DBS: I Helped Surgeons Operate on my Brain

When Life Gives You Parkinson’s

DBS: I Helped Surgeons Operate on my Brain

Actually, It IS Brain Surgery.
November 22, 2023

DBS: I Helped Surgeons Operate on my Brain

In this episode of “When Life Gives You Parkinson’s,” Larry and Rebecca dive into Larry’s recent Deep Brain Stimulation (DBS) surgery. It’s the culmination of their DBS series, showcasing moments before and after the procedure. (Episode six of our 2023 DBS series)

Larry shares his experiences, from the anticipation of the surgery to post-surgery reflections. He describes the fears he had about the head frame and the surgical process itself, emphasizing the involvement of Nurse Nancy and Dr. Honey. The detailed account covers the electrode installation, the testing of potential targets for relief, and the moments of consciousness during the surgery.

Post-surgery, Larry discusses the “Honeymoon” period, a phase of initial relief and remarkable changes. He talks about the reduction in medication intake, improved bodily functions, and sensory experiences like regaining his sense of smell. Despite these positive changes, he notes signs of needing to gradually reintroduce medication as he experiences disorientation and fatigue.

Larry and Rebecca conclude with observations of minor personality changes and a heartfelt conversation about what comes next.

It’s a personal, insightful episode that offers a firsthand account of the realities and changes that come with DBS surgery for Parkinson’s Disease.


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Thanks to Curiouscast

Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

Additional thanks to… 

PD Avengers – We are building a global alliance to end Parkinson’s. Join us

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