Keep growing our community, we need each other – Episode 28 of #Syngap10 – September 24th, 2021
– Correction: Last week, reminder, we are here to clear the path for whomever wins, we don’t care who wins we want this race to be won and easier to finish for everyone.
– Big thought: Complex Population, about to get more complex, “Post-Intervention”
– Sign up for Ciitizen: https://www.ciitizen.com/syngap1/
– Remember that Duke presentation, here it is: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant/
– Next week, lets’ get connected Global Genes Conference https://globalgenes.org/event/rare-patient-advocacy-summit/
– Simons Searchlight in Spanish, English is still being scheduled: https://syngap.fund/SimonsSearchlight/
– Interesting paper on #SYNGAP1 and Sleep, the best part is the suggestion at the end to use this for a clinical endpoint! https://twitter.com/cureSYNGAP1/status/1439825860245090306?s=20
– Not Alone Coloring Book! https://syngap.fund/notalone
– Cannonball 11 DAYS . 3 dads driving across the US https://syngap.fund/cball #UFDcure
– Go to the GALA! 29 DAYS! https://syngap.fund/gala
– Easy to do https://syngap.fund/GNP
– Donate to our current effort for Clinical Trial Readiness https://Syngap.Fund/CTR
– Sign up for this #podcast #SYNGAP10 here https://syngap.fund/10
– What is #SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1
#F78A1 #ICD10 #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
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