RC: Common Threads Play Out in Rare Disease Research with Seth Rotberg, co-founder of Our Odyssey
Although people dealing with rare diseases may be few, they all share a common humanity with the broader population that must be considered when designing trials.
In this episode, Seth Rotberg, co-founder of Our Odyssey, talks about his journey with Huntington’s disease and his take on how clinical research could improve the experience of the patient community. He shares the story of his mother’s misdiagnosis and how he discovered he was a disease carrier, discussing how the clinical research space can repair its reputation and create a trusting relationship with the community.
Tune in to learn more about the roller coaster Seth has gone through and the lessons he is sharing from his ride!
Click this link to the show notes, transcript, and resources: outcomesrocket.health