Loving Large: A Mother's Rare Disease Memoir With Patti Hall
ONCE UPON A GENE – EPISODE 033
Loving Large: A Mother’s Rare Disease Memoir With Patti Hall
This episode is about the larger-than-life love that a mother has for her son. Patti Hall is the author of the book, Loving Large: A Mother’s Rare Disease Memoir. In reading her book, I learned a lot about the rare disease called gigantism. I’m so grateful when people share their stories about the rare disease life because it’s so important in so many ways and you never know who will be touched by it.
Why did you write this story?
What is your son’s diagnosis and what was happening in those early days?
How long did it take to have a treatment plan?
When you were searching for doctors and surgeons, were you finding they were intrigued or afraid to get involved?
Was writing this memoir therapeutic for you?
What would you say to parents with young babies who are just receiving a diagnosis?
What would you say to parents like me who have a story to tell, but they aren’t writers?
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