Telling our story and why it matters.
Episode 23 of #Syngap10 – August 10th, 2021
Eduardo webinar was amazing, it’s on FB Live and we will have the YouTube up soon. Remember to register for Ana in September https://Syngap.Fund/Ana
SYNGAP1 is on the Compassionate Access List (CAL) for the SSA. This just happened and it’s due to the work of one of our families, thank you! https://Syngap.Fund/SSA
Great scientist conversations this week.
- New researcher looking into SYNGAP1, connecting with local families
- Rockstars reviewing a multi-gene grant
- One senior scientist called to say he’s got Fish and we should let people know.
Stories I will tell to help bring home how not simple this life is.
- Jadyne https://www.facebook.com/whatweneedyesterday
- Kyle https://www.youtube.com/channel/UCCbBNmkHLwba–nQ8LX0WCQ
- Carter https://www.youtube.com/watch?v=f6DsFUz-6HM
- Emmitt https://www.youtube.com/watch?v=tOampbK0uy0
- Amelia https://www.youtube.com/watch?v=gvwJqF_kuBI
What is SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1
Donate to our current effort for Clinical Trial Readiness https://Syngap.Fund/CTR
Sign up for this #podcast #SYNGAP10 here https://syngap.fund/10
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