Our Host – Ashley Frye tells her family’s SYNGAP1 Story
Show Notes:
Host Ashley Frye discusses her family’s journey to a SYNGAP1 diagnosis for her son Nathan and living with and caring for a young child with a rare disease.
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Follow Ashley:
Facebook: https://www.facebook.com/ashley.hewettfrye
LinkedIn: https://www.linkedin.com/in/ashley-frye-62095582/
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Connect with SRF:
Facebook: https://www.facebook.com/cureSYNGAP1
Twitter: https://twitter.com/intent/user?screen_name=cureSYNGAP1
Instagram: https://www.instagram.com/curesyngap1/
LinkedIn: https://www.linkedin.com/company/18940628/admin/
TikTok: https://www.tiktok.com/@curesyngap1
SYNGAP10 Weekly Video Podcast with Mike: https://www.youtube.com/playlist?list=PLjpr3a14_ls38mAeOZeErFpEjbrw5mGhR
Cannonball For A Cure: https://www.syngapresearchfund.org/post/pr-12-ufd-tech-hosts-second-annual-cannonball-for-the-cure-charity-stream-to-benefit-syngap-research-fund
Wednesday Zoom Meeting for Syngap Families:
Syngap.Fund/SRFfam Meeting ID – 972 0059 2178 Passcode – 848417
Comments and suggestions: [email protected]
Music: In the Forest… by Lesfm from Pixabay
Episode 001 SynGAP Stories, February 7, 2023
#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
