Our kids will live long lives and do beautiful things, let’s make sure we help them as much as possible.
Episode 35 of #Syngap10 – November 12th, 2021
HOLIDAY GIFTS – GET SRF #MERCH
5 days left to order Hoodies, T-shirts, other gear:
– https://syngap.fund/LHC or https://syngap.fund/BKC
– Get your holiday cards at Minted.com and use code FUNDRAISESYNGAP
FOUR STUDIES are enrolling now/soon:
– Dr. Andrade – Watch the video and let us know if you have an adult who would like to participate. https://youtu.be/WyhRDePe0Jc
– Dr. Frazier – Reach out to [email protected] to participate. Here is the webinar. https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients
– ORCA – Once we get the greenlight from FDA we will start recruiting. Here is a link with more info: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant
– We have less than 20 spots left in this cohort of Ciitizen, sign up in the next 10 days: https://Ciitizen.com/SYNGAP1
CRYPTO
– Jack Shi interview on
https://twitter.com/cureSYNGAP1/status/1459165110862168066?s=20
https://www.linkedin.com/feed/update/urn:li:activity:6864944054384279552
https://www.facebook.com/cureSYNGAP1/posts/910882546460875
– Donate Crypto to SRF https://syngap.fund/block
HELP US RAISE FUNDS FOR SYNGAP
– Facebook Fundraisers: http://syngap.fund/FBFun
– Giving Tuesday Fundraiser: https://syngap.fund/gt21
– What is SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1
– Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10
#NFTs #crypto #unlockdefi #Bonfire #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
