Building the SYNGAP1 SRF House – using the Milken Fastercures Research Partnership Maturity Model – #S10e98
Milken Fastercures RPMM
– So much strong work and thinking here!
https://milkeninstitute.org/centers/fastercures/train/toolkits/RPMM
– Three floors: Start by doing what’s necessary; then do what’s possible; and suddenly you are doing the impossible. – St. Francis of Assisi
– Cool Tweet: https://twitter.com/LindsayOkamoto/status/1639017493007335425?s=20
Why we need a house?
www.fpwr.org – www.jdrf.org – www.runx1-fpd.org
Press is key! Congrats to Peggy
Amazing Webinars
– Jillian McKee – April 27th – https://syngap.fund/mckee
Ciitizen SYNGAP1 count is at 211! Sign up or Update your Ciitizen Records
– Sign-UP https://ciitizen.com/syngap1
– Sign-IN https://app.ciitizen.com/
#Sprint4Syngap – 36 days, April 29, 2023
– Fundraising page: https://secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2023
#MDBRSRF – 79 days – June 10, 2023
#SyngapConf – 252 days – book now, November 30, 2023
– Conf pre-registration link: Syngap.Fund/2023conf
– We have signed with a hotel/venue, please stay tuned for room link
– Large Latin Contingent too, just another this morning.
There is so much work to do, volunteer Info@SyngapResearchFund.org
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
– https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts:
Episode 98 of #Syngap10 – March 23, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
