A terminal diagnosis for my baby
“Eventually, this thankfully passed. Now, almost three years later, I know that this loss will always be with us. Miriam was beautiful, she was our only girl, she was perfect for our family, and she’s always missing.
Still, my memories of being in the hospital are incredibly sad but also peaceful. In part, this is due to the incredible support and love we got from our family, friends, rabbi, and community. But in a big part, this is due to the clear and honest way we got Miriam’s diagnosis and the support, concern, and compassion from her medical team.”
Sophia Zilber is a patient advocate.
She shares her story and discusses her KevinMD article, “Getting a terminal diagnosis for my baby.” (https://www.kevinmd.com/blog/2020/01/getting-a-terminal-diagnosis-for-my-baby.html)