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SYNGAP10 – Ep. 6 – 16 April 2021 – Newsletter, SSB, Ciitizen growth, Frazier, Sprint, ICD-10 & you are not alone.

SYNGAP10

SYNGAP10 – Ep. 6 – 16 April 2021 – Newsletter, SSB, Ciitizen growth, Frazier, Sprint, ICD-10 & you are not alone.

April 17, 2021

SYNGAP10 – Ep. 6 – 16 April 2021 – Newsletter, SSB, Ciitizen growth, Frazier, Sprint, ICD-10 & you are not alone.

SRF Newsletter yesterday, make sure you sign up!

  • SSB is off and running.
  • Webinars, another tomorrow in Spanish
  • Sprint next Saturday – April 24th
  • Celebrating Caren is now live and about to go on the circuit thanks Nancy, Daniel & illumina

SSB – Seizure sleep and behavio

  • Do the surveys!  Links are in the newsletter and here:
  • syngap.fund/ssb-Behavior
  • syngap.fund/ssb-sleep
  • syngap.fund/ST

STXBP1 has joined ciitizen – Now they are joining SYNGAP1, FOXG1 Tess Research (slc13a5), Rett
SCN2A via Praxis, SCN8A & BPAN

Tom Frazier (Autism Speaks, CSO) has completed Phase 1 of NET, now working on the tool.  He was just on the Today Show 2 weeks ago. – Here we are partnering with Malan, PTEN & ADNP.

Sprint4Syngap is going strong: $69k+!  Way to go #TeamMyla!

FondoSyngap.org is live, great work Vicky & Marta!

We asked for an ICD10 code over a year ago – CDKL5, Dravet, Angleman’s all have one, what’s going on?

You’re not alone, reach out: [email protected]

Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message

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