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Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Sharing Our Stories Makes Us Strong

All Episodes

Sharing an Alzheimer’s Diagnosis Through Speaking Tours and Writing

Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's. Through their public speaking tour and workshops, Jane and Sky shared their experiences with dementia, aiming to break the silence and stigma surrounding the disease. Jane's dedication to storytelling and her commitment to raising awareness make her a valuable voice in the conversation about Alzheimer's and dementia. Quotes: "He wanted to meet his people. He wanted to meet other people with dementia. And by doing this church stuff and the workshops, it was his people all over the place." He was still writing almost up to a year before his death, when he was still at home, and he was unable to dress himself and bathe himself. He was still writing. In this episode, you will: In this episode, you will be able to: Uncover the emotional rollercoaster of dementia caregiving.Discover the unique challenges of dementia caregiving during COVID-Understand the fluctuations in cognitive abilities in individuals with dementia.Learn the art of writing and publishing personal dementia caregiving experiences.Explore life after caregiving, including ways to move on both physically and emotionally. After the Podcast Purchase Alzheimer’s Canyon: One Couples Reflections on Living with Dementia , which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Jane's AlzAuthors post: ‘Alzheimer’s Canyon’ Honors Jane’s Husband’s Wish to Make Blog Posts a Book and Help Others with Dementia. Listen to Jane on the “Untangling Alzheimer’s & Dementia” virtual event Podcast episode, “Writing Through the Fog: Three Authors Share Coping Strategies.” Jane's Bio: Jane Dwinell is a retired RN, freelance writer, and Unitarian Universalist minister. She is the author (or co-author) of four books including Birth Stories: Mystery, Power, and Creation and Alzheimer’s Canyon: One Couple’s Reflections on Living with Dementia, which won the Independent Publisher's of New England's 2023 award for narrative nonfiction. She lives in northern Vermont with her two cats, Tubby and Pogo, and her garden. Connect with Jane Facebook Instagram Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store  
February 20, 2024

Books & Chit Chat: Andrea Couture Discusses Memoir “Embracing What Remains”

This is the replay of our inaugural book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle Community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are moderated by Andrea Couture, whom we meet during this first of the discussions on January 30, 2024. Andrea, also known as Drea, is the author of "Embracing What Remains," a moving memoir chronicling her experience as a young caregiver for her father during his dementia journey while simultaneously raising her own young children. As an advocate for Alzheimer's and dementia, Andrea's insight into the challenges and emotional toll of balancing caregiving responsibilities with motherhood offers a unique perspective that resonates with many caregivers. Her poignant storytelling and candid reflections provide a relatable and authentic portrayal of the complexities of caring for a loved one with dementia. Andrea's ability to navigate the delicate balance between her roles as a daughter, mother, and caregiver shines through in her memoir, making her a valuable voice in the Alzheimer's and dementia community. Andrea is a member of the AlzAuthors management team specializing in acquisitions and serving as book club moderator. In this episode, you will: Develop resilience and new strategies for managing the unique obstacles faced by young caregivers.Uncover insights for coping with the emotional impact of caring for someone with Alzheimer's and find ways to protect your own well-being.Explore the therapeutic benefits of expressing and reflecting on your caregiving experiences through writing a memoir.Understand how the COVID pandemic impacted caregivers After the Podcast Register for Books & Chit Chat Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Andrea's AlzAuthors post: Andrea Couture Wrote the Book She Yearned for on Her Dementia Journey Listen to Andrea's podcast "Behind the Mask: COVID, Kids and Caregiving" See Andrea on the AlzAuthors Live virtual panel discussion "When Dad Has Dementia" Connect with Aging & Amazing About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store
February 11, 2024

How to Use Art to Reach Those with Dementia: Proven Strategies to Connect

Have you heard these myths about the power of art in dementia care? Myth 1: Only artistic individuals can benefit from art therapy. Myth 2: People with advanced dementia can't engage in creative activities. Myth 3: Art therapy is only about painting and drawing. In this podcast, you will learn how different art forms can benefit those living with dementia and how you can incorporate them in your care. From using humor to engaging with music and art, our expert panelists are redefining the meaning of connection in dementia care. Learn how simple activities like painting, singing, and even reading can spark meaningful interactions, revive memories, and create joy. Stay tuned for heartwarming stories and unexpected insights that will change the way you approach dementia care. Immerse yourself in this inspiring journey of reconnection and hope. The Panelists Tom & Karen Brenner, Mary Crescenzo, Katya De Luisa, Marc Rothman, MD, and Tryn Rose Seley. For details on the authors visit our website. Quotes: "I like to generally think of people who have dementia as on a journey that's very different from the one we all are on who don't have dementia. And it's taking them to a different place. It's taking them to a place that's hard for us to recognize."- Marc Rothman, MD "When we meet a person with Alzheimer's where they are, by using fluid guidance, non-judgment, not having preconceived notions what they can or cannot do, we can begin to have engagements with them." Mary Crescenzo "It's our turn to start the conversation, to bring out the best in a person with dementia." - Tryn Rose Seley In this episode, you will: ·      Discover how art can transform the lives of individuals with dementia and enhance their well-being. ·      Learn how personalized art can revive memories and create meaningful connections with individuals experiencing dementia. ·      Explore the impact of humor individuals with dementia and how it fosters engagement and joy. ·      Uncover the benefits of using reading and writing as therapeutic tools to stimulate cognitive abilities in individuals with dementia. ·      Embrace the power of patience and innovation in art therapy to create meaningful and enriching experiences for individuals with dementia. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know Shop our Store Join our book club
February 6, 2024

Writing Through the Fog: Three Authors Share Dementia Coping Strategies

Anyone living with Alzheimer's or dementia, and those who care for them, knows the importance of lifestyle adjustments to successfully navigate this journey. From simple strategies like making lists, reducing social commitments, and focusing on tasks that bring joy, to complex maneuvers like family involvement in advanced directive planning, the lifestyle changes are indeed varied. In this podcast hosted by Kensington Senior Living, three authors discuss the role of personalized coping mechanisms, underscoring the unique experience each individual and family uses to embrace and adapt to the uncertainties of Alzheimer's. You'll meet Daniel Gibbs, MD, a retired neurologist diagnosed with early onset Alzheimer's, Gerda Saunders, a retired instructor in the Gender Studies Program at the University of Utah diagnosed with cerebral microvascular disease, and Jane Dwinell, an RN, freelance writer, Unitarian Universalist minister, and caregiver to her late husband, Sky Yardley, diagnosed with Alzheimer's. Moderated by AlzAuthors co-founder Marianne Sciucco and Susan Evans from Kensington Senior Living. In this episode, you will: Hear personal stories of living with Alzheimer's and dementiaDiscover lifestyle modifications to better manage these conditionsLearn how to navigate daily life with dementiaUnderstand the importance of family support Outtakes: "The more you know, the better you could love." - Gerda Saunders "What's good for the heart is good for the head." - Dr. Daniel Gibbs Resources: Explore the AlzAuthors website to discover books, blogs, podcasts, and films written by authors who share their personal experiences with Alzheimer's and dementiaVisit Kensington Senior Living's website to learn more about their seven unique communities and the relationship-based care they offerConsider reading Dr. Daniel Gibbs' A Tattoo on My Brain to learn about his journey as a retired neurologist living with Alzheimer's and the lifestyle modifications that can help slow the progression of the diseaseCheck out Gerda Saunders' memoir, Memory's Last Breath, to gain insights into the experience of living with dementia and the perspective changes that come with itLearn more about Jane Dwinell's book, Alzheimer's Canyon, which chronicles her caregiving journey for her late husband with Alzheimer'sRead Marianne Sciucco's novel, Blue Hydrangeas, an Alzheimer's love story Our Book Club with Aging & Amazing Visit our website for full details Visit Aging & Amazing About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store Join our book club
January 23, 2024

AlzAuthors Book Club Chit Chat Promo with Aging and Amazing

AlzAuthors is excited and honored to partner with the online community Aging & Amazing for a monthly book club, a “Meet the Author” type of event: AlzAuthors Books and Chit Chat. The book club will feature a new book and author every month. The first few months have been scheduled and include: January 30th 7pm EST: Andrea Couture – Embracing What Remains: A Memoir February 27th 7pm EST: Florrie Munat – Be Brave, a Wife’s Journey Through CaregivingMarch 26th 7pm EST: Ruth Stevens– Stage Seven, a novelApril 30th 7pm EST: A gathering of poets for National Poetry Month: featuring Sherri Levine, Stealing Flowers from the Neighbors; Sue Fagalde Lick, Gravel Road Ahead; Daniel Potts, MD, Bringing Art to Life; Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas Join Us To learn more about this book club or to become a member, please visit agingamazing.com. Register here to receive the Zoom link to the meetings. About Aging & Amazing In their own words, Aging & Amazing, based in Washington DC, is “an online community, in addition to local, in-person care management and training services supporting older adults, caregivers, and professionals specializing in aging. Aging & Amazing offers a helping hand to uplift older adults, caregivers, and professionals through services, education, and support.”
January 15, 2024

Aging and Amazing Book Chit Chat

AlzAuthors is excited and honored to partner with the online community Aging & Amazing for a monthly book club, a “Meet the Author” type of event: AlzAuthors Books and Chit Chat. The book club will feature a new book and author every month. The first few months have been scheduled and include: January 30th 7pm EST: Andrea Couture – Embracing What Remains: A Memoir February 27th 7pm EST: Florrie Munat – Be Brave, a Wife’s Journey Through CaregivingMarch 26th 7pm EST: Ruth Stevens– Stage Seven, a novelApril 30th 7pm EST: A gathering of poets for National Poetry Month: featuring Sherri Levine, Stealing Flowers from the Neighbors; Sue Fagalde Lick, Gravel Road Ahead; Daniel Potts, MD, Bringing Art to Life; Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas Join Us To learn more about this book club or to become a member, please visit agingamazing.com. Register here to receive the Zoom link to the meetings. About Aging & Amazing In their own words, Aging & Amazing, based in Washington DC, is “an online community, in addition to local, in-person care management and training services supporting older adults, caregivers, and professionals specializing in aging. Aging & Amazing offers a helping hand to uplift older adults, caregivers, and professionals through services, education, and support.”
January 14, 2024

Behind the Mask: COVID, Kids and Caregiving

Caregiver Andrea Couture juggles young children, caregiving during the COVID 19 pandemic, and stigma to share her father's Alzheimer's journey, seeking connection and support in a rural community. Andrea Couture, the author of "Embracing What Remains," brings a unique perspective to the podcast with her firsthand experience caring for her father, a surgeon diagnosed with dementia, while also raising young children. Her background in journalism and heartfelt storytelling offer valuable insights into the challenges and triumphs of her caregiving journey, especially navigating through the complexities of providing care during the COVID-19 pandemic. Andrea's willingness to share her family's journey with openness and honesty provides comfort and support to others who may be facing similar experiences. Her memoir and active involvement within the Alzheimer's community showcase her dedication to raising awareness and creating a sense of community among caregivers. In this episode, you will be able to: Uncover the impact of COVID-19 on Alzheimer's caregiving and learn strategies to navigate through it.Understand the importance of sharing Alzheimer's experiences and how it can positively impact caregivers and families.Explore writing as a powerful form of Alzheimer's advocacy and its potential to make a difference. Impact of COVID-19 on Alzheimer's Caregiving Amid the global pandemic, Alzheimer's caregivers have faced more unique hurdles. As Andrea explained, managing in-home caregivers during COVID-19, the resulting anxieties, and ensuring safety gave rise to much distress. Understanding these challenges can provide viewpoints for creating effective strategies to assist caregivers in navigating similar situations now and in future crises. As a new member of the AlzAuthor sTeam, Andrea now serves as an Acquisition Editor and moderator of a new collaboration with Aging & Amazing - AlzAuthor's Books & Chit Chat," which will feature her book during the inaugural event on January 30, 2024. Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible. After the Podcast Register for AlzAuthors Books & Chit Chat on January 30, 2024 Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible. Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you. Read Andrea’s AlzAuthors post See Andrea on When Dad Has Dementia on YouTube Andrea Couture is an author and mother of three children. She holds a Bachelor of Arts degree in Journalism from Saint Michael’s College in Vermont. Embracing What Remains is her first memoir and book. She lives in New Hampshire with her husband, children, and dog. Connect with Andrea Facebook Instagram LinkedIn Twitter About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store
January 9, 2024

Empowering Families Caring for Loved Ones with Alzheimer’s – Lori Aden and Sheila Parsley

Lori Aden and Sheila Parsley are two incredible women who have taken their personal experiences as caregivers for loved ones with Alzheimer's and turned them into a powerful tool for support and understanding. Through their series of children's books, Lori and Sheila have found a unique way to address the complexities of Alzheimer's disease in a relatable and compassionate manner. With whimsical dragon characters and heartfelt storytelling, they guide children through the different stages of the disease, helping them understand and cope with the changes they may witness in their loved ones. Their books not only provide comfort and reassurance to children but also offer a valuable resource for caregivers who may be searching for ways to explain Alzheimer's to their young ones. Lori and Sheila's journey as caregivers and authors has allowed them to build a deep understanding of the challenges and emotions faced by those caring for someone with Alzheimer's. Their dedication to supporting others in similar situations is truly inspiring. Lori has also written a book called, “I Remember Me - The Mom Chronicles, which is a memoir of her time caring for her mother. She started with a Facebook thread for family that grew by leaps and bounds when family and friends asked to add others who were on a similar journey.  In this conversation you’ll hear from both sisters about their struggles, and ultimately how this journey brought them closer together culminating in a delightful and touching resource for families. In this episode, you will be able to: Discover practical strategies for explaining Alzheimer's to children in a sensitive manner.Learn strategies for children to adapt to the changes in loved ones with Alzheimer’s or dementia.Hear about strategies such as baby dolls for those with Alzheimer’s and dementia.Learn about the financial strains experienced by caregivers.Explore the importance of community resources in Alzheimer's care, discovering how local support services and organizations can provide much needed assistance and a sense of community for both caregivers and those with Alzheimer's. website: http://irememberme.life  o  I Remember Me – The Mom Chronicles o   Grandma is Acting Funny – A Children’s View of Alzheimer's o   Grandpa is Acting Funny – A Children’s View of Alzheimer's  You can also hear Lori Aden read from the children’s series on the “Poetry for the Dementia Journey,” episode of Untangling Alzheimer’s & Dementia” Podcast  Listen Books by Loria Aden and Lori Aden & Sheila Parsley By Lori Aden I Remember Me - The Mom Chronicles: An Alzheimer's Journey Sharing Lessons Learned and Challenges Conquered as a Caregiver Category: Memoir, Caring for a Mother with Alz Link: https://amzn.to/3t4otaM By Lori Aden and Sheila Parsley Grandma is Acting Funny - Beginning Stage: A Children's View of Alzheimer's Category: Children’s Books Link: https://amzn.to/46famRR Grandma is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Category: Children’s Books Link: https://amzn.to/3QzkVcB Grandma is Acting Funny - the Late Stage: A Children's View of Alzheimer's Category: Children’s Link: https://amzn.to/3u9H4Xf Grandpa is Acting Funny - the Beginning Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QE6nrZ Grandpa is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Link: https://amzn.to/3SDbFXo Grandpa is Acting Funny - the Late Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QwxPYO Baby Doll and Pet Doll Therapy Lori and Sheila referred to a Baby Doll that their mother loved. Baby Doll and Robotic Pet Therapy is often used for comfort for those with Alzheimer's and Dementia. Here are some links for both. They recommend NOT using all the accessories with the dolls. Toy Choi's 16 in Interactive Baby Doll Lissi Doll New York Doll Collection Robotic Pets
December 5, 2023

Finding Peace in Chaos: A Caregiver’s Journey in a War Zone with Miriam Green

In a health crisis, we often refer to our journey as a "battle." We may see ourselves as "warriors." This is true for those impacted by Alzheimer's and dementia. The diagnosis brings uncertainty, disruption, and fear. But what happens when you're dealing with dementia in the middle of a war zone? When airstrikes are the norm, and screeching sirens interrupt each day, warning you to seek safety and shelter in a minute or less? When ordinary life ceases and the top of mind issue is simply staying alive? Avoiding disaster? Breathing? On October 7th, Miriam Green, an AlzAuthor living in Israel, found her life as a caregiver turned upside down when terrorists invaded her country. In this podcast, she shares with us the horror and brutality of what occurred, how her country, her family, friends and community have been affected by this conflict, and how they are dealing with it. She is a mother, daughter, grandmother, and wife, and like most women juggles her responsibilities as best as she can on a good day. Now, she struggles to find peace in the chaos, searching for meaningful, uplifting moments, even hope, while carefully balancing her family's needs. We are grateful to her for speaking with us. We take no sides in this conflict and pray for a peaceful resolution soon. In this episode, you will: Learn how Miriam finds brief moments of solace and peace in the midst of warSee how her mother's care community maintains a routine and stability for their patients even in the most challenging of circumstances, giving them a sense of familiarity and security.Discover the unique challenges faced by caregivers who are helping to raise grandchildren while caring for aging parents in war timeGain insights into the power of hope and resilience in the face of adversity, and learn how to nurture these qualities within yourself and your care recipients About Miriam Green Miriam Greenis the author of The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver. Her poetry has been published in several journals, including Poet Lore, The Prose Poem Project, Ilanot Review, The Barefoot Review, and Poetica Magazine. Her poem, “Mercy of a Full Womb,” won the 2014 Jewish Literary Journal’s 1st anniversary competition. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. She holds an MA in Creative Writing from Bar Ilan University, and a BA from Oberlin College. Miriam is a 24-year resident of Israel. After the Podcast Find Miriam on Facebook and on Twitter . Read Miriam's AlzAuthors blog post. Purchase The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver Purchase Life on Planet Alz by Jack Cohen, Miriam's father Note: We are an Amazon Associate and may receive a small commission on book sales which will cost you nothing. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store
November 22, 2023

Rewriting the Dementia Narrative: How “Keys Bags Names Words” Is Shattering Stereotypes with Cynthia Stone, Caroline Prioleau

In this episode of Untangling Alzheimer's & Dementia, hosts Marianne Sciucco and Christy Byrne Yates are joined by guests Cynthia Stone and Caroline Prioleau to discuss their documentary film "Keys Bags Names Words." The film explores the experiences of individuals and families affected by dementia and highlights the importance of community support and education. Cynthia and Caroline share their personal journeys and explain how their own encounters with dementia impacted their work on this powerful film. They discuss the process of creating the film, including obtaining footage and incorporating personal stories. The episode also delves into the impact of the film and the goals behind it, such as changing perceptions of dementia and promoting understanding and support. The conversation is filled with heartfelt stories, valuable insights, and practical resources, making it a must-listen for caregivers and anyone interested in Alzheimer's and dementia. So grab your headphones and tune in to gain a deeper understanding of the challenges and triumphs faced by individuals and families living with dementia. In this episode, you will: Gain valuable insights into Alzheimer's and dementia, empowering you to better understand the conditions and provide compassionate care.Understand the unique challenges faced by dementia caregivers and strategies to overcome them.Discover practical strategies for navigating the challenges of dementia caregiving, helping you feel more equipped and supported in your role.Explore a thought-provoking film about Alzheimer's and dementia, sparking meaningful conversations and raising awareness about these conditions. Watch the film trailer The resources mentioned in this episode are: Visit the AlzAuthors website at AlzAuthors.com to learn more about the global community of authors writing about Alzheimer's and dementia from personal experience.Subscribe to the Untangling Alzheimer's and Dementia podcast on major podcast platforms like Apple and Spotify, or visit AlzAuthors.com to listen to episodes.Email AlzAuthors at [email protected] if you have any questions or need assistance.Consider hosting a community screening of the film to start conversations and connect people to resources.Explore the hear/say Oral History Program, co-founded by Caroline Prioleau, to hear firsthand stories of lived experiences with Alzheimer's and dementia.Educate yourself and others about brain health and strategies for preventing or delaying the onset of Alzheimer's and dementia. Visit Alz.org. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store
November 7, 2023

Everything You’ve Always Wanted to Know About Living WIth Dementia, part 2

In this episode, you'll hear from a diverse group of guests who share their personal experiences and insights on living with dementia. Peter Berry, Michael Ellenbogen, Gerda Saunders, and Jennifer Bute each bring their unique perspectives, providing a wealth of knowledge and understanding about the challenges and triumphs of navigating life with dementia. From discussing the impact of technology on social connections to the importance of finding supportive living arrangements, this episode covers a wide range of topics that caregivers and family members of individuals living with dementia will find valuable. Tune in to gain new insights and discover how technology, support systems, and personal resilience can enhance the lives of individuals with dementia. In this episode, you will: Hear personal reflections from individuals living with dementia, offering a unique perspective on their journey and valuable insights for caregivers and family membersExplore the powerful ways in which technology can be utilized to manage and support individuals with dementia, enhancing their quality of lifeFind out what Jennifer thinks of A-L-E-X-A Meet the authors on our website Download ebook: Alzheimer's and Dementia Caregiving Stories Download Caregiver Tip Sheet: 13 Helpful Tips for the Long-Distance Caregiver Reading2Connect on AlzAuthors.com About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store
November 2, 2023

Revolutionizing Caregiving: The Whole Care Network’s Streaming Radio Channel, with Chris MacLellan

Join hosts Marianne Sciucco and Christy Byrne Yates as they discuss the launch of the Whole Care Network's new streaming radio channel with guest Christopher MacLellan, the passionate founder, who aims to connect and empower caregivers through this groundbreaking platform. The app provides trusted information and support to caregivers. Listen to The Whole Care Network Streaming Radio! Download the app from Apple or Google Play. Discover WCN's October Surge event with AlzAuthors In this episode, you will be able to: Explore the resources provided by the Whole Care Network and AlzAuthors, empowering caregivers with a wealth of knowledge and support from experts in the field.Tune in to the streaming radio channel for caregivers to access a variety of informative and uplifting content anytime, anywhere.Get excited about the upcoming conversation that offers fresh perspectives and inspiring stories from caregivers who have overcome challenges and found resilience in their experiences. About Christopher: Christopher MacLellan, is a respected advocate in the caregiving economy. With his extensive experience and knowledge, Christopher offers valuable insights and practical advice to individuals in the caregiving community. As a guest on the AlzAuthors podcast, he shares his expertise on various caregiving topics, providing a wealth of information and support for listeners. Christopher's dedication to raising awareness and improving the lives of caregivers shines through in his contributions to the podcast. His commitment to collaboration and his involvement with the Whole Care Network further demonstrate his passion for connecting caregivers and providing them with the resources they need. Whether you're a caregiver seeking guidance or someone interested in supporting caregivers, Christopher's expertise and contributions are sure to provide valuable insights and support. After the episode, learn more about The Whole Care Network https://thewholecarenetwork.com/ https://thewholecarenetwork.com/wcn-surge Connect with Christopher: Email About About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store  
October 27, 2023

Exploring End of Life Care in Dementia with Anne Kenny, MD

Anne Kenny, MD had been practicing medicine for more than 30 years, recognized by her peers as a “Top Doc” in Geriatric Medicine, but that did not make her caregiving journey with her mother any easier. In fact, when the professional became personal, she sought guidance through the available literature and found little to guide her and her family through the difficult decision making required in dementia care. So, she decided to write her own book, inspired by her experience as a physician and as a daughter, creating the book she wished she’d had for her mother’s care. Making Tough Decisions about End-of-Life Care in Dementia was published in 2018 by Johns Hopkins University Press. Dr. Kenny has worked clinically as a geriatrician in nursing homes, assisted living, rehabilitation, and clinical outpatient settings. She’s found joy in her work with individuals and their families managing issues related to the diagnosis of dementia. In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging-related issues including navigating dementia, exercise, nutrition, hormone therapy, death and dying, and frailty. In this episode, you will: Gain profound understanding of the lived experiences of dementia caregivers, enhancing your compassion and awareness.Explore the journey towards uncovering purpose and meaning amidst dementia, redefining your outlook on life.Appreciate the necessity for open dialogue about end-of-life decisions, strengthening emotional preparedness and resilience.Learn about the impactful role of arts and music in the realm of dementia care, introducing you to innovative care methodologies.Recognize the imperative of reaching out and receiving support in dementia caregiving, developing effective stress management techniques. Purchase Making Tough Decisions about End-of-Life Care in Dementia Note: We are an Amazon Associate and may receive a small commission from book sales. After the Podcast Read Anne’s AlzAuthors post: Making Tough Decisions About End-of-Life Care in Dementia, by Author Anne Kenny, MD Explore Caring Kind Download 13 Tips for Long-Distance Caregivers About Anne Kenny, MD I’m a geriatric physician and founder of Together in Dementia, where I support families and care partners to modify their approach to dementia so that they can find joy, connection and calm in their care journey without losing their minds, falling into depression, or ruining their health or relationships. We do this using our KNOW/ADAPT/CONNECT (KnAC) method via courses, coaching and consulting. Connect with Anne Kenny, MD Facebook LinkedIn Twitter *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store    
October 24, 2023

Unlocking Joy through Reading: Enhancing quality of life in dementia care with reading specialist, Susan Ostrowski

Have you heard these common myths about reading to individuals with dementia? Myth 1: People with dementia can't understand or enjoy reading. Myth 2: Reading is a solitary activity and won't benefit socialization. Myth 3: It's too late to start reading to someone with dementia. In this episode, Susan Ostrowski debunks these myths and shares the truth about the impact of the Reading2Connect program on individuals with dementia. In her work, Susan has learned that people with dementia can continue to enjoy reading and often find it brings opportunities for socialization and leadership. In this episode, you’ll learn: How the Reading2Connect® program can improve socialization and connection for individuals with dementia, leading to a better quality of life.The importance of selecting meaningful and clinically appropriate reading materials for individuals with cognitive impairments and how it can enhance their engagement and comprehension.How incorporating visual elements in reading materials can further enhance engagement and comprehension for individuals with dementia.About the success of the Reading2Connect® program in receiving funding and interest from libraries and organizations and how it's positively impacting the community.Insights into empowering individuals with dementia through leadership roles in reading and discussion groups, allowing them to foster a sense of purpose and autonomy. About Susan Ostrowski: Susan Ostrowski is a highly experienced speech pathologist and the creator of the Reading2Connect® program. With a remedial reading and speech background, Susan has devoted her career to helping individuals with cognitive impairments. Recognizing the impact of dementia on reading abilities, Susan embarked on a mission to develop materials that cater specifically to this population's needs. Through extensive field testing and collaboration with healthcare professionals, she has successfully created over 50 booklets that engage and resonate with individuals living with dementia. Susan's program addresses cognitive challenges such as organizational thought, sustained focus, and working memory, offering a unique approach to reading and comprehension. Her work has gained recognition and support, including partnerships with organizations like AGE-u-cate® and collaborations with libraries. Susan's dedication to improving the quality of life for individuals with dementia through reading is making a significant impact in the field, providing caregivers and individuals with valuable resources and opportunities for connection. After the episode, view these videos to see the program in action:  Bk Stand Falls logo.ChaseCity.mp4 Small Group Res-Directed.MOV Rosa Parks 4.mp4 Connect with Susan: Website LinkedIn About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store  
October 10, 2023

The Importance of Open Communication in Dementia Care with Kate Hanley

Kate Hanley’s discovery of her parent’s unique love language set her on a path she never anticipated—writing a book. Yet these beautiful “paper napkin sonnets,” and the story that surrounds them, were too precious and inspiring not to share, as they offer hope for anyone in the throes of caring for someone with dementia. The overwhelming peace she had when she witnessed her mother's love for her seven children overpower dementia encouraged her to write her story. It is her hope that others will believe that their compassion and resilience in caring for someone with dementia will not be forgotten. About Kate Hanley Kate is passionate about the work she does with nonprofit organizations and their direct mail outreach through her work with Cathedral Corporation. She is also an adjunct professor with Utica College and Teacher Education Programs. She and her husband live in Old Forge, NY with two dogs and two grown sons who come home as often as possible to enjoy the peace and beauty of the Adirondack Mountains. In this episode, you will be able to: ·     Realize the value of anecdotes related to dementia care, shedding light on love's strength and the hurdles encountered on the journey. ·     Expound on the essence of memory preservation techniques and harnessing the senses in dementia care. ·     Grasp the emotional aspects of caregiving and the importance of forging supportive alliances for mental well-being. ·     Recognize the early warning signs of dementia, distinguishing it from the natural aging process. ·     Acknowledge the efficacy of storytelling and clear-cut communication in enhancing the caregiving experience. After the Podcast Read Kate’s AlzAuthors post: Love is Never Forgotten in Breakfast Memories: A Dementia Love Story Purchase Breakfast Memories: A Dementia Love Story Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Kate Hanley Website Facebook   *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
September 26, 2023

Untangling the P.A.C.E Model with Tami Anastasia

Join hosts Marianne Sciucco and Christy Byrne Yates on the Untangling Alzheimer's & Dementia podcast as they dive into a lively conversation with AlzAuthor Tami Anastasia about the challenges caregivers face in supporting individuals with dementia. Tami's book, Essential Strategies for Dementia Care: Learning to P.A.C.E. Yourself, offers guidance for caregivers on various topics, from communication techniques to managing emotions like anger and grief. The conversation begins with Tami providing insights on motivating individuals with dementia to engage in activities. She emphasizes the importance of understanding that all behavior is a form of communication and highlights the need to truly listen to the person with dementia. Tami also explores the concept of grief and loss in dementia care, emphasizing the need to connect with the person rather than correcting them. In this episode, you will be able to: Gain enlightenment on the unvoiced hurdles that caregivers of dementia patients face.Kickstart your efficient caregiving journey with the assistance of the P.A.C.E. model.Determine how to strike the delicate balance between personal self-care and caretaking for your loved ones with dementia.Learn techniques to reinforce your confidence and self-esteem in your role as a caregiver.Develop a deeper understanding of the emotional intricacies involved in dementia care and how to manage them. More about Tami Tami Anastasia is a reliable confidante to countless family caregivers, guiding them through the complexities of dementia care. Drawing strength from her personal experiences—especially her encounters with her grandmother's dementia diagnosis—she's dedicated to easing the journey for caregivers. Besides running a bustling private practice in the greater Bay Area of California, she inked her experiences and wisdom in the form of her practical book, Dementia Caregiver: Learning to P.A.C.E. Yourself.  Connect with Tami Website LinkedIn Facebook X (Twitter) Instagram TikTok About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. AlzAuthors.com Shop our Store
September 12, 2023

Finding Support and Strength to Navigate the Caregiving Season with Rayna Neises

Register for Everything You've Always Wanted to Know About Living with Dementia September 1 at 10:30 AM EST Watch the June 2021 episode on YouTube *** Rayna Neises comes to us from the heartland of Kansas to share her experience as a former caregiver for parents with dementia. She is the author of No Regrets: Hope for Your Caregiving Season. She also hosts the podcast "A Season of Caring," and is the publisher of "Content Magazine: Finding God in Your Caregiving Season." Our conversation focuses on her belief that caregiving is "a season of life," and the necessity of finding support to navigate its challenges. She offers valuable insights for caregivers who may feel overwhelmed and isolated, and emphasizes the importance of self-care and setting boundaries. Her book, podcast, and magazine offer further support for caregivers seeking to maintain their identity and find moments of respite amidst the chaos. In this podcast, you will: Embrace the enlightening concept of caregiving as a pivotal life season, rather than a mere duty;Learn how to navigate the complex landscape of dementia care unveiling truths that may transform your understanding of caregiving;Acknowledge the urgent need for advanced planning and transparent conversations around personal care choices;Discover that faith-based support groups may offer much-needed comfort in this demanding journey About Rayna Neises Rayna Neises understands the joys and challenges that come from a season of caring. She helped care for both of her parents during their separate battles with Alzheimer’s over a thirty-year span. She looks back on those days now with no regrets – and she wishes the same for everyone caring for aging parents. To help others through this challenging season of life, Rayna has written No Regrets: Hope for Your Caregiving Season, a book filled with her own heart-warming stories and practical suggestions for journeying through a caregiving season. She is an ICF Associate Certified Coach with certifications in both Life and Leadership Coaching from the Professional Christian Coaching Institute. She is also the host of “A Season of Caring Podcast” and a passion speaker. Rayna lives on a farm in southeast Kansas with her husband, Ron, and small pack of adorable dogs. She is the baby of her family, but most would never guess that. A former teacher, she enjoys crafts of all kinds and spending time with her grandkids most of all. Connect with Rayna Facebook.com/ASeasonofCaringRaynaNeises Linkedin.com/RaynaNeises Instagram.com/RaynaNeises Pinterest.com/thcoaching Twitter Website Book About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. AlzAuthors.com Shop our Store
August 29, 2023

Tony Copeland-Parker’s Inspiring Approach to Alzheimer’s Care

After a dementia diagnosis and heart surgery, Tony Copeland-Parker and his partner, Catherine, aka "Cat," traveled for years worldwide to run marathons and half-marathons. Now, due to the progression of Cat's early onset Alzheimer's, they've recently settled down in an assisted living facility. Tony and his memoir, Running All Over the World: Our Race Against Early Onset Alzheimer's, first came to AlzAuthors in January, 2022. He has appeared on our podcast and in a virtual panel discussion, Love Stories: Keeping Romance Alive in Dementia Care. Tony is an expert on traveling with a loved one with dementia, and now speaks about the intricacies involved in finding a suitable place to settle down for the duration of Alzheimer's. On the podcast, Tony shares how he initially struggled to accept Cat's diagnosis and find a way forward. He eventually realized that focusing on making the most of their time together was a more constructive approach than searching for a cure. By dedicating their energy to activities they love, Tony and Cat have been able to maintain their connection and find solace amidst the challenges posed by Alzheimer's. In this episode, you will: Delve into Tony's enlightening journey as an Alzheimer's caregiver and the lessons he's learnedDiscover how to develop a balanced approach to caregiving that preserves your self-identity and allows you to follow your passionsUncover essential strategies for hassle-free traveling with a cognitively impaired loved oneLearn the art of maintaining your own identity while caregiving without sacrificing your passionsDiscover the crucial aspects of selecting the perfect care facility for Alzheimer's care and why it matters After the Podcast Purchase Running All Over the World: Our Race Against Early Onset Alzheimer's Note: We are an Amazon Associate and may receive a small commission from book sales. Read Tony's AlzAuthors post Anthony Copeland-Parker and Partner Catherine Become Marathon Nomads Listen to Tony's first podcast Anthony Copeland-Parker Untangles Life as a Nomad and Early Onset Alzheimer's Listen to our panel discussion Love Stories: Keeping Romance Alive in Dementia Care Watch our panel discussion Love Stories: Keeping Romance Alive in Dementia Care Connect with Tony Website and blog Facebook Twitter About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store
August 15, 2023

Bridging the Communication Gap in Dementia Care with Jane Mullins, Ph.D.

Jane Mullins, Ph.D. is a dedicated professional with a 30-year background in dementia care. As a trained nurse, Jane has worked in various roles, including managing care homes and supporting people with dementia in memory clinics. Her empathetic approach focuses on enhancing communication and understanding between individuals with dementia and their families. Jane's groundbreaking multisensory reminiscence technique has been a game-changer for couples impacted by dementia, encouraging connection and rekindling memories. Her book, "Finding the Light in Dementia Care," showcases her unwavering commitment to improving the lives of those living with cognitive impairment. She recently transformed the lessons in her book into an online course, available to anyone, In this episode, Jane highlights the importance of building trust and empathy with people with dementia and their families throughout their care journey. She believes that the person with dementia should always lead the way in their care, allowing them to create a trusting environment with the caregivers. This trust enables effective communication, which can significantly improve the person's quality of life, even in advanced stages of the disease. In this episode, you will learn: how to enhance dementia caregiving communication by utilizing sensory props and crafting a secure atmosphereways to streamline the learning process for caregivers with easy-to-understand, engaging, and compact educational materialthe crucial role of advanced care strategies and transparent dialogues in dementia carehow to access the Duet Caregiving Training approach, embracing Dignity, Understanding, Empathy, and Training principles About Jane Mullins, Ph. D Dr. Jane M. Mullins is a dementia nurse consultant who has devoted over 25 years to the study and practice of dementia care. Through listening to and supporting people and their families during their diagnosis in memory clinics, caring for them in hospital and in care homes, she has helped throughout all of the stages of their condition. Jane has uncovered certain common features that may help caregivers and the people they care for find better ways of coping. Her practice experience is backed up by expert knowledge gained from attending conferences, continuing education, lecturing and keeping up to date with research, as well as studying for her Ph.D. which explores multisensory ways of communicating and connecting. Connect with Dr. Mullins WebsiteTwitter Facebook LinkedInMature Times About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. AlzAuthors.com Shop our Store
August 1, 2023

Elevate Your Caregiving in the Kitchen with Melissa & David Bernstein

A crucial aspect of caregiving is keeping those in your care engaged and productive with simple, everyday tasks. Such activities can include folding laundry, arranging books, cooking, and eating. Not only does this provide purpose and enjoyment for the care recipient, but it also promotes independence and preserves dignity. Encouraging participation in daily tasks, even in a small capacity, can significantly enhance the overall quality of life for both caregiver and care recipient. In this podcast, Melissa Bernstein, an occupational therapist, and David Bernstein, a geriatrician with over 40 years of practice, share the importance of these regular activities and how they can benefit those receiving care. They stress the value of including all the senses in these tasks, such as playing music while cooking or eating. The goal is to create a rich, sensory experience that nurtures and engages the mind and body, thereby fostering continued independence and self-worth in the care recipient's life. In this episode, you will be able to: ·      Discover their groundbreaking "Power of Five" formula for preventing neurodegenerative diseases. ·      Explore compassionate approaches to nutrition and engagement for Alzheimer's caregivers and their loved ones. ·      Foster independence and uphold dignity in dementia and Alzheimer's care. ·      Unlock flavorful secrets from Melissa's cookbook for healthy eating and pet care. After the Podcast Read Melissa and David's AlzAuthors posts Melissa Bernstein Creates a Cookbook for Caregivers Doctor Shares Strategies for Dealing with Unsafe Senior Drivers Discover their books: The Power of Five Formula:The Ultimate Formula for Longevity & Remaining Youthful Power of 5 Test Kitchen Cookbook Your Guide to Healthy Cooking and Eating  The Power of 5 Test Kitchen Cookbook: Caregiver Edition I've Got Some Good News and Some Bad News: YOU'RE OLD: Tales of a Geriatrician, What to expect in your 60's, 70's, 80's, and Beyond Senior Driving Dilemmas Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Melissa The Powerof5life.com website Facebook  Instagram Connect with Dr. Bernstein Website Facebook.com/DrDavidBernstein/ LinkedIn Twitter  *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
July 5, 2023

Sandra Strauss Untangles the Toxic Brain

When Sandra Strauss' husband, Rick, was diagnosed with dementia overnight, she was determined to uncover the truth behind the cause--but what she discovered was far more shocking than anyone could have imagined. Unbeknownst to them, Rick had a rare genetic predisposition that made him highly susceptible to environmental toxins--a factor that could be making countless people sick. Sandra's journey to uncover the truth has now become a mission to help others navigate this complex terrain as she embarks on writing a book to share her experience and raise awareness.  In this episode, you will be able to: ·     Discover the powerful connection between environmental toxins and the development of brain disorders and dementia. ·     Recognize the crucial role of addressing cognitive decline at its roots and understanding its early signs. ·     Master practical solutions to caregiving challenges such as driving limitations and effective communication. ·     Uncover the importance of seeking educated and functional medical professionals when addressing dementia care. ·     Harness the benefits of prioritizing self-care, mental health, and support networks for caregivers. About the Author  Sandra Strauss is an experienced consumer health educator who has dedicated her career to helping individuals navigate complex health issues and promoting healthy lifestyles. With her former role as the VP of Consumer Affairs for the Fruit and Vegetable Association, she has been a strong advocate for health, harmony, and happiness. In her work, she explores the effects of environmental toxins on the brain and their role in dementia development. Sandra is the author of several books, including A Toxic Brain: Revelations from a Health Journey.  After the Podcast  Read Sandra's AlzAuthors post: A Toxic Brain by Author Sandra Strauss Details Her Husband’s 12-Year Dementia Journey Purchase A Toxic Brain: Revelations from a Health Journey  Note: We are an Amazon Associate and may receive a small commission from books sales.   Connect with Sandra  Website LinkedIn  FB page Instagram  Twitter TikTok: #atoxicbrain About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast.  Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
May 23, 2023

Poetry for the Dementia Journey – Episode Two

In celebration of National Poetry Month, we hosted a gathering of poets on April 18, 2023, to share work inspired by their dementia experiences. We understand that storytelling, of any kind, but especially through poetry lightens burdens. For many caregivers, poetry can be a means of expression, of sharing their experience, opening hearts to joy, or drowning sorrows. Finding the right words to tell our stories can ease our journey. Reading the words of others can inspire us, give us strength, and let us know we are not alone. The response to our initial invitation to a poetry reading was tremendous and better than we expected. More than 60 authors RSVP'd, and on the day of the reading more than 30 showed up to read and share their beautiful words and stories with honesty and grace. We shared laughter and tears, too. Now, thirty poets is a lot of poets! And a lot of poems. We accommodated everyone by stretching the program out to two hours. Many poets got to read twice. What resulted is almost 2-hours of recorded poetry on the dementia journey, now available on our podcast in two episodes and on our YouTube channel. Welcome to episode two. Get out the tissues and start listening! Watch it on YouTube: https://youtu.be/Gms7c16PGyQ Here are some of the comments we've received: ·     "The reading was heartfelt and healing. Thank you so much everyone!" Therese Halscheid ·     "Thanks to the organizers and readers for a beautiful and healing session." Mariana Mcdonald ·     "I want to thank everyone for sharing so many superb poems revealing so much on such a difficult subject." Walter Bargen ·     "This was a wonderful, powerful, affirming reading. I want to thank AlzAuthors for organizing this. I am so grateful to all the brave voices who speak from a deep authority on Alzheimer’s/dementia." Margaret Stawowy ·     "Today I was privileged to be one of many poets associated with AlzAuthors on a conference call. To hear the shared words of their experiences similar to my own gave me a sense of unity. I felt part of a village. That’s what we are, really. We’re all part of the village, managing whatever life has given us. Never forget, whatever your life is, you are part of the village." Rene Terry Mucci ·     "This was so wonderful. I have been so touched by everyone’s words today. Keep writing!" Christy Byrne Yates ·     "Remembering our loved ones like this always heals my heart." Charlie Becker Featured Poets Alan BernAnn CampanellaAnnette WickCaroline JohnsonCharlie BeckerDorothy HorneFelicia MitchellJoy JohnstonJudith LechnerKelly DuMarLori AdenMargaret StawowyMariana McdonaldMarion CohenMarjorie MaddoxMarsha BarberMary CrescenzoPaul SoharPauletta HanselPauli PedersenRene Terry MucciSandra BerrisSherri LevineSteve GiblinSue Fagalde LickSusan J. FareseThereseTom and Karen BrennerTony Copeland-ParkerVirginia PasquarelliWalter Bargen Resources Storms of the Inland Sea: Poems of Alzheimer's and Dementia Caregiving by Margaret Stawowy (Editor), Jim Cokas (Editor) Download our free booklet "Poetry for the Dementia Journey," featuring 17 collections of poetry.
May 9, 2023

Poetry for the Dementia Journey – Episode One

In celebration of National Poetry Month, we hosted a gathering of poets on April 18, 2023, to share work inspired by their dementia experiences. We understand that storytelling, of any kind, but especially through poetry lightens burdens. For many caregivers, poetry can be a means of expression, of sharing their experience, opening hearts to joy, or drowning sorrows. Finding the right words to tell our stories can ease our journey. Reading the words of others can inspire us, give us strength, and let us know we are not alone. The response to our initial invitation to a poetry reading was tremendous and better than we expected. More than 60 authors RSVP'd, and on the day of the reading more than 30 showed up to read and share their beautiful words and stories with honesty and grace. We shared laughter and tears, too. Now, thirty poets is a lot of poets! And a lot of poems. We accommodated everyone by stretching the program out to two hours. Many poets got to read twice. What resulted is almost 2-hours of recorded poetry on the dementia journey, now available on our podcast in two episodes and on our YouTube channel. Welcome to episode one. Get out the tissues and start listening! Watch it on YouTube: https://youtu.be/Gms7c16PGyQ Here are some of the comments we've received: ·     "The reading was heartfelt and healing. Thank you so much everyone!" Therese Halscheid ·     "Thanks to the organizers and readers for a beautiful and healing session." Mariana Mcdonald ·     "I want to thank everyone for sharing so many superb poems revealing so much on such a difficult subject." Walter Bargen ·     "This was a wonderful, powerful, affirming reading. I want to thank AlzAuthors for organizing this. I am so grateful to all the brave voices who speak from a deep authority on Alzheimer’s/dementia." Margaret Stawowy ·     "Today I was privileged to be one of many poets associated with AlzAuthors on a conference call. To hear the shared words of their experiences similar to my own gave me a sense of unity. I felt part of a village. That’s what we are, really. We’re all part of the village, managing whatever life has given us. Never forget, whatever your life is, you are part of the village." Rene Terry Mucci ·     "This was so wonderful. I have been so touched by everyone’s words today. Keep writing!" Christy Byrne Yates ·     "Remembering our loved ones like this always heals my heart." Charlie Becker Featured Poets Alan BernAnn CampanellaAnnette WickCaroline JohnsonCharlie BeckerDorothy HorneFelicia MitchellJoy JohnstonJudith LechnerKelly DuMarLori AdenMargaret StawowyMariana McdonaldMarion CohenMarjorie MaddoxMarsha BarberMary CrescenzoPaul SoharPauletta HanselPauli PedersenRene Terry MucciSandra BerrisSherri LevineSteve GiblinSue Fagalde LickSusan J. FareseThereseTom and Karen BrennerTony Copeland-ParkerVirginia PasquarelliWalter Bargen Resources Storms of the Inland Sea: Poems of Alzheimer's and Dementia Caregiving by Margaret Stawowy (Editor), Jim Cokas (Editor) Download our free booklet "Poetry for the Dementia Journey," featuring 17 collections of poetry.
May 9, 2023

Cindy Weinstein Untangles Finding the Right Words in Dementia Care

Cindy Weinstein is an English professor at the California Institute of Technology and the author of the award-winning Finding the Right Words: A Story of Literature, Grief, and the Brain, based on her experience with her father's early onset Alzheimer's in the 1980's. During her father's illness she was a graduate student at the University of California at Berkley, separated from her family in Florida by more than 3,000 miles. Her family's dementia journey had a long-lasting impact on her, and decades later she decided to write a book about it with the assistance of neurologist Bruce Miller, MD. It's the tale of a daughter's grief, of how she was studying and mastering language while her father struggled with word-finding. This irony intrigued her to the point she went on to study neurology herself with an interdisciplinary group of scientists, artists, social scientists, and physicians at The Global Brain Health Institute based at the University of California at San Francisco and Trinity College, Dublin. During this time, she worked with Dr. Miller on Finding the Right Words, which won third place in Memoir Magazine's 2022 Memoir Prize for Books. Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women’s Fiction, and Black literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In this episode, we discuss the shock of her father's death and her lifelong grief, her desire to study the language that surrounds a dementia diagnosis and her mission to help others by writing a book about it, and how working with Dr. Miller helped her better understand the changes dementia brought to her father's brain. After the Podcast Read Cindy's AlzAuthors post: Cindy Weinstein’s Memoir of Father’s Early-Onset Alzheimer’s Purchase Finding the Right Words: A Story of Literature, Grief, and the Brain Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Cindy Amazon.com Website: Finding the Right Words – Cindy Weinstein & Dr. Bruce Miller (weinsteinandmiller.com) Cindy Weinstein – Professor Of English – Caltech | LinkedIn Instagram Mastodon Other Mentions Emory and Aging Center UCSF Bruce Miller, MD Ruth Stevens Podcast Susan Farese, MSN, RN, Podcast Sign up for Laura Davis' Writing Workshop *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
March 14, 2023

Susan Farese MSN, RN Untangles Poetic Expressions in Dementia Care – final

Poetry, whether reading or writing it, can be a powerful tool to ease our dementia caregiving journey, allowing us to express our deepest emotions, unravel our confusion and angst, and learn from and understand others. Susan J. Farese, MSN, RN is the author of Poetic Expressions in Nursing: Sharing the Caring, poems written when she became a nurse poet in the 1990's. Heartbreaking memories of losing her grandmother, Ann, to early onset Alzheimer's when she was a young teen inspired her first poem, Ann's Zest Ends.  In this episode, we discuss how witnessing her grandmother's decline as a child profoundly impacted her even 50 years later, why a chance scene in a movie inspired her to start writing poetry, and the value of poetry as expression for nurses and caregivers. A native of New Jersey, Susan has decades of experience in health care and communications, including military and civilian nursing practice, management, education/training, public speaking, research, and consulting. She is owner/president of SJF Communications, based in San Diego, California. SJF Communications provides public relations, marketing, social media, websites, writing, filmmaking, acting, public speaking, mentoring and photography. She currently teaches "Capturing Your Creativity with Haiku" workshops and has published poetry and articles on a variety of topics. In addition to being on the advisory board of San Diego Film Week, Susan is a member of SAG-AFTRA,  American Legion Post 43, Veterans in Media & Entertainment, San Diego Writers Ink  the San Diego Press Club, the Southern California Writers Association, the Army Nurse Corps Association.  Since 2017, she has been a Mentor in San Diego State University’s Aztec MentorProgram. April is National Poetry Month Please join us on April 18th at 2 pm when we present Poetry for the Dementia Journey, an AlzAuthors Live! Virtual Q&A featuring several of our poets. Subscribe to our website at alzauthors.com to receive notice of these events. After the Podcast Read Susan's AlzAuthors post: Susan J. Farese Reflects on Alzheimer’s and Nursing in Poetry Buy the book: Purchase Poetic Expressions in Nursing: Sharing the Caring Note: We are an Amazon Associate and may receive a small commission from books sales. Listen to Susan read Ann's Zest Ends, her tribute to her grandmother, on Audible Connect with Susan Website Facebook Business Page  Instagram @sjfcommo  Twitter @sjfcommo Contact: [email protected] *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
February 27, 2023

Angela Gentile Untangles Dementia Caregiver Solutions

Angela G. Gentile, MSW, RSW, is the author of two books in the AlzAuthors collection. She came to us in 2016 with her book, Caring for a Husband with Dementia: The Ultimate Survival Guide, inspired by her experience counseling eight amazing caregiving women. Her second book, Alzheimer’s, Dementia, & Memory Loss: A Helpful Guide for Caregivers, was recently published and was featured on our blog on February 10th. Her books have been referred to as "a first aid kit," for caregivers. A social worker specializing in geriatrics with more than 25 years' experience, Angela currently works as a consultant to assist families on a dementia journey using a variety of modalities. Her carer spans work in healthcare, private practice, long-term care, home care, and non-profits, and she has written seven books and countless articles, contributed to two books, and co-authored a mobile app for iOS called Dementia Caregiver Solutions. In 2021, she started up a little hobby business called Gentle Angel Treasures, which includes her handcrafted bracelets and jewelry made from genuine, semi-precious, crystal healing gemstones. Angela is married, has two adult children, and lives in Winnipeg, Manitoba. When she is not working or making jewelry, she enjoys writing, travelling, photography, and exploring what it means to age well. In this episode we discuss the value of working with a social worker one-on-one to navigate the myriad of issues related to dementia care, how language affects discussions around dementia, the upside to using humor in caregiving, and the realities of canine cognitive dysfunction, aka doggie dementia. After the Podcast Read Angela's AlzAuthors posts: add the second Caring for a Husband with Dementia: Self-Help Book Educates, Supports and Comforts Purchase Angela's books: Caring for a Husband with Dementia: The Ultimate Survival Guide Alzheimer’s, Dementia, & Memory Loss: A Helpful Guide for Caregivers Note: We are an Amazon Associate and may receive a small commission from book sales. Check out Dementia Caregiver Solutions, app Watch the video for Brent Hoag's song, "Sail On, which he wrote as a poem for his wife, Sally, who lives with Alzheimer’s. The words were put to music by Songfinch and are sung by Effee. Connect with Angela Website Facebook  Dementia Caregiver Solutions Support Group on Facebook Instagram  YouTube  *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
February 14, 2023

Annette Wick and Pauletta Hansel Untangle Creative Writing for Caregivers

This podcast is a duet with authors Annette Jannuzzi Wick and Pauletta Hansel, both of Cincinnati, Ohio, who are not only good friends but collaborators on writing workshops. Both have cared for mothers with dementia. Annette is a writer, speaker, and author of I’ll Have Some of Yours: What my mother taught me about dementia, cookies, music, the outside, and her life inside a care home, essays inspired by her dementia journey. Pauletta is a poet, essayist, and teacher who was Cincinnati’s first Poet Laureate (2016-2018). She is the author of Palindrome, a collection of poetry inspired by her personal caregiver experience. In this episode, we discuss their upcoming creative writing workshop for caregivers, beginning February 16, 2023, how digging deep through creative writing can be a therapeutic tool, and family dynamics in caregiving. After the Podcast Read Annette's AlzAuthors post: Writing Restores a Mother-Daughter Relationship in "I’ll Have Some of Yours" Read Pauletta's AlzAuthors post: Poetry Book on Dementia Caregiving: Palindrome by Pauletta Hansel Buy the books I’ll Have Some of Yours: What my mother taught me about dementia, cookies, music, the outside, and her life inside a care home (Three Arch Press) Palindrome (Dos Madres Press, 2017) Note: We are an Amazon Associate and may receive a small commission from books sales. Mentions Caregiver Writing Workshop Caregivers Writing Journal Storms of the Inland Sea Before the Diagnosis, Volume 2 Connect with Annette Website  (includes links to blogs) Find You in the Sun (blog) Instagram Facebook LinkedIn Twitter Medium Connect with Pauletta Website Facebook *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit our donor page. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network Member of the New York City Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
January 31, 2023

Tom and Karen Brenner Untangle Reaching the Unreachable

Tom and Karen Brenner have a passion for helping those with dementia and their families connect on a meaningful level. Both bring their professional experience to their work. Tom is a gerontologist who specializes in creating dementia care programs that are strength-based and positive leaning. Karen is a Montessori educator who co-founded a Montessori school for children who are deaf. They have worked together for the past twenty years researching and implementing the application of the Montessori Method to dementia care. After years of working directly with people living with dementia and their caregivers, they have published two books about their work: The Montessori Method for Connecting to People with Dementia, and You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care. Based in Chicago, they travel throughout the United States presenting workshops, training programs, and speaking engagements about their uplifting and positive approach to dementia care. In this episode, we discuss the beauty of being in the moment, how to change the conversation around dementia, and practical methods to reach people who may seem unreachable. After the Podcast Read the Brenner's AlzAuthors posts Tom and Karen Brenner write, You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care Tom and Karen Brenner Write 2nd Book: The Montessori Method for Connecting to People with Dementia  Purchase the books You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care The Montessori Method for Connecting to People with Dementia Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Tom & Karen Email: [email protected] Twitter: @BrennerPathways Resources Dr. Cameron Camp and the Center for Applied Research in Dementia *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
January 10, 2023

Tryn Rose Seley and Mary Crescenzo Untangle Dementia and the Arts

Welcome back to the podcast! This episode is a duet with two of our authors who happen to be years long friends brought together by their work in dementia care and the arts. Tryn Rose Seley and Mary Crescenzo are award winning authors and master teaching artists who have each worked for decades to empower caregivers and enhance the lives of those living with dementia. In this episode, we discuss the value of the creative arts in dementia care, how caregivers can use these modalities at home, and, for the first time, we have singing on the podcast! For more details on our guests, please see the show notes. Let's get started! About the Authors Tryn Rose Seley is an award-winning author and a master teaching artist. Through her experiences with the creative arts, she witnesses a profound transformation in people living with dementia, from lower energy to higher energy, and more happiness and satisfaction, which leads to more comfort and success during daily routines of care. This work inspired her to write a book to teach others how to bring out the best in each other, develop positive relationships, and build trust and effective interactions between care partners. This book, 15 Minutes of Fame: One Photo Does Wonders To Bring You Both Back to Solid Ground, won a Firebird Book Award in the “Inspiration” category in 2022. Mary Crescenzo is one of five 2022 Individual Winners of the Maude’s Awards for Innovation in Dementia Care. She is a multi-hyphenate artist working as an author, playwright, blogger, podcaster, singer, director, and actor. She is the author of The Planet Alzheimer’s Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own, and has written and produced the play, Planet A. As a teaching artist for decades with an intergenerational approach, her current focus is on social engagement art for older adults, including those with Alzheimer’s and Dementia. After the Podcast Read Tryn's AlzAuthors post: Find Advice for Dementia Caregiving in Book by Tryn Rose Seley: 15 Minutes of Fame Mary's AlzAuthors post: Mary Crescenzo Engages with Alzheimer’s Through the Arts  Purchase 15 Minutes of Fame: One Photo Does Wonders to Bring You Both Back to Solid Ground, by Tryn Rose Seley The Planet Alzheimer’s Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own, by Mary Crescenzo Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Tryn Website: Caregiverheart.com Email: [email protected] Facebook Linked In Connect with Mary Instagram Twitter Alzheimer's Speaks blog Podcast LinkedIn Dementia Map Facebook Website Clink to play excerpt: Planet A (originally titled, Piece of Mind) *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
January 3, 2023

BONUS EPISODE: Untangling Caregiver Reads From Every Genre

This episode is a replay of a recent panel discussion the management team did with Sue Evans of Kensington Senior Living. You'll hear us share our personal caregiving stories, and we'll explain why we chose to share them in our books. We'll also talk about the value of storytelling in caregiving and the many resources in our collection to support your journey. As this was a video event, you'll hear references to visuals you cannot see in a podcast. I recommend you queue up our website – AlzAuthors.com - and follow along during the virtual tour of the bookstore. Meet the Panelists Marianne Sciucco: Retired Innkeepers Struggle With Alzheimer’s in Blue Hydrangeas, a Love Story Jean Lee: Jean Lee Writes Her Family Memoir, Alzheimer’s Daughter, About Becoming The Caregiver To Both Parents  Vicki Tapia: Both parents had dementia, Vicki Tapia writes compelling memoir: Somebody Stole My Iron Ann Campanella: Inspiring Alzheimer’s Book: Motherhood: Lost and Found by Ann Campanella Susan Landeis: Susan Landeis Cares for Her mother with Lewy Body Dementia: In Search of Rainbows  Note: We are an Amazon Associate and may receive a small commission from book sales.  Kensington Senior Living *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. AlzAuthors.com Shop our Store    
December 12, 2022

AlzAuthors Untangles Dementia with Difficult People

In this AlzAuthors Live! Virtual Q&A Dementia with Difficult People (November 8, 2022) you'll meet four of our authors who either cared for a parent who had hurt them in the past, or dealt with siblings who made caregiving difficult, or both. A professional mediator is also on hand to offer advice on how to navigate a dementia journey with a difficult person. Potential discussion topics: Heeding the call to careReckoning with the pastSetting aside differencesProblems/issues encounteredForgivenessBuilding a support network without family Our Panelists Kimberly Best, RN, MA is the author of How to Live Forever, A Guide to Writing the Final Chapter of Your Life Story. She is a speaker and trainer on conflict management, transitions, and difficult decisions, including end of life issues. She is the owner of Best Conflict Solutions, focusing on Conflict Coaching, Civil, Family, Healthcare, and Elder Mediation in Franklin, Tennessee. Read Kim’s AlzAuthors post here. Malia Kline is the author of Sisterly Shove, a memoir that tells the story of when she and her sister took on their parents’ care despite their personal differences. She is the younger sister in the book. Read Malia’s AlzAuthors post here. Susan Landeis is a member of the AlzAuthors management team and Board of Directors. She is the author of In Search of Rainbows: a daughter’s story of loss, hope, and redemption where she writes about the gifts she found while caring for her mother with whom she’d had a tumultuous relationship. Read Susan’s AlzAuthors post here. Barbara Ella Milton, Jr. PhD, LCSW is the author of Heeding the Caregiver Call: The Story of Barbara Ella Milton, Sr. and Alzheimer’s Disease. This tells the tale of her caring for her estranged mother when she was diagnosed with Alzheimer’s disease while she herself endured treatment for bladder cancer. Read Barbara’s AlzAuthors post here. Vicki Tapia is a co-founder of AlzAuthors and a member of the management team and Board of Directors. She is the author of Somebody Stole My Iron: A family memoir of dementia, which chronicles her story of caring for both parents with dementia. She and her mother shared a difficult relationship, and Vicki found herself without the assistance of her only brother who chose to deny, rather than participate in, the situation. Read Vicki’s AlzAuthors post here. About the Podcast Our podcast brings you insightful, moving interviews with our authors who share their personal dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
December 6, 2022

Building a Legacy of Love with Christy Byrne

Welcome to the third and last episode in our 2022 Summer Book Series with HFC featuring Christy Byrne Yates, MS. Christy is an expert in navigating the challenges and opportunities in life, including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. A former school psychologist, she applied many of the skills used in her work in her approach to caring for both of her parents, who each had dementia, while raising her own two children. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation. This episode is a replay of our August 16th HFC Summer Book Series. We discuss the gifts bestowed when we plan for our end-of-life needs, surviving life when you’re in the middle of the caregiver sandwich, and the bittersweet decisions that must be made when juggling caring for ill or aging parents while raising kids. After the Podcast Read Christy's AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Purchase Building a Legacy of Love: Thriving in the Sandwich Generation on Amazon Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Christy Website with blog Twitter  Facebook Instagram LinkedIn *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
November 14, 2022

Laura Davis Untangles Caring for a Parent Who Betrayed You in the Past

Laura Davis and her mother had a troubled relationship that began in her teenage years. It seems Laura did not live up to her mother's expectations. They were often at war with each other and grew estranged over decades, finally coming to some sort of functional truce after Laura became a mother herself. When her mother was in her eighties and showing signs of cognitive decline, she surprised Laura by moving cross-country from her home in New Jersey to live near Laura and her family in California. Laura's memoir, The Burning Light of Two Stars, tells her dramatic story of becoming caregiver to her mother who had betrayed her in the past. Her inspiring book is not only raw and honest but filled with compassion and forgiveness. Laura is also the author of six other non-fiction books, including The Courage to Heal, Allies in Healing, I Thought We‘d Never Speak Again, and Becoming the Parent You Want to Be. Her groundbreaking books have been translated into 11 languages and sold 1.8 million copies. In addition to writing books that inspire, the work of Laura’s heart is to teach. For more than twenty years, she’s helped people find their voices, tell their stories, and hone their craft. Laura loves creating supportive, intimate writing communities online, in person, and internationally. You can learn about Laura’s books and workshops, read the first five chapters of her memoir, and receive a free e-book: Writing Through Courage: A 30-Day Practice at www.lauradavis.net In this episode, we discuss mending broken relationships, caregiving for a loved one with dementia who has caused you great pain, and the healing power of writing. After the podcast Read Laura’s AlzAuthors post: Laura Davis Shares How She and Her Mother Recovered from an Embattled Relationship Start reading The Burning Light of Two Stars now. Buy on Amazon. Note: We are an Amazon Associate and may receive a small commission from book sales. On Audible:  https://www.audible.com/pd/The-Burning-Light-of-Two-Stars-Audiobook/B09G8WJQP7 And on Libro.fm for independent stores: https://libro.fm/audiobooks/9781950144471  Independent Bookstores: Get Signed Copies Through Bookshop Santa Cruz: https://www.bookshopsantacruz.com/burning-light-two-stars-get-it-signed) Bookshop.org: https://bookshop.org/books/the-burning-light-of-two-stars-a-mother-daughter-story-9781954854161/9781954854161 Laura recommends: Moving a Parent with Memory Loss by Laurie White and Beth Spencer Connect with Laura Davis Website Facebook @LauraDavis&TheWritersJourney Instagram @laurasaridavis *** About the Podcast Our podcast brings you up close and personal with authors who share their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
November 1, 2022

Surfing the Waves of Alzheimer’s with Renee Harmon, MD

Welcome to the second in our 2022 Summer Book Series with HFC. In this episode, Renée Harmon, MD, author of Surfing the Waves of Alzheimer's shares her story of caring for her husband, Harvey, who had younger-onset Alzheimer's. This interview was recorded on July 12th. Christy Byrne Yates, MA moderated. We discuss the important of acknowledging your vulnerability while caregiving, asking for and accepting help, why a good support group can make all the difference, and how to rewrite your script when dementia enters your story.    About Renée Harmon, MD Renée Brown Harmon, MD, is a retired family physician in Birmingham, Alabama. After eighteen years of sharing a thriving medical practice, her husband, Harvey, was forced to retire after a diagnosis of younger-onset Alzheimer’s disease. Dr. Harmon cared for her husband for the eight years of his illness while maintaining their medical practice and rearing their two teenage daughters. The challenges of caregiving while working and parenting full-time led her to a deep appreciation for all caregivers. Connect with Renée Website Instagram Twitter Facebook About Christy Byrne Yates, MA Christy is the mother of two – now adult – children. She is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. She incorporates meditation, mindfulness practices and Emotional Freedom Techniques (EFT) into her work along with other evidence-based practices to support growth, goal achievement and a pathway to living your best life now. In California she is a Licensed Educational Psychologist (LEP), an author, speaker, and coach. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation available on Amazon. After the Podcast Read Renee’s AlzAuthors post: Renée Harmon, MD Teaches Caregivers Through Memoir of Spouse’s Early Onset Alzheimer’s Purchase Surfing the Waves on Amazon Note: We are an Amazon Associate and may receive a small commission from book sales. About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
October 18, 2022

Dementia Care Around the World, Part One

In this AlzAuthors Live! Virtual Q&A we explore the similarities and differences caregivers and those living with dementia encounter as they seek care and search for solutions to the many questions and problems a dementia diagnosis brings. The authors featured in this event represent the United States, Canada, and Argentina. We hope their stories will inspire and empower you on your own dementia journey. Topics included: • obtaining a diagnosis • accessing care • community resources • financial concerns • insurance considerations • home care, assisted living, long-term care • stigma surrounding a dementia diagnosis This discussion was recorded on September 13th, 2022. Note: This event was originally scheduled with three of our authors - Cindy Weinstein (US), Donna Thomson (Canada), and Katya De Luisa (Costa Rica) - but heavy rainstorms prevented Donna and Katya from participating, although we did get to hear from Donna briefly. Both Donna and Katya have been on the podcast in the past. You can find their episodes here: https://alzauthors.com/podcast . Thankfully, many of our participants shared their experiences and we had a well-rounded discussion. The speakers: Marianne Sciucco, New York, US: https://alzauthors.com/2018/05/02/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/ Cindy Weinstein, California, US: https://alzauthors.com/2022/01/18/cindy-weinstein-finding-right-words/ Donna Thomson, Canada: https://alzauthors.com/2020/02/04/unexpected-journey-caring-thomson-white/ Ethelle Lord, Canada: https://innocareofdementia.com/news/ethelle-lord-the-warrior-of-dementia-who-is-she/ Virginia Naeve, California, US: https://anewpathformom.com/ Dennis Dulniak, Florida, US: https://www.nanasbooks.org/ Luis Cordero, Argentina and Chicago: https://www.davidson.edu/news/2022/04/19/watson-fellows-ready-tackle-questions-health-and-well-being-around-world Vicki Tapia, Montana, US: https://alzauthors.com/2018/05/15/meet-vicki-tapia-alzauthors-admin-and-author-of-somebody-stole-my-iron/ We hope to revisit this subject with authors from other countries in the future, so please keep in touch with us at https://alzauthors.com. You can follow us on social media - Facebook, Twitter, Instagram, and LinkedIn - to stay updated on events, new authors, books, and resources. Remember: You are not alone. One can sing a lonely song, but we chose to form a choir, and create harmony. About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
October 4, 2022

Susie Singer Carter Untangles Alzheimer’s in Film and Podcasts

Susie Singer Carter is a Los Angeles-based creative specializing in film and podcasting. She’s a writer, director, producer, and actress. She’s also an advocate for dementia caregivers having been on a journey with her own mother for 16 years. This inspired her to write, direct and produce the 2018 Oscar Qualified short film, “My Mom and the Girl,” starring Valerie Harper in her final performance. She’s also the host and producer of the award-winning podcast “Love Conquers Alz,” launched in December 2019, which received Best Podcast 2020 from the New Media Film Festival for Episode 6 featuring Leeza Gibbons. Susie is proud to have served as one of the faces seen in several awareness campaigns for Alzheimer’s Los Angeles, where she also trained to be a volunteer speaker. Unfortunately, Susie's beloved mother Norma Pecora passed away after we recorded this interview. In this episode, we discuss her long, exhausting, enriching dementia journey, how it made her a “better person,” and the idea that Alzheimer’s is sort of like The Curious Case of Benjamin Button. After the Podcast: Please leave a review and share this podcast with a caregiver or loved one on a dementia journey.  Read Susie’s AlzAuthors post Watch My Mom and the Girl Trailer: Vimeo YouTube Complete film: Amazon Apple TV Listen to or watch “Love Conquers Alz” Connect with Susie Singer Carter: IMDB WEBSITE MY MOM AND THE GIRL FACEBOOK TWITTER INSTAGRAM LINKEDIN WIKIPEDIA LOVE CONQUERS ALZ LINKS I LOVE LUCIFER LINKS Other references The Curious Case of Benjamin Button Dopesick *** About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
September 20, 2022

AlzAuthors Untangles A Collection of Stories to Support Your Caregiving Journey

The podcast you are about to listen to is a recording of an event we did with Kensington Senior Living in June, 2022. "On the Same Page this Summer: A Collection of Stories to Support You on Your Caregiving Journey" features four authors discussing their personal dementia experiences. You'll hear from a young woman whose mother was diagnosed with early onset Alzheimer's when she was just 25; a professional in dementia care with strategies to help you manage your own situation; a mom in the "sandwich generation" who shares how she balanced care between her school-age children and her parents with dementia; and a psychologist who has investigated and encountered "shared death experiences." This is an insightful, inspiring episode and you're sure to walk away with greater confidence and knowledge to guide your own dementia journey. Please join us for our next live event on September 13th at 2 pm eastern time when we discuss Dementia Care Around the World with three authors representing the United States, Canada, and Costa Rica. For more details, visit our website. Watch this panel presentation on YouTube After the Podcast Learn more about these authors: Christy Byrne Yates Christy Yates Helps Caregivers Raising Children Ease the Squeeze AlzAuthors and HFC Present Summer Book Series Podcast: Christy Byrne Yates, MS Untangles Dementia Care and the Sandwich Generation Lauren Dykovitz Millennial Caregiver Writes About Mom With Early Onset Alzheimer’s Lauren Dykovitz Shares Story of Mother’s Final Dementia Days Three AlzAuthors Featured in Chicken Soup for Soul Book Podcast:  Untangling Life as a Millennial Caregiver with Lauren Dykovitz Tammy Anastasia Tami Anastasia Comes Full Circle with the Dementia Journey William Peters SharedCrossing.com Note: We are an Amazon Associate and may receive a small commission from book sales. Visit Kensington Senior Living, a premier senior living operator and developer bringing the highest quality senior care to America’s most sought-after locations. *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Also on UK Health Radio and The NYC Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening.  AlzAuthors.com Shop our Store        
September 7, 2022

Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer’s Disease

Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer’s. His is a unique perspective once the doctor diagnosing other people’s cognitive issues and now the patient facing his own. Alzheimer’s disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist’s Personal Battle Against Alzheimer’s Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early. In this episode, we discuss the value of testing for the Alzheimer’s gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey. After the Podcast Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO Note: We are an Amazon Associate and may receive a small commission from book sales. Other authors/books mentioned: Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer’s by Peter Berry and Deb Bunt Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know Tracey Shorthouse’s Poetry Provides a Glimpse into Early Onset Alzheimer’s Laurette Klier Creates Nana’s Books: Nostalgic Picture Books for Seniors Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again Greg O’Brien, On Pluto: Inside the Mind of Alzheimer’s Greg O’Brien, Psychology Today articles Columbia Kindred Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end) Connect with Dr. Gibbs Website *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
August 24, 2022

Patti Callahan Henry Untangles What it Means to Remember

What are memories? Do our memories make us who we are? What happens to “us” when our memory fails, and cognitive decline ensues? I discussed these profound questions with one of my favorite authors, Patti Callahan Henry. She is a New York Times and USA Today bestselling author of sixteen novels, a podcast host, and a co-creator and host of the popular show, Friends & Fiction. Prior to becoming an author, she was a Pediatric Clinical Nurse Specialist with a fascination for memory and focused on neurology and brain trauma. Her novel, The Favorite Daughter, joined our collection of carefully vetted books in November 2019.  “Memory,” she says, “haunts all my work but takes center stage in this one. Who do we become without those memories?”  Patti is the recipient of The Christy Award 2019 Winner “Book of the Year”; The Harper Lee Distinguished Writer of the Year for 2020, and the Alabama Library Association Book of the Year for 2019. She is also a contributor to the monthly life lesson essay column for Parade Magazine. A full-time author and mother of three, she now resides in both Mountain Brook, Alabama, and Bluffton, South Carolina with her husband. In this podcast, we explore how our memories define us, if they do, the landscape of memory, and the concept of “ambiguous loss.” After the Podcast Read Patti’s AlzAuthors post: Memory is at the Heart of Patti Callahan Henry’s The Favorite Daughter ​Purchase The Favorite Daughter on Amazon. https://amzn.to/2D9TDnQ Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Patti Website Facebook Instagram Twitter Watch Friends & Fiction on Wednesdays at 7 pm, EST *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
August 9, 2022

HFC Summer Series with AlzAuthors and Ruth Stevens, Author of Stage Seven, a Novel

Welcome to the first in our 2022 Summer Series with HFC. We kicked off this season on June 14th with Ruth Stevens’ novel, Stage Seven. Christy Byrne Yates moderated. About Ruth Stevens Ruth Stevens believes in stories that make you laugh and cry. She says, “I like to write about the topics that worry me the most. Since I worry about a great many things, there is never a shortage of material. A resident of Torrance, California, Ruth is a former public relations professional (in New York and Los Angeles) and proud member of the Dramatists Guild of America and Women’s Fiction Writers Association. Ruth has been writing professionally for her entire career—including hundreds of articles for magazines, newspapers, and journals—but creative writing is her passion. She took up this endeavor full-time after quitting her day job in 2017. At last count, she’s written two plays and three novels. In her spare time, she enjoys travel, hiking, wine tasting, hip hop, Broadway musicals, movies, leading a book club, and visiting her grandsons in Manhattan. Stage Seven is her first novel. About Christy Byrne Yates Christy is the mother of two – now adult – children. She is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. She incorporates meditation, mindfulness practices and Emotional Freedom Techniques (EFT) into her work along with other evidence-based practices to support growth, goal achievement and a pathway to living your best life now. In California she is a Licensed Educational Psychologist (LEP), an author, speaker, and coach. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation available on Amazon. After the Podcast Read Ruth’s AlzAuthors post: Ruth Stevens Pens Dementia Tale as a Play and a Novel: Stage Seven Purchase Stage Seven on Amazon Note: We are an Amazon Associate and may receive a small commission from books sales. Book Mentions The Forgetting, David Shenk, available on Amazon Connect with Ruth Website Facebook Instagram *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
July 13, 2022

Four Authors Untangle When Dad Has Dementia

Caring for a father with a dementia diagnosis brings to caregiving its own special set of circumstances and considerations. In this AlzAuthors Live! Virtual Q&A we explore these changes and challenges with four of our authors. Their stories will inspire and empower you on your own dementia journey with your dad. This free virtual event was held on Tuesday, June 7th, 2022. The video replay is available on our YouTube Channel. Meet the Panelists Andrea Couture: author of Embracing What Remains, a memoir Andrea recently lost her beloved father, a renowned surgeon, to Alzheimer’s. She wrote about her family’s caregiving journey and is the first of our authors to write about caregiving during COVID. Irene Olson: author of Requiem for the Status Quo, a novel Irene survived being an Alzheimer’s family caregiver twice: to her father and her sister-in law. Her goal in writing Requiem was to encourage and educate others who might be called upon to take on the role of family caregiver. Patti Davis: author of The Long Goodbye and Floating in the Deep End: How Caregivers Can See Beyond Alzheimer’s, memoirs and caregiving guide Patti is the daughter of President Ronald Reagan, who opened the world’s eyes to the disease when he disclosed his own diagnosis in his Letter to America in 1994. Tanya Ward Goodman, author of Leaving Tinkertown, a memoir Tanya grew up in the mountains of New Mexico in a roadside attraction built by her father. Throughout his Alzheimer’s journey she documented their experience with photographs and journaling. After the Podcast Other books mentioned: Tami Anastasia, Essential Strategies for the Dementia Caregiver Dave Meurer, New Every Day Joy Johnston, The Reluctant Caregiver Note: We are an Amazon Associate and may receive a small commission from books sales. *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
June 30, 2022

Martin Schreiber Untangles His Two Elaines: Caring for a Wife with Alzheimer's

“If there’s one thing worse than Alzheimer’s, it’s ignorance of the disease,” says Martin Schreiber, author of My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, where he tells the story of his caregiving journey with his wife, who recently succumbed to her illness. Written with Milwaukee author Cathy Breitenbucher, the book was recognized by Caring.com as one of its Best Caregiving Books of 2017. Initially self-published, it was recently published by Harper Horizon. Martin is the former governor of Wisconsin and an award-winning crusader for Alzheimer’s caregivers and persons with dementia. His work on behalf of older citizens dates back decades to his 16 years in public service as a state senator, lieutenant governor and governor where he focused on improved quality for nursing home care and development of the in-home Community Care Organization. He went on to become a successful insurance executive and publisher before he started his own government relations firm in 1988. Prior to writing My Two Elaines – and while he still cared for his wife at home – Martin helped the Alzheimer’s Association launch Operation: Stronger Together. The multi-year awareness program initiated in 2015 has helped the Southeastern Wisconsin Chapter connect record numbers of families to education and resources that are vital to successful caregiving. He also collaborated with Wisconsin’s state government and business groups to help create the Dementia-Friendly Employers Toolkit, which is used by human resources departments and employee assistance programs. Such initiatives have led to Schreiber being recognized with awards from the Alzheimer’s Association and other organizations. Martin attended Valparaiso University and the University of Wisconsin–Milwaukee, and earned a doctorate of law from Marquette University. He and Elaine are the parents of four children, Kathryn Lyon, Martin Schreiber, Kristine Haas, and Matt Schreiber. They have 13 grandchildren and five great-grandchildren. In this episode, we discuss the all-around ignorance surrounding dementia, Marty’s special message to men caring for their wives, the value of therapeutic fibbing and redirection, and the realities of moving a spouse into assisted living. *** After the Podcast Connect with Martin Schreiber Website Facebook YouTube Read Martin’s AlzAuthors post: Purchase My Two Elaines on Amazon. Note: We are an Amazon Associate and may receive a small commission from books sales. *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
June 27, 2022

AlzAuthors Untangles Custom Caregiver Collections

Join the AlzAuthors team as we discuss the launch of our latest initiative, Custom Caregiver Collections. Managers Jean Lee, a co-founder, Ann Campanella, and Susan Landeis, and author Paulette Sharkey join host Marianne Sciucco to discuss the beautifully crafted table top wooden bookshelves holding a collection of approximately 15 to 18 books about Alzheimer’s and dementia, to support our goal of providing real books to real people in real places. With more than 300 quality, carefully vetted books written from personal dementia experience in the AlzAuthors Bookstore, we are perfectly positioned to offer customized collections of memoirs, novels, caregiving guides, children’s books and more.  Custom Caregiver Collections are suited for Senior Care Communities, doctors’ offices, in-home care organizations, senior centers, memory cafes and professional or personal libraries. When placed together, these books take on a vibrant life of their own. Each book, each journey, represents years, if not decades, of shared vulnerability, revealed as a beautiful garden of healing for others. Our gratitude goes out to our generous donor, Paulette Sharkey, who covered the costs of creating our first ten Custom Caregiver Collections. These collections serve as the prototype available to communities across the country. We are so thankful! The first Custom Caregiver Collections have been presented to: ·      Four locations in Ohio ·      Two locations in North Carolina ·      Michigan ·      Minnesota ·      Alabama ·      Washington State ·      California  For more information visit https://alzauthors.com/ccc/ Meet the guests Ann Campanella, author of Motherhood: Lost and Found Jean Lee, author of Alzheimer’s Daughter Susan Landeis, author of In Search of Rainbows and Optimal Caregiving Paulette Sharkey, author of A Doll for Grandma Marianne Sciucco, author of Blue Hydrangeas, an Alzheimer's love story *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
June 20, 2022

Chris MacLellan Untangles The Whole Care Network

Chris MacLellan is well-known in caregiving circles. You might know him as The Bow Tie Guy – because, he says, “Wearing a bow tie is like wearing two smiles." Or you might know him from his caregiving blog, The Purple Jacket, where he chronicled his and his partner Richard’s journey with esophageal cancer. Or you might know him as the founder of The Whole Care Network, featuring a variety of podcasts, blogs and videos to provide caregivers with much needed resources. In fact, Chris is the reason this podcast exists! A few years back, he approached our management team with the idea of doing a podcast. After much thought we realized how a podcast could further our mission and here we are today, more than 60 episodes in. Thanks for the suggestion, Chris! Several other of our authors are also featured on The Whole Care Network: Rosanne Corcoran’s Daughterhood the Podcast; Elizabeth Miller’s Happy Healthy Caregiver; Susie Singer Carters’ Love Conquers Alz; and Matthew Estrada’s Peace with Dementia Podcast. Chris is the author of "What's The Deal with Caregiving?" a powerful and compelling book written from his own experience that informs caregivers about how to deal with the challenges they will encounter, regardless of sexual orientation, family situation, or age. The book is part memoir/part how-to, as he shares his and Richard’s stories and experiences from their caregiving journey. He and Richard were fortunate to have their story chronicled in a 2015 Pulitzer Prize-nominated 3-part story “In Sickness and In Health: A Couple’s Final Journey” which told their journey of caregiving, the challenges LGBT partners have in dealing with the medical and legal system, and the love and joy his partner Richard's last years had on their relationship. Their story has been read by over 500,000 people world-wide since it was published in April of 2014.  In this episode we discuss the value storytelling podcasts bring to caregiving, walking into caregiving with eyes wide open, and the beauty of the extended family of caregiving. After the Podcast Read What's The Deal with Caregiving?" on Amazon. Note: We are an Amazon Associate and may receive a small commission from books sales. Read “Our Story - In Sickness and in Health: A Couple's Final Journey” ·      In Sickness and in Health: A Couple's Final Journey http://interactive.sun-sentinel.com/lgbt-dying-couple/ ·      Life After Death: A Couples Story Sparks Change https://www.sun-sentinel.com/health/fl-lgbt-caregiver-follow-20140615-story.html ·      Saying Goodbye: Navigating the Change of Moving On https://www.sun-sentinel.com/health/fl-lgbt-caregiver-goodbye-20140925-story.html Watch When Dad Has Dementia on YouTube Connect with Chris The Whole Care Network LinkedIn *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
June 13, 2022

Frank Silverstein Untangles His Parents' Dementia Story in a Short FIlm

When his parents began to show early signs of dementia, independent documentary filmmaker Frank Silverstein captured their story with the camera on his iPhone. This resulted in a short film he titled Lousy: Love in the Time of Dementia. The film has gone on to receive positive reviews, was screened at London’s Global Health Film Festival and the New Haven Film Festival, as well as in support groups and classrooms for nursing, social work, and medical students.  Frank was a career network and cable TV producer at ABC-News 20/20, CNN, CBS News, and MSNBC. His stories have focused on the struggles and passions of people in the news and behind the scenes. He also produced several independent documentaries, including Canal Street River to River, which premiered on New York’s WNYC. He co-authored a book about entrepreneurship called “It’s Your Business,” published by Hachette. Currently, he is a consultant helping entrepreneurs and other professionals to find their voice and to tell their stories in video, text and still images for broadcast and social media. In this episode, we discuss caring for two parents with dementia at the same time, supporting your caregiver sibling, and the value of support groups.
June 6, 2022

AlzAuthors Untangles Seven Years of Sharing Dementia Stories

AlzAuthors Untangles 7 Years of Sharing Dementia Stories As we celebrate seven years of sharing dementia stories written from personal experience to support others, members of our management team reflect on where we've been, where we're going, and what AlzAuthors means to each of us on a deeply personal level. We are extremely proud of our accomplishments, in awe that we've managed to keep what was initially a one-month project chugging along for seven years, and inspired by the ideas, partnerships, and opportunities that motivate and inspire us to continue this mission. We are grateful to you, our authors, friends, and followers, who make all of it not only possible but worth every minute. Thank you for joining us on this journey. Please stick around to see what's next. AFTER THE PODCAST Read our AlzAuthors Posts Marianne Sciucco Jean Lee Vicki Tapia Ann Campanella Kathryn Harrison Susan Landeis Rosanne Corcoran Note: We are an Amazon Associate and may receive a small commission from book sales. Watch our Virtual Q&A Replays Everything You’ve Always Wanted to Know About Living with Dementia Love Stories: Keeping Romance Alive in Dementia Care Register for When Dad Has Dementia, June 7, 2022 Check out: Traveling Libraries Helpful Websites Meet our Partners Paulette Sharkey Debra Tann, Ed. D Judy Cornish, The Dawn Method The Whole Care Network The Health Podcast Network HFC Daughterhood Kensington Senior Living Caregiver Club Connect with AlzAuthors AlzAuthors.com Facebook: Alzheimer’s and Dementia Resources Instagram Twitter LinkedIn Pinterest YouTube Amazon  About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
May 31, 2022

Patti Davis Untangles Lessons Learned While Floating in Dementia's Deep End

Patti Davis is an actress, author, activist, advocate, and daughter of a United States president. She has written extensively about her father, Ronald Reagan, and his Alzheimer’s disease in both The Long Goodbye and now Floating in the Deep End. In 2011, she created a support group program for caregivers of people with dementia, called Beyond Alzheimer's. Floating in the Deep End is an extension of that support group — a handbook for those on the perilous and sorrowful journey of losing a loved one to this mysterious disease. It is also part memoir, as many of the memories of her own dementia journey have taken on a different resonance with time and reflection. She hopes that caregivers and readers find guidance and comfort in this book. In this episode we discuss both the challenges and comforts of living your Alzheimer’s journey in full view of the world, her approach to building caregiver support groups, and the lessons and gifts that can be found in dementia care. Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. After the podcast Read Patti’s AlzAuthors post: Patti Davis Pens Heartfelt Memoir/Caregiver Guide, Floating in The Deep End Start reading Floating in the Deep End now.  Purchase The Long Goodbye Note: These links lead to Amazon.com. We are an Amazon Associate and may receive a small commission from book sales. Discussion Points Glen Campbell Tony Bennet 60 Minutes Connect with Patti Davis Website Twitter Facebook *** About the Podcast Our podcast brings you the voices of authors who have lived the dementia journey and chosen to share their stories. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
May 2, 2022

Christy Byrne Yates, MS Untangles Dementia Care and the Sandwich Generation

Support AlzAuthors Shop our store Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Christy Byrne Yates, MS Christy Byrne Yates is the author of Building a Legacy of Love: Thriving in the Sandwich Generation, part-memoir, part caregiver guide, written from her experience caring for two parents with dementia. In addition to being an author, she is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life’s challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents. In this episode, we discuss what it means to be in the Sandwich Generation, how to talk to family about end-of-life issues, and the value of connections for both caregivers and those living with dementia. After the podcast Read Christy’s AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Start reading Building a Legacy of Love: Thriving in the Sandwich Generation Purchase on Amazon now. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Christy Byrne Yates Website and blog Twitter  Facebook Instagram  LinkedIn YouTub *** About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 25, 2022

Lynda Everman Untangles the Quest to Create the Alzheimer's Stamp

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Lynda Everman Lynda Everman has spent most of her adult life as a caregiver: for her mom who was paralyzed by a stroke, her dad with vascular dementia, and her late husband with Alzheimer’s disease. These experiences inspired her advocacy for increased Alzheimer's funding for care and a cure. She and fellow advocate Kathy Siggins conducted a multi-year national campaign for a semipostal (awareness and fundraising) stamp for Alzheimer's research. As a result of their efforts, the first ever Alzheimer’s Disease Research Semipostal Stamp was released by the US Postal Service in November 2017 and may be purchased online at As of the end of January 2022, it has raised over $1.2 million for NIH funded research. Lynda is a founding member of three national networks under the umbrella of Us Against Alzheimer’s and served as founder and convener of ClergyAgainstAlzheimer's. She is an editor and contributor to Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers. She and her husband, Dr. Don Wendorf, have served as editors for The Leader’s Guide for Seasons of Caring and Treasure for Alzheimer’s, both written by Dr. Richard Morgan. They served as Senior Editors for Dementia-friendly Worship: A Multi-faith Handbook for Chaplains, Clergy and Faith Communities, and co-authored Stolen Memories: An Alzheimer’s Stole Ministry and Tallit Initiative. Lynda has been recognized by Maria Shriver as a Woman of Influence in the The Women's Alzheimer's Movement (WAM)  and included on her “Big Wall of Empowerment.” In this episode, we discuss her 30-year journey as an Alzheimer’s caregiver and advocate, and how even the busiest of caregivers can help find a cure for Alzheimer’s simply by buying stamps.  After the podcast: Read Lynda’s AlzAuthors posts: Lynda Everman, Editor Of Seasons of Caregiving: Meditations for Alzheimer’s and Dementia Caregivers Stolen Memories: An Alzheimer’s Stole Ministry and Tallit Initiative Welcome Back, Lynda Everman and Don Wendorf With Dementia-Friendly Worship Read Lynda’s books: Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers and the companion Leader’s Guide Leader's Guide for Seasons of Caring: Meditations for Alzheimer's and Dementia Caregivers  Dementia Friendly Worship Stolen Memories: An Alzheimer’s Stole Ministry & Tallit Initiative Note: We are an Amazon Associate and may receive a small commission from book sales. Purchase the Alzheimer’s Stamp Connect with Lynda Everman Facebook Twitter Other helpful sites BeBrainPowerful.org Due West UMC's website, "Loving Through Dementia" Scroll down to #9 on the Action Plan to see photos and read about the Alzheimer's Stole Ministry & Tallit initiative: *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 18, 2022

Laurette Klier Untangles How and Why She Created Books for People Living With Dementia

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Laurette Klier Laurette Klier believes ENGAGEMENT + NOSTALGIA = JOY. She is the author of Nana’s Books, heart-centered pairings of nostalgic literature and art, modified to meet the needs of seniors living with brain changes. Each book is carefully designed to bring you and your loved ones renewed connection, comfort, and joy. The books were inspired by her mother-in-law, Nana Mary, who loved big and passed with Lewy Body Dementia in 2021. Laurette’s goal is to spearhead a national movement to create libraries within libraries of quality multimedia, multi-sensory engagement materials for people living with dementia. With a background in creating literacy environments for students in urban and priority schools, this work came naturally to her as she believes that people are best engaged via a holistic, literature, and arts-based approach. Now, as ever, she is focused on underserved communities and inclusion.  Nana's Books are the winner of a 2021 MAUDE'S AWARD for Innovation in Dementia Care and are endorsed by ALZ SPEAKS, ALZ AUTHORS and the Neurocognitive Community for their utility in person-centered care. In addition to creating these beautiful books, Laurette is also working on the Essential Caregivers Act of 2021 to ensure care partners unrestricted access to their loved ones in long term care, as COVID lockdowns and lack of uniform federal protections continue to devastate seniors and their families. Learn more here. In this episode, we discuss, how books and reading can provide meaningful interactions between family members and those living with dementia, the need that drove her to create these books, and how dementia changed her relationship with her mother-in-law for the better. Laurette Klier Creates Nana’s Books: Nostalgic Picture Books for Seniors Preview Laurette’s books at Issuu.com Purchase Nana’s Books now! A sampling of titles: ·     Nostalgic Picture Book of Irish Wit & Wisdom: Large Format for People with Alzheimer's / Dementia ·     Love Poems for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Jewish Proverbs for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Nostalgic Picture Book of Babies ·     Fine Art Picture Book; Mother & Child: Gift Book for People with Dementia/ Alzheimer's ·     The Soul Remembers: Memory Care Spirituals ·     Nostalgic Picture Book of Living Dolls ·     Nostalgic Picture Book of Prayer Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Laurette Klier Website Instagram Twitter LinkedIn About the Untangling Alzheimer’s and Dementia Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 11, 2022

Anthony Copeland-Parker Untangles Life as a Nomad and Early Onset Alzheimer's

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Tony Copeland-Parker When Anthony Copeland-Parker and his partner Catherine were in their 50’s, they found out that she had early-onset Alzheimer’s and he needed open heart-valve replacement surgery. They both had a history as endurance athletes, so, motivated by a love for running and travel, they sold their home, retired from their jobs, and became nomads, running marathons and half-marathons all over the world. They’ve spent the last 7 years flying, running, walking, sailing, and sightseeing from Atlanta to Antarctica, finding joy in seizing each day and following their passions while trying to outrun Alzheimer’s. Tony was a professional pilot/manager for 37 years, the last 27 with United Parcel Service. His last job had him managing pilots and flying B757/767-type aircraft all over the world. Since then, he and Catherine, whom he tenderly calls Cat, have traveled to 82 different countries. They have run at least a half-marathon in 35 countries and on all seven continents. Tony shares his story on his blog, Running with Cat.com and in his book, Running All over the World: Our Race Against Early Onset Alzheimer’s. In this episode we talk about the choice he made to keep an active lifestyle traveling the world instead of following the much often recommended advice to provide Catherine with a stable schedule and environment, how Catherine responds to having a new adventure in a new place every few days, traveling with a loved one with dementia, and how he’s had to come to terms with the fact that one day their travels will come to a natural end. AlzAuthors co-founder and manager Jean Lee, author of Alzheimer’s Daughter, joins us. After the podcast Read Tony’s AlzAuthors post: Anthony Copeland-Parker and Partner Catherine Become Marathon Nomads Start reading Running All over the World: Our Race Against Early Onset Alzheimer’s, now! Note: We are an Amazon Associate and may receive a small commission from book sales. Tony appeared in our Virtual Q&A Love Stories: Keeping Romance Alive in Dementia Care Watch on YouTube Listen to the Podcast Connect with Tony Website and blog Facebook Twitter *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
April 4, 2022

Lori La Bey Untangles How She Built a Media Platform for Caregivers

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Lori La Bey Lori La Bey is known as an international visionary when it comes to dementia care. Just ask Oprah, Maria Shriver, or Dr. Oz who have all recognized her for her work. Prior to becoming the founder of an international advocacy group and media outlet for dementia, she cared for her own mother who lived with the condition for 30 years. Confounded by the lack of resources available to caregivers, she decided there had to be a better way, and launched Alzheimer’s Speaks, providing a variety of platforms to connect people to services, products, and tools. Lori’s goal is to raise the voices of all whose lives are touched by dementia. Her platform includes the Alzheimer’s Speaks Radio show, Dementia Chats, and Dementia Arts, and she is the co-founder of Dementia Map, a global directory that provides caregivers with resources to build their own roadmaps. She is a keynote speaker, trainer, and consultant, and is considered a Maria Shriver Architect of Change. Follow Lori as she shifts dementia care from crisis to comfort around the world. In this episode, we discuss what she learned through decades of caregiving, how she built her amazing global platform, the choice we all face when confronted with a dementia diagnosis, and the benefit of looking at dementia through the lens of safe, happy, and pain-free. Read Lori’s AlzAuthors Post: Lori LaBey, Founder of Alzheimer’s Speaks, Helps AlzAuthors Celebrate 100 Posts Read the rest of Lori’s essay “A Caregiver’s Nightmare: Mirror Image” in Life Choices: Putting the Pieces Together Free Download: Alzheimer’s Speaks Communication Tips PDF Connect with Lori Radio Show Blog Facebook LinkedIn YouTube Twitter Instagram *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
March 28, 2022

REPLAY: Gincy Heins Untangles Living with a Spouse's Mild Cognitive Impairment

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Gincy Heins Gincy Heins became caregiver to her husband at the age of 49 when he was diagnosed with Mild Cognitive Impairment, also known as MCI, a neurological condition that causes a slight but noticeable and measurable decline in cognitive abilities. Memory and thinking skills are primarily affected, and there is a very real possibility of future Alzheimer’s or another dementia. At the time, he was just 55. At first disbelieving that such a diagnosis could befall them so early in life, Gincy set out to learn all she could about the condition and sought support through her local Alzheimer’s Association. She soon became the expert on her husband’s diagnosis and began advocacy work to help others on the dementia journey. This included creating and publishing the book Before the Diagnosis: Stories of Life and Love Before Dementia and becoming one of the co-authors of the series 365 Caregiving Tips: Practical Tips from Everyday Caregivers. She's a member of the AlzAuthors management team as an acquisitions editor and finance consultant. Gincy is an advocate for a full, enriched life and keeps busy with a variety of activities and interests. She teaches classes for older adults at a community college, is a Senior Commissioner for Cypress, California, speaks at conferences and on panel discussions, and volunteers at her public library and with Alzheimer’s Orange County. Gincy is a vibrant, uplifting speaker with a hopeful message and a smart approach to life with cognitive difficulties. In this episode we discuss how she and her husband grew to accept a diagnosis that typically affects older people, and the power of positivity and active engagement in the face of MCI. After the podcast Watch now! Gincy appeared in AlzAuthorsLive! Love Stories: Keeping Romance Alive in Dementia Care Read Gincy’s AlzAuthors posts: Anthology, Before the Diagnosis, from Gincy Heins: Captures Lives Prior to Dementia 365 Caregiving Tips Series Offers Helpful Information for Carers Everywhere Start reading Gincy's Books: Before the Diagnosis: Stories of Life and Love Before Dementia Before the Diagnosis: More Stories of Life and Love Before Dementia 365 Caregiving Tips: Practical Tips from Everyday Caregiver Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Gincy Instagram: @gincyheins Twitter: @GincyHeins Facebook: @G-j Heins About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
March 21, 2022

REPLAY: Peter Berry and Deb Bunt Untangle How to Live Well With Dementia

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * This podcast is a replay of one that appeared last year with our friends Peter Berry and Deb Bunt. They’ve written a new book, a volume of poetry, musings, that Peter sent to Deb via text messages at the end of long days living with dementia. She transcribed his words and lovingly put them in a book called Walk With Me: Musings Through The Dementia Fog. Its pages are exquisitely illustrated with the work of Daniel Ruffles, a talented friend and photographer who captures the beauty of the Suffolk landscape and coastal areas where Peter and Deb live. In celebration of this vital new addition to dementia literature, we're replaying their podcast interview. After the podcast, you can read more about the book on our website, AlzAuthors.com. Enjoy! About Peter and Deb Peter Berry was diagnosed with early onset Alzheimer’s at age 50 and took an early retirement from his job working in the family’s timber business. After the devastating diagnosis, he became depressed but, being a ‘glass half full’ personality, battled through his depression and focused on his lifelong passion for cycling. He has used this passion to raise awareness of the condition, particularly in younger people. Peter’s whole philosophy is to live well with dementia and to inspire others to do the same. He maintains an active lifestyle due to his love of cycling, which keeps him fit both below and above the eyebrows, he says. He rides a penny farthing, a single speed bike, a road bike, and a 1950's Claud Butler, although not all at the same time – he’s good, but not that good, he jokes. Along with his friend Deb Bunt, Peter cycles nearly every day. Their travels throughout Suffolk, England have led them to have many serious heart-to-hearts about his disease, which Deb put together in a book called Slow Puncture: Living Well with Dementia. “It's a book about me,” Peter says, “but a book I have never read and never will read as my short-term memory means I have forgotten the previous sentence as soon as I have started a new one.” In this episode we discuss the difficulties encountered with a dementia diagnosis at age 50, the financial pressures he’s had to overcome, and how cycling has made life with COVID tolerable. Read their AlzAuthors Posts: Peter Berry Who Lives with Dementia Shares His Poetry in: Walk With Me, Compiled by Deb Bunt Slow Puncture: a Memoir About Living Well with Early Onset Alzheimer’s by Peter Berry and Deb Bunt So Much To Say: Peter Berry Tells His Story While He Can * * * Purchase Walk With Me: Musings Through The Dementia Fog on Amazon Purchase Slow Puncture: Living Well with Dementia on Amazon Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Peter and Deb Website Facebook: Deb Facebook: Peter Twitter Instagram  About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors
March 14, 2022

REPLAY Live Q&A – Love Stories: Keeping Romance Alive in Dementia Care

Support AlzAuthors at https://alzauthors.com/donate Please subscribe to this podcast and leave leave a review. Sharing it with others on a dementia journey is much appreciated. * * * About Love Stories: Keeping Romance Alive in Dementia Care Caring for a spouse with Alzheimer’s or other dementia carries with it a lot of changes and uncharted territory. At the heart of these changes may be the very foundation of what makes you a couple: romance. New roles, a new lifestyle, and sometimes new living arrangements can take their toll on even the closest of couples. On Wednesday, February 9th, 2022, AlzAuthors Live! presented Love Stories: Keeping Romance Alive in Dementia Care., a virtual Q&A. This one-hour program featured four of our authors sharing their personal stories of staying connected with their spouse in a variety of care situations. This is the audio replay of that event. You may also watch it on YouTube. Meet Our Authors   Richard Creighton: Blogger at Living With Alzheimer’s, and an AlzAuthors Associate, caring for his wife, Kate, at home with Alzheimer’s Anthony Copeland-Parker: Author of Running All over the World, Our Race Against Early Onset Alzheimer’s, traveling the world and running marathons with his wife, Cat, after she was diagnosed with early-onset Alzheimer’s Gincy Heins: Author of Before the Diagnosis: Stories of Life and Love Before Dementia, co-author of 365 Caregiving Tips: Practical Tips from Everyday Caregivers, and an assistant manager at AlzAuthors, caring for her husband, Steve, at home with Mild Cognitive Impairment Sue Ryan: Author of Our Journey of Love, 5 Steps to Navigate Your Caregiving Journey, caring for her husband, Jack, in memory care Areas of discussion included: Seeing your partner (and yourself) in a new light Maintaining spousal roles Continuing a partnership Maintaining equality Dealing with a forever altered romantic relationship Nurturing intimacy Handling loss Battling loneliness Dealing with behavior changes Managing guilt Coping with grief Moving to memory care You will come away with fresh insights and ideas for your own dementia journey. What participants said: I’m impressed with the positive attitude of the caregivers and the strategies they employ.I love how each couple has kept up their own ways of socializing or managing. It goes to show how unique each relationship is.This has been so rich and wonderful. I am grateful to all the presenters.All of the panelists are so inspiring! I'm so grateful to hear their stories.I love the way our panelists are so supportive of one another.You are all remarkable, and a great inspiration.Thank you for sharing so many honest thoughts. Remember:  You are not alone. 💜 ## About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
March 7, 2022

Rosanne Corcoran Untangles Dementia Care and the Sandwich Generation

Support AlzAuthors at https://alzauthors.com/donate Please subscribe and leave a review. Sharing this podcast with a caregiver or loved one on a dementia journey is much appreciated. * * * Rosanne Corcoran cared for her mother over a 12-year span, starting as a stealth caregiver, to full time caregiver, to in-home, sandwich caregiver for her mother’s final 6 years. Finding herself part of a growing caregiving community in need of both support and critical information, she has conducted exhaustive research into caregiving strategies for aging parents. To assist this community, share information and provide support, she started a regional Daughterhood Circle in the Philadelphia suburbs in 2019. In November of that year, she created Daughterhood The Podcast: For Caregivers to engage a dynamic group of subject matter experts to help others navigate these uncharted, and many times, tumultuous waters. She also blogs at HeyRoe.com. A member of the AlzAuthors management team, she assists with the technological side of our virtual events, and offers much appreciated guidance and support. In this episode, we discuss the difficulties she encountered in getting a proper medical diagnosis for her mother, caregiving during COVID, the pitfalls in being a competent caregiver, how to survive life in the sandwich generation, and the grief that comes when dementia care reaches its natural conclusion. Read Rosanne’s AlzAuthors Post: Start reading Hey Roe! Listen to Daughterhood, The Podcast Connect with Rosanne Corcoran Website and Blog Podcast Facebook Twitter Instagram ## Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.                                    
February 28, 2022

Susan Landeis Untangles Searching for Rainbows in Dementia

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. About Susan Landeis Susan Landeis and her mother shared a difficult childhood, leading to abandonment issues, estrangement, and then a need for care on a dementia journey. Despite decades of abuse, Susan put aside her feelings and came to her mother’s aid, taking on not only the role of mom’s caregiver, but eventually the role of caring for her father. This experience inspired her first book, Optimal Caregiving: A guide for managing senior health and well-being. And then a second, more personal memoir, called In Search of Rainbows: A daughter’s story of loss, hope, and redemption. Susan is a certified nutritionist and certified senior advocate. Prior to this, she spent over twenty years working in the field of Health Information Management. She is also a member of the AlzAuthors management team, and is responsible for creating the beautiful graphics on our social media platforms. In this episode, we discuss how she overcame her difficult childhood and rebuilt her relationship with her mother, her search for the rainbows in dementia care, and the unexpected gift she received from her mother’s Lewy Body disease. Read Susan’s AlzAuthors Post: Susan Landeis Cares for Her mother with Lewy Body Dementia: In Search of Rainbows Start reading In Search of Rainbows: A daughter's story of loss, hope, and redemption   and Optimal Caregiving: A guide for managing senior health and well-being  now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Susan Landeis Website Facebook Twitter Linked In ## Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.    
February 21, 2022

Helene Berger Untangles Choosing Joy in the Dementia Journey

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Helene Berger Prior to assuming the role of dementia caregiver to Ady, her husband of fifty years, Helene Berger held major positions of leadership throughout her life, in her home community of Miami, Florida, and across the United States. She is recognized as a powerful and inspirational speaker, and has used her voice and influence to marshal help for large and diverse groups of people with a wide variety of needs. Choosing Joy, Alzheimer’s: A Book of Hope is her first book. It was inspired by the unanticipated, positive results that her husband Ady achieved after his diagnosis of Alzheimer’s. It is a comprehensive guide, combining the concrete methodologies learned over the following six years, as well as inspirational examples and philosophy. Although written about her experience with Alzheimer’s, her guidance applies to a loved one with any type of debilitating disease – as well as to all the meaningful relationships in our lives. It is a rare book of hope, providing practical and emotional support to both the caregiver and the patient. And all the while, it is a love story, and an honest retelling of a lifetime journey. In this episode, we discuss many of the strategies Helene learned to help Ady thrive despite Alzheimer’s. Her techniques, delivered with patience and love, allowed him to maintain his dignity and individuality. These include her belief that it is better to ask questions rather than make demands, the difference between “not now” and “never,” and the wisdom that 50 years of marriage brought to their dementia journey. Helene acknowledges that her techniques may not work for everyone and may not produce the results she achieved with Ady, but they are certainly worth a try. Read Helene’s AlzAuthors Post: https://alzauthors.com/2020/08/04/helene-berger-alzheimers-memoir/ Start reading Choosing Joy, Alzheimer’s: A Book of Hope now! https://amzn.to/3akdkat Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Helene Website: https://heleneberger.com Facebook: https://www.facebook.com/helenerberger Twitter: https://twitter.com/HeleneRBerger Instagram: https://www.instagram.com/helenerberger/ LinkedIn: https://www.linkedin.com/in/helene-berger About AlzAuthors Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com
February 14, 2022

Debra Tann, Ed. D. Untangles The Race of Dementia: Care, Cure, and Disparity

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Debra Tann, Ed. D.  As a young child, Debra Tann encountered what she later learned to be dementia in her beloved great grandmother. At the time, the condition was known as “senility.” This encounter had a significant impact on her young heart and mind. Many years later, after a 14-year career as a professor in Political Science, and another 14 years operating an independent Christian school, she has taken her professional skillset and transitioned her platform to that of dementia education. She is a certified Dementia Educator, certified Dementia Friends Champion, and a certified Virtual Dementia Tour facilitator. And she’s now the CEO of Reminiscent, an organization offering Alzheimer’s and dementia education in her community. She is also the author of The Race of Dementia, part memoir, part guide to assist caregivers on the dementia journey with humor, insight, and practical advice. This book explores the racial disparities in dementia care as well as the race to find a cure. Debra advocates on behalf of dementia from a three-pronged position: ·     Locally, she is CEO at Reminiscent, in her hometown, Valdosta, Georgia; ·     At the state level she is active with GARD (Georgia Alzheimer’s & Related Dementias); and ·     Nationally, she advocates for AIM (Alzheimer’s Impact Movement). She is appointed to Senator Jon Ossoff. Originally from Sacramento, Debra is married to a retired United States Naval service member. Together they have three young adult sons, three daughters-in-law, one granddaughter, and two grand dogs. She loves traveling, reading, Bible study, strolling the shoreline, theatrical plays, and stand-up comedy. In this episode, we discuss how to help children understand a dementia encounter, how confusion begets confusion, how dementia adversely affects people of color, and how caregivers can empower themselves. We are joined by my friend and AlzAuthors co-founder Jean Lee, author of Alzheimer’s Daughter, who is the acquisitions editor that introduced Debra to our organization. * * * Read Debra’s AlzAuthors Post: https://alzauthors.com/2021/07/20/debra-tann-race-of-dementia/ Start reading The Race of Dementia now! https://amzn.to/2Nd78f3 Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Debra Twitter Facebook   Linkedin.com  Website and Podcast Library   * * * About the AlzAuthors Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.    
February 7, 2022

Kimberly Best Untangles the Art of Mediation in Dementia Care

Kim Best Untangles the Art of Mediation in Dementia Care Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Kimberly Best RN, MA When a family member is diagnosed with dementia, a number of complicated issues may arise: family conflict, the re-emergence of old slights and misunderstandings, disagreements on how to provide care or navigate the journey, and more. Mediator and conflict coach Kimberly Best is passionate about helping others resolve such conflicts in a productive, non-litigious way, and in finding optimal solutions to problems for all parties involved. She spent most of her career as a Registered Nurse in intensive care, trauma, and emergency medicine, where she cared for people in extreme need, and gained valuable experience in the healthcare system. This inspired her to become a Civil and Family Mediator. She is the owner of Best Conflict Solutions, where she provides conflict coaching and civil, family, healthcare, and elder mediation in Franklin, Tennessee. She serves on the board of the Tennessee Association of Professional Mediators. She is a speaker and trainer on conflict management, transitions, and difficult decisions including end of life issues. Kim is the author of How to Live Forever, A Guide to Writing the Final Chapter of Your Life Story.    In this episode, we discuss the value of professional mediation in dementia care, why your story is your legacy, how to control the final chapter in your life, and the fine line in caregiving between hope and regret.  Read Kim’s AlzAuthors Post: https://alzauthors.com/2021/04/13/kimberly-best-how-to-live-forever/ Start reading How to Live Forever: A Guide to Writing the Final Chapter of Your Life Story now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Kim Website LinkedIn Twitter Instagram * * * Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com      
January 31, 2022

Sue Ryan Untangles the 5 Steps of the Caregiver Journey

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Sue Ryan The caregiver journey can either make us or break us. Sue Ryan experienced dementia for more than 30 years with several loved ones, including her father, and now her husband. These journeys have opened her heart and mind to greater possibilities, to understand herself better, and to create opportunities to share her hard-earned knowledge with other caregivers, who may be lost and unsure of their way.   A speaker, storyteller, educator, coach, and mentor, Sue has spent her life working with both professionals in the corporate setting and with dementia caregivers, helping them find new ways to live and work better. Over the course of her work, she says, she became the master of transitions, and she’s here to help you become the master of yours. She founded the online course, Our Journey of Love, which teaches caregiving lessons, tips, strategies, videos, and exercises to help caregivers move from feeling frustrated and overwhelmed to feeling supported and balanced as they care for a loved one. She is the author of the international best-selling book, Our Journey of Love: 5 Steps to Navigate Your Caregiving Journey, which offers readers lessons, tips, and tricks she learned from decades of caregiving. In this episode, we discuss dementia care during COVID, how to attain massive acceptance and radical presence for your caregiving journey, the Scarlett O’Hara approach to caregiving, and the value of V8 moments.  Read Sue’s AlzAuthors Post: https://alzauthors.com/2020/09/01/sue-ryan/ Start reading Our Journey of Love, 5 Steps to Navigate Your Caregiving Journey now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Sue Website Facebook Page Facebook Group  LinkedIn  Email: [email protected] * * * About AlzAuthors Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com
January 24, 2022

Dr. Barbara Ella Milton Jr. Untangles Caregiving While Battling Cancer

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Dr. Barbara Ella Milton, Jr., LCSW Caring for a mother with Alzheimer’s can be difficult. Compound that with your own cancer diagnosis and treatment, as well as 90 miles between you, and the experience borders on impossible. But Dr. Barbara Ella Milton Jr. heeded her mother’s call to step in and offer her support throughout her journey. She asked herself three important questions when she got the call: Could I? Should I? Would I? The answers were yes, yes, and yes. So began their dementia journey, after lifelong relationship struggles and difficulties encountered due to poverty, racism, and homophobia. She tells her story in her memoir, Heeding the Caregiver Call: The Story of Barbara Ella Milton, Sr. and Alzheimer’s Disease. Barbara is a disabled, retired clinical social worker who, for forty years, worked on behalf of children and communities and for progressive causes. She writes about her life, her social work career, and her research on African American resilience. Her goal is to use her energy for personal healing, advocacy, and to put love and hope into the world. She was born in Camden, New Jersey as the only child of Barbara Ella Milton Sr., who died from Alzheimer’s in January 2019. Barbara lives in North Jersey with her wife, Kay. They enjoy a life rich with family and friends. In this episode, we discuss how she managed her mother’s care while managing her own, dealing with deep-rooted trust issues, becoming the conductor of an orchestra of help, and the 40 first dates of iterative grief. * * * Read Barbara’s AlzAuthors Post: https://alzauthors.com/2021/09/07/battling-cancer-while-caring-for-mom-with-alzheimers/ Start reading Heeding the Caregiver Call: The Story of Barbara Ella Milton, Sr. and Alzheimer’s Disease now! https://amzn.to/2X6fOJa Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Barbara Facebook  Twitter Instagram YouTube LinkedIn Personal website Book Website * * * About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com      
January 17, 2022

Jennifer Fink Untangles Podcasts, an Essential Tool for Dementia Caregivers

Jennifer Fink is the daughter, granddaughter, and great granddaughter of three women who have succumbed to Alzheimer’s or other cognitive impairments. Her quest to discover how not to become the fourth generation in her family with this condition, while also seeking ways to better connect with her mother, led her to her new passion, podcasting. She is the producer and host of Fading Memories, a podcast that listens, hears, and offers wisdom and hope from caregivers who have lived the experience. Jennifer discovered long ago that podcasts are an easily accessible way to learn new things. She could walk the dog or do housework while learning about a variety of topics. But when she searched for shows that might help her find answers to her many questions about Alzheimer’s, she did not find what she was looking for, so she decided to create one herself. In its fourth season, Fading Memories focuses on conversations with people who offer resources and ideas for whatever stage of dementia your loved one is in. It’s part helpful information and part true stories from caregivers like you and is for anyone caring for a loved one with Alzheimer’s or dementia. In this episode, we discuss the importance of estate planning sooner rather than later, dealing with a difficult sibling in caregiving, and how cycling kept her sane.  You can also “read” the podcast on her blog, which is available on the FadingMemories.com website. Read Jen’s AlzAuthors Post https://alzauthors.com/2021/08/12/jennifer-fink-sh…podcast-and-blog/  Start reading and listening to Fading Memories Podcast now! https://fadingmemoriespodcast.com/ Connect with Jennifer Fink Website and Podcast: https://fadingmemoriespodcast.com/ Facebook: https://www.facebook.com/AlzheimersPodcast Twitter: https://twitter.com/Jennifer_Fink Instagram: https://www.instagram.com/alzheimerspodcast/ LinkedIn: https://www.linkedin.com/in/jennifer-fink-338957/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.        
December 13, 2021

Edie Weinstein Untangles How Children’s Books Can Diminish Barriers Caused by Dementia

Edie Weinstein is the youngest of the AlzAuthors. She published her illustrated children’s book, Grandpa and Lucy: A Story About Love and Dementia, at the tender age of 16! But today, at 18 and a college student, she may be one of our wisest contributors. Unlike most of our authors, Edie did not write her book because of a personal experience with dementia. She wrote it as a Girl Scouts Silver Award Project because her grandpa did not have dementia. After learning about the condition at a Dementia Friends meeting, she realized that for many kids, dementia is a barrier to a happy relationship with their grandparent, which prevents them from enjoying the kind of loving relationship she enjoyed with her Grandpa.  So, she wrote a heartwarming story and seven of her teen friends collaborated with her on the illustrations. Their goal was to help other kids understand the condition, and to show them that their relationship with Grandpa (or Grandma) need not change after a diagnosis. Edie is an inspiring, intelligent young woman who is clearly going places. You will enjoy this delightful interview, where we explore what sparked her interest in dementia, what happened after she published her book (hint: theater is involved), and how the experience of publishing a book about dementia at such a young age has enhanced her life. Read Edie’s AlzAuthors Post: https://alzauthors.com/2020/03/10/12299/ Start reading Grandpa and Lucy now! https://amzn.to/2TOPhuo Note: We are an Amazon Associate and may receive a small commission from book sales. Watch the play, Grandpa and Lucy, on CLIMB Theater https://tinyurl.com/grandpaandlucydigital Connect with Edie Website: www.inkypuppypaws.com Facebook: https://www.facebook.com/inkypuppypaws/ Twitter: https://twitter.com/InkyPuppyPaws Instagram: https://www.instagram.com/inkypuppypawsmn/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com
December 6, 2021

Cynthia Huling Hummel Untangles the Memories Behind the Masks

The Rev. Dr. Cynthia Huling Hummel is an Alzheimer's artist, author, and advocate. She is the author of "UnMasking Alzheimer's: The Memories Behind the Mask,” a collection of photos of the 36 masks she created as a participant in an arts program called "Art Reflects" for those living with memory loss and their care partners. Cynthia says she started with one mask and couldn't stop! Each one reveals a story that speaks to her experience of living with early onset Alzheimer’s. She hopes that her mask collection will travel around the country and provide a better understanding of the challenges of living with a cognitive disorder. She also hopes that it will reduce the stigma of a dementia diagnosis and serve as a catalyst for opening discussions about the condition. Cynthia was diagnosed with Mild Cognitive Impairment in 2011. This changed to clinical Alzheimer's in 2016.  She does not let her diagnosis stop her. In fact, she does everything she can to raise awareness and funds for research and support services for those living with memory conditions. She’s enrolled in several clinical trials and urges everyone to learn more at Trialmatch.alz.org. She loves public speaking and has given more than 50 talks to community groups. A former pastor, she especially enjoys speaking to faith communities on how to be more dementia friendly. In this episode, we discuss how life doesn’t stop after an Alzheimer’s diagnosis, her new ministry as an advocate for those living with dementia, and her exhaustive schedule of activities, filled with the arts, education, and many surprising adventures. Read Cynthia’s AlzAuthors Post: https://alzauthors.com/2019/09/03/cynthia-huling-unmasking-alzheimers/ Start reading UnMasking Alzheimer’s: The Memories Behind the Masks now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Cynthia: Facebook  LinkedIn View Cynthia’s YouTube message about COVID-19  Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com      
November 29, 2021

Pam Ostrowski Untangles Common Myths About Dementia Care

Pam Ostrowski was the first to recognize her mother’s Alzheimer’s symptoms and spent 14 years with her on her journey. This led her to become a Certified Senior Advisor (CSA)®, a Certified Dementia Practitioner (CDP®), and Certified in Dementia Care® (CDC®). She is passionate about educating families on dementia care, to help them attain peace of mind while caring for a loved one. Pam pulled together her caregiver experience and her skills in marketing and promotion to write It's Not That Simple: Helping Families Navigate the Alzheimer's Journey, the book she wished for during her caregiving years, and created Alzheimer's Family Consulting, an agency that provides caregivers with one-on-one dementia guidance. She now works directly with Alzheimer’s and dementia families to help them navigate the difficult conversations and the many processes, decisions, and emotions they encounter on their journeys. In this episode, we discuss the many levels of dementia care, the difference between loving and caring, and debunk the many myths that surround the dementia journey.  Read Pam’s AlzAuthors Post: https://alzauthors.com/2021/05/26/pam-ostrowski-its-not-that-simple/ Start reading It's Not That Simple: Helping Families Navigate the Alzheimer's Journey now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Pam Ostrowski Website: https://itsnotthatsimple.com/ Twitter: https://twitter.com/Pam_AlzSupport LinkedIn: https://www.linkedin.com/in/pam-ostrowski-ma-56159717/ Facebook: https://www.facebook.com/pamatsos Instagram: https://www.instagram.com/pam_alzsupport/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com      
November 22, 2021

James Russell Untangles Caring for a Daughter with Dementia

James Russell is a man caring for his daughter with early onset Alzheimer’s in assisted living. Lynn was diagnosed in 2017 at the age of 51. She represents the fourth generation of the Russell family affected by dementia. In the early days of her diagnosis, Jim, her dad, and her mother, Karen, relocated from their home to be closer to Lynn, and to assist with the care of her three growing sons. Eventually, Karen succumbed to cancer and Jim carried on, moving to an apartment two blocks from Lynn so he can be involved daily in her life. He tells their story on his blog, Nevertheless Dementia, We Persist, where he recounts the daily struggles, joys, and epiphanies of life with Alzheimer’s. In many ways, Lynn’s condition has brought them closer together, especially as Jim is researching and writing a memoir about their experience which has allowed him to enter parts of his daughter’s life he had not ventured into before. His research has given him the privilege of interviewing many of her friends and work colleagues across her lifespan and he now sees his daughter in a whole new light, appreciating accomplishments he knew nothing of and seeing her through others’ eyes. In this episode, we discuss the wonders of the village that emerged to help him care for Lynn, how he goes about documenting her life, and how we can support someone in assisted living. Read James’ AlzAuthors Post https://alzauthors.com/2020/09/10/james-russell-blogger-younger-onset-alzheimers/ Start reading Nevertheless Dementia We Persist now! https://neverthelessdementiawepersist.com/ Connect with Jim Jim on Facebook:  https://www.facebook.com/james.s.russell.3 Twitter: https://twitter.com/james_s_russell Connect with Lynn Facebook: https://www.facebook.com/lynneru Find Jim’s COVID-19 Videos of Support here: https://alzauthors.com/covid-19/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com
November 15, 2021

Bobbi Carducci Untangles The Inadequate vs. The Imperfect Caregiver

Bobbi Carducci is a national speaker on Alzheimer’s and dementia, how it affects entire families, and how to prepare to care – what adults need to know about these diagnoses before and after they strike home. Taking on the role of caregiver for her father-in-law, Rodger, for seven years ultimately inspired her to embark on a new path in life, where she is a caregiver advocate, support group leader, Certified Caregiving Consultant (CCC), Certified Caregiving Educator (CCE), author, blogger, and podcaster. Her personal experience on the dementia journey allows her to connect with and educate caregivers as she speaks with honesty, compassion, and humor about caring for an aging family member. She is the author of Confessions of an Imperfect Caregiver and Caregiver – You Are Not Alone. In this episode, we discuss the challenges that a history of mental illness brings to a dementia diagnosis, the differences between being an inadequate caregiver vs. an imperfect caregiver, and the many ways dementia is a “family disease.” Read Bobbi’s AlzAuthors Posts Bobbi Carducci’s Alzheimer’s Journey Caring for Father-in-law: Confessions of an Imperfect Caregiver Bobbi Carducci Shares Dementia Caregiver Stories in Anthology: You Are Not Alone Start reading The Imperfect Caregiver and Caregiver - You Are Not Alone now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Bobbi Website Podcast: Rodger That Facebook Twitter Email: [email protected] Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com
November 8, 2021

Alex Winstanley Untangles Dementia Books for Children

Alex Winstanley is a best-selling author and award-winning social entrepreneur from Wigan, England. Through his books, he raises awareness of a range of long-term health conditions, in a positive and supportive way, for children and young people. He is extremely passionate about promoting a diverse and inclusive society, where every person is valued and celebrated. Each of his books are inspired by real people, as Alex believes nothing is more important than giving a voice to those with lived experience. His first book, My Grandma Has Dementia, inspired by his own grandmother, won a Dementia Hero Award in 2021. In this episode, we discuss his work with the disabled, what happens when we don’t shield children from confusing medical conditions such as dementia, and how to find support services to help care for a loved one. All book sales directly support the work of Alex's not-for-profit training organization, Happy Smiles Training CIC, which is led by disabled young adults. See more about their nationally recognised work on their website or on Facebook, Instagram and Twitter. Read Alex’s AlzAuthors Post: https://alzauthors.com/2021/09/01/alex-winstanley-…dma-has-dementia/  Start reading My Grandma Has Dementia now! https://amzn.to/3usNZWf Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Alex Winstanley Website: https://www.happysmilestraining.co.uk/our-books/ Facebook: http://www.facebook.com/alexwinstanleyauthor Twitter: http://www.twitter.com/alexwauthor Instagram: http://www.instagram.com/alexwinstanleyauthor Happy Smiles Training CIC: http://www.happysmilestraining.co.uk/ See Alex talking about his second book, 'My Uncle Has Depression', on ITV News here. Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com      
October 18, 2021

Donna Thomson and Zachary White, Ph.D Untangle The Unexpected Journey of Caring

Donna Thomson and Dr. Zachary White are co-authors of The Unexpected Journey of Caring: The Transformation of Loved One to Caregiver (Rowman & Littlefield, 2019). Donna Thomson is a caregiver, author, and activist. The mother of two grown children, one who has severe cerebral palsy and medical complexity, she also helped care for her mother who lived with dementia until she passed away in the summer of 2018 at the age of 96. She is also the author of The Four Walls of My Freedom: Lessons I've Learned from a Life of Caregiving (McArthur and Co., 2010 and The House of Anansi Press, 2014), and blogs regularly at The Caregivers' Living Room. She is a board director of the Kids Brain Health Network and is a leader and instructor in family engagement in health research. She also teaches families how to advocate for care at The Advocacy School and at Huddol.com. Dr. Zachary White Zachary began living, researching, and exploring the caregiver experience in 2002 during his mother's diagnosis with brain cancer. His research and teaching focus on helping people manage meaning and communicate life experiences amidst high levels of uncertainty and stress. He is the founder of the award-winning blog and resource for caregivers called "The Unprepared Caregiver." He earned his Ph.D. in communication from Purdue University and is an Associate Professor in the James L. Knight School of Communication at Queens University of Charlotte. He has researched a range of care experiences, including birth (parental NICU experiences), chronic caregiver experiences, and end-of-life caregiving (hospice care). His academic articles have been published in Management Communication Quarterly, Journal of Family Communication, Communication Research Reports, OMEGA: Journal of Death and Dying, Health Communication, and Volunteering and Communication: Studies from Multiple Contexts. In this episode, we discuss the delicate relationship between caregiver and care receiver, the multiple roles caregivers fulfill, authenticity in caregiving, and the value of silence. Read Thomson and White’s AlzAuthors Post: https://alzauthors.com/2020/02/04/unexpected-journey-caring-thomson-white/ Start reading The Unexpected Journey of Caring: The Transformation from Loved One to Caregiver now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Donna Thomson Blog: The Caregivers' Living Room Facebook: https://www.facebook.com/donnathomsonauthor  Twitter: https://twitter.com/Thomsod Connect with Zachary White Blog: The Unprepared Caregiver Twitter: https://twitter.com/ZMWhite Facebook: https://www.facebook.com/unpreparedcaregiver/ About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com
October 11, 2021

Susan Cushman Untangles a Mother and Daughter Facing Alzheimer's

Susan Cushman cared for her mother during her dementia journey and considered it a blessing. One of the upsides to Alzheimer’s, she says, is that she got a new mother. After a lifetime of abuse, her mother “forgot” to be cruel to her, and their relationship improved. About her book, Tangles and Plaques: A Mother and Daughter Face Alzheimer’s,” she says, “The tangles and plaques that destroyed Mother’s brain weren’t only in her brain, but also in our relationship.” She is also the author of John and Mary Margaret, a novel that explores interracial relationships and the complexities of reconnecting with a lost love when your spouses wind up in the same memory care center. Much of her writing is infused with elements of her own life, including the very mystical spirituality of her Orthodox Christian faith and the personal demons she has been chasing since childhood. Her essays, short stories, memoir, and novels all reflect what she has learned through many dark nights of the soul, but also contain elements of hope and healing, and honor her Southern roots. In this episode, we discuss how she discovered an unexpected upside to Alzheimer’s, the downside of being a long-distance caregiver, and the healing power of forgiveness. More about Susan Susan was co-director of the 2013 and 2010 Oxford (Mississippi) Creative Nonfiction Conferences. She was director of the 2011 Memphis Creative Nonfiction Workshop. She was a panelist at the 2017 Decatur Book Festival, the 2012, 2017, and 2018 Southern Festival of Books, the 2017 and 2018 Mississippi Book Festival, the 2013, 2017, 2018 and 2019 Louisiana Book Festival, the 2018 Mississippi Writers Guild Conference, the 2018 Alabama Writers Conclave Conference, the 2018 Pat Conroy Literary Center Visiting Author Series, the 2019 Southern Literary Festival, and the 2020 AWP (Association of Writers and Writing Professionals) annual conference. Her published books include four she has written: John and Mary Margaret (novel), Friends of the Library (short stories), Tangles and Plaques: A Mother and Daughter Face Alzheimer’s (a memoir), and Cherry Bomb (a novel). She has edited three collections of essays: A Second Blooming: Becoming the Women We Are Meant to Be, Southern Writers Writing, and The Pulpwood Queens Celebrate 20 Years! In addition, she has over a dozen essays published in four anthologies and various journals and magazines. Purchase Tangles and Plaques and John and Mary Margaret now! Read Susan’s AlzAuthors posts Susan Cushman Reveals Alzheimer’s Caregiving Struggles with Mom: Tangles and Plaques Three AlzAuthors Featured in Chicken Soup for Soul Book Susan Cushman Explores Interracial Relationships and Dementia in New Novel Connect with Susan Website: http://susancushman.com/ Blog: http://susancushman.com/author/susan/ Facebook: http://www.facebook.com/sjcushman Instagram: https://www.instagram.com/sjcushman/ Twitter: http://twitter.com/SusanCushman YouTube video: https://www.youtube.com/watch?v=CmK08WUEuxQ About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
October 4, 2021

Leah Stanley Untangles Double Dementia Duty for Two Grandparents

Leah Stanley is the author of Goodnight, Sweet: A Caregiver’s Long Goodbye, the memoir she wrote years after caring for her beloved grandparents, both diagnosed with dementia. At the time she was a 29-year-old newlywed with no clue about elder issues, dementia, or caregiving. She had to learn fast! When her dementia journey ended, she realized she wanted to take her hard-earned lessons and share them with others so they would not be as unprepared as she was when duty called. Her degree in journalism gave her the confidence to start writing and she began a memoir, and then put it on hold for years while she raised her children. When they were teens and no longer needed her full-time, she got back to writing and published her book in 2019. This led to her becoming a caregiver advocate and a well-known speaker in the Houston area. In this episode we discuss the challenges of becoming a caregiver at a young age, how to continue a loving relationship with elders after a dementia diagnosis, and the sweet story behind the title Goodnight, Sweet. Read Leah’s AlzAuthors Post: https://alzauthors.com/2019/05/21/meet-leah-stanley-author-of-goodnight-sweet/ Start reading Goodnight Sweet now! https://amzn.to/3fXCeme Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Leah Stanley Website: http://www.leahstanley.com/ Facebook: https://www.facebook.com/LStanleyBooks Twitter: https://twitter.com/OneCareVoice LinkedIn: https://www.linkedin.com/in/leahstanleybooks/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
September 27, 2021

Joy Johnston Untangles Becoming the Reluctant Caregiver

Joy Johnston is a digital journalist, author, and caregiver advocate based in Atlanta, Georgia. Her collection of personal essays on caregiving, titled The Reluctant Caregiver, received a gold medal at the 2018 Independent Publisher Book Awards. She also writes about dementia and caregiving on her blog, The Memories Project, which was honored as one of the “Best Alzheimer’s Disease Blogs of 2020” by eMediHealth, and she is a featured author on The Caregiver Space. An only child, she assisted her mother as a long-distance caregiver to her father with dementia for ten years. A few years after his passing, she left her career and home to move across country to care for her mother when she was diagnosed with stage 3 colon cancer. This was not a role she wished for as their relationship had always been challenging. In this episode we discuss the difficulties of managing your parents’ health care needs as an only child living hundreds of miles away, the shortcomings of rural health care, and why paid caregivers need recognition for the value they bring to family caregiving. Read Joy’s AlzAuthors Post: https://alzauthors.com/2016/09/21/meet-author-joy-johnston/ Start reading The Reluctant Caregiver now! https://amzn.to/38jsVZs Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Joy Johnston Website: http://joyjohnston.com/ Memories Project: https://memoriesproject.com/ Facebook: https://www.facebook.com/TheMemoriesProject/ Twitter: https://twitter.com/joymemories LinkedIn: https://www.linkedin.com/in/joyjohnstonatl/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
September 20, 2021

Tracey Shorthouse Untangles Early Onset Alzheimer's and Posterior Cortical Atrophy

Tracey Shorthouse was diagnosed with early onset Alzheimer’s and Posterior Cortical Atrophy in 2015 at age 45. A staff nurse in the United Kingdom’s National Health Service, she had to retire due to her diagnosis. Not being one to give up, she started to write short stories but found writing poetry was easier for her brain to contend with. Although at first her poems were about how she coped with her dementia, she then started writing about life, nature, and other things. In 2017 she published a book of poetry named I Am Still Me. She stays active on social media, Facebook and Twitter, and is a well-known speaker on dementia in her community.  In this episode we discuss her life after being diagnosed at such a young age, what she’s lost and gained, how she came to write poetry post-diagnosis, and her hopes for the future.  Read Tracey’s AlzAuthors Post: https://alzauthors.com/2017/05/24/meet-poet-tracey-shorthouse/ Start reading I Am Still Me now! https://amzn.to/3xQuBnw Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Tracey Shorthouse Website: Facebook: https://www.facebook.com/tracey.shorthouse Twitter: https://twitter.com/TraceyShorty28 Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
September 13, 2021

HFC and AlzAuthors Present Loretta Woodward Veney, author of Being My Mom's Mom

This is the third and last in our Summer Book Series with HFC, aka Hilarity for Charity, for 2021. In this session Loretta Woodward Veney joined us for a discussion of her book Being My Mom’s Mom: A Journey Through Dementia from a Daughter’s Perspective. We talked about her work as a LEGO Ambassador and how that fits into her dementia care for her mom, and discussed other activities to help caregivers connect and engage with their loved ones. About Loretta Woodward Veney Loretta Woodward Veney is a special friend to AlzAuthors and was one of the first authors to appear on our blog in July, 2016. Her mission is moving caregivers from "I give up" to "I've got this"! She recently retired from a 35-year career in security management and corporate training and is embarking on a new full-time career as a motivational speaker and trainer for those caring for a loved one with dementia. She is also a LEGO Ambassador, sharing her lifelong love for the little plastic building blocks with strategies to nurture creativity, communication, and connections between those with dementia and their loved ones. In 2006, when Loretta's beloved mom Doris was diagnosed with dementia, she began learning everything she could about the disease, and hoped to share that information so others could be better prepared than she was for this diagnosis. In 2013, that hope turned into her first book, Being My Mom's Mom, which highlights the first six years of the family's dementia journey. An updated version was published in December 2019 and includes a new chapter that picks up at the end of the first book until late 2019. Soon after publishing Being My Mom’s Mom, Loretta began receiving requests for presentations on her caregiver experience, and since that time has given more than 275 presentations and keynote addresses to audiences across the United States. She has published two additional books for caregivers: Refreshment for the Caregiver's Spirit, a motivational photo book, and Colors Flowing from My Mind, an easy-to-use coloring book for those with dementia. Read Loretta’s AlzAuthors posts: Meet Loretta Woodward Veney, Author of Being My Mom’s Mom, July 7, 2016 Loretta Woodward Veney Updates Her Memoir, Being My Mom’s Mom, May 26, 2020 Start reading "Being My Mom’s Mom: A Journey Through Dementia from a Daughter’s Perspective": https://amzn.to/2BCS18s Connect with Loretta Woodward Veney Twitter: https://twitter.com/lwveney Conquering Life Blog: https://lwveney.wordpress.com Website: https://lorettaveney.com About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, marketing expenditures to improve our reach, expand our content, and promote our authors, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
August 30, 2021

HFC and AlzAuthors Present Daniel Potts, MD, FAAN, and Ellen Potts, Authors of A Pocket Guide for the Alzheimer's Caregiver

This is the second in our Summer Book Series with HFC, aka Hilarity for Charity. In this session Daniel Potts, MD, FAAN, and his wife Ellen Potts joined us for a discussion of their helpful book A Pocket Guide for the Alzheimer’s Caregiver. Daniel C. Potts, MD, FAAN is a neurologist, author, educator, and champion of those living with Alzheimer’s disease and other dementias and their care partners. Selected by the American Academy of Neurology as the 2008 Donald M. Palatucci Advocate of the Year, he also has been designated an Architect of Change by Maria Shriver. In 2016, he was chosen by the University of Alabama Medical Alumni Association as a recipient of the Martha Myers Role Model Award, which honors physician alumni whose lives epitomize the ideal of service to their communities.  Along with his wife, Ellen W. Potts, MBA, he co-authored A Pocket Guide for the Alzheimer’s Caregiver, which is recommended by the Alzheimer’s Association, the American Academy of Neurology and Maria Shriver. Inspired by his father’s transformation from saw miller to watercolor artist in the throes of dementia through person-centered care and the expressive arts, Dr. Potts seeks to make these therapies more widely available through his foundation, Cognitive Dynamics. Additionally, he is passionate about promoting self-preservation and dignity for all persons with cognitive impairment. He practices neurology at the Tuscaloosa VA Medical Center. Read Dr. Potts’ AlzAuthors post: https://alzauthors.com/2017/02/21/meet-daniel-c-potts-physician-author-and-dementia-advocate/ Listen to Dr. Potts podcast on Untangling Alzheimer’s and Dementia: https://alzauthors.com/podcast Start reading “A Pocket Guide for the Alzheimer's Caregiver” with Ellen Potts now!  https://amzn.to/3nP2IIB Additional books by Dr. Potts: “Finding Joy in Alzheimer’s: New Hope for Caregivers,” with Marie Marley, https://amzn.to/2KIAi4h  “Treasure for Alzheimer’s: Reflecting on experiences with the art of Lester E. Potts, Jr,” with Richard Morgan, Ph.D., https://amzn.to/3mBxjYr “Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers,” https://amzn.to/2LVFySH “The Unlatched Door: A Collection of Poetry,” https://amzn.to/37AZe6L “A Heart That Knows Your Name: Poetry Inspired by Persons Living with Dementia and Care Partners,” https://amzn.to/3nDWRFB “The Second Crossing: A Poetry Anthology,” https://amzn.to/3r8Ngc6 “At End of Day,” https://amzn.to/2KFznkX “Verses of Recovery,” https://amzn.to/2LOtFh7 “Soul Fire: Celebrating life and creation through word and image,” https://amzn.to/3p862i2 Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Dr. Potts Blog: https://danielcpotts.wordpress.com/ Facebook: https://www.facebook.com/daniel.potts.92372 Twitter: https://twitter.com/DanielCPotts LinkedIn: https://www.linkedin.com/in/danielcpotts/ Cognitive Dynamics: www.cognitivedynamics.org Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
August 16, 2021

HFC and AlzAuthors Present an Author Talk with Peter Berry and Deb Bunt, authors of Slow Puncture: Living Well With Dementia

AlzAuthors has again partnered with HFC, (Hilarity for Charity) to present a Summer Book Series for Alzheimer’s and dementia families and caregivers. Each month one of our authors meets with readers and caregivers online to discuss their book. The authors talk about their own dementia journeys and why they chose to write about them. They also answer questions from the attendees. It’s a wonderful way to learn more about dementia and caregiving. Peter Berry kicked off the first in our series on June 8th. Peter’s book, “Slow Puncture: Living Well with Dementia,” was written by his friend, Deb Bunt. Peter and Deb both participated in the book club, and it is a lively discussion. Peter discussed the deep depression that engulfed him after his diagnosis and shared how he managed to not only climb out of it but learned how to live well with dementia, and to inspire others to do the same. He is an important voice in dementia world and one can learn a lot from him about positive living. About Peter Berry Diagnosed with early onset Alzheimer’s at age 50, Peter took an early retirement from his job working in the family’s timber business. After the devastating diagnosis, he became depressed but, being a ‘glass half full’ personality, battled through his depression and focused on his lifelong passion for cycling. He has used this passion to raise awareness of the condition, particularly in younger people. Peter’s philosophy is to live well with dementia and to inspire others to do the same. He maintains an active lifestyle due to his love of cycling, which keeps him fit both below and above the eyebrows, he says. Along with his friend Deb Bunt, Peter cycles nearly every day. Their travels throughout Suffolk, England have led them to have many serious heart-to-hearts about his disease, which Deb put together in Slow Puncture. “It's a book about me,” Peter says, “but a book I have never read and never will read as my short-term memory means I have forgotten the previous sentence as soon as I have started a new one.” Read Peter’s AlzAuthors Post: https://alzauthors.com/2020/12/29/early-onset-alzheimers-bunt-berry/ Listen to Peter’s AlzAuthors Podcast: https://alzauthors.com/podcast Start reading Slow Puncture now! https://amzn.to/3tbDsis Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Peter and Deb Website: https://peterberrylwa.wixsite.com/peterberry/the-book  Facebook: https://m.facebook.com/DebBuntAuthor Facebook: https://www.facebook.com/PeterBerryLivingWithAlzheimers/ Twitter: https://twitter.com/PeterBe1130 Instagram: https://www.instagram.com/peterberry8/ Join us on August 10th for the third and last session in the series with Loretta Woodward Veney, author of Being My Mom's Mom. Register here: https://zoom.us/meeting/register/tJwqfuCqrTsqH9V-vyV2F3ydmnLrY6BgRbzH Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
July 26, 2021

Everything You've Always Wanted to Know About Living With Dementia: A Virtual Q&A

On June 15, 2021, 5 of our authors came together for our first Virtual Q&A called “Everything You’ve Always Wanted to Know About Living with Early Onset Dementia but Were Afraid to Ask.” We talked about their diagnoses, and they answered questions regarding their daily lives, how they cope with their condition, how they manage to keep a positive attitude, and so much more. You will learn a lot! For a transcript, please email [email protected]. Let’s get started! Our Panelists: Michael Ellenbogen was diagnosed with early onset Alzheimer’s at the age of 49, after experiencing symptoms for 10 years. This led to an early retirement from his career in information technology. Following his diagnosis, he has become an outspoken advocate for those with dementia and has written articles and blog posts in addition to his book, From the Corner Office to Alzheimer’s. He has appeared on podcasts and television and has testified before the United States Congress.  Gerda Saunders was the Associate Director of and taught in the Gender Studies Program at the University of Utah; she also taught gender and literature courses in the English Department. At the age of 61, she was diagnosed with cerebral microvascular disease, a precursor to dementia. She retired a year later. She maintains an active lifestyle, writing and speaking about the disease in a variety of settings. She is the author of Memory’s Last Breath: Field Notes on My Dementia, and blogs at Living With My Dementia.  Wendy Mitchell started a blog, Which Me Am I Today? after being diagnosed with young-onset Alzheimer’s and vascular dementia in 2014. She was 58. Her blog eventually became a memoir, Somebody I Used to Know. Wendy remains active in the dementia community, participating in workshops and lectures across England. She has a very active Twitter presence, which she calls her lifeline. Dr. Jennifer Bute, FRCGP worked in Africa as a doctor before working as a GP (Family Doctor) for 25 years and was involved in medical education. She was diagnosed with dementia ten years ago. She speaks at conferences and on radio and has been involved in television programs raising awareness and understanding of dementia. She passionately believes more can be done to improve both the present and the future for those living with the disease. Her book Dementia from the Inside: A Doctor’s Personal Journey of Hope is her story and explains these principles. Her website GloriousOpportunity.org includes many videos where she discusses different aspects of the condition, and she also blogs on Facebook at Glorious Opportunity.  Peter Berry ran the family’s timber business for decades before being diagnosed with early onset Alzheimer’s at age 50. He immediately stopped working and fell into a deep depression. After some time, he realized that he still had a life to live, overcame his depression, and now fills his days with cycling across the English countryside with his friends, and advocating for those with dementia in his community and on social media. To date he has raised more than £20,000 for dementia charities through cycling challenges. He tells his story in Slow Puncture: Living Well with Dementia, with Deb Bunt. Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
July 19, 2021

Untangling What the Hell Happened to My Brain with Kate Swaffer

Today’s guest is Australian Kate Swaffer, a humanitarian and activist for disability rights in dementia and aged care. She is the Chair, CEO and co-founder of Dementia Alliance International, a global advocacy and support group for people living with dementia. Kate is also living with younger onset dementia, diagnosed in 2008 at age 49. She has won many awards for her work, including the 2018 Australian 100 Women of Influence Global Leader, and the 2017 South Australia Australian of The Year. Kate is an elected board member of Alzheimer’s Disease International, and a current PhD candidate at the University of South Australia. Her first dementia book, What the Hell Happened to My Brain? Living Beyond Dementia, and her second book, Diagnosed with Alzheimer’s or another dementia, co-authored with Associate Professor Lee-Fay Low, were released in 2016. She has also written and published a book of poetry, Love Life Loss - A Roller Coaster of Poetry Volume 2: Days with Dementia. Since 2010, Kate has given many keynote presentations on dementia, human rights, disAbility, discrimination, stigma, the lived experience of dementia, dementia-enabling design principles, language, Prescribed Disengagement®, Information Technology for people with dementia, dementia policy, and loss and grief. In this episode we discuss how she managed to complete two master’s degrees and part of a PhD post diagnosis, her life as an “accidental activist,” and how to break down the wall of silence that surrounds a dementia diagnosis. Read Kate’s AlzAuthors Post: https://alzauthors.com/2016/07/19/meet-kate-swaffer-author-of-what-the-hell-happened-to-my-brain/  Start reading What the Hell Happened to My Brain? now! https://amzn.to/3xuIqZG Start reading Diagnosed with Alzheimer’s or another dementia now! https://amzn.to/2VtmQ9K Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Kate Swaffer Website: https://kateswaffer.com/ Dementia Alliance: https://www.dementiaallianceinternational.org/ Blog: https://kateswaffer.com/daily-blog/ Facebook: https://www.facebook.com/kate.swaffer Instagram: https://www.instagram.com/kateswaffer/ Twitter: https://twitter.com/KateSwaffer LinkedIn: https://www.linkedin.com/in/kate-swaffer-502a5b13/ YouTube: https://www.youtube.com/channel/UCZZQitZb0pttEpGxNLwldjg Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.  
July 12, 2021

Untangling The DAWN Method with Judy Cornish

Judy Cornish is the founder of the Dementia & Alzheimer’s Wellbeing Network (DAWN®) in Moscow, Idaho. Through her hands-on work with dementia, she developed a proprietary method for working with people who have dementia—one that helps them develop and retain a sense of security and wellbeing. She is the author of Dementia with Dignity and The Dementia Handbook. The DAWN Method® is simple enough to be used by caregivers in the home and works in care facilities as well. It targets the emotional distress that accompanies cognitive decline so that behaviors are avoided, and caregiver stress is minimized. Judy is an attorney licensed in Idaho and a member of the National Academy of Elder Law Attorneys (NAELA). Before becoming a lawyer, she worked in vocational rehabilitation with people who have brain injuries and as a Qualified Mental Health Associate with the mentally ill. With her background in traumatic brain injury, mental illness, elder law and disability law, Judy brings a distinctive set of abilities to her work with dementia and Alzheimer’s. In this episode, we discuss the importance of intuitive thinking skills, which Judy calls “the seat of our souls,” the medical model of dementia care vs. the experiential model, and how her desire to help a neighbor with dementia remain in her home launched a philosophy and program that helps families dealing with dementia worldwide. Start reading Judy’s books now: https://amzn.to/3hwN7eq (Note: We are an Amazon Associate and may receive a small commission from book sales.) Read Judy’s AlzAuthors Posts: Judy Cornish, Author of Dementia with Dignity, Offers Tools and Techniques for Home Care: https://alzauthors.com/2019/07/30/welcome-back-judy-cornish-author-of-dementia-with-dignity/ The Dementia Handbook: Judy Cornish Answers How to Care at Home: https://alzauthors.com/2017/06/27/meet-judy-cornish-author-of-the-dementia-handbook/ Connect with Judy at the DAWN Method! Website: https://thedawnmethod.com Facebook: https://m.facebook.com/DAWN-Method-1684106525201898/ Twitter: https://twitter.com/JudyCornishDAWN LinkedIn: https://www.linkedin.com/in/judycornish/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
July 5, 2021

Untangling The Happy Healthy Caregiver with Elizabeth Miller

Elizabeth Miller is the creative genius behind Happy Healthy Caregiver, a community built for caregivers who may be overwhelmed with their responsibilities and long to find others to connect with as well as resources to make life easier. Her mission is to help caregivers become happier and healthier while caring for others. “We can do hard things,” she says, “but we don’t need to do them alone.” Her years as a former caregiver for both parents and a certified caregiver consultant have given her a wealth of experience which she shares on the Happy Healthy Caregiver website and podcast, as a caregiver consultant, and much more. She is a sought-after speaker at caregiver conferences nationwide and coordinates a Daughterhood Circle in Atlanta. She’s also the author of Just for You: A Daily Self-Care Journal. In this podcast, we discuss juggling caregiving with a full-time job, commuting, and raising children, finding time for self-care, and the beauty of life after caregiving.  Read Elizabeth’s AlzAuthors Post: https://alzauthors.com/2020/11/10/elizabeth-miller-just-for-you-self-care-journal/ Start journaling now with Just for You: A Daily Self-Care Journal! https://amzn.to/35MWvW9 Note: We are an Amazon Associate and may receive a small commission from book sales Connect with Elizabeth Website: https://happyhealthycaregiver.com/ Podcast: https://happyhealthycaregiver.com/podcast/ Facebook: https://www.facebook.com/happyhealthycaregiver/ Instagram: https://www.instagram.com/happyhealthycaregiver/ Twitter: https://twitter.com/HHCaregiver Pinterest: https://www.pinterest.com/HHCaregiver/ LinkedIn: https://www.linkedin.com/in/elizabethbmiller YouTube: https://www.youtube.com/channel/UCAcYkpMK6I3Y0ep-kyvrZaQ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
June 28, 2021

Untangling Dementia Through Writing and Podcasting with Pippa Kelly

What happens when two dementia advocates from opposite sides of the Atlantic who have each written books and blogs and host podcasts on the condition get together for a chat? The conversation flows and grows into a wealth of storytelling and sharing. This is what happened when Pippa Kelly joined me for a Zoom call. Pippa is the author of Invisible Ink, a novel that explores a man’s relationship with his mother who has dementia. She also blogs on all things dementia, and hosts the popular podcast, “Well I Know Now,” featuring a variety of guests sharing their dementia stories.  Her dementia journey started when her father became ill and she needed to step in to care, not only for him, but for her mother, who had dementia. She was thrust into caregiving unexpectedly and says she felt ill-equipped for the role. Like most caregivers she had to learn everything on the spot and tackled such issues as moving her mother out of her home against her will and convincing the National Health Service to provide services for her father at home. A journalist, she soon began writing about their experiences, won an award for her writing, and became known across England as a campaigner and trusted speaker on the subject. In this discussion we touched on all of these topics, as well as the emotional chaos of dementia, and what you can get back from dementia care. Read Pippa’s AlzAuthors Posts: Meet Pippa Kelly, Dementia Writer and Advocate https://alzauthors.com/2016/06/16/meet-pippa-kelly-dementia-writer-advocate/ Meet Pippa Kelly, Author of Invisible Ink https://alzauthors.com/2017/04/12/meet-pippa-kelly-author-of-invisible-ink/ Start reading Invisible Ink now! https://amzn.to/3pYpXSh  (Note: We are an Amazon Associate and may receive a small commission from book sales.)  Connect with Pippa Website https://pippakelly.co.uk/ Blog https://pippakelly.co.uk/blog/ Podcast https://pippakelly.co.uk/blog/ Twitter https://twitter.com/piponthecommons  Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.      
June 21, 2021

Untangling Caring for a Wife with Alzheimer's at Home with Richard Creighton

Richard Creighton began his blog, “Living with Alzheimer’s: A Real-Time Account of Dementia Caregiving,” the day his wife Kate was diagnosed in 2011. His goal was to keep a record of their experience for their children. He and Kate cared for family members together for 24 years, which included both his parents and his in-laws throughout various illnesses. Now he cares for her, deep into her dementia, at home with the assistance of paid caregivers. Richard and Kate recently made a major life change, leaving their home of many years to start anew at a Continuing Care Retirement Community, where they can age in place. Richard made this decision to make life easier for himself and for Kate, and to make sure their children’s responsibilities for their care would be minimal. He wanted a plan for an easy transition to the last chapter of their lives.   In addition to his blog, which he writes under a pseudonym, Richard is also an AlzAuthors Associate, creating videos for our Dementia Caregiving During COVID video series. In this episode we talk about making a residential move late in life, their traumatic bout with COVID-19, how he keeps himself active and busy while caring for his wife at home, and what he’s got in his “Caregiver Toolbox” that may also be helpful to other caregivers on the dementia journey. Read Richard’s AlzAuthors post: https://alzauthors.com/2019/01/15/meet-blogger-richard-creighton-living-with-alzheimers/ Watch Richards’s Dementia Care During COVID videos: https://alzauthors.com/covid-19/ Start reading “Living with Alzheimer’s: A Real-Time Account of Dementia Caregiving” now! http://livingwithalzheimers.com/ Connect with Richard Creighton Blog: http://livingwithalzheimers.com/ Twitter: https://twitter.com/LivingWthAlz  Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
June 14, 2021

Untangling A Doctor's Dementia with Dr. Jennifer Bute

Today’s guest is Dr. Jennifer Bute who lives in a dementia inclusive retirement village in Somerset, west of London. Previously she worked in Africa as a doctor before working as a GP for 25 years in England and was involved in medical education. Her career was cut short when she was diagnosed with young onset dementia ten years ago. She speaks at conferences and on radio and has been involved in television programs raising awareness and understanding of dementia. She passionately believes more can be done to improve both the present and the future for those living with the condition. Her book Dementia from the Inside: A Doctor's Personal Journey of Hope is her story and explains these principles. Her website GloriousOpportunity.org includes many videos where she discusses different aspects of dementia, and she also blogs on Facebook at Glorious Opportunity.  In this episode we discuss the Japanese Memory groups she runs at her retirement village, how to find someone in their dementia, why she insists on always telling the truth to those with dementia, and the wonders of Alexa. Read Jennifer’s AlzAuthors Post: https://alzauthors.com/2020/09/15/dr-jennifer-bute-dementia-from-inside/ Start reading Dementia from the Inside Out now! https://amzn.to/2Qm36mg Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Jennifer Website: https://www.gloriousopportunity.org/ Facebook: https://www.facebook.com/gloriousopportunity Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ Thank you for listening.  
June 7, 2021

Untangling Six Years of AlzAuthors

We’re doing something a little different on the podcast today. It’s AlzAuthors 6th anniversary, and we’re celebrating by bringing the entire team together to talk about what goes on behind the scenes of this global organization of authors. We’ll talk about upcoming events and projects and plans for the coming year. You’ll learn about our acquisitions process, which is how we find the great books and blogs in our collection, how to become an AlzAuthor, our new book club with Amazon, and how you can help to support our mission to bring quality resources to caregivers and others concerned about these conditions. Be sure to check the show notes as they are packed with information on how to get more from AlzAuthors. Follow AlzAuthors: Website: https://alzauthors.com Blog: https://alzauthors.com/blog/ Facebook: https://www.facebook.com/AlzAuthors/ Instagram: https://www.instagram.com/alzauthors/ Twitter: https://twitter.com/alzauthors LinkedIn: https://www.linkedin.com/company/alzauthors Volunteer: https://alzauthors.com/volunteer/ Submit Your Book: https://forms.gle/oTaGH1S3b52VHdTB6 Donate: https://alzauthors.com/donate/ Purchase an Anthology: https://www.amazon.com/AlzAuthors/e/B07K8YDZZB Join our Amazon Book Club: https://www.amazon.com/amazonbookclubs/detail/amzn1.club.bookclub.96bc133f-1784-0992-c0b0-cdead946f145? Dementia Caregiving During COVID Videos: https://alzauthors.com/covid-19/ Podcast: https://alzauthors.com/podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/  Thank you for listening.  
June 1, 2021

Untangling Art in Dementia Care with Katya De Luisa

Today’s guest is Katya De Luisa, an artist, expressive arts program designer, freelance writer, and author with 20 years’ experience working with those living with dementia and their families. She firmly believes that when we change the way we look at something what we look at changes. Katya’s experience working in long-term care facilities as both a caregiver and as an art director has given her a wealth of insight into the dementia diseases, family dynamics, communication, miscommunication, and more. Her passion is communicating with people in late-stage disease using the visual arts, collage in particular. She believes that no matter how advanced a person’s dementia may be there is still a person inside who is reachable if we use the right tools and methods. She is the founder and director of the non-profit The Infinite Mind Dementia Project in Costa Rica, and the author of the book Journey Through the Infinite Mind: The Science and Spirituality of Dementia. In this episode overflowing with practical advice and much to think about, we discuss how to connect with those who have dementia, why we should “move into the now,” tips on how to evaluate a nursing home, and why dementia instills such paralyzing fear in all of us, as individuals and as societies.  Read Katya’s AlzAuthors Post: https://alzauthors.com/2021/02/02/katya-de-luisa-alzheimers/ Start reading Journey through the Infinite Mind: The Science and Spirituality of Dementia now! https://amzn.to/3nB6zcC Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Katya De Luisa Website: https://www.theinfinitemind.org Blog: https://www.theinfinitemind.org/category/katyas-blog/ Facebook: https://www.facebook.com/katya.deluisa.37 Twitter: https://twitter.com/TheInfiniteMin1 LinkedIn: https://www.linkedin.com/in/katya-de-luisa-5a789319/ Info on MP3 players for those with dementia: The Purple Angel (UK): https://purpleangel-global.com/mp3-players/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.  
May 24, 2021

Untangling Caring for a Husband with Early Onset Alzheimer’s with Renée Harmon, MD

Today’s guest is Renée Brown Harmon, MD, author of the teaching memoir “Surfing the Waves of Alzheimer's: Principles of Caregiving That Kept Me Upright.” She and her husband Harvey created, developed, and shared a thriving family medicine private practice in Birmingham, Alabama, for more than twenty years. In 2010, Harvey, at age 50, was diagnosed with early onset Alzheimer’s and forced to retire. Renée became “The Queen of Everything” at work and at home. She was a solo physician at their practice as well as Harvey’s primary caregiver, and primary parent to their two teenaged daughters. With reluctance and resentment, she also took on the role of head of household. It was a lot, but she managed to “surf the waves,” which she shares in her insightful book. Harvey’s dementia journey ended in memory care in 2018. Renée retired in 2019 and uses her time and talents to write and speak on Alzheimer’s and dementia while advocating for caregivers.  In this episode we discuss how being a physician affected her caregiving journey, how she tried to do it all herself but learned to reach out for help, and the creative ways her friends helped her and Harvey. Read Renée’s AlzAuthors Post: https://alzauthors.com/2020/06/16/renee-harmon-earlyonset-alz-blog/  Start reading "Surfing the Waves of Alzheimer's: Principles of Caregiving That Kept Me Upright" now! https://amzn.to/3atH7jU Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Renée Website: https://www.reneeharmon.com/ Blog: https://www.reneeharmon.com/blog/ Facebook: https://www.facebook.com/reneeharmonauthor Instagram: https://www.instagram.com/reneeharmon_writes/?hl=en Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
May 17, 2021

Untangling Motherhood and Dementia with Ann Campanella

Ann Campanella is a former magazine and newspaper journalist, the author of two memoirs and four collections of poetry, and an AlzAuthors manager and director. Her award-winning writing has appeared in literary journals, newspapers and magazines across the country and around the world, and she has discussed her work on numerous podcasts. Ann’s first memoir, Motherhood: Lost and Found, was twice named “One of the best Alzheimer’s books of all time” by Book Authority. In 2018, she was recognized by her hometown newspaper as one of the Most Influential Women in her community. She has a degree in English Literature from Davidson College and lives with her family and animals in North Carolina. In this episode, we discuss her heartbreaking journey to become a mother while losing her own mother to dementia at the same time, the healing power of horses, and the “season” of caregiving. Read Ann’s AlzAuthors Posts: Motherhood: Lost and Found https://alzauthors.com/2017/01/18/meet-ann-campanella-author-of-motherhood-lost-and-found/ The Beach Poems https://alzauthors.com/2017/11/08/what-flies-away-poetry-byann-campanella/  What Flies Away https://alzauthors.com/2019/09/17/meet-ann-campanella-alzauthors-manager-and-author-of-what-flies-away/ Start reading Ann’s work now!  Motherhood Lost and Found: https://amzn.to/3eC5izw  The Beach Poems: https://amzn.to/3lsFPu1  What Flies Away: https://amzn.to/3clNBSi Celiac Mom: https://amzn.to/38VsV Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Ann Campanella  Website: http://anncampanella.com/ Blog: https://fieldsofgrace22.wordpress.com/author/awcamp/ Facebook: https://www.facebook.com/ann.campanella.7 Instagram: https://www.instagram.com/awcampanella/ Twitter: https://twitter.com/authorAnnC Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.      
May 10, 2021

Untangling Dementia Mama Drama with Vincent Zappacosta

Vincent Zappacosta has been a writer and photographer ever since he was a little boy back in Catholic school. His professional background has been in theatre, yoga, and graphic design. All of these skills came to be a blessing when his mother, Mama, was diagnosed with Alzheimer’s, and he and his husband Douglass became her caregivers. “Mama was a ham,” he says, and loved being the focus of attention. She was thrilled when he began sharing their dementia journey with the world through his blog, Dementia Mama Drama. The blog became a play, and then a book, all by the same name. In this episode we discuss how Vincent and Douglass coped as caregivers to the dramatic Mama with daily doses of humor, always keeping Mama in the spotlight, and maintaining their own sanity with The Three W’s: writing, walking, and wine. Read Vincent’s AlzAuthors Post: https://alzauthors.com/2020/12/15/a-daily-dose-of-dementia-mama-drama/  Start reading Dementia Mama Drama now! https://amzn.to/3rZiwdS Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Vincent Zappacosta Blog: https://www.dementia-mama-drama.com/ Facebook: https://www.facebook.com/Dementia.Mama.Drama Instagram: https://www.instagram.com/dementia_mama_drama/ Twitter: https://twitter.com/DementiaMama Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .  Thank you for listening.
May 3, 2021

Untangling How to Care for Our Elders with Carol Bradley Bursack

Today’s guest is Carol Bradley Bursack, an author, columnist, consultant, and speaker who provided care to a neighbor and six elderly family members over the span of two decades. This experience led her to write Minding Our Elders: Caregivers Share Their Personal Stories, a portable support group for caregivers that is also used as a college text for gerontology and nursing home administration classes. Her websites Minding Our Elders and Minding Our Elders blog, include links to helpful agencies, articles rich with information and comfort, links to support groups, and resources for caregiver, boomer and elder needs. Carol also works as a consultant on aging and caregiving issues. Her newspaper column Minding Our Elders has run weekly for over 15 years, both in print and online. She is the spokesperson and writer for Egosan Products, where she writes the column “Ask Carol” on their EgosanCares.com website and manages their social media. She also moderates a paid forum for Dr. Leslie Kernisan’s website Better Health While Aging. She has written for HealthCentral.com for over 14 years and for Agingcare.com for 10 years.  Carol is frequently interviewed on national radio shows, including NPR's Talk of the Nation; Senior Solutions, produced by Detroit Area Agency on Aging; and Wisconsin Public Radio. She’s routinely interviewed by newspapers, magazines and on major websites, including Reader’s Digest (Digital), Next Avenue, Salon.com, The New York Times, The Wall Street Journal, The USA Today Network, the Chicago-based Make It Better magazine, The Upside of Aging, Booming Encore, US News &World Report, Market Watch, and more. She is a co-moderator on the Facebook sites USagainstAlzheimers and Caregivers Committed to Wellness, as well as a contributor to Caregivers Companion and Joining the Dots on Alzheimer’s. Carol is currently working on a book that will include her signature support for caregivers and elders. The book will also delve into the many changes that have occurred in caregiving over the last two decades. She plans to include chapters on living well until we die, death with dignity, with more revealed as the book evolves.  In this episode we discuss caring for our loved ones with dementia by entering their world, managing medications, and the trials and tribulations of long term care. Read Carol’s AlzAuthors Post: https://alzauthors.com/2016/06/10/meet-carol-bradley-bursack-author-of-minding-our-elders/ Start reading Minding Our Elders now! Link https://amzn.to/3ahhW3a (Note: We are an Amazon Associate and may receive a small commission from book sales.) Connect with Carol Website: https://mindingourelders.com Blog: https://www.mindingoureldersblogs.com Facebook: https://www.facebook.com/MindingOurElders/ Instagram: https://www.instagram.com/MindingOurElders/ Twitter: https://twitter.com/mindingourelder Pinterest: https://www.pinterest.com/mindingourelder/pins/ LinkedIn: https://www.linkedin.com/in/mindingourelders/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
April 26, 2021

Untangling Love and Loss with Marianne Sciucco

In this podcast, we’re turning the tables on podcast host and producer Marianne Sciucco. She is the guest and Jean Lee of AlzAuthors is the interviewer. Marianne is a co-founder and manager of AlzAuthors and is the author of Blue Hydrangeas, an Alzheimer’s love story. She’s also a registered nurse who has cared for hundreds of dementia patients and their families over her 20+ years career. In 2015 she became a dementia daughter when her stepfather was diagnosed with mixed dementia: frontotemporal, Alzheimer’s, and vascular, and she became his long-distance caregiver. She soon took on the care of her mother. as well. Her caregiving journey ended in 2018. Marianne continues to work as a nurse in college health, is working on a prequel to Blue Hydrangeas, and is dedicated to making AlzAuthors an information hub for caregivers. In this episode, we discuss the many losses Marianne has recently endured, her new blog project “The Grief Diary: Exploring the Aftermath of Love and Loss,” the lessons she learned as a long distance caregiver, and how she wrote and published the book that launched AlzAuthors.  Read Marianne’s AlzAuthors post: https://alzauthors.com/2018/05/02/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/  Start reading Blue Hydrangeas, an Alzheimer’s love story now! https://amzn.to/3suzfVv We are an Amazon Associate and may receive a small commission from book sales.  Connect with Marianne: Website and blog  https://mariannesciucco.com Facebook: https://www.facebook.com/marianne.sciucco.1/ Twitter: https://twitter.com/MarianneSciucco LinkedIn: https://www.linkedin.com/in/marianne-sciucco/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more, supporting our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .  Thank you for listening!
April 19, 2021

Untangling Life as a Millennial Caregiver with Lauren Dykovitz

Lauren Dykovitz knew nothing about Alzheimer’s when her mother was diagnosed at the age of 62. Just 25, with a new career and recently engaged, Lauren took a crash course in caregiving which changed her life, and eventually led her to candidly share her story on Facebook. This soon grew into the blog, Life, Love, and Alzheimer’s, which grew into the book, Learning to Weather the Storm: A Story of Life, Love, and Alzheimer’s. Her goal was not only to share her story and the lessons she’s learned but to let others know they are not alone.  In the beginning, she says, she had a difficult time coping with her mom’s disease and felt she had nowhere to turn for advice and support. As a younger caregiver, it was difficult to find anyone who could relate to what she was going through. In many ways, the blog serves as her online journal. She finds it therapeutic to write down her thoughts and feelings as she navigates her way through life with this horrific disease and the aftermath of her mother’s death. The name of the blog says it all: She tells stories of life, love, and Alzheimer’s, and warns that she might make you cry at times, but she promises to make you laugh, as well. And, to always, always, always keep it real.  “I’m not an expert on Alzheimer’s,” she says. “I’m an expert on loving someone who has it.” In this episode we discuss the particular difficulties of being a millenial caregiver, how connecting with other caregivers via social media makes it easier, and why her mother’s forgetting her wasn’t the worst thing that happened. Read Lauren’s AlzAuthors post: https://alzauthors.com/2018/01/24/meet-lauren-dykovitz-author-of-learning-to-weather-the-storm-a-story-of-life-love-and-alzheimers/  Start reading Learning to Weather the Storm: A Story of Life, Love, and Alzheimer's now: https://amzn.to/3aetvbl Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Lauren Website: https://lifeloveandalzheimers.com/ Facebook: https://www.facebook.com/lifeloveandalzheimers/ Instagram: https://www.instagram.com/lifeloveandalzheimers/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .  Thank you for listening.  
April 5, 2021

Untangling Early Onset Alzheimer's Atop a Penny Farthing with Peter Berry and Deb Bunt

Today’s guest is Peter Berry. Diagnosed with early onset Alzheimer’s at age 50, Peter took an early retirement from his job working in the family’s timber business. After the devastating diagnosis, he became depressed but, being a ‘glass half full’ personality, battled through his depression and focused on his lifelong passion for cycling. He has used this passion to raise awareness of the condition, particularly in younger people. Peter’s whole philosophy is to live well with dementia and to inspire others to do the same. He maintains an active lifestyle due to his love of cycling, which keeps him fit both below and above the eyebrows, he says. He rides a penny farthing, a single speed bike, a road bike, and a 1950's Claud Butler, although not all at the same time – he’s good, but not that good, he jokes. Along with his friend Deb Bunt, Peter cycles nearly every day. Their travels throughout Suffolk, England have led them to have many serious heart-to-hearts about his disease, which Deb put together in a book called Slow Puncture: Living Well with Dementia. “It's a book about me,” Peter says, “but a book I have never read and never will read as my short-term memory means I have forgotten the previous sentence as soon as I have started a new one.” In this episode we discuss the difficulties encountered with a dementia diagnosis at age 50, the financial pressures he’s had to overcome, and how cycling has made life with COVID tolerable. Read Peter’s AlzAuthors Post: https://alzauthors.com/2020/12/29/early-onset-alzheimers-bunt-berry/ Start reading Slow Puncture now! https://amzn.to/3tbDsis Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Peter Berry Website: https://peterberrylwa.wixsite.com/peterberry/the-book  Facebook: https://m.facebook.com/DebBuntAuthor Facebook: https://www.facebook.com/PeterBerryLivingWithAlzheimers/ Twitter: https://twitter.com/PeterBe1130 Instagram: https://www.instagram.com/peterberry8/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
March 29, 2021

Untangling Personal and Professional Dementia Care with Paula Spencer Scott

Paula Spencer Scott is a long-time journalist and health and family-life specialist focusing on self-care, eldercare, and baby care. She's the author of the bestseller “Surviving Alzheimer's: Practical Tips and Soul-Saving Wisdom for Caregivers” and the recently released “When Your Aging Parent Needs Help: A Geriatrician's Step-by-Step Guide to Memory Loss, Resistance, Safety Worries, & More” with Dr. Leslie Kernisan Paula experienced dementia in five of her immediate family members, including her live-in father-in-law, and took on a variety of caring roles. This gave her the precious insight and advice that flows throughout her caregiver guides.​​ Paula’s work may be familiar to you. She’s been published in a variety of mainstream magazines and online platforms, including Woman's Day, Parade, AARP Bulletin, Newsweek, PBS Next Avenue, Glamour, Reader's Digest, USA Weekend, Caring.com, and WebMD, to name a few. ​She has earned writing awards from the American Speech-Language-Hearing Association, the Arthritis Foundation, the National Political Women's Caucus, and the Western Publishing Association. Her other books include “Momfidence” and a series of interactive journals for Peter Pauper Press: Pregnancy Journal, An Oral History: Preserve Your Family's Story, Mother and Son, and Like Mother, Like Daughter: A Discovery Journal for the Two of Us (written with her daughter, Page). In this episode we discuss the Cardinal Rules of Dementia Care, three things you can change about your dementia journey, and how knowledge can be a form of self-care. Read Paula’s AlzAuthors Post: https://alzauthors.com/2016/12/28/meet-paula-spencer-scott-author-of-surviving-alzheimers-practical-tips-and-soul-saving-wisdom-for-caregivers/ Start reading Surviving Alzheimer’s https://amzn.to/3uXlpxk and When Your Aging Parent Needs Help https://amzn.to/3ecYsQW now! Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Paula Spencer Scott Websites:  Surviving Alzheimer’s…Together: https://www.survivingalz.net/ Paula Spencer Scott: https://www.paulaspencerscott.com/ Facebook: https://www.facebook.com/survivingalz/ Twitter: https://twitter.com/PSpencerScott LinkedIn: https://www.linkedin.com/in/forpaulaspencerscott/ Paula’s Recommended Resources Better Health While Aging: BetterHealthWhileAging.net. Osher Lifelong Learning Institute at Colorado State University: https://courses.online.colostate.edu Mindspan: Stay Sharp All Your Lifetime Through Better Brain Health  Dementia Together: dementiatogether.org  Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
March 22, 2021

Untangling Alzheimer's on a 10,000 Mile Trike Trip with Susan Straley

Today’s guest is Susan Straley, author of the dual memoirs "Alzheimer's Trippin' with George" which memorialize her 10,000-mile cross-country trike trips after her husband’s dementia diagnosis.  When Susan and George semi-retired from their machine design and manufacturing business in Waukesha, Wisconsin in 2008, they moved all their belongings into storage except for what they needed for a long bicycle trip on their recumbent tricycles, and pedaled around Wisconsin for 40 days. Throughout their travels, Susan uploaded pictures and stories to an online journal to keep family and friends informed of their whereabouts. This journal began her writing career.  Born with an urge to wander, Susan thought it only natural to want to run away when dementia entered their lives in 2015, so she and George took off on their trikes for a three-month trip around the States. She again kept an online journal of their adventures, but this time she included the deepest, most personal details of the progression of George’s disease. Her readers, followers, friends, and family encouraged her to tell all.  "It will be so helpful to others who have loved ones with dementia," they said. This became her first book. When Susan and George arrived home she was encouraged to continue writing about their experiences, and the second half of their dementia journey turned into a love story, the love between the two of them, but also the wonderful outpouring of love and support they enjoyed from friends, family, and their community.   In 2018, George succumbed to Alzheimer’s. Susan still enjoys riding her recumbent tricycle and traverses the country in her camper, sharing her travels and adventures online all the way.  In this episode we discuss life after Alzheimer’s caregiving, the value of support groups, and turning a travel blog into a book.  Read Susan’s AlzAuthors post: https://alzauthors.com/2019/10/01/susan-straley-alzheimers-trippin-george/ Start reading "Alzheimer’s Trippin’ with George" now! https://amzn.to/38RDt39 Available in paperback, Kindle, and audiobook. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Susan Straley Website: https://www.susanstraley.com/ Facebook: https://www.facebook.com/TrippinwithSusan Twitter: https://twitter.com/SusanStraley Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys.  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
March 15, 2021

Untangling Caregiver Stress by Keeping a Journal with Vicki Tapia

When both of her parents were diagnosed with dementia, Vicki Tapia, a lactation consultant who had coached around 10,000 mother-baby pairs, found her energies redirected to the other end of life. A lifelong writer, she soon began journaling as an outlet for the stress and strain she encountered as their long-distance caregiver. Over time, this journal became a book-length work, a memoir detailing her family’s rocky road through this devastating disease.   She was inspired to seek publication after many friends told her that reading her words helped them on their own dementia journeys. Her story was then published by Praeclarus Press as Somebody Stole My Iron: A Family Memoir of Dementia. It became a finalist in the 2015 High Plains Book Awards and was named "One of the best Alzheimer's books of all time" by Book Authority. Vicki is a co-founder and manager of AlzAuthors, happily serving as treasurer, acquisitions editor, and whatever else is needed. She’s a lifelong traveler and has been all over the globe and the United States. When she’s not busy writing, you’re apt to find her out walking her dog or off on an adventure with her husband on their tandem bicycle. In this episode, we discuss the dilemma of being a long-distance caregiver to two parents with dementia at the same time, the trauma of moving her parents not once but twice, and how journaling helped her keep her sanity. Read Vicki’s AlzAuthors blog post: https://alzauthors.com/2018/05/15/meet-vicki-tapia-alzauthors-admin-and-author-of-somebody-stole-my-iron/ Purchase Somebody Stole My Iron: A Family Memoir of Dementia: https://amzn.to/38dsl0o Purchase Maggie https://amzn.to/3hO80BW Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Vicki  Facebook: https://www.facebook.com/SomebodyStoleMyIron/ Twitter: https://twitter.com/vicleetap Website: https://vickitapia.com/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
March 8, 2021

Untangling End of Life Issues with Gerda Saunders

Today’s guest is Gerda Saunders, author of the mesmerizing memoir Memory’s Last Breath: Field Notes on My Dementia, in which she describes in great detail her descent into cerebral microvascular disease, a precursor to dementia. A gifted writer, she is also a woman of many talents and has had a remarkable career in higher education. She grew up in South Africa during apartheid, the child of a farmer in a family of six children. In spite of her family’s lack of resources, she succeeded in earning a B.S. in Math and Chemistry from the University of Pretoria. She then worked as a research scientist at the South African Atomic Energy Board for three years and left that to become a teacher. She taught Science and Math at Kempton Park (Afrikaans) High School, and Math and Physics at the Kempton Park Technical Institute. In 1984, she emigrated to the United States and settled in Utah with her husband Peter and their two children.  She continued her education at the University of Utah and earned a PhD in English while teaching Business and Creative Writing. After graduation, she worked for seven years in the business world as a technical writer and program manager. In 2001, she became the Associate Director of Gender Studies at the University of Utah. In addition to her administrative role, she taught classes in gender studies and English Literature.  In 2002, SMU Press published her first book, Blessings on the Sheep Dog, a collection of stories about which Nobel laureate J.M. Coetzee said, "With cool intelligence, laconic wit, and deep feeling, Saunders explores the moral chaos of South Africa and the pain of a new generation of...exiles."  In this episode we discuss what led to her seeking a diagnosis for the peculiar and worrisome behaviors that surfaced at the age of 61, how she’s lived joyously for almost a decade with the d-word, and her carefully crafted end-of-life plan. Start reading Memory’s Last Breath: Field Notes on My Dementia now! https://amzn.to/2LdZuQ8 Note: We are an Amazon Associate and may receive a small commission from book sales. Read Gerda’s post on AlzAuthors: https://alzauthors.com/2017/10/31/meet-gerda-saunders-author-of-memorys-last-breath/ Read Gerda’s article in Slate: My Dementia - Telling who I am before I forget  http://www.slate.com/articles/health_and_science/family/2014/03/dementia_and_aging_diary_of_a_sufferer_of_microvascular_disease.html Connect with Gerda Saunders: Website: https://www.gerdasaunders.com/ Blog: https://www.gerdasaunders.com/blog/ Facebook: https://www.facebook.com/gerda.saunders Goodreads: https://www.goodreads.com/author/show/16645330.Gerda_Saunders LinkedIn: https://www.linkedin.com/in/gerda-saunders-a85381100/detail/recent-activity/shares/ Pinterest: https://www.pinterest.com/gerdasaunders/my-dementia-my-fashion/ Twitter: https://twitter.com/GerdaMSaunders Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys.  AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
March 1, 2021

Untangling the Expressive Arts for Dementia Care with Daniel C. Potts, MD

Daniel C. Potts, MD, FAAN is a neurologist, author, poet, educator, and champion of those living with Alzheimer's and other dementias and their care partners. His professional life collided with his personal in 2002, when his father, Lester, was diagnosed with Alzheimer’s. He soon found himself on his own dementia journey, and like many other care partners, became adrift in despair, confusion, grief, and helplessness as he watched his father decline. Soon after Lester started attending a day care program for people with cognitive impairment, he began to show a previously unknown talent for painting watercolors. This not only delighted him and his family but also others at the center, and he obtained some local notoriety for his colorful artwork. Not long after, Daniel’s own creativity with words emerged, and his poetry became a necessary outlet to release his sorrow over his father’s illness. The transformations he and Lester experienced through their work inspired him to create his foundation, Cognitive Dynamics, which brings the expressive arts to person-centered care, enabling those with cognitive impairment to find new ways to express themselves. Daniel believes his dementia journey has made him a better physician, and he brings his personal insight and the lessons he’s learned to his practice, where he is passionate about promoting self-preservation and dignity for all persons with cognitive impairment. He is the author of several books of poetry and with his wife, Ellen, has written “A Pocket Guide for the Alzheimer's Caregiver.” He lives in Tuscaloosa, Alabama with Ellen and their two daughters. Daniel was selected by the American Academy of Neurology as the 2008 Donald M. Palatucci Advocate of the Year; he also has been designated an Architect of Change by Maria Shriver. In 2016, he was chosen by the University of Alabama Medical Alumni Association as a recipient of the Martha Myers Role Model Award, honoring physician alumni whose lives epitomize the ideal of service to their communities. In this episode we discuss confronting dementia from the unique perspectives of both son and physician, how his father’s dementia almost brought him under and the self-care methods that helped him regain and maintain his physical and emotional balance, and how the expressive arts can bring comfort, peace, and joy to those living with a dementia diagnosis. Read Dr. Potts’ AlzAuthors post: https://alzauthors.com/2017/02/21/meet-daniel-c-potts-physician-author-and-dementia-advocate/ Start reading “A Pocket Guide for the Alzheimer's Caregiver” with Ellen Potts now! https://amzn.to/3nP2IIB Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Dr. Potts Blog: https://danielcpotts.wordpress.com/ Facebook: https://www.facebook.com/daniel.potts.92372 Twitter: https://twitter.com/DanielCPotts LinkedIn: https://www.linkedin.com/in/danielcpotts/ Cognitive Dynamics: www.cognitivedynamics.org Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
February 8, 2021

Untangling Lewy Body Disease with Florrie Munat

Today’s guest is Florrie Munat, author of the memoir “Be Brave: A Wife’s Journey Through Caregiving,” in which she shares the story of caring for her husband, Chuck, during their 6-year ordeal with Lewy Body disease due to an ischemic stroke. "Be Brave" was selected as one of the Top 100 Indie Books of 2017 by Kirkus Reviews, who described it as, "A beautiful, richly panoramic book that should reassure caregivers and delight memoir readers." Already a published author when their journey started, Florrie began chronicling their new story right away with honesty, humor, compassion, and a desire for self-discovery. After Chuck succumbed to complications from Lewy Body disease, she sifted through her random notes, journal entries, and written observations and wove them into this moving memoir, a tribute to a loving marriage tested by unanticipated and transformational challenges. Florrie is the author of numerous children’s books, nonfiction articles, short stories, and poems. She worked as a reference and young adult librarian, taught high school English, and worked for a university press. She and Chuck raised four children, and her family hosted four foreign exchange students. She is currently a volunteer radio reader and Young Adult book reviewer; and writes and edits for the Lewy Body Dementia Association and several community groups. She lives on Bainbridge Island, Washington, where she enjoys photography, the New York Times crossword puzzle, hiking, reading, and following Seattle’s underdog sports teams. Read Florrie’s AlzAuthors post: https://alzauthors.com/2019/01/29/meet-florrie-munat-author-of-be-brave/ Start reading “Be Brave” now! https://amzn.to/3oSap0w (Note: We are an Amazon Associate and may receive a small commission from book sales.) Connect with Florrie Website: https://florriemunat.com/ Twitter: http://www.twitter.com/FlorrieMunat Facebook: http://www.facebook.com/author.florrie.munat Instagram: http://www.instagram.com/fmunat/ Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
February 1, 2021