#SYNGAPconf22 was a hit, join us in 2023… #S10e86
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JACKIE KANCIR STORY
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SCIENCE DAY AGENDA
https://twitter.com/sandysmith317/status/1598322472037801984
FAMILY DAY AGENDA
8:30 AM SYNGAP1 CAREGIVERS: REALITY, RESILIENCE AND RESOURCES – Becky 10:45 AM REGISTRIES – Invitae, Simons, Rare-X w/Q&A
12:15 PM GETTING CLINICAL TRIAL READY – Kathie Bishop, Acadia
1:15 PM PRAXIS
1:40 PM TAKING ON BEHAVIORS – Jackie Kancir, SYNGAP1 Mom & Advocate
2:30 PM MORE OF EVERYTHING BOOK LAUNCH – Janie Reade, SYNGAP1 Mom & Author
3:20 PM SRF LATIN AMERICA – FONDO DE INVESTIGATION SYNGAP – Vicky
3:45 PM SRF YEAR IN REVIEW – Rebecca, Peter, Pavel
4:30 PM LOOKING TO THE FUTURE – Mike
6:30 PM COMMUNITY DINNER
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 86 of #Syngap10 – December 29, 2022
#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
