#SYNGAP10 – Ep. 15 – 18 July 2021 – Splash & #SYNGAPlove in 3 days, DSC & BCH Grants, more ICD attention!
#SPLASH4SYNGAP is on MONDAY.
- 3 days until June 21st!
- Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap
- Use hashtag #SYNGAPlove & #Splash4SYNGAP
DSC & BCH – It’s go time! Let’s raise some funds. Read the blogs
- Syngap.fund/biomarker = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
- Syngap.fund/BCH = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
- EveryLife case study! https://everylifefoundation.org/icd-code-roadmap/#toggle-id-13
- Dravet Business Cards. Copying is great! Copy us.
- ONE YEAR SOONER: Reminder why all this matters https://www.syngapresearchfund.org/post/oneyearsooner
ORCA: Via CB we are in. Stay tuned here. SYNGAP1 is one of the validation teams
- Rett Press Release https://www.prweb.com/releases/rett_syndrome_research_trust_announces_development_o[…]on_ability_of_individuals_with_rett_syndrome/prweb18012275.htm
- DUKE FDA GRANT https://populationhealth.duke.edu/news/orca-measure-expands-more-neurodevelopmental-diseases
GRANDPARENTS group is going strong
- Tell your parents about https://syngap.fund/grand = https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1
- Also had the c.333del (6!) and regular wednesday bit.ly/SRFHH at 5 PM Pacific.
Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message