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Ep. 64: Health Data Privacy Regulations – Vince Kuraitis and Deven McGraw

Deven McGraw , JD, MPH, LLM is the Chief Regulatory Officer at Ciitizen (and former official at OCR and ONC). Vince Kuraitis, JD/MBA is an independent healthcare strategy consultant with over 30 years’ experience across 150+ healthcare organizations. He blogs at e-CareManagement.com. Together, they have written a fantastic series called the Health Data Goldilocks Dilemma which sheds light on the many complex issues related to our ever-increasing demand for health data and privacy law. https://thehealthcareblog.com/the-health-data-dilemma-sharing-privacy-both/ Ciitizen Website: https://www.ciitizen.com/ Deven McGraw’s Medium: https://medium.com/@ciitizen Vince’s website: http://e-caremanagement.com/ Vince’s 143 Healthcare ICO list, last updated Oct. 2018: https://docs.google.com/spreadsheets/d/1TANOZmuYtVhyn1C9PV6YLsOBlQNOEOBExB7u2_Kkork Show Notes •Introduction of Deven's and Vince's background •Journey into healthcare law, privacy standards, and current positions •Healthcare industry expectations during COVID19 pandemic •When did you first hear about blockchain? •Deven - Responsibilities at Ciitizen Health as Chief Regulatory Officer and vision as a company •Vince - Principal, blogger, and consulting work at Better Health Technologies •What is the government doing well to address the serious pandemic situation? •Contact tracing - Apple and Google Exposure notification API platform for public health organizations •Data privacy - Realistic technology expectations - HIPAA •Data Goldilocks concept •Unique privacy and security attributes of DLT •Deven- Ciitizen Scorecard? •What advice would you give larger EMR companies like Epic and Cerner? •Advice to healthcare regulators? •Deven - Ciitizen's investors include Andreessen Horowitz, Verily, and Intermountain healthcare •What do you disagree on? •Recommended resources -https://medium.com/@tomaspueyo/coronavirus-the-hammer-and-the-dance-be9337092b56 •Wrap-up and Final Takeaways News Corner https://finance.yahoo.com/news/hashcashs-post-pandemic-plans-streamline-070000831.html In May, HashCash Consultants announces a plan to streamline the medical supply chain by forming a consortium of medical equipment suppliers, pharmaceuticals and medical goods manufacturers, distributors and other key players. Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Disclaimer: Remember, the Health Unchained podcast is for informational and entertainment purposes only and we are not providing any sort of legal, financial, or medical advice. Please do your own research and due diligence before making any important decisions related to these matters.
May 24, 2020
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Ep. 63: Healthcare Smart Contracts with DAML – Corey Todaro (Digital Asset)

Corey Todaro is Senior Product manager at Digital Asset. Corey also spent a few years at Hashed Health, one of the earliest companies trying to bring blockchain tech to healthcare. We talked about the effects of COVID19 on the healthcare system, the development of DAML, and how healthcare stakeholders feel about all these new technologies. DAML is completely open-source programming language for writing distributed applications and the well supported SDK is available on DAML.com. Show Notes •Introduction of Corey's background in education and cultural/religious studies •Journey into technology, business, and healthcare in your career •COVID19 pandemic has revealed that the healthcare industry is over-optimized •When did you first hear about blockchain? •Experience at Hashed Health •Designing DLT solutions in the healthcare industry •DAML is an open source programming language for dapps •“DAML sits at a higher level of abstraction closer to the business layer than to the persistence layer (database/blockchain layer)” •DAML is blockchain protocol agnostic – it’s interoperable with multiple blockchains •Why is DAML unique compared to other smart contract programming languages? •Governance best practices that you've learned are prerequisites for network success •Healthcare Consortia •Structure of a good multi-party application deployment •What are the biggest misconceptions of blockchain when you speak with various healthcare executives? •FHIR and Consumer health data ecosystem •How can various healthcare stakeholders benefit from a decentralized ecosystem? (Patients, providers, payers, pharma, and research) •Industry Partners and customer traction - existing partners and pilot projects •Digital Asset is backed by large banks and institutions. Is there a consideration for the crypto communities who believe blockchain and cryptocurrency will end the big banks? •Can you describe the competitive and/or cooperative landscape? •What do you believe in that most people would disagree with? – “Religion is an artificial construct” •Favorite books: Map is not Territory by Jonathon Z. Smith; Where wizards stay up late by Katie Hafner; Contract theory by Patrick Bolton; Moonshine behind the Monster by Terry Gannon. •Have you changed your mind on anything recently and what made you change it? Corey thinks Decentralized Identity actually has some potential now •If you had to have micro chip implanted in your body, where would you want it to be implanted? Ears or Eyes •Coping with physical distancing measures •Wrap-up and Final Takeaways News Corner links On May 7th, Zoom announced its acquisition of Keybase to strengthen its security of the video communications platform. Keybase, which launched in 2014, has developed an encrypted social networking service that allows users to tie their identities to a user’s PGP key or other encryption keys. https://blog.zoom.us/wordpress/2020/05/07/zoom-acquires-keybase-and-announces-goal-of-developing-the-most-broadly-used-enterprise-end-to-end-encryption-offering/ https://blog.zoom.us/wordpress/2020/03/30/using-zoom-for-telehealth-virtual-care/ https://decrypt.co/28121/keybase-users-revolt-following-zoom-acquisition https://www.forbes.com/sites/kateoflahertyuk/2020/05/07/zoom-buys-keybase-in-powerful-security-move-how-this-could-change-everything/ Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
May 11, 2020
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Ep. 62: Open Science Distributed – Sean Manion, PhD (CSO ConsenSys Health)

Dr. Sean Manion, Chief Scientific Officer at ConsenSys Health and founder of Science Distributed. He has BS in Biochemistry and PhD in Neuroscience. He served as Deputy Chief of Staff and later as Research Activities Chief as a federal civilian for the Defense and Veterans Brain Injury Center (DVBIC). Website: https://sciencedistributed.com Blockchain for Medical Research Book: https://www.amazon.com/dp/0367347466/ref=cm_sw_r_tw_dp_U_x_7uGPEb6GZ3ST5 Show Notes •Journey into technology, science, and healthcare in your career •Progression of science in society •Co-authoring and Publishing Blockchain for Medical Research •Problems of Publish or Perish mentality and incentives •Vision for Science Distributed •Scaling science infinitely •The current state of Health Research in the world and US •What factors contributed to your pursuit and decision to become Chief Scientific Officer at ConsenSys Health? •Sean’s role and goals at ConsenSys Health •COVID-19 pandemic as a tipping point for the economy and healthcare •Virtual Hackathons and the rise in virtual work in society •Overview of Stop COVID-19 Hackathon by ConsenSys Health where Sean is a competition judge •The blockchain of science (proof of science) •Effects of pandemic on the stakeholders of science (Funders, Researchers, Publishers, End Users) •Using COVID-19 viral and antibody testing shortages as an example, why can blockchain help? •In what adoption sequence would you expect different stakeholders in science to buy-in to the integration of blockchain in health research? •Do you think progress in medicine has been slowing down? All of the discoveries of the the last ~50 - 60 years pale in comparison to those of the preceding 50 - 60 (antibiotics, basic hygiene, vaccinations, etc) •Focusing on federally funded medical research specifically, how would you rate our institutions' response to the COVID-19 crisis? •Data Privacy concerns and opportunities for blockchain •Favorite Scientist- American Philosopher Daniel Dennett •Favorite book - What Do You Do with an Idea? by Kobi Yamada •What are your thoughts about the technological singularity that is supposed to happen in 2045? •Final takeaways for the audience Health Unchained New Corner IBM has recently launched a network called Rapid Supplier Connect to link healthcare providers with medical equipment suppliers. "It typically takes about four to six weeks for buyers to vet and onboard new vendors or suppliers after they find each other", said Mark Treshock, IBM’s global blockchain solutions leader for healthcare and life sciences. "The goal is to have a range of trusted global suppliers on the blockchain network that can provide health-care organizations with about 15 types of medical equipment, including masks, ventilators, dialysis machines and oxygen masks. The vendors are vetted by the Worldwide Supply Chain Federation, Project N95 and others." https://www.wsj.com/articles/a-cryptocurrency-technology-finds-new-use-tackling-coronavirus-11587675966?mod=rsswn Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
April 26, 2020
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Ep. 61: Decentralized Identity – Carsten Stocker, PhD (CEO Spherity)

Carsten Stocker, founder and CEO of Spherity, which is building a blockchain and cloud based identity solution. We talk about a variety of blockchain ecosystems related to self-sovereign identity and concepts like the digital twin. Spherity was founded in November 2017 and employs currently 12 people. His company is based in Berlin, Germany and were recently part of a government sponsored hackathon where they built a solution called E-receipt to digitally prove a patient’s identity when getting a prescription. Company Website: https://spherity.com/ Show Notes •Introduction of Carsten's background in Germany •Journey into information technology, consulting, business and healthcare •When did you first hear about blockchain? •Ethereum and meeting Vitalik Buterin (Founder of Ethereum) •Blockchain adoption and awareness in healthcare developing globally and domestically •Blockchain in Germany and Europe - How has the Ministry of Health advanced digital health efforts? •WirVsVirus - Hackathon experience: https://medium.com/spherity/spherity-contributes-to-wirvsvirus-hackathon-for-corona-virus-solutions-3c59b1557fdf, •e-Rezept: https://devpost.com/software/e-rezept-digitale-rezepte-zur-vermeidung-von-arztbesuchen#updates •Avoiding unneccessary brick-and-mortar clinical visits •Social Distancing effects on prescription fetching •Decentralized Identity Management - why is it so challenging? •Business development strategy: Focus on customers and companies that are technology literate, not wasting time •Pretty Good Privacy (PGP), pairwise pseudonymous identifier, and other digital privacy methodologies •Self-sovereign identity (SSI) •Digital Twin concept and the story of everything •Technology Stack: World Wide Web Consortium (W3C) standards, Ethereum, Sovrin and Hyperledger Indy •Dynamically defined supply chains •Open Software and Consumer health data ecosystems •Biggest blockchain misconceptions from healthcare executives •How can various stakeholders benefit by using your identity platform? •Data Privacy concerns and opportunities for blockchain •What are the failure points of your platform? •How can you break the status quo with Innovation? •Telegram community question: Could e-Rezept be combined with some sort of location beacon (maybe FOAM? foam.space) and allow for medications to be delivered by drone? •Ecosystem roadmap 2020 and beyond •Favorite scientist of all time – physicist Lev Landau (https://en.wikipedia.org/wiki/Lev_Landau) •How are you occupying yourself in self-quarantine? Health Unchained New Corner On April 10, Google and Apple announced a joint effort to use Bluetooth technology to help governments and health agencies reduce the spread of the virus, with user privacy and security central to the design. https://www.apple.com/newsroom/2020/04/apple-and-google-partner-on-covid-19-contact-tracing-technology/ Singapore has already developed an app called TraceTogether that also uses Bluetooth to detect possible contact with an infected person. Although Singapore claims that Tracetogether data older than 21 days will automatically be deleted, many critics argue that this type of data collection is only increasing the level of government surveillance. TraceTogether is developed by the Ministry of Health and Government Technology Agency (GovTech), in support of SGUnited. https://www.tracetogether.gov.sg/ SafeTrace: Privacy-Preserving Contact Tracing for COVID-19 (https://blog.enigma.co/safetrace-privacy-preserving-contact-tracing-for-covid-19-c5ae8e1afa93) Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
April 13, 2020
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Ep. 60: COVIDathon – Decentralized AI Hackathon (featuring 3 Judges)

COVIDathon - Virtual Hackathon - develop and launch open-source code using AI and/or blockchain to combat COVID-19, reduce risks from future infectious outbreaks, and cope with the COVID-19 pandemic situation. Phase 1 submission deadline is April 30, 2020 https://covidathon.devpost.com/ Show Notes 3 Guests - COVIDathon Judges •NiMA Asghari (Berlin)– Ecosystem Accelerator at Ocean Protocol •Robert Miller (Maryland, US)- ep. 43 –Senior consultant - ConsenSys Health (https://soundcloud.com/healthunchained/ep-43-separating-hype-from-reality-robert-miller-senior-consultant-at-consensys-health) •Jonathan Passerat Palmbach (London, UK)– Research Scientist - ConsenSys Health •COVID19 hackathons growth and purpose •COVIDathon structure and rules •Sponsoring Partners - Decentralized AI Alliance, SingularityNET, and Ocean Protocol •Advantages of using Blockchain for privacy preserving AI •Consensys health – Federated Learning Research (https://www.researchgate.net/publication/336868499_A_blockchain-orchestrated_Federated_Learning_architecture_for_healthcare_consortia) •OpenMined is an open-source community whose goal is to make the world more privacy-preserving by lowering the barrier-to-entry to private AI technologies: https://Openmined.org •Private Kit: Safe Paths; Privacy-by-Design Contact Tracing: https://safepaths.mit.edu/ •Reputation Protocol for open Collaboration: https://sourcecred.io/ •Stop COVID-19 Hackathon by ConsenSys Health: https://consensyshealth.com/covid-19/ •NiMA's Episode 1 of Voices of Data Economy podcast presented by Ocean Protocol: https://open.spotify.com/show/47Yg2zvkP0uvXdCH1l3ike •Mentorship opportunities •Importance of Teambuilding for sustainable solutions •Goals of the non-profit (DAIA foundation) Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
April 5, 2020
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Ep. 59: Tracking COVID19 On Hashgraph – Jim Nasr (CEO Acoer)

Jim Nasr, CEO of Acoer, and his team has built a trusted coronavirus tracking dashboard (https://www.acoer.com/coronavirus) using Hedera Hashgraph, a next generation decentralized ledger technology. The data is pulled from multiple sources including the World health organization and the Center for Disease Control and Prevention where Jim was previously Chief Software Architect. Jim also co-founded Armedia, a Enterprise Content Management company, in 2002 and exited in 2016. Show Notes •Journey into technology, business and healthcare •COVID-19 tipping point for the economy and healthcare •When did you first hear about blockchain? •Three pillars of Acoer: Usable software, interoperability (Open APIs), blockchain technology •Hashlog – Data Visualization Engine •Hashload – Secure data and file exchange •Hedera Hashgraph – Differentiating protocol qualities and Hedera developer community network •Insights from the blockchain based coronavirus tracking on Acoer •What did you find surprising about the CDC when you first joined? •How is blockchain adoption and awareness in healthcare developing globally and domestically? •What are the biggest misconceptions of blockchain when you speak with various healthcare executives? It doesn’t scale is a common copout for executives to not start a blockchain project. •Healthcare Data Provenance •What does computational trust mean? •Primary Data Collection strategies •Data Privacy concerns and opportunities for blockchain •Using Game Theory to incentivize good behavior •What are the failure points of the platform? •How is data sharing being redefined in our society as we deal with a pandemic? •Value of patient data and individual rights •What do you believe in that most people would disagree with? •Ecosystem roadmap 2020 and beyond •Favorite book – The power of habit by Charles Duhigg •If it’s not too personal, what would you consider to be your biggest mistake? •How are you occupying yourself in self-quarantine? Health Unchained News Corner 1. #BuildforCOVID19 Global Online Hackathon (https://covid-global-hackathon.devpost.com/) had a submission deadline as March 30 and currently has over 17k participants, which is insane for a hackathon. Companies like Amazon, Facebook, Giphy, Microsoft, Pinterest, Salesforce, Slack, TikTok, Twitter, and WeChat are supporting this hackathon. 2. IBM’s Call for Code Global Challenge - COVID-19: Fight the global pandemic (https://developer.ibm.com/callforcode/getstarted/covid-19/). This hackathon was kicked off on March 20 and will accept initial submissions by April 27th 3. COVIDathon Decentralized AI against Covid-19 (https://covidathon.devpost.com/) is accepting submissions April 1st to June 1st 2020 – The Decentralized AI Alliance, SingularityNET and Ocean Protocol are leading this hackathon to Build privacy-centric solutions for CoVID19 using AI & Blockchain technologies. Health Unchained podcast is for informational and entertainment purposes only and we are not providing any sort of legal, financial, or medical advice. Please do your own research and due diligence before making any important decisions related to these matters. Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
March 28, 2020
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Ep. 58: Healthcare Industry Revolution – Heather Flannery (CEO ConsenSys Health)

Heather Flannery is the Chief Executive Officer of ConsenSys Health. On March 2, 2020, Consensys Health was officially spun out of one of the most foundational blockchain focused organizations in the world, ConsenSys AG. She is also a Chair at IEEE Standards Association P2418.6; Co-Founder & Chair, BiHG; Co-Chair, HIMSS Blockchain Task Force. Her previous work included web development, business development, entrepreneurship, Microsoft account tech specialist, Founder of Obesity Prevention, and other policy and management work. Show Notes •Introduction of Heather's background •Coronavirus and HIMSS cancellation •Journey into technology, business, and healthcare in your career •Entrepreneurship as a form of psychopathology •Managing leadership roles in multiple organizations and general blockchain advocacy work •When did you first hear about blockchain? •Origins of ConsenSys AG and the Healthcare subdivision •Why was ConsenSys Health spun off into it's own entity? •Values of ConsenSys: Radical transparency, self-organization, decentralization, self-sovereignty •Decentralization of power-generation in the industrial revolution history •Vision for ConsenSys Health and Company structure •ConsenSys Health services categories: Bioethics, Privacy, Cybersecurity, Identity, Compliance •Blockchain adoption and awareness in healthcare developing globally and domestically •How critical is Ethereum's future success and scalability for ConsenSys Health? •What are the biggest misconceptions of blockchain when you speak with various healthcare executives? •Perspectives from CEOs, CTOs, CIOs, CFOs and their biggest concerns when considering a DLT solution or project •Healthcare consortia- what are they doing right, what can they do better? •How important is community governance when developing a DLT solution? •What are some examples of good blockchain-enabled use cases you are seeing in the marketplace? Bad examples? •How important are HIPAA documentation requirements in the future of healthcare privacy? •Federated analytics and federating machine learning •What do you believe in that most people would disagree with? •Favorite book – Atlas Shrugged by Ayn Rand •What are your thoughts about the AI singularity that is supposed to happen in 2045? News Corner https://hashedhealth.com/procredex-capital-raise On March 5th, 2020, Tampa-based Professional Credentials Exchange LLC (ProCredEx) announced that it raised $3.5M in an initial seed round of funding. ProCredEx has developed a digital marketplace using DLT and machine learning technology to provide a solution for provider credentialing organizations to share, exchange, and monetize their credentialed data with a secure and private platform. ProCredEx has partnered with R3 and has a license to build its marketplace on top of R3’s Corda Enterprise. Check out episode 31 to learn more about how provider credentialing can be improved with DLT. Related Episode: https://soundcloud.com/healthunchained/ep31-provider-credentialing-anthony-begando-ceo-procredex Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
March 15, 2020
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Ep. 57: General Purpose Healthcare Framework – Tatyana Kanzaveli (CEO Open Health Network)

Tatyana Kanzaveli, TedX speaker, successful computer scientist and data lover who started off her career as a multi-disciplinary consultant at Pricewaterhousecoopers. She had many leadership roles throughout her career and started her own company a few years ago after being diagnosed with cancer. Her company, Open Health Network is a general purpose platform that leverages AI and blockchain to create a personalized patient experience that can be whitelabeled for enterprise clients. Show Notes •Introduction of Tatyana's background •Journey from Azerbaijan to the US and into healthcare entrepreneurship •Experience being diagnosed with cancer •Experience navigating the healthcare system •Origins of Open Health Network- problem statement, value proposition •How did you first hear about blockchain technology? •Does OHN need blockchain? Why? •General technical specifications (architecture) of OHN •Network Nodes and governance? •Data storage •Data Marketplace •Security Requirements •How is OHN leveraging Big data and AI to enhance user experience? •My Cardiac Coach developed by the American Heart Association uses the OHN platform. •What is PatientSphere? •Product development updates •Customers - adoption challenges in different markets •Industry Partners and concept traction - existing partners and pilot projects •Can you describe the competitive landscape and any direct competitors to your business? •Platform/Ecosystem roadmap 2020 and beyond •Name a business leader or industry leader that inspires you- Esther Dyson •What do you like to do during your free time? Tatyana is a grandmother and previous chess master. Health Unchained News Corner https://consensys.net/blog/press-release/consensys-announces-healthcare-spin-off-consensys-health/ On February 20, 2020, Brooklyn-based ConsenSys announced it will spin off it’s sub-division that focused on healthcare into it’s own company called ConsenSys Health. ConsenSys Health will continue to leverage ConsenSys’ suite of tools and infrastructure, including Codefi, Infura, and PegaSys. The global lead for the healthcare vertical at ConsenSys, Heather Flannery, will lead the new company as CEO. Heather has worked on mission-driven projects for over 25 years making measurable societal contributions in business, technology, and healthcare. Related: https://soundcloud.com/healthunchained/ep-10-genetics-marketplace-ethics-dr-david-koepsell-ceo-encrypgen Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind Bert’s Blockchain and Healthcare Weekly Newsletter: https://bert.substack.com/
March 1, 2020
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