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Outstanding health podcasts created by patient leaders.

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Latest Episodes

The #BCSM Podcast, EP3: Ending Health Disparities

In this series finale crossover episode, we meet Maimah Karmo, President, and CEO of the Tigerlily Foundation, and learn about her journey to end disparities for young breast cancer patients of color. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out. Your voice matters. Tell us your story in your voice and give us your feedback about the series by leaving us a good old-fashioned voicemail at (855) AUDIO66 (283-4666.) And don’t forget to join the #BCSM weekly tweet chat live every Monday at 9pm/ET on Twitter.
March 5, 2021
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How to Go From Idea to Selling Your Product with Brian Mohika

# 28 How many times have you had a great idea for something that would make your life or the life of your patients easier? How many times have you seen a nurse come up with a tip or trick to get something working? Nurses are natural inventors and in this episode we sit down with Brian Mohika, CEO & Founder of CathWear. He walks through his journey of how he came up with the idea through manufacturing and selling his product. He shares the struggles he encountered on the journey, including what he did to build a team and scale his empire. He also    highlights his amazing story on becoming a nurse inventor in his new book “Let it Flow”.  Whether you are interested in becoming a nurse inventor, or simply want to improve your leadership skills this episode will share crucial insights into getting a team on board to make differences in others lives. Never miss an episode by hitting subscribe! Find more information to help you on your nurse leader journey at www.nurseleadernetwork.com
March 4, 2021
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VAX ON: Matt & Elura Got Vaxxed, COVID Passports, and Marching Band Pods

In this episode of VAXON, Matthew Zachary and Elura Nanos debrief after receiving their second COVID-19 vaccine. They also discuss the CDC’s updated protocol for those who are vaccinated, how airlines are planning to help vaccinated passengers cross borders with ease, and how one intrepid high school marching band in Washington State came up with a clever way to keep their rehearsals on track.
March 4, 2021
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119: Buenqamino, Lyme & Co.

Christina Kantzavelos (@buenqamino // @beginwithintoday) is a Lyme warrior, award-winning freelance writer/content creator, chronic illness advocate, and licensed psychotherapist. She was diagnosed with Lyme disease and co-infections in October of 2018. However, she struggled with debilitating symptoms and various autoimmune diseases for years prior. Her treatment has included a mixture of Eastern and Western modalities, nutritional changes, a switch to non-toxic living, clean beauty, DNRS (neural-retraining therapy), as well as a strong focus on self-care — such as journaling, painting, joining CoDA, and being out in nature. From being couch-bound and sensitive to just about everything (scents, food, EMFs), she is now back in the world, hiking again, and tolerating most foods and scents. Although she is still on the road to healing, she has made a conscious decision to choose an attitude and intention of thriving over an obsession with surviving — and hopes to share that with others. She is also the author of our favorite symptom tracker, the Begin Within Today journal, and the proud momma of a service-dog-in-training, Cowboy. Tune in as Christina shares: that throughout her childhood and into her teen years, she experienced migraines, chronic pain, panic attacks, digestive problems, and numerous other unexplained symptoms that she lost her brother to cardiomegaly when she was 19 that when she got checked for cardiomegaly, she was actually diagnosed with POTS that it took nearly 2 decades for her to receive her Lyme disease diagnosis after grad school, she was diagnosed with Celiac disease — and has been gluten-free ever since that her health continued to deteriorate to its lowest point in 2018, when she was first referred to a rheumatologist — who was also an LLMD that she doesn’t recall ever being bitten by a tick, but has been bitten by tons of mosquitoes…and reminds us that mosquitoes appear to be able to carry Lyme, as well that she was additionally diagnosed with giardia, Lyme co-infections, and had been exposed to mold she was also diagnosed with lupus, Sjogren’s, and mixed connective tissue disease — all of which appear to be manifestations of her chronic Lyme disease that treatment for Lyme knocks you off your feet — the Herxheimer reaction is truly horrific: “it gets worse before it gets better” that her parents had to begin caring for her before she even began treatment that she’s additionally been diagnosed with mast cell activation syndrome (MCAS) that she now considers herself to be 60-70% better, and has redesigned her lifestyle to support healing from her chronic illnesses as best she can that she has always been her own best advocate, in no small part because her parents are immigrants that she and her parents worked through trauma together and in some ways, her illness has created that space for emotional healing that the people who take care of us are experiencing second-hand trauma a discussion of accessibility to healthcare in America how the Begin Within Today journal was born of her own experience that she has seen over 50+ doctors throughout her chronic illness experience the importance of reducing toxins in our everyday lives, from EMFs to diet
March 3, 2021
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The #BCSM Podcast, EP2: Community of Communities

In this crossover episode, we meet breast cancer advocates and users of #BCSM, Liza Bernstein, Anne Marie Mercurio, Christine Hodgdon, and Julia Maues. We find out how they got involved in #BCSM and how they utilized the hashtag to further their advocacy. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out. Your voice matters. Tell us your story in your voice and give us your feedback about the series by leaving us a good old-fashioned voicemail at (855) AUDIO66, that’s 855-AUDIO66 (283-4666.) And don’t forget to join the #BCSM weekly tweet chat live every Monday at 9pm/ET on Twitter.
March 3, 2021
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The Art of Survivorship: David M. Bailey and Dr. Adam Dachman

This episode of Out of Patients features a new segment called The Art of Survivorship (AOS). Today, Matthew takes a trip down memory lane to highlight and recognize two fellow musicians affected by cancer. Prepare to be inspired by Dr. Adam Dachman and the late David M. Bailey in this special episode.
March 2, 2021
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The #BCSM Podcast, EP1: Origin Story

Welcome back to Out of Patients! For months here at OffScrip Media, we’ve been working with breast cancer patient advocate Alicia Staley on a narrative series about how breast cancer patients dared to be the change they wished to see, saw an opportunity to fill a need, and created the Breast Cancer Social Media Community. Now, OffScrip Media is proud to present The #BCSM Podcast. What began in 2011 as a conversation on Twitter has evolved into a global network of patients, caregivers, clinicians, and researchers dedicated to empowering those affected by breast cancer.The next three episodes of Out Of Patients will be crossover episodes from the BCSM podcast. You can listen on their feed as well by searching “Hashtag BCSM podcast”
March 1, 2021
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Interview with Dr. Ernest Grant President of the ANA

#27 In this episode we sit down with the 36th president of the American Nurses Association Dr. Ernest Grant.
February 25, 2021
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Interview with Dr. Ernest Grant President of the ANA

#27 In this episode we sit down with the 36th president of the American Nurses Association Dr. Ernest Grant.
February 25, 2021
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VAX ON: Snowpocalypse, Fake Grannies, and Opening Schools Someday?

In this first-ever episode of VAXON, Matthew Zachary and Elura Nanos discuss a very inconvenient snowpocalypse, fake grandmas, Biden’s goal to open K-8 schools, and more!
February 25, 2021
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118: LLMD Dr. Casey Kelley

Casey Kelley, MD, ABoIM is the founder and medical director of Case Integrative Health. Dr. Kelley is relentless about getting to the root cause of chronic disease and transforming health through Functional Medicine. On faculty at Northwestern's Feinberg School of Medicine, she is Board Certified in Family Medicine and was also among the first physicians to become Board Certified in Integrative Medicine. She has studied the causes, effects, and treatments of disease extensively, and lectures nationally on this and other topics. Dr. Kelley graduated from The Ohio State University College of Medicine and completed her residency in Family Medicine at St. Joseph Hospital in Chicago. She is a ten-year member of the Institute of Functional Medicine (IFM), a Director on the board of The International Lyme and Associated Disease Society (ILADS), and is a Founding Member of the Academy of Integrative Health and Medicine (AIHM). Prior to founding Case Integrative Health, Dr. Kelley practiced medicine at WholeHealth Chicago, Michigan Avenue Immediate Care, and St. Joseph Hospital. And get this: she is not only an LLMD treating those living with chronic Lyme — but she was once also a patient herself. This ep is not to be missed! Tune in as Dr. Kelley shares: that she founded Case Integrative Health 2 years ago; but has been in the integrative health field for over 8 years that she dealt with chronic fatigue, brain fog, and other symptoms for years until she discovered they were part of a Lyme diagnosis that she wanted to “create a place for people with chronic illnesses who were misunderstood by conventional medicine, and needed a different approach” that she is already seeing new patients living with long COVID — a “post-immune issue”, much like chronic Lyme that she trusts her patients to know their bodies better than she does — and so, she believes them why integrative practices can save the healthcare system money (in preventing chronic disease) that the science supporting the existence of Lyme diagnosis and treatment is REAL and readily available that much Lyme testing currently available is inadequate; more funds are needed for greater research and development how doctors are strapped by the system of private interest in healthcare why she has divested from the health insurance model in her practice — and wants her patients to get better, so will always find a way to work with them to make their care accessible that financial support is always available to patients through various Lyme advocacy groups that she was diagnosed with POTS during med school, but was actually living through chronic Lyme all the varied symptoms that can be associated with Lyme the importance of thorough tick checks after going outdoors where ticks are most likely to be found on the body how she treats Lyme in her practice that she is licensed in several states, and practices telemedicine for patients outside of the Chicaco area how she celebrates patients who make it through chronic Lyme treatment
February 24, 2021
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117: Alex Moresco, Lyme Advocate & Co-Founder of Advocacy Express

Whether it’s hiding the likes of Pamela Anderson from paparazzi or helping NeNe Leakes pretend to sell furniture…Alex Moresco has a story about it. A PR executive from Chicago, four years ago her life was turned upside-down by undiagnosed illness. It took her two years and eight specialists (a shorter time than most, she admits) to find a doctor that would eventually crack the case: tick-borne illness. She quickly realized what mattered in life: philanthropy, advocacy, and lobbying for more accessible and evidence-based healthcare. Moresco has gone on to raise hundreds of thousands of dollars for tick-borne illness research, and makes frequent trips to DC as part of that work. In 2020, she co-founded Advocacy Express, an automated advocacy platform that makes it attainable and efficient for constituents to lobby their Representatives for tick-borne disease-related and healthcare change. Featured on People, Fox, Michigan Avenue Magazine, Swaay, and various other outlets, she joined us to share her story and remind why advocacy matters. Especially for those living through Lyme. Tune in as Ali shares: how her symptoms were written off by practitioners: as a cold, flu, stomach flu, food poisoning, ear infections, depression, and more that while she was being brushed aside by practitioners, her symptoms progressed so much that she became bedridden a recognition of her privilege in accessing varied treatments — Eastern, Western, antibiotics, ozone, IV therapy, peptide therapy, IVIG, and more that she has multiple confections, dysautonomia, and Specific Antibody Deficiency as a result of her Lyme infection that one of her doctors had the wherewithal to send her to an LLMD for confirmation and treatment that so many Lyme patients are abandoned by friends, family, and practitioners how her illness has impacted her relationships the importance of mental health support through chronic illness — and that she finally sought professional support after losing a close friend to Lyme the disproportionate disbelief of chronic Lyme patients, and the need for systemic change in order to validate their experiences and create practical solutions why she is committed to helping raise voices in more marginalized communities why it’s more critical to DO THE WORK of erasing stigma and addressing systemic oppression behind the scenes, rather than solely taking part in performative action what drove she and her husband to establish Advocacy Express — and how they are leveraging the platform to create legislative change in healthcare what we need to change about medical education in the US — and why more doctors need to be educated in chronic disease (outside of what’s easily treated with pharmaceuticals) why it’s a crime that insurance companies require patients to be “sicker” in order to address their needs — and thus create long-term dependence on treatments, rather than covering preventive treatments in the short-term that there is hope
February 24, 2021
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Don't Start A Charity: An Cautionary Origin Story

Elizabeth Woolfe is a veteran nonprofit consultant and unmatched sherpa guide in the business, management, and organizational culture of charity. Full disclosure: Liz also one of my best friends in the world and saved my ass more than a few times serving as strategic counsel to Stupid Cancer during the latter half of my tenure. As of this recording, we pay tribute to the late Cloris Leachman by preparing you for today's "Roll, Roll, Roll in Ze Hay." 
February 23, 2021
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7: Why did y'all offer this to me?

After nearly a decade of ER visits and dismissal from doctors, Samantha Denae was finally diagnosed with endometriosis. But then, she needed to figure out how to treat it. Over and over again she was told to get a hysterectomy. Black patients like Samantha are much more likely to receive a hysterectomy than white patients. But, why is that? This is the second episode in our two-part series about how race and class influence endometriosis diagnosis and treatment. We learn about how centuries of sterilization abuse and medical racism ignited the fight for reproductive justice, which continues on today.
February 22, 2021
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LEAN and Six Sigma Secrets with Jarvis Gray

#26 What should be at the forefront of any organization's strategic planning? Join us as we discuss quality management with Jarvis Gray, host of The Healthcare QualityCast.
February 18, 2021
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Master Quality Improvement using LEAN and Six Sigma with Jarvis Gray

#26 Do you really understand what YOU can do to improve quality at your organization? What are the actual steps for a robust quality improvement system in healthcare? How do you implement it and how do you get others onboard? In this episode we are joined by the phenomenal Jarvis Gray, CEO/Founder of the Quality Coaching Company and host of The Healthcare QualityCast to discuss the step-by-step process for implementing an outcome-driven quality management program. We also examine some of the most common mistakes organizations make in regards to QI and how informal leaders and even students can become involved in quality within their organization. Learn more by visiting www.nurseleadernetwork.com
February 18, 2021
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VAX ON: A New Weekly Roundup of Healthcare News Fuckery

Award-winning hosts and patient advocates Matthew Zachary and Elura Nanos react to the great vaccine rollout of 2021. They’ll sort through the week’s healthcare news and related fuckery as America gets its vax on and shows #COVID19 the door.
February 18, 2021
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116: Lyme Survivor & Life Sherpa Gena Chieco

Gena Chieco is a coach, adventurer, and connector who loves inspiring clients to step into their best lives by providing tools to help them tap into their inner wisdom and dreams. She grew up in a rural suburb of New York City running around barefoot in the summer, obsessed with nature, with dreams of becoming a zoologist. After earning a BA with Honors in Psychology from Northwestern University and a JD from the University of Virginia School of Law, she had the privilege of working for the Obama Administration. She contributed to a variety of initiatives, including immigration reform at the Department of Homeland Security and environmental issues at the White House. She left federal service in 2017 to serve as General Counsel & Chief of Staff to the CEO of a cleantech startup, marrying her passion for the environment and entrepreneurial spirit. The following year, while on an extended travel sabbatical, she began her coaching journey by enrolling in Dr. Martha Beck’s Life Coach Training Program. She realized that she has always been a coach in spirit – whether helping friends find jobs they love, encouraging team members to build upon their passions, or serving as a confidante to executives. All this, and she is no stranger to resilience, having lived through more than one challenging life chapter followed by a phoenix rising experience. Perhaps most relevant to our chat in this episode: she’s a survivor of Lyme disease. Her experience is best captured by the Mizuta Masahide haiku, “Barn’s burnt down – now I can see the moon.”  Tune in as Gena shares: that she was likely bitten by a Lyme-carrying tick as a child, but wasn’t diagnosed until she was a teen that antibiotics had shot her immune system, and she was plagued with bacterial infections that it took her five years to heal once she started to exhibit symptoms the role of mindset shift in her healing journey why she had to love herself as much as (or more than) she despised her illness the importance of consistent holistic wellness in her ongoing health that she hasn’t had symptoms for over a decade now how her relationship to her body has changed through her healing journey that she started therapy when she was experiencing Lyme symptoms — and how vital mental health support was during that time that she was intermittently told by medical professionals that her symptoms were all in her head how getting sick — and getting well — has been a gateway for her to uncover her most authentic self
February 17, 2021
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[BONUS] “Jen Horonjeff is Noncompliant” Clinical Trial Quid-Pro-Quo

On this bonus episode of "Jen Horonjeff is Noncompliant," Jen brings to Matthew Zachary's attention the idea that patients who enroll in clinical trials should more than benefit from the therapeutic aspects of treatment. After all, aren't they essentially helping a private sector on their go-to-market drug approval and commercialization strategy? After all, if you're helping a business make more money, shouldn't you be entitled to some of that sweet, sweet cheddar yourself? Say, perhaps, some equity stake in their growth? Food for thought because inquiring minds want to know.
February 17, 2021
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Dr. Mark Lewis Is the Twitter We're Looking For

Dr. Mark Lewis is the Director of GI Oncology at Intermountain Healthcare in Salt Lake City. He is also a young adult survivor of pancreatic cancer, a thought leader on #MEDTwitter, and one of the funniest and down-to-earth physicians you’re likely to meet. Motivated by losing his father to cancer, coupled with a genetic predisposition for empathy, his story of “when the doctor gets cancer” preaches the virtues of data and truth. Prepare to find out what happens when Sid the Science Kid meets Dexter’s Lab meets Pickle Rick. Follow Mark on Twitter at @DrMarkLewis
February 16, 2021
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The Secret to Having Your Perfect Nursing Career With Keith Carlson

#25  What does it take to land that dream job? OR a more important question-what does it take to have that dream career? In this episode, Special Guest  Keith Carlson and I discuss why nurses should be focusing on their career versus their next job.  We also dive into his career as a nurse, coach, nursing podcast pioneer and share the steps he took to get there.  We highlight how focusing on the wrong things as a profession has led us to have a moment where we are seeing moral injuries, clinician suicide, and the need for massive intervention.  Lastly, we discuss how sharing your story and expressing vulnerability not only helps you on your personal career path but also makes you a better leader. This episode is jam-packed with exactly what you need to create a career-not just snag that next job.Learn more at www.nurseleadernetwork.com or email us at [email protected]
February 11, 2021
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Biomarkers: Where Are All the Patents At?

On the show today, Bio Entrepreneur Marty Keiser, Founder of IV BioHoldings, LiquidLung, HepGene, and Mammogen. What is a biomarker? Hint - it's not inside a box of Crayola. Biomarkers are aspects of our genes that do so much more than determine our height, eye color, and predisposition to cancer. Diagnostics today can be used to detect earlier, diagnose easier, and treat better. That's what Marty and his entrepreneurial ventures are all about. It's not just making cancer suck less; it's using pioneering diagnostics to make radiation and chemo not just suck less, but perhaps not even be needed at all. Enjoy the show.
February 11, 2021
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115: Integrative Rheumatologist Dr. Micah Yu

Dr. Micah Yu is an integrative rheumatologist who incorporates complementary medicine with traditional rheumatology. He is double board-certified in internal medicine and lifestyle medicine. He obtained his MD from Chicago Medical School, and holds a Masters in Healthcare Administration and Biomedical sciences. He completed his internal medicine residency and rheumatology fellowship at Loma Linda University in Southern California. He is currently in his 2nd fellowship at the Andrew Weil Integrative Medicine Fellowship at the University of Arizona. Dr. Yu is not only a doctor but he is also a patient himself. He has spondyloarthritis and gout, and uses his social media presence to bring awareness to autoimmune disease and chronic pain, and to unpack how we can use complementary medicine to fight these problems. Basically: he’s the doc we’ve all been looking for. And in this episode, we also dug into the COVID vaccine…is it safe for autoimmune disease patients? Tune in to find out! Tune in as Dr. Yu shares: that he works with his wife, who is a family doctor also certified in lifestyle medicine…and lives with ADHD and IBS herself that he developed gout — an arthritis disease — after going on the Atkins diet as a teen that in college, his gout evolved into severe arthritis how he pushed through his pain during medical school that he was drawn to specializing in rheumatology because of his own diagnosis that he was never offered mental health or nutrition/lifestyle support for his diagnosis of spondyloarthritis — and it’s inspired him to become the doctor he is today, and buck the system hat chronic diseases are increasing by 7% a year that he used to see his diagnosis as a curse; but he now sees it as an asset in his work that lifestyle medicine centers on whole-food, plant-based nutrition that he was inspired after watching Forks Over Knives — and when he experimented with a plant-based diet, his inflammatory markers decreased significantly that he’s using lifestyle to manage his health, and is trying to avoid medication until absolutely necessary why he spends at least an hour with new patients that he’s been moonlighting two nights a week treating and admitting COVID patients to the ER why post-COVID syndrome is so frightening that he’s witnessed new-onset autoimmune disease following COVID infections in formerly able-bodied people who had a genetic predisposition to the diagnoses how the flu vaccine compares to the COVID vaccine what mRNA and adenovirus are that mRNA and adenovirus do not alter genetic code or DNA the short-term side effects of the COVID vaccine that the COVID vaccine has indeed been tested thoroughly, and no less so than any other vaccine released to the public that, in VERY rare cases, it’s possible to contract autoimmune disease because of vaccination — and that this is known as ASIA (autoimmune induced by adjuvants) syndrome that he practices remotely, and currently has 15 state licenses in order to serve his patients his take on the US healthcare system
February 10, 2021
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The Alliance for Health Policy: Don't Mess With Us

On the show today: President and CEO of the Alliance for Health Policy, Sara Dash.  AHP —or “The Alliance” — is a nonpartisan nonprofit dedicated to informing policymakers on critical health policy issues. I know it sounds wonky but it’s actually awesome because they are the good kind of “how the sausage is made.” After all, industry puts too much burden on patients to navigate the healthcare system. Listen in as we geek out over covalent bonds, how 20-something staffers run the country and the possibility of “un-geeking” health policy for the layperson.
February 9, 2021
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Stupid Endometriosis With Melissa Boudreau, Host of "the Cycle" Melissa is a genuine voice for the 1 in 10 women worldwide who have Endometriosis.