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Grace Vinton and Effie Parks Discuss the Importance of the Patient Voice

HIT Like a Girl

Grace Vinton and Effie Parks Discuss the Importance of the Patient Voice

How rare diseases are not as rare as you might think
November 29, 2021

Grace Vinton and Effie Parks Discuss the Importance of the Patient Voice

In this special HITea With Grace bonus episode, Grace Vinton, digital health influencer talks with Effie Parks, founder of the Once Upon a Gene podcast, about patient advocacy and the reality of the challenges parents face due to the disconnect within our healthcare system.

“You don’t have to be the same as me to understand me,” Effie shares some tough stuff about how despite the challenges she’s faced with a son who has a rare disease, she’s found a way to live beyond her circumstances.

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