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Effie Parks Spills the Tea on Building a Rare Disease Community

HITea With Grace

Effie Parks Spills the Tea on Building a Rare Disease Community

Rare diseases are not as rare as you might think
November 29, 2021

Effie Parks Spills the Tea on Building a Rare Disease Community

In this special HITea With Grace bonus episode, Grace Vinton, digital health influencer talks with Effie Parks, founder of the Once Upon a Gene podcast, about patient advocacy and the reality of the challenges parents face due to the disconnect within our healthcare system.

“You don’t have to be the same as me to understand me,” Effie shares some tough stuff about how despite the challenges she’s faced with a son who has a rare disease, she’s found a way to live beyond her circumstances and build community in the process.

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