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Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

SYNGAP10

Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

Episode 22 of #Syngap10 - August 13th, 2021 - Webinars      -https://Syngap.fund/eduardo  August 19 at 10 am PST      -https://Syngap.fund/ana  Sept 2 at 10 am PST - Mugs mugs mugs      -https://twitter.com/AAledo/status/1426207246149636099  -…
August 13, 2021

Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

Episode 22 of #Syngap10 – August 13th, 2021

– Webinars

     –https://Syngap.fund/eduardo  August 19 at 10 am PST

     –https://Syngap.fund/ana  Sept 2 at 10 am PST

– Mugs mugs mugs

     –https://twitter.com/AAledo/status/1426207246149636099 

– Blog: Genetics article is a must read for new families 

     – https://www.syngapresearchfund.org/post/what-should-i-ask-in-my-genetics-appointment-for-syngap1 

– Genetic Counselors

     – Tell me about your experience

     – What do they need to know?

     – Hug them

– Ciitizen

     – Count 110 + 12, let’s keep going, 28 spots left!

     – Panel https://www.facebook.com/cureSYNGAP1/videos/221755526409431/

     – Sign up https://ciitizen.com/syngap1 

– Cure

     – Rarebase article https://www.rarebase.org/post/what-does-it-mean-to-find-a-cure-for-a-disease 

     – See episode 19. Yes, we need to reach for this

     – We may not know what is coming, but we need to work for it

 

– One Upon a Gene

     – 94 https://effieparks.com/podcast/episode-094-mike-and-nasha 

     – 41 https://effieparks.com/podcast/episode-41-syngap-research-fund

– Cures go through clinical trials. Get ready: https://syngap.fund/ctr – $36k!

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