It’s Ashley’s turn, as she talks about her beginnings of volunteering for SRF and what she’s working on now! Pickleball, anyone?
Show Notes:
In episode 6, we turn the tables on our host. Ashley talks about volunteering for SynGAP Research Fund, organizing the SYNGAP1 Conference 2023 hosted by SRF, and the first SynGAP Paddle Slap coming up on May 6 in Oxford, MS.
SYNGAP1 Conference 2023, hosted by SRF – Hotel Reservations
SynGAP Paddle Slap – https://Syngap.Fund/Paddle23
The Farmstead, Oxford, MS
Live Band – Rocket 88
Bounce Castles donated by Blue Line Inflatables
Follow Ashley Frye:
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
SynGAP Stories Episode 001 – Ashley Frye
SynGAP Stories Episode 005 – Panda
Panda’s News Story: Nathan’s Dog
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://Syngap.Fund/Donate
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Connect with SRF (@curesyngap1):
SYNGAP10 Weekly Video Podcast w/ Mike
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID – 972 0059 2178 Passcode – 848417
Comments: [email protected]
Music: In the Forest… by Lesfm from Pixabay
Episode 006 SynGAP Stories, April 18, 2023
#SyngapStoriesPaddleSlap #SRFConference #Pickleball #Volunteer #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
