SYNGAP10 – Ep. 8 – BREAKING NEWS 🚨re ICD-10 & other goodness around #SSB30 & #sprint4syngap
This episode is an absolute must. Don’t miss it.
– Reminder that #SSB30 is happening now, the first pharma sponsored study on #ciitizen. If you are enrolled in Ciitizen, start doing your seizure tracker today:
🔗 https://Syngap.Fund/ST
– If you have not yet signed up for Ciitizen, there is still time, it’s free: https://www.ciitizen.com/syngap1/
– 🚨 Breaking: We have reason to believe that we will get an ICD-10 code in June, effective 10/1/21. This is a big deal.
Background link: https://www.syngapresearchfund.org/post/syngap-could-have-an-icd-10-code-f78-a1-as-soon-as-next-year
Referenced link from podcast: https://www.cms.gov/medicare/acute-inpatient-pps/fy-2022-ipps-proposed-rule-home-page
– #Sprint4Syngap raised $122,500+. Huge thanks to everyone. Two great videos of the community building that took place are:
Colombia 🇨🇴 https://youtu.be/4jYGJJnbLf8
Boston https://youtu.be/edlfSW1kvKE
– Welcome to 4 new families just diagnosed in the past week. 🤯
– If you want to support SRF, call us, there is some much good work to do!
This is a podcast, sign up via your favorite service or watch previous episodes at: https://www.syngapresearchfund.org/syngap10-podcast
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Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message
