We are learning from the best – A read out from #DSFinDFW Conference. #S10e65
WEBINARS
– Susan on Fundraising: https://syngap.fund/susan
– Go to the CIITIZEN Webinar tomorrow (June 29th @ 11:30 ET) https://syngap.fund/virginie
– Sign up! https://www.ciitizen.com/syngap1/
FUNDRAISERS
– SHARE & SUPPORT by Thursday, all funds matched in June! https://www.facebook.com/donate/435907651714018/336149052023430/
– MICE: Help us Make 2! https://syngap.fund/2mice
DRAVET WAS AMAZING
– Mike’s Tweet-threads about the event
– Day 1 https://twitter.com/JMGraglia/status/1540061343813885952
– Day 2 https://twitter.com/JMGraglia/status/1540339186187788289
– Day 3 https://twitter.com/JMGraglia/status/1540709603406540803
– DSF https://dravetfoundation.org/
– Conference https://dravetfoundation.org/events/dsf-conference/
– Dr. Andrade / AGE – https://www.uhnresearch.ca/researcher/danielle-andrade
– Dr. Perry & Dr. Papadelis at Cook Children’s
– Article about Perry/Cook https://www.checkupnewsroom.com/rare-disease-day-carter–many-patients-treated-cook-childrens-syngap-rare-disease-seizures/
– Dr. Perry on the Twitter: https://twitter.com/TheNotoriousEEG
– Link with the Dr. Papadelis study: https://www.cookchildrens.org/services/neurosciences-research/funding/
– Longboard
– https://www.longboardpharma.com/
– https://pacific.researchstudytrial.com/
– Epigenyx
– https://www.epygenix.com/
– Baraban Lab https://barabanlab.ucsf.edu/
– Clemizole Tweet https://twitter.com/JMGraglia/status/1540712480975884288
EVENTS
September 12-14 in San Diego – https://globalgenes.org/event/rare-patient-advocacy-summit/
October 8 in NJ – Caren Leib Gala https://www.syngapresearchfund.org/get-involved/fundraising/caren-leib-gala
October 8 in SC – Scramble for SYNGAP https://www.syngapresearchfund.org/get-involved/fundraising/scramble-for-syngap
November 12 in GA – Sparks of Hope Gala https://syngap.fund/soiree
December 1 in TN – Syngap Science Meeting – https://syngap.fund/treat
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 65 of #Syngap10 – June 28, 2022
#CareAboutRare #CureDravet #DSFinDFW #Ciitizen #LongboardPharma #Epigenyx #CookChildrens #F78A1 #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GlobalCollaboration
