Rare Disease Trailblazer and Co-Founder of Disorder – The Rare Disease Film Festival
ONCE UPON A GENE – EPISODE 028
Rare Disease Trailblazer and Co-Founder of Disorder – The Rare Disease Film Festival
Bo Bigelow is the co-founder of Disorder: The Rare Disease Film Festival. He’s joining today to talk about life in quarantine and his beautiful daughter Tess, who inspired him to produce a podcast, Stronger Everyday.
LINKS AND RESOURCES MENTIONED
Disorder: The Rare Disease Film Festival
https://www.rarediseasefilmfestival.com/
Episode 15: Films and Fatherhood with Daniel DeFabio
https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy
http://www.portlandrootsmedia.com/strongerpodcast
Discovering new diseases with the internet: How to find a matching patient
http://matt.might.net/articles/rare-disease-internet-matchmaking/
Foundation for USP7 Related Diseases
TUNE INTO THE ONCE UPON A GENE PODCAST
https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7
https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347
https://www.stitcher.com/podcast/once-upon-a-gene
https://overcast.fm/itunes1485249347/once-upon-a-gene
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