Once Upon A Gene
True stories of raising rare kiddos
Ready for Take Off: Mission for Accessible Air Travel & Disability Advocacy, with Mindy Henderson
Episode Highlights:
Mindy Henderson, a powerful advocate for disability rights and the Director & Editor-In-Chief of MDA's Quest Media. Mindy shares her journey of breaking barriers in the skies, working tirelessly to make air travel more accessible for wheelchair users and the broader disability community. She delves into practical tips for navigating travel with a wheelchair-using child, explains the importance of universal design, and discusses how sharing your story can be a catalyst for change.
Mindy also talks about her book, The Truth About Things That Suck, and the role of mindset in overcoming adversity. Packed with inspiration and actionable advice, this episode is a must-listen for anyone looking to make the world more accessible, one step—or one flight—at a time.
Links:
Connect with Mindy Henderson on LinkedIn: LinkedIn Profile
Learn more about MDA Quest: mdaquest.org
Mindy's book - The Truth About Things That Suck: Amazon Link
Tammy Duckworth - Every Day is a Gift: Amazon Link
Get Involved and Take Action:
Share your story on social media to raise awareness.
Join disability advocacy groups to support accessible travel policies.
Tune in and join us in supporting accessible, inclusive travel!
Airplane Travel Tips from a One Million Mile Traveler
The recent passage of the FAA Reauthorization Act
November 14, 2024
Beginners Guide to Rare Disease – Wisdom from Others Who Have Been There
A collection of voicemails from rare disease parents who relate to you situation.
September 19, 2024
Once Upon A Gene
This is a space I created to share the stories of our not so typical lives. Raising kids who are born with rare genetic syndromes and other types of disabilities can feel pretty isolating. What I know for sure is that when we can find others who 'get it,' we can find a lot more laughter, a lot more hope and feel a lot less alone.
Host
Effie Parks
Effie Parks was born in the magical land of Montana, where she was raised with her 12 loving siblings. After moving to Washington and marrying her husband, they were blessed with the birth of their son, Ford Canon Parks. When she learned that Ford had been born with an extremely rare genetic condition – CTNNB1 syndrome – she dove into the world of advocacy. Now, she is the host of her own podcast, Once Upon a Gene, where she speaks to others about their journey through life with rare disease.
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