The Best of Aging Fast & Slow: A Recap of Powerful Conversations
Join hosts Drs. Sarah Szanton and Deidra Crews for a special segment as they recap highlights from past episodes on structural resilience. From enlightening dialogues on health equity to inspiring advice from researchers, they revisit key moments and share their reflections on the insights gained. Whether you’re a longtime listener or new to the show, this episode offers peak moments to savor from many perspectives.
December 18, 2024
by
Aging Fast & Slow
EP 64: The Power of Authentic Leadership in Cultivating Team Success
Creating a thriving, healthy work culture doesn’t happen by chance. It takes authenticity, connection, and a commitment to truly listen to your team.
In this episode, Dr. Alquietta Brown emphasizes building a healthy work culture through authenticity, open communication, and meaningful connection. She highlights the importance of leaders being genuine, actively listening to their team, and fostering collaboration to achieve shared goals and organizational success.
Tune in as Dr. Alquietta Brown shares powerful, actionable strategies for building trust, fostering engagement, and cultivating a workplace where people feel valued, supported, and inspired to excel!
Click this link to the show notes, transcript, and resources: https://healthyworkforceinstitute.com/podcast-episodes/
December 18, 2024
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Coffee Break
AES & SYNGAP1 Conf were great for SynGAP. 2 wks left to raise funds in ‘24 – #S10e156
Tuesday, December 17, 2024
Cure SYNGAP1 Conference - Resounding success https://curesyngap1.org/events/conferences/syngap1-conference-2024/
Summary: http://www.draccon.com/dracaena-report/2024aes
A few comments:
https://www.linkedin.com/posts/richardnovak_clinical-rare-activity-7270806450090786816-m0OV
https://www.linkedin.com/posts/haley-tokars-1b2b38209_i-had-the-privilege-of-attending-my-first-activity-7272056324090159104-xFSZ
https://www.linkedin.com/posts/citizen-health-inc_aes2024-rareasone-activity-7270694148825845760-AIzF
https://www.linkedin.com/posts/graglia_syngap-dreem-eeg-activity-7271993151131660288-GESyhttps://www.linkedin.com/posts/praxis-precision-medicines-inc_epilepsy-aes2024-ugcPost-7273392536130355200-x2pqhttps://www.linkedin.com/posts/syngap1-argentina-382156240_por-tercer-a%C3%B1o-consecutivo-syngap-argentina-activity-7271911668522098688-JlrW
https://www.linkedin.com/posts/stoke-therapeutics_aes2024-epilepsy-activity-7273445932107538433-akYf
Pre-register now: December 4 & 5 – https://cureSYNGAP1.org/Pre25,
https://investor.stoketherapeutics.com/events/event-details/understanding-dravet-syndrome-unmet-need-and-potential-disease-modification
STUDIES AND TRIALS ARE HAPPENING NOW - https://docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/
Two trials to consider
https://med.stanford.edu/autism/studies/pregnenolone-randomized-controlled-trial.html age 14-25
https://deepdeestudy.com/ list of sites: NJ & FL
BONES
https://youtu.be/RhaJnruZCzk?si=bnPtYPsRhOChfsH0
https://curesyngap1.org/blog/navigating-a-lifetime-of-diagnoses-michaels-syngap1-journey-and-the-effects-of-anti-seizure-medications-on-bone-density/
FUNDRAISING
Coast2Coast Challenge $207,974 Syngap.Fund/C2C
Join my team! https://secure.givelively.org/donate/syngap-research-fund-incorporated/coast2coast-clinics-challenge
FUNDRAISE https://syngap.fund/FR
CFC: #33321 https://curesyngap1.org/srf-cfc-syngap1-combined-federal-campaign/
VOLUNTEER SPOTLIGHT:
Stacey Miller https://curesyngap1.org/team/leadership-team/stacey-miller/
Laura Bermingham of SLC6A1 https://curesyngap1.org/team/volunteers/laura-birmingham/
RESEARCH UPDATE
There are 310 papers on or related to SYNGAP1 since 1998, but 54 of those are in 2024!
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2024&sort=pubdate&timeline=expanded
Latest are from Willsey & Frazier.
Willsey: https://www.biorxiv.org/content/10.1101/2024.12.05.626924v1
Frazier: https://onlinelibrary.wiley.com/doi/full/10.1002/aur.3290
VOLUNTEER
https://curesyngap1.org/volunteer-with-srf/
SOCIAL MATTERS
- 1,240 YouTube. https://www.youtube.com/@CureSYNGAP1
- 3,883 LinkedIn. https://www.linkedin.com/company/curesyngap1/
- 11,739 Twitter https://twitter.com/cureSYNGAP1
- 47k Insta https://www.instagram.com/curesyngap1/
- 464 TikTok https://www.tiktok.com/@curesyngap1
NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources
Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
Episode 156 of #Syngap10
#CureSYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1
December 18, 2024
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SYNGAP10
Promoting Superior Patient-Centered Hernia Care
Send us a textHernia surgery is one of the most common procedures, but the quality of care and post-op treatment can vary widely.What’s behind these variations, and how can we ensure better care for patients?In this episode of HealthBiz Briefs, Dr. Michael Reinhorn and Dr. Nora Fullington dive into the challenges of hernia surgery and explain how Boston Hernia is raising the bar with patient-centered care and improved outcomes.This episode is brought to you by BetterHelp. Give online therapy a try at https://betterhelp.com/caretalk and get on your way to being your best self.As a BetterHelp affiliate, we may receive compensation from BetterHelp if you purchase products or services through the links provided.🎙️⚕️ABOUT CARETALKCareTalk is a weekly podcast that provides an incisive, no B.S. view of the US healthcare industry. Join co-hosts John Driscoll (President U.S. Healthcare and EVP, Walgreens Boots Alliance) and David Williams (President, Health Business Group) as they debate the latest in US healthcare news, business and policy. 🎙️⚕️ABOUT MICHAEL REINHORN M.DDr. Michael Reinhorn is a board-certified general surgeon and Fellow of the American College of Surgeons, specializing in ambulatory hernia surgery with a focus on inguinal, umbilical, and epigastric hernias. Based near Boston, his practice serves New England with surgical care provided at Newton-Wellesley Hospital, Boston Outpatient Surgical Suites, and the Surgery Center of New Hampshire. With over 23 years of experience and more than 5,400 hernia operations performed, Dr. Reinhorn is a recognized expert in minimally invasive hernia surgery, emphasizing opioid reduction and value-based care. He consults for the American Board of Surgery, co-chairs the opioid reduction task force for the ACHQC, and represents the Americas Hernia Society on the ACHQC board. A dedicated educator, researcher, and volunteer with The Schwartz Center for Compassionate Healthcare, Dr. Reinhorn is committed to improving patient outcomes and advancing hernia care.🎙️⚕️ABOUT NORA FULLINGTON M.DDr. Nora Fullington is a board-certified general surgeon and Fellow of the American College of Surgeons, specializing in minimally invasive hernia and gallbladder surgery. With over 2,000 operations performed as a hospital-based surgeon, she joined the practice in 2021 and has since completed more than 1,000 hernia surgeries. Dr. Fullington is an expert in open preperitoneal mesh and non-mesh repairs, as well as laparoscopic techniques for patients who benefit from minimally invasive approaches. A national authority on hernia repair, she has published peer-reviewed studies, delivered lectures on improving patient outcomes, and brings expertise in gallbladder surgery to the practice. Passionate about patient-centered care, she ensures every patient feels heard and valued. Dr. Fullington also demonstrates her commitment to humanitarian medicine through surgical mission trips to Haiti and advocacy for humanism in healthcare.🎙️⚕️ABOUT BOSTON HERNIABoston Hernia is a specialized surgical practice dedicated to providing expert care for hernia and gallbladder conditions. With a focus on minimally invasive techniques and patient-centered treatment, the team at Boston Hernia delivers exceptional outcomes through personalized care plans, advanced surgical approaches, and a commitment to reducing recovery times. Serving patients across New England, Boston Hernia is known for its expertise, compassionate care, and dedication to improving the lives of thoSupport the showCareTalk: Healthcare. Unfiltered. is produced by Grippi Media.
December 18, 2024
by
CareTalk Podcast
#284: Celebrating the Success Stories of Breakthrough Year Mastermind Participants and their Spouses
In this episode of The TRU Leader Podcast, Michelle and Tracy are joined by Dr. Mari Tietze and Steve Love, Deb Rio and Mike Edwards, and their husbands- Kevin Moore and Jerry Christopherson and to explore the transformative impact of the Breakthrough Year Mastermind program on personal and relational growth. Through in-person and virtual retreats featuring meditation, journaling, and education, the mastermind fosters deep connections and meaningful self-discovery. Mari and Deb share how the program has boosted their self-esteem and work-life balance, with their husbands’ support playing a vital role in their journey. Steve and Mike reflect on the positive changes in their wives, attributing much of the growth to the leadership group’s influence.
The conversation highlights the value of shared activities, like Enneagram sessions, in strengthening relationships and understanding. Tracy and Michelle’s mindful coaching style and dynamic energy are praised for creating a supportive and uplifting environment that blends laughter with learning. Their book, "Polarity Intelligence: The Missing Logic and Leadership" is also recognized as a key resource for participants' personal growth and happiness. Themes of balance, partnership, and polarity intelligence are emphasized as essential tools for fostering stronger relationships and greater joy in life.
Are you looking for a breakthrough this 2025? Step into the new year the right by joining our Breakthrough Mastermind! We are taking a limited number of leaders into our next mastermind group. Apply for the Breakthrough Year Mastermind in the full show notes below:
For full show notes and links, visit
https://www.missinglogic.com/truleader
If you found value in this episode, please subscribe and leave us a review on Apple Podcasts!
SOCIAL MEDIA LINKS:
https://www.linkedin.com/company/missinglogic-llc
https://www.facebook.com/missinglogicLLC
https://twitter.com/MissingLogicLLC
https://www.instagram.com/missinglogic_llc/
December 18, 2024
by
The TRU Leader Podcast
#112, Defeating the Diseases of Aging with Daniel Ives from Shift Bioscience
Shift Bioscience is a biotech company focused on developing cell rejuvenation therapies to defeat the diseases of aging through novel gene-based interventions.
December 17, 2024
by
AWS Health Innovation Podcast
A Conversation with Highmark Leaders – Innovations in Digital and Hybrid Care
Doug Henry, PhD, Vice President and Medical Director of Enterprise Behavioral Health at Highmark Health, and Mari Vandenburgh, Vice President of Health Programs and Solutions at Highmark Health, join Eric to share Highmark’s innovative approaches to transforming care delivery through digital and hybrid solutions. Topics include: Post-Acute Care Innovations: AHN At-Home Care program’s multidisciplinary approach integrates mental health support to reduce readmissions and save $600 PMPM in total care costs. Addressing Network and Access Gaps: Highmark’s strategic initiatives to expand access through geo-analysis, virtual-first strategies, and enhanced provider partnerships. Virtual Mental Health: A closer look at Highmark’s partnership with Spring Health to provide personalized, outcome-driven mental health care, achieving symptom remission in six weeks or less for 70% of patients with moderate to severe conditions. Living Health Strategy: Leveraging personalized nudges and integrated digital platforms to boost member engagement, with 79% receiving their first mental health care through the program. Innovation for Loneliness and Beyond: Doug shares groundbreaking grant projects, such as using technology and social prescriptions to address loneliness and improve senior care outcomes. This episode is packed with actionable insights for health plans seeking to close access gaps, enhance member experience, and drive measurable outcomes in mental health and beyond. Tune in to learn from Highmark’s bright spots and discover strategies to replicate their success. About Doug and Mari Doug is a clinical psychologist licensed in Pennsylvania and California and brings over 20 years of experience in professional applied psychology, including inpatient, outpatient, and administrative assignments. Attracted by the integrated payer-provider model and emphasis on patient-centered treatment, he joined the Allegheny Health Psychiatry and Behavioral Health Institute in 2017 as vice president. In addition to his role at the enterprise, he continues to serve as a leadership dyad for the Institute. Before joining AHN, Dr. Henry served as clinical administrator at Western Psychiatric Institute and Clinic for UPMC Child and Adolescent Behavioral Health Services, the UPMC Center for Autism and Developmental Disorders, and the UPMC Center for Eating Disorders. Mari is responsible for identifying and managing best-in-class healthcare solutions to improve Quadruple Aim outcomes related to chronic and episodic clinical conditions and validating multi-year business case value drivers and ROI. She has been with Highmark in various roles since 2005. Mari has a Bachelor of Science from Duquesne and a Master of Health Administration from the University of Pittsburgh. About Highmark Health Highmark Health is a $27 billion national, blended health organization with one of America’s largest Blue Cross Blue Shield insurers and a growing regional hospital and physician network. Based in Pittsburgh, Pa., Highmark Health’s 44,000 employees serve millions of customers nationwide through the nonprofit organization’s affiliated businesses, including Highmark Inc., Allegheny Health Network, HM Insurance Group, United Concordia Dental, enGen, and Helion. We’d love to hear from you! Send your comments, suggestions and ideas to [email protected] Visit our website to learn more about the show! www.brightspotsinhealthcare.com
December 17, 2024
by
Bright Spots in Healthcare
Sisterly Shove: Navigating Family Conflicts in Dementia Care with Malia Kline
Family caregiving is a profound and complex journey, particularly when faced with dementia or terminal illnesses. In this podcast episode, a replay of a Books & Chit Chat discussion, we delve into the experiences of Malia Kline, co-author of "Sisterly Shove." She shares her heartfelt story of caring for her aging parents and the intricate dynamics encountered with her physician sister and co-author Diane Stinson.
Malia’s caregiving journey begins with her family grappling with the twin burdens of her father’s dementia and her mother’s pancreatic cancer. Malia and Diane had differing views on their care, which involved moving each parent cross-country from one sister’s care to the other’s. Diane, a pathologist, believed different medical decisions could extend their lives. Malia wished them relief from suffering even if it resulted in death. However, these differing perspectives did not create a chasm between them; instead, they brought the sisters closer in their shared mission. Writing a book with alternating chapters from each perspective helped in this process.
For Malia, writing "Sisterly Shove" with Diane was not just a story-telling endeavor but a therapeutic journey. The collaborative process allowed them to alternate writing and editing chapters, facilitating understanding and maintaining their relationship. Their book provides an intimate perspective on caregiving challenges, sibling dynamics, and their fight against the medical establishment.
Through excerpts read during the podcast, we gain insights into how the sisters' different approaches reflected their childhood personalities and shaped their caregiving strategies. Malia emphasizes the importance of journaling and writing as tools for preserving memories and coping with the complex emotions of caregiving.
In this episode, you will:
Understand the impact of dementia on the entire family dynamic, not just the individual.Learn how to navigate complex sibling dynamics in elder care to foster a more cohesive and collaborative caregiving approach.Discover effective coping strategies when caring for a loved one with dementia, creating a more harmonious caregiving environment.See how writing is a powerful tool for processing and managing the emotional complexities of caregiving.
After the Podcast
Purchase Sisterly Shove
Learn more about Malia at AlzAuthors.com
and “Dementia with Difficult People”
Learn more about the Moderators
Marianne Sciucco
Christy Byrne Yates
Learn more about Aging & Amazing
Sign up for the book club
About the Podcast
AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.
Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.
We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.
Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.
Thanks for listening.
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December 17, 2024
by
Untangling Alzheimer’s & Dementia, an AlzAuthors Podcast