8: Power in Numbers
In 1994, Phyllis Mate led a small, dedicated group of women to found the National Vulvodynia Association, the NVA. Their mission was to be the central destination for the most up to date resources and research on vulvodynia. The problem? There wasn’t any medical information on the condition. On today’s episode we learn how a small group of vulvodynia patients fought for research and solutions to a problem they were taught not to talk about.
*Two quick disclaimers about this episode:*
Firstly, we want to be clear that not all women have vaginas, and that not all people with vaginas are women. In this episode, you’ll hear the term “women” used to be consistent with clinical research and data available on this topic. However, vulvar pain can affect people of all genders and across the spectrum of gender identities.
Secondly, the National Vulvodynia Association is one of the sponsors of season one, yet they had no editorial power over the episode.