Peter Halliburton, SYNGAP1 Dad & head of SRF’s Resource Mobilization team, joins Ashley.
Show Notes:
In episode 7, SYNGAP1 Dad Peter Halliburton joins Ashley to discuss volunteering with SRF in the “early days” compared to now, receiving his son Carter’s diagnosis, dealing with seizures, changing doorknobs, and appreciating the joys in Carter’s daily life.
Follow Peter Halliburton:
Contact Peter at [email protected].
More about the Halliburton Family:
Cook Children’s Hospital Article
Blog by Peter – 8 Months on the Rollercoaster of – Mostly – Uncontrolled Epilepsy
Blog by Peter – What Do You Mean, “Cure SYNGAP1”
Follow Ashley Frye:
SynGAP Stories Episode 001 – Ashley Frye
SynGAP Stories Episode 005 – Panda
Panda’s News Story: Nathan’s Dog
SRF & SYNGAP1 Info:
Donate: https://Syngap.Fund/Donate
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Connect with SRF (@curesyngap1):
SYNGAP10 Weekly Video Podcast w/ Mike
SYNGAP1 Conference 2023, hosted by SRF – Hotel Reservations
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID – 972 0059 2178 Passcode – 848417
Comments: [email protected]
Music: In the Forest… by Lesfm from Pixabay
Episode 007 SynGAP Stories, May 2, 2023
#SyngapStoriesCarter #Volunteer #SRFVolunteer #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
