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What is Chronically Surviving with Marcelle Longlade

Once Upon A Gene

What is Chronically Surviving with Marcelle Longlade

ONCE UPON A GENE - EPISODE 048
September 17, 2020

What is Chronically Surviving with Marcelle Longlade

What is Chronically Surviving with Marcelle Longlade

Marcelle Longlade is living with multiple rare diseases. Her platform, Chronically Surviving connects community, offers accessible yoga and other healing practices and services. 

EPISODE HIGHLIGHTS

Can you tell me how you became involved with Our Odyssey?

Had you been part of an advocacy or support group prior?

Can you tell us about the rare diseases you’re living with?

What affects you the most daily?

Tell me about the shift from your biomedical engineer job. 

When you started yoga, did you know right away that you wanted to tailor your practice to the rare disease and disability community?

What are you most excited about for the future?

LINKS AND RESOURCES MENTIONED

EPISODE 036 – Anna Laurent on Alagille Syndrome and Her Road to Advocacy

https://effieparks.com/podcast/episode-36-anna-laurent-alagille-syndrome

One Rare

https://onerare.org/

Our Odyssey

https://ourodyssey.org/

Chronically Surviving

https://www.chronicallysurviving.com/

TUNE INTO THE ONCE UPON A GENE PODCAST

Spotify

https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7

Apple Podcasts

https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347

Stitcher

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Overcast

https://overcast.fm/itunes1485249347/once-upon-a-gene

CONNECT WITH EFFIE PARKS

Website

https://effieparks.com/

Twitter

https://twitter.com/OnceUponAGene

Instagram

https://www.instagram.com/onceuponagene.podcast/?hl=en

Built Ford Tough Facebook Group

https://www.facebook.com/groups/1877643259173346/

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