Stacey Miller, 2024 SYNGAP1 Conference Director, chats with new co-host Rainy Schlosser about the conference and Stacey’s son, Jack.
Show Notes
Stacey Miller, SRF’s 2024 SYNGAP1 Conference Director and SRF’s State Ambassador (Idaho), talks all things Conference, connecting with the SRF community, her son Jack’s diagnosis, seizures, behavioral issues, and how her family’s SYNGAP1 life impacts Jack’s older sibling, Ava.
All episodes are available at Syngap.Fund/Stories.
Connect with Stacey
Connect with Rainy:
- [email protected]
- Rainy’s SRF Bio
- Instagram – @Hope4theCure
- YouTube – @Hope4theCure
- Facebook – Hope SelahMay
- SYNGAP1 Stories Episode 028
SRF & SYNGAP1 Info:
- What is SYNGAP1?
- Syngap Research Fund – https://curesyngap1.org/
- SYNGAP1 Resources for Newly Diagnosed Families
- Donate to SRF
- Get Involved with SRF
- SRF’s State Ambassador Program
- Wednesday Warriors
- Supporting SYNGAP1 Siblings
- SYNGAP1 & Epilepsy
- Why Getting a Genetic Diagnosis Matters
- How to Get Free Genetic Testing
- Special Needs Trusts
- Details for SYNGAP1 Conference 2024
- Addressing the Symptoms of SYNGAP1
Connect with SRF (@curesyngap1):
- Facebook
- Twitter
- Instagram
- LinkedIn
- TikTok
- YouTube
- SYNGAP10 Weekly Video Podcast w/ Mike
- SynGAP Research Fund Apple Podcast Channel
Family Zoom Meeting (Weekly on Wednesdays, 8PM ET):
- Syngap.Fund/SRFfam Meeting ID – 972 0059 2178 Passcode – 848417
Comments: [email protected]
Music: In the Forest… by Lesfm from Pixabay
Episode 029 SYNGAP1 Stories, November 19, 2024
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