Rare Together, Watch Together – Film Selections from The Disorder Channel in Partnership with Global Genes
Rare Together Watch Together – Film Selections from The Disorder Channel in Partnership with Global Genes
Dan DeFabio and Bo Bigelow founded The Rare Disease Film Festival and have just created The Disorder Channel, accessible through Amazon Fire and Roku. Their work is connecting patients and families, raising awareness and inspiring a lot of conversations.
Global Genes is having a virtual 10 day summit, September 15th – 25th, 2020. On September 16th, 17th and 18th, they’re holding a watch party with Dan and Bo. This event is free for patients and advocates, so check it out!
EPISODE HIGHLIGHTS
Dan, how long did you think about creating The Rare Disease Film Festival and why did you want Bo to be a part of it?
Bo, what did you think you could add to The Rare Disease Film Festival?
Tell me about the first festival you had.
Bo, how did you feel after the first festival weekend concluded?
Due to the most recent event in New York City being cancelled, where did the idea to pivot into a tv channel come from?
How does someone create a film?
Tell us about the event with Global Genes that’s coming up in a few weeks.
LINKS AND RESOURCES MENTIONED
The Rare Disease Film Festival
https://www.rarediseasefilmfestival.com/
https://www.thedisordercollection.com/
A RARE Patient Advocacy (un)Summit
https://globalgenes.org/event/live/
ONCE UPON A GENE – EPISODE 015 – Films and Fatherhood
How To Make Your Own Rare Disease Film
https://www.rarediseasefilmfestival.com/blog/2020/3/2/how-to-make-your-own-rare-disease-film
TUNE INTO THE ONCE UPON A GENE PODCAST
CONNECT WITH EFFIE PARKS
https://twitter.com/OnceUponAGene
https://www.instagram.com/onceuponagene.podcast/?hl=en
