Happy National Caregiver Day! #s10e48
Happy National Caregiver Day!
The Data Sharing Panel next week will be epic, don’t miss:
https://syngap.fund/data
Tweet: https://twitter.com/curesyngap1/status/1493282864263090181
Use you ICD Codes! F78.A1 if you want background:
https://syngap.fund/icd10 – https://syngap.fund/icd11 – https://syngap.fund/F78A1
SRF Case Study here: https://ICDCodeRoadmap.org
Get your EEG Tracings! In EDF format.
Make sure you connect with us to be connected with the community, either on our reg page or on Facebook:
https://syngap.fund/fb goes to https://www.facebook.com/groups/syngap
https://www.syngapresearchfund.org/families/connect-with-us
Sign up for Ciitizen, make sure you are included: https://ciitizen.com/Syngap1
Zempleni Webinar: Milk exosomes to increase the expression of SYNGAP1 in SYNGAP1 mice March 3, 2022 @ 9am PT/12pm ET https://syngap.fund/zempleni
2nd Annual #Sprint4Syngap is coming April 30, 2022, help us raise funds by starting a team and/or donating!
Sign up now: https://syngap.fund/sprint2022
Get a shirt: https://www.bonfire.com/sprint-for-syngap-2022/
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 48 of #Syngap10 – February 18, 2022
#datasharing #biorasi #EEG #ICD10 #F78A1 #ciitizen #SYNGAP1 #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
—
Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message
