Ep 6: Caring for Someone with Alzheimer’s Disease

If you love someone with Alzheimer’s disease, you know that caregiving can be complicated and challenging. But you are not alone. There are many resources to help on your journey. In this episode, we hear from experts and other caregivers about some important dos and don’ts, and share resources where you can find more information.

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Resources

Part 1: Making Changes to Environment

• Home safety tips from MayoClinic
• Environmental changes (Social Care Institute for Excellence)
• Grants and resources to help make changes to the home (Alzheimer’s Society, UK)

Part 2: Helping Someone with Personal Care

• NIH
• BetterHealth (Australia)
• Alzheimer’s Association
• Social Care Institute for Excellence (UK)
• MayoClinic
• WebMD, handling outbursts
• Alzheimer’s Associations, managing anger

Part 3: Things Not to Do/Say

• Alzheimer’s Society
• Alzheimer’s San Diego

Part 4: Support for Caregivers

• Coping with caregiver depression 
• Managing stages of Alzheimer’s disease 
• Alzheimer’s Association support for caregivers (US)
• Alzheimer’s Association Local Chapters (US)
• Alzheimer’s Society support for caregivers (UK)
• Alzheimer’s Society support groups (UK)
• Dementia Friendly America
• Healthline: How to find caregiver support groups (US)
• Alzheimer’s Speaks – Resources and links
• Alz Authors – Books and Podcasts

Part 5: Links to information about advanced care planning

• Finding geriatric care managers
• ElderCare Locator from the US Administration on Aging
• Alzheimer’s Association chapters 
• Alzheimer’s Association guide for advance planning
• Finding your nursing home ombudsman (USA)
• Alzheimer’s Society (Canada)
• Alzheimer’s Society (UK)

Links to information about clinical trials:

• Alzheimer’s.gov
• Alzheimer’s Association 

Links to Guest’s Books

• Dr Andrew Budson – Seven Steps to Managing Your Memory: What’s Normal, What’s Not and What to Do About It
• Dr Jason Karlawish – The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
• Anthony Copeland Parker – Running All Over The World: Our Race Against Early-Onset Alzheimer’s
• Paul Hornback – God Still Remembers Me: Devotions for Facing Alzheimer’s Disease with Faith
• Paul Hornback – My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer’s Disease
• Dr Daniel Gibbs – A Tattoo on my Brain: A Neurologist’s Personal Battle against Alzheimer’s Disease
• Dr Phillip Sloane – ​​Alzheimer’s Medical Advisor: A Caregiver’s Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia 
• Dr. Jane Mullins – Finding the Light in Dementia: A Guide for Families, Friends and Caregivers

A transcript of this episode is available here.

This episode is made possible with support from Altoida.