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The Lucky Few

Once Upon A Gene

The Lucky Few

February 6, 2020

The Lucky Few

ONCE UPON A GENE – EPISODE 016

The Lucky Few

I’m super excited to be talking with a super rad dad, Jordan Steele. He married his high school sweetheart and is the father to five year old twins and an almost one year old son who has down syndrome. He’s genuine, fun and a lover of life. Jordan is also an emmy winning meteorologist and host on KING 5 Seattle.  

EPISODE HIGHLIGHTS

Tell us about your son Kinlin, who has down syndrome. 

Kinlin is 11 months. We had a great pregnancy, he was healthy and we didn’t do genetic testing since everything was going well. When he was born, everything was still great and it was about 6-8 hours after he was born that the nurses came and checked him for down syndrome. You have all these things playing in your mind, but after processing through, crying, praying, talking to friends and family, we had a aha moment where we realized we had been given a gift. That next morning, we were filled with complete joy, we had friends and family come and they gave us nothing but positive embrace and from there everything was great. You still have the scariness of doctors telling you things, the what-if, thoughts of what could happen. Your mind starts to ramble again and you get caught in a tornado of negative feelings. You have to change your mindset and perspective. Things have really been so great. He’s healthy and happy. He had a heart palpitation, so we still have a heart doctor. He was on oxygen for a couple months trying to get his lung strength and his lungs are good now. 

Do you think knowing Kinlin’s diagnosis would have helped to better prepare?

No, if we were to know, I think we would have freaked out more, done more research and it would have taken a lot longer to come to the conclusion of pure joy. I think if we were to know, there would have been a lot of time before he came of stress and worry, which could have affected him. Ultimately, it causes internal conflict that you don’t need. For some people it’s helpful, but for us I don’t know that it would have been.

 LINKS AND RESOURCES MENTIONED

The Peanut Butter Falcon

Northwest Center

KING 5 News

TUNE INTO THE ONCE UPON A GENE PODCAST

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CONNECT WITH EFFIE PARKS

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