
Super Heroine: Vicky Arteaga
Fondo Syngap is tireless:
- 2 Congreso en Español on September 23, 2023
https://www.syngapresearchfund.org/professionals/2023-en-espanol
Spanish Podcast #CafeSyngap1e01
- YouTube https://www.youtube.com/watch?v=dh0lPuLLUFg
- Google https://podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy9lNjAyMDgwMC9wb2RjYXN0L3Jzcw
- Spotify https://spotify.link/MJZZVMoKGCb
- Amazon Music https://music.amazon.com/podcasts/6e65b878-4506-4882-b6cd-1ea873c0ba7e/caf%C3%A9-syngap1
#FondoSYNGAP
SRF is at ILAE
- Let’s thank Katrien Deckers & Olga for representing SRF at ILAE in Dublin Sep 2nd - 6
- Vicky on one of the panels on Saturday called: Clinical diagnostic challenges in the genetic epilepsies and opportunities for precision treatment
Super Heroine: Ashley Frye with Suzanne Jones and Samar Katnani
#SyngapStories #KETO #MAD
- Samar Interview https://twitter.com/cureSYNGAP1/status/1693987401952342442?s=20
- Keto works, remember this old gem? https://www.syngapresearchfund.org/post/ketogenic-diet
Where have I been all week?
- Syngap Stories about Tony https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-016
Soiree was AMAZING- Tweet https://twitter.com/curesyngap1/status/1696595956467183904- Ashley’s Speech https://www.youtube.com/watch?v=qw2mG3wTjfc
Super Heroine: Sydney Stelmazek
- CHOP Update
- 16 seen so far
- 27 signed up
- QEEG is SYNGAP1 compatible https://twitter.com/phalliburton/status/1694845802336641315?s=20
CANNONBALL 3 is coming! October 4-6.
Super Heroine: Dr. Danielle Andrade
Huge thanks to Dr. Andrade for this paper on Adults with SYNGAP1 https://twitter.com/DrDaniAndrade/status/1694717693080092976?s=20
Proposals came in today, we need to raise money!Finally, we have at least 6 grant proposals received! Donate and Fundraise! https://www.syngapresearchfund.org/donate/donate
Share you time and blood too!Volunteer - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund
Donate to the biorepository in OH or IL: - Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)
- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611
CONFERENCE
Registration link: https://Syngap.Fund/Orlando
Hotels ASAP: https://Syngap.Fund/2023hotel
Shirts https://www.bonfire.com/srf-syngap1-conference-2023/
Volunteer with SRF! [email protected]
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
- https://www.syngapresearchfund.org/syngap10-podcast Apple podcasts:
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 113 of #Syngap10 - September 2, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
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Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message
September 2, 2023
by
SYNGAP10
Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113
Super Heroine: Vicky Arteaga
Fondo Syngap is tireless:
- 2 Congreso en Español on September 23, 2023
https://www.syngapresearchfund.org/professionals/2023-en-espanol
Spanish Podcast #CafeSyngap1e01
- YouTube https://www.youtube.com/watch?v=dh0lPuLLUFg
- Google https://podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy9lNjAyMDgwMC9wb2RjYXN0L3Jzcw
- Spotify https://spotify.link/MJZZVMoKGCb
- Amazon Music https://music.amazon.com/podcasts/6e65b878-4506-4882-b6cd-1ea873c0ba7e/caf%C3%A9-syngap1
#FondoSYNGAP
SRF is at ILAE
- Let’s thank Katrien Deckers & Olga for representing SRF at ILAE in Dublin Sep 2nd - 6
- Vicky on one of the panels on Saturday called: Clinical diagnostic challenges in the genetic epilepsies and opportunities for precision treatment
Super Heroine: Ashley Frye with Suzanne Jones and Samar Katnani
#SyngapStories #KETO #MAD
- Samar Interview https://twitter.com/cureSYNGAP1/status/1693987401952342442?s=20
- Keto works, remember this old gem? https://www.syngapresearchfund.org/post/ketogenic-diet
Where have I been all week?
- Syngap Stories about Tony https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-016
Soiree was AMAZING- Tweet https://twitter.com/curesyngap1/status/1696595956467183904- Ashley’s Speech https://www.youtube.com/watch?v=qw2mG3wTjfc
Super Heroine: Sydney Stelmazek
- CHOP Update
- 16 seen so far
- 27 signed up
- QEEG is SYNGAP1 compatible https://twitter.com/phalliburton/status/1694845802336641315?s=20
CANNONBALL 3 is coming! October 4-6.
Super Heroine: Dr. Danielle Andrade
Huge thanks to Dr. Andrade for this paper on Adults with SYNGAP1 https://twitter.com/DrDaniAndrade/status/1694717693080092976?s=20
Proposals came in today, we need to raise money!Finally, we have at least 6 grant proposals received! Donate and Fundraise! https://www.syngapresearchfund.org/donate/donate
Share you time and blood too!Volunteer - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund
Donate to the biorepository in OH or IL: - Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)
- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611
CONFERENCE
Registration link: https://Syngap.Fund/Orlando
Hotels ASAP: https://Syngap.Fund/2023hotel
Shirts https://www.bonfire.com/srf-syngap1-conference-2023/
Volunteer with SRF! [email protected]
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
- https://www.syngapresearchfund.org/syngap10-podcast Apple podcasts:
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 113 of #Syngap10 - September 2, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
September 2, 2023
by
SYNGAP10
Navigating post-COVID IT challenges
Join Mike Hines, an evangelist at Resolute Software, to explore the transformative impact of COVID-19 on the IT landscape. We discuss the rapid shifts in remote interactions, the emergence of technical debt, and the challenges faced by IT departments. Mike sheds light on innovative solutions, such as microservices and containers, and offers insights into building change-tolerant architectures for a resilient post-pandemic future. Mike Hines is an evangelist, Resolute Software. He discusses the KevinMD article, "How COVID-19 unleashed the power of microservices and container-based solutions." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. Ambient intelligence augments human capabilities to make our lives easier. The applications are many, especially in health care. Ambient clinical intelligence is offsetting the most pressing challenges in health care today, such as burnout, physician shortages, physician and patient dissatisfaction, and underperforming financial outcomes, by applying the technology to clinical documentation. The Nuance Dragon Ambient eXperience, or DAX for short, utilizes artificial intelligence and natural language processing to automatically document care. It securely listens to and captures the natural, clinician-patient encounter conversation unobtrusively, and turns that conversation into a clinical note for the clinician's review and signature directly in the electronic health record. You just talk naturally, and DAX does the rest. DAX is being used by thousands of physicians across 30 different specialties nationwide. It has already won the Silver Stevie award in the health care technology category and was ranked #1 for improving clinician experience in KLAS's top 20 emerging solutions. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended GET CME FOR THIS EPISODE → https://earnc.me/m2dyi7 Powered by CMEfy.
September 2, 2023
by
The Podcast by KevinMD
HLTH Matters: Driving Innovation with Open Collaboration with Peter Micca, Navid Farzad, and Marcus Osborne
Collaboration moves forward transformative innovations that impact the healthcare industry.
In this episode, Peter Micca, Navid Farzad, and Marcus Osborne talk about how well-funded companies can make an impact by supporting, partnering, and collaborating with emerging innovative healthcare companies. They discuss why innovation doesn’t limit itself to technology but culture, vocabulary, and, most importantly, people-centeredness.
Tune in and learn from three healthcare leaders about the power of innovation partnerships!
Click this link to the show notes, transcript, and resources: outcomesrocket.health
September 1, 2023
by
Outcomes Rocket
Last-Minute Gaps in Care Strategies
Senior healthcare leaders from AmeriHealth Caritas, AvMed, HealthTeam Advantage, and ReferWell share strategies health plans can use to understand gaps in care throughout the member journey. For health plans participating in risk-based agreements, gaps in care have severe implications for members' health outcomes and their ability to attain higher quality scores necessary to receive financial bonuses and drive member enrollment. Hear how plans leverage data and real-time analytics to effectively and efficiently close time-sensitive care gaps to improve HEDIS, Stars and other quality scores. Topics covered include: Provider Plan Partnerships Building a Relationship with Members Identification & Targeting Systems & Incentives Confirmed Panelists Marsha Barlocker, RN, BSN, MS, Senior Director, Quality & Case Management, HealthTeam Advantage Chad Baugh, Chief Strategy Officer, ReferWell Vandna Bhrany, Vice President, HEDIS Strategy & Analytics, AmeriHealth Caritas Frank Izquierdo, Senior Vice President Provider Solutions and Strategic Alliances, AvMed Bios: https://www.brightspotsinhealthcare.com/events/last-minute-gaps-in-care-strategies/ This episode is sponsored by ReferWell Health plans must be acutely aware of their progress towards achieving their Care Gap Closure targets. Their most significant obstacle is to directly impact those specific areas, even though they have limited capabilities to do so. ReferWell helps health plans improve access to care by efficiently scheduling members for the care they need. ReferWell care navigators find the "Perfect Match" provider right at the referable moment when the member is saying yes to their care). They then seamlessly schedule the member's appointment while still on the call. It’s a proven process that provides better access, experience and outcomes for members and better quality performance, which affects the health plan’s bottom line.
September 1, 2023
by
Bright Spots in Healthcare
Grab Your Green Pen: Medical Writing Insights From Sarah Nelson
Sarah Nelson PhD is a medical writer and founder of Green Pen Solutions Ltd. She is a leading mentor and trainer for medical writers all over the world. Her mission is to encourage more medical writers into Medcomms and help them create a sustainable career path that builds on their personal strengths.Sarah's wide-ranging knowledge comes from over 17 years as a medical writer, her experience leading large editorial teams, and from mentoring writers in over 20 agencies across the medcomms industry.In today’s episode, we focus on the importance of training for medical writers, medical writing tests, Sarah’s five pillars of medical writing, and the impact of artificial intelligence in medcomms. We also touch on the differences between Medcomms in general and the specific requirements of accredited CME/CE, at least in the United States. ResourcesGreen Pen SolutionsGreen Pen Solutions YouTube ChannelMedComms networking For more specific information on how CME/CE is changing in Europe and in the UK, check out episode 55 with Eugene Poznak of the European CME forum. Training and Mentorship➡️ Sarah is hosting a brand new medical writing course with coaching. Now you can elevate your medical writing career with Sarah's industry-leading expertise through the exclusive Agency Ready program. Courses include comprehensive training and coaching packages, all designed to get you ready to launch the next phase of your medical writing career.➡️ Take advantage of a special offer in September, saving you over £300 on the cost of enrolment on the Foundations of Excellence training course plus one of only 8 spots in the last Agency Ready coaching group of 2023.Support the show📍Grab the WriteCME Roadmap⭐ Review the podcast🗞️ Biweekly Newsletter with tips and resources to enrich your CME content niche➡️ Join WriteCME Pro for ongoing professional development 🌐 Podcast website🎙️ Share the podcast
September 1, 2023
by
Write Medicine
Partnering PI Networks + DCT Platforms
2022-01-28 What comes from bringing together networks of investigators with established technology platforms in the space? Our hosts Craig Lipset and Amir Kalali were joined by Kelly McKee (Medidata) and Irfan Khan (Circuit Clinical) for the conversation.Follow the Decentralized Trials & Research Alliance (DTRA) on LinkedIn and Twitter. Learn more about Membership and our work at www.dtra.org.
September 1, 2023
by
Decentralized: The Decentralized Trials & Research Podcast
Carol McClellan – Craniosacral Therapy for Pregnancy and Newborns
Host Jeremy Quinby has a conversation with one of this teachers from years past in this episode. Carol McClellan is an internationally known educator for the Upledger Institute and has been treating new mothers, infants and pediatric populations for nearly 4 decades. She's most recently the Vice President of Education and Programs Development for APPAH (Association of Pre and Perinatal Psychology and Health). Carol share an incredible breadth of knowledge from her experience, research and understanding of how integrative approaches can not only support well-being for new families, but also help heal generational trauma passed along in our cells.
September 1, 2023
by
Highway To Health Podcast
68: MYSTERY EPISODE With Guest Annie Fulton RN
Can you guess what was causing this patient’s unexpected symptoms?This episode is a little different from the rest, thanks to you, our listeners, for submitting your suggestions and ideas for how these episodes should go, because we are all ears!One of our listeners suggested we do a mystery episode (thanks Shannon!), and we thought it was brilliant! So, on today’s episode, our host Sarah Lorenzini invites back, podcast host of Up My Nursing Game, registered nurse, friend, and former Rapid Response RN Podcast guest, Annie Fulton, to unravel a patient case study of one of Annie’s patients, but we won’t be revealing the diagnosis just yet.Sarah and Annie discuss why the patient was admitted to the hospital, Annie’s initial analysis of the patient, medications that were administered, the patient’s vital signs, and physical assessment findings, as well as when and why Annie became concerned for the patient and why she had ruled out sepsis from the diagnosis.In this mystery episode, we won’t be giving away the actual diagnosis. Instead, for this week we will be leaving you all to try and guess what you think the diagnosis is, and we will reveal the answer in next week’s episode!Tune in to hear about Annie’s patient, and be sure to check out next week’s episode for the diagnosis reveal! Topics discussed in this episode:A little bit about Annie and how her and Sarah metWhat Annie’s patient was admitted forAnnie’s initial assessment of her patientWhat caused Annie to realize something was wrong with her patientThe patient’s vital signs and how she was flagged for SIRSWhy Annie didn’t think the patient had sepsisListen to Annie Fulton’s Up My Nursing Game Podcast: http://www.upmynursinggame.com/Connect with Annie Fulton on Instagram: https://www.instagram.com/upmynursinggame/Mentioned in this episode:Rapid Response and Rescue Intro CourseIf you would like to check out Sarah’s 1hr, 1 CE course, go to: http://www.rapidresponseandrescue.com
To get the FREE Rapid Response RN Assessment Guide and the coupon code for $10 off the cost of the course, message Sarah on Instagram @TheRapidResponseRN and type the word PODCAST!
September 1, 2023
by
Rapid Response RN
Back to School w/Brandon Dominguez
Charlene talks with Brandon Dominguez, author of the new book Empowering Educators: A Comprehensive Guide to Fostering Student Success. Brandon is currently an instructor for West Coast University. He’s also long-time member of ACNL and a member of the Nurse Leadership Development committee, as well as a career coach for the California Nursing Student Association. Charlene and Brandon talk about his new book, strategies nurse leaders can implement to enhance their leadership skills, and how new nurses and nursing students can identify and mitigate common challenges they might face.
Host:
Charlene Platon, MS, RN, FNP-BC (@charleneplaton)
Guest:
Brandon Dominguez, MSN, RN, CHEP (domingueznursing.com)
About the show:
ACNL in Action is a production of the Association of California Nurse Leaders, the professional organization for nurse leaders. New episodes come out on the first Friday of every month. Want to support ACNL? Consider making a donation: http://bit.ly/cog-podcast . Learn more about ACNL, including how to become a member, at acnl.org.
Follow us on Facebook and LinkedIn at @acnlnurse.
September 1, 2023
by
ACNL In Action: Lessons in Nursing Leadership
HIMSSCast: AI’s data problem, and what CIOs need to know about AI now
Ryan Sousa, chief data and analytics officer at Children's Minnesota, spells out what that data problem means for the future of health IT, and talks about AI and the right to health.
September 1, 2023
Mental Health in Healthcare with Moira Antalek
Mike and John are joined by Moira Antalek as she precepts with Mike. Moira provides an overview of her recent research into the differences between burnout and depression/anxiety in healthcare workers specifically, and the added difficulties they may experience in seeking support.
Our Website
Sponsored by: ThriveAP
September 1, 2023
Missing Black Women Deserve Better
Content Warning: We discuss sexual assault, kidnapping, murder, and other triggering topics in this episode, listener discretion is advised.
In this episode we discuss the disproportionate media coverage and law enforcement resources given to missing Black women and girls. We cover the harrowing story of a Black woman who escaped a white supremacist and accused rapist.
And we highlight the Black and Missing Foundation, an organization that brings awareness to missing persons of color and provides vital resources to the loved ones of missing people.
Visit the Black & Missing Foundation website to access their resources, report a missing person, search for a missing person, and to donate.
Follow BAMFI on Instagram, FaceBook, Twitter, and YouTube.
If you would like to suggest a topic we should discuss, share your own personal story, or shoutout an organization or individual email us at [email protected].
Visit the Distrust & Disparities website and follow us on Instagram, Facebook, YouTube, and LinkedIn.
Visit our Buy Me A Coffee page to support the podcast.
Distrust & Disparities is a proud member of The Health Podcast Network, which features authoritative shows, hosts and guests who take on the tough topics in health and care with empathy, expertise and a commitment to excellence.
Audio Clips
How Kansas City Police Ignored Warnings a Killer Targeted Black Women, Until One Escaped by Democracy Now!
Resources
Police dismissed Black leaders’ claims of a serial killer. Then a woman escaped. by Annie Gowen
September 1, 2023
Pediatric mental health care access
Join J. Wesley Boyd, a psychiatrist, to dive into the critical issue of child and adolescent mental health care accessibility. Drawing insights from a recent study, we'll explore how the COVID-19 pandemic has exacerbated challenges in obtaining timely treatment for young individuals, particularly those with Medicaid. We shed light on the barriers, disparities, and potential solutions, offering a compelling perspective on the urgent need for collaborative efforts to prioritize mental well-being in the younger generation. J. Wesley Boyd is a psychiatrist. He discusses the KevinMD article, "Accessing needed pediatric mental health care was difficult before the pandemic and is now at crisis levels." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. Ambient intelligence augments human capabilities to make our lives easier. The applications are many, especially in health care. Ambient clinical intelligence is offsetting the most pressing challenges in health care today, such as burnout, physician shortages, physician and patient dissatisfaction, and underperforming financial outcomes, by applying the technology to clinical documentation. The Nuance Dragon Ambient eXperience, or DAX for short, utilizes artificial intelligence and natural language processing to automatically document care. It securely listens to and captures the natural, clinician-patient encounter conversation unobtrusively, and turns that conversation into a clinical note for the clinician's review and signature directly in the electronic health record. You just talk naturally, and DAX does the rest. DAX is being used by thousands of physicians across 30 different specialties nationwide. It has already won the Silver Stevie award in the health care technology category and was ranked #1 for improving clinician experience in KLAS's top 20 emerging solutions. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended GET CME FOR THIS EPISODE → https://earnc.me/niDOCI Powered by CMEfy.
September 1, 2023
by
The Podcast by KevinMD
How Employers Can Support Employees With Chronic Illness and Disabilities
On episode 437 of The Nurse Keith Show nursing and healthcare career podcast, Keith interviews Julie Hamilton, a Certified Fibromyalgia Coach and Life Coach based in Arizona who helps professionals living with disabilities to maintain their career and regain their active social life.
In the course of their conversation, Keith and Julie discuss the lives of professionals living with disabilities, the legalities of what employees are not required to disclose about their health, and what employers are allowed to ask. Keith and Julie also discuss Julie's new book, Chronic Illness at Work: How Managers Can Support Employees with Chronic Illness.
With 20+ years of Human Resources Management/Director experience, Julie speaks from extenive experience on the employer side of the equation, and when she was diagnosed with fibromyalgia in 2009, she knew what policies and laws to take advantage of to make her job work for her.
Connect with Julie Hamilton:
Julie's coaching website
Facebook
Instagram
LinkedIn
Chronic Illness at Work on Amazon
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Did you know that you can now earn CEUs from listening to podcasts? That’s right — over at RNegade.pro, they’re building a library of nursing podcasts offering continuing education credits, including episodes of The Nurse Keith Show! So just head over to RNegade.pro, log into the portal, select Nurse Keith (or any other Content Creator) from the Content Creator dropdown, and get CEs for any content on the platform!
Nurse Keith is a holistic career coach for nurses, professional podcaster, published author, award-winning blogger, inspiring keynote speaker, and successful nurse entrepreneur. Connect with Nurse Keith at NurseKeith.com, and on Twitter, Facebook, LinkedIn, and Instagram.
Nurse Keith lives in beautiful Santa Fe, New Mexico with his lovely fiancée, Shada McKenzie, a highly gifted traditional astrologer and reader of the tarot. You can find Shada at The Circle and the Dot.
The Nurse Keith Show is a proud member of The Health Podcast Network, one of the largest and fastest-growing collections of authoritative, high-quality podcasts taking on the tough topics in health and care with empathy, expertise, and a commitment to excellence. The podcast is adroitly produced by Rob Johnston of 520R Podcasting, and Mark Capispisan is our stalwart social media manager and newsletter wrangler.
September 1, 2023
by
The Nurse Keith Show