Ashley chats with SRF Co-Founder, and SYNGAP1 Mom to Tony, Ashley Evans on the 5th birthday of SRF!
Show Notes:
In Episode 11, our host, Ashley, chats with SRF Co-Founder and SYNGAP1 Mom Ashley Evans to celebrate SRF’s 5th birthday! They talk about starting SRF, progress made during the past five years, the dedicated community of SRF volunteers, hope for the future, moving, and, of course, Syngapian Tony and his now 5-year-old brother John.
Ashley’s SRF bio
Tony’s Warrior Story
More links:
Interview with Kayo Conferences
SRF Introductory Video
A Message to the Newly Diagnosed SynGAP-1 Parent
Meet the Global Village of Syngap Leaders
SRF Newsletter Special 5th Birthday Issue 6/27/23
Pathways to a Cure for SYNGAP1
Follow Ashley Frye:
SYNGAP1 Stories Episode 001 – Ashley Frye
SYNGAP1 Stories Episode 005 – Panda
Panda’s News Story: Nathan’s Dog
SRF & SYNGAP1 Info:
Donate: https://Syngap.Fund/Donate
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Connect with SRF (@curesyngap1):
SYNGAP10 Weekly Video Podcast w/ Mike
SYNGAP1 Conference 2023, hosted by SRF – Hotel Reservations
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID – 972 0059 2178 Passcode – 848417
Comments: [email protected]
Music: In the Forest… by Lesfm from Pixabay
Episode 011 SYNGAP1 Stories, June 27, 2023
#SYNGAP1StoriesTony #Syngap #SYNGAP1 #SYNGAP1Stories #siblings #SYNGAP1siblings #founder #rarediseasesiblings #epilepsy #epilepsyawareness #autism #autismawareness #intellectualdisability #id #anxiety #raredisease #rarediseaseresearch #SynGAPResearchFund #careaboutrare #advocacy #patientadvocacy #neurology #yoga
