Untangling What the Hell Happened to My Brain with Kate Swaffer

Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast

Untangling What the Hell Happened to My Brain with Kate Swaffer

July 12, 2021

Untangling What the Hell Happened to My Brain with Kate Swaffer

Today’s guest is Australian Kate Swaffer, a humanitarian and activist for disability rights in dementia and aged care. She is the Chair, CEO and co-founder of Dementia Alliance International, a global advocacy and support group for people living with dementia. Kate is also living with younger onset dementia, diagnosed in 2008 at age 49.

She has won many awards for her work, including the 2018 Australian 100 Women of Influence Global Leader, and the 2017 South Australia Australian of The Year. Kate is an elected board member of Alzheimer’s Disease International, and a current PhD candidate at the University of South Australia. Her first dementia book, What the Hell Happened to My Brain? Living Beyond Dementia, and her second book, Diagnosed with Alzheimer’s or another dementia, co-authored with Associate Professor Lee-Fay Low, were released in 2016. She has also written and published a book of poetry, Love Life Loss – A Roller Coaster of Poetry Volume 2: Days with Dementia.

Since 2010, Kate has given many keynote presentations on dementia, human rights, disAbility, discrimination, stigma, the lived experience of dementia, dementia-enabling design principles, language, Prescribed Disengagement®, Information Technology for people with dementia, dementia policy, and loss and grief.

In this episode we discuss how she managed to complete two master’s degrees and part of a PhD post diagnosis, her life as an “accidental activist,” and how to break down the wall of silence that surrounds a dementia diagnosis.

Read Kate’s AlzAuthors Post: 

Start reading What the Hell Happened to My Brain? now!

Start reading Diagnosed with Alzheimer’s or another dementia now!

Note: We are an Amazon Associate and may receive a small commission from book sales. 

Connect with Kate Swaffer


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Thank you for listening.


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